Functionally Univentricular Heart and the Fontan Operation: Lessons Learned About Patterns of Practice and Outcomes From the Congenital Heart Surgery Databases of the European Association for Cardio-Thoracic Surgery and the Society of Thoracic Surgeons

World Journal for Pediatric and Congenital Heart Surgery

Volumn 4, Issue 4, 2013, Pages 349-355

  Jacobs, Jeffrey Phillip ^a   Maruszewski, Bohdan ^b  

^a FLORIDA HOSPITAL   (United States)

^b CHILDREN'S MEMORIAL HEALTH INSTITUTE   (Poland)

Author keywords

cardiac surgery; congenital heart disease; database; Fontan; functionally univentricular heart; outcomes; results of treatment; single ventricle

Indexed keywords

CARDIAC SURGERY; CONGENITAL HEART DISEASE; DATABASE; FONTAN; FUNCTIONALLY UNIVENTRICULAR HEART; OUTCOMES; RESULTS OF TREATMENT; SINGLE VENTRICLE;

DATABASES, FACTUAL; EUROPE; FONTAN PROCEDURE; HEART DEFECTS, CONGENITAL; HEART VENTRICLES; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PHYSICIAN'S PRACTICE PATTERNS; RETROSPECTIVE STUDIES; SOCIETIES, MEDICAL;

ARTICLE; CARDIOVASCULAR MALFORMATION; DOUBLE INLET LEFT VENTRICLE; EUROPE; FENESTRATION; FONTAN PROCEDURE; FONTAN REVISION; HEART LEFT VENTRICLE MASS; HEART SINGLE VENTRICLE; HUMAN; HYPOPLASTIC LEFT HEART SYNDROME; MORTALITY; NORTH AMERICA; PRIORITY JOURNAL; SURGICAL TECHNIQUE; TREATMENT OUTCOME; TRICUSPID VALVE ATRESIA;

EID: 84902597929     PISSN: 21501351     EISSN: 21500136     Source Type: Journal    
DOI: 10.1177/2150135113494228     Document Type: Article

References (27)

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2. Jacobs ML, Jacobs JP, Franklin RC, et al. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease—the perspective of cardiac surgery. In: 2008 Supplement to Cardiology in the Young: Databases and the Assessment of Complications Associated With the Treatment of Patients With Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. JacobsJP, ed. Cardiol Young. 2008; 18 (S2)(suppl 2): 101–115.
3. Jacobs JP, Maruszewski B, Kurosawa H, et al. Congenital heart surgery databases around the world: do we need a global database? Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010; 13(1):3–19.
4. Jacobs JP, Franklin RC, Jacobs ML, et al. Classification of the functionally univentricular heart: unity from mapped codes. In: 2006 Supplement to Cardiology in the Young: Controversies and Challenges in the Management of the Functionally Univentricular Heart. JacobsJP,WernovskyG,GaynorJW,AndersonRH, eds. Cardiol Young. 2006; 16(suppl 1):9–21.
5. Jacobs M, Mayer JE. Congenital heart surgery nomenclature and database project: single ventricle. In: The Annals of Thoracic Surgery April 2000 Supplement: The International Congenital Heart Surgery Nomenclature and Database Project. Mavroudis C, Jacobs JP, eds. Ann Thoracic Surg. 2000; supplement:S 197–S204.
6. Jacobs JP, Jacobs ML, Mavroudis C, et al. Atrioventricular septal defects: lessons learned about patterns of practice and outcomes from the Congenital Heart Surgery Database of the Society of Thoracic Surgeons. World J Pediatr Congenit Heart Surg. 2010; 1(1):68–77.
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9. Jacobs JP. Tetralogy of fallot: lessons learned from the database of the Society of Thoracic Surgeons. Presented at: Inaugural Meeting of the World Society for Pediatric and Congenital Heart Surgery, Washington, DC; May 3, 2007.
10. Maruszewski B. Tetralogy of fallot: lessons learned from the database of the european association for cardio-thoracic surgery. Presented at: Inaugural Meeting of the World Society for Pediatric and Congenital Heart Surgery, Washington, DC; May 3, 2007.
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12. Maruszewski B. AV septal defect: lessons learned from the EACTS database. Presented at: Second Scientific Meeting of the World Society for Pediatric and Congenital Heart Surgery at the Fifth World Congress of Pediatric Cardiology & Cardiac Surgery, Convention Centre, Cairns, Queensland, Australia; June 23, 2009.
13. Jacobs JP. Transposition of the great arteries: lessons learned from the STS database. Presented at: Multi-Societal Joint Meeting of the World Society for Pediatric and Congenital Heart Surgery (WSPCHS) dedicated to Aldo R. Castañeda, Antigua, Guatemala; July 15-17, 2010.
14. Maruszewski B. Transposition of the great arteries: lessons learned from the EACTS database. Presented at: Multi-Societal Joint Meeting of The World Society for Pediatric and Congenital Heart Surgery (WSPCHS) dedicated to Aldo R. Castañeda, Antigua, Guatemala; July 15-17, 2010.
15. Jacobs JP. Heterotaxy: experience in North America and lessons learned from the STS database. Presented at: Regional Meeting of the World Society for Pediatric and Congenital Heart Surgery, Shanghai, China; October 21-22, 2010.
16. Jacobs JP. Functionally univentricular heart: lessons learned from the STS database. Presented at: Third Scientific Meeting of the World Society for Pediatric and Congenital Heart Surgery, June 23-26, 2011, Swissotel, The Bosphorus, Istanbul, Turkey; June 24, 2011.
17. Maruszewski B. Functionally univentricular heart: lessons learned from the EACTS database. Presented at: Third Scientific Meeting of The World Society for Pediatric and Congenital Heart Surgery, June 23-26, 2011, Swissotel, The Bosphorus, Istanbul, Turkey; June 24, 2011.
18. Franklin RC, Jacobs JP, Krogmann ON, et al. Nomenclature for congenital and paediatric cardiac disease: historical perspectives and the international pediatric and congenital cardiac code. In: 2008 Supplement to Cardiology in the Young: Databases and the Assessment of Complications Associated With the Treatment of Patients With Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Jacobs JP, ed. Cardiol Young. 2008; 18 (S2)(suppl 2): 70–80.
19. Mavroudis C, Jacobs JP, eds. International congenital heart surgery nomenclature and database project. Ann Thoracic Surg. 2000; 69(suppl 1):1–372.
20. STS Congenital Heart Surgery Database Data Specifications Version 3.0 http://www.sts.org/documents/pdf/CongenitalDataSpecificationsV3_0_20090904.pdf. Accessed December 26, 2009.
21. Mavroudis C, Deal BJ, Backer CL, et al. Maxwell Chamberlain memorial paper for congenital heart surgery. 111 Fontan conversions with arrhythmia surgery: surgical lessons and outcomes. Ann Thorac Surg. 2007; 84(5):1457–1465.
22. Jacobs JP, Haan CK, Edwards FH, et al. The rationale for incorporation of HIPAA compliant unique patient, surgeon, and hospital identifier fields in the STS database. Ann Thorac Surg. 2008; 86(3):695–968. doi:10.1016/j.athoracsur.2008.04.075.
23. Jacobs JP, Jacobs ML, Mavroudis C, et al. Nomenclature and databases for the surgical treatment of congenital cardiac disease—an updated primer and an analysis of opportunities for improvement. In: 2008 Supplement to Cardiology in the Young: Databases and the Assessment of Complications Associated With the Treatment of Patients With Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Jacobs JP, ed. Cardiol Young. 2008; 18 (S2)(suppl 2): 38–62.
24. Dokholyan RS, Muhlbaier LH, Falletta J, et al. Regulatory and ethical considerations for linking clinical and administrative databases. Am Heart J. 2009; 157(6):971–982.
25. Jacobs JP, Edwards FH, Shahian DM, et al. Successful linking of the Society of Thoracic Surgeons Adult Cardiac Surgery Database to centers for medicare and medicaid services medicare data. Ann Thorac Surg. 2010; 90(4):1150–1157.
26. Pasquali SK, Jacobs JP, Shook GJ, et al. Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population. Am Heart J. 2010; 160(6):1099–1104.
27. Jacobs JP, Edwards FH, Shahian DM, et al. Successful linking of the Society of Thoracic Surgeons Database to social security data to examine survival after cardiac operations. Ann Thorac Surg. 2011; 92(1):32–39.