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Volumn 36, Issue 13, 2014, Pages 1100-1107

Life on hold: The experience of living with neuromyelitis optica

Author keywords

Daily activities; Lived experience; Neuromyelitis optica; Qualitative research; Relapses

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; DAILY LIFE ACTIVITY; DISABILITY; FEMALE; HUMAN; INTERVIEW; MALE; MIDDLE AGED; NEUROMYELITIS OPTICA; PATHOPHYSIOLOGY; PSYCHOLOGY; QUALITATIVE RESEARCH; RECURRENT DISEASE; SOCIAL SUPPORT;

EID: 84902520926     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2013.833301     Document Type: Article
Times cited : (28)

References (32)
  • 2
    • 84879983472 scopus 로고    scopus 로고
    • Current concept of neuromyelitis optica (NMO) and NMO spectrum disorders
    • Jacob A, McKeon A, Nakashima I, et al. Current concept of neuromyelitis optica (NMO) and NMO spectrum disorders. J Neurol Neurosurg Psychiatry 2013;84:922-30
    • (2013) J Neurol Neurosurg Psychiatry , vol.84 , pp. 922-930
    • Jacob, A.1    McKeon, A.2    Nakashima, I.3
  • 4
    • 77955456303 scopus 로고    scopus 로고
    • Interferon Beta treatment in neuromyelitis optica
    • Palace J, Leite I, Nairse A, Vincent A. Interferon Beta treatment in neuromyelitis optica. Arch Neurol 2010;66:1016-17
    • (2010) Arch Neurol , vol.66 , pp. 1016-1017
    • Palace, J.1    Leite, I.2    Nairse, A.3    Vincent, A.4
  • 5
    • 84866054959 scopus 로고    scopus 로고
    • Does natalizumab therapy worsen neuromyelitis opticä
    • Jacob A, Hutchinson M, Elsone L, et al. Does natalizumab therapy worsen neuromyelitis opticä. Neurology 2012;79:1065-6
    • (2012) Neurology , vol.79 , pp. 1065-1066
    • Jacob, A.1    Hutchinson, M.2    Elsone, L.3
  • 6
    • 84881503875 scopus 로고    scopus 로고
    • The epidemiology of neuromyelitis optica amongst adults in the Merseyside county of U.K
    • Jacob A, Panicker J, Lythgoe D, et al. The epidemiology of neuromyelitis optica amongst adults in the Merseyside county of UK. J Neurol 2013;260:2134-7
    • (2013) J Neurol , vol.260 , pp. 2134-2137
    • Jacob, A.1    Panicker, J.2    Lythgoe, D.3
  • 7
    • 79955581259 scopus 로고    scopus 로고
    • A population-based study of neuromyelitis optica in Caucasians
    • Asgari N, Lillevang S, Skejoe H, et al. A population-based study of neuromyelitis optica in Caucasians. Neurology 2011;76: 1589-95
    • (2011) Neurology , vol.76 , pp. 1589-1595
    • Asgari, N.1    Lillevang, S.2    Skejoe, H.3
  • 8
    • 44449090957 scopus 로고    scopus 로고
    • Characteristics of devic's disease (neuromyelitis optica) in mexico
    • Rivera J, Kurtzke J, Booth V, Corona VT. Characteristics of Devic's disease (neuromyelitis optica) in Mexico. J Neurol 2008; 255:710-15
    • (2008) J Neurol , vol.255 , pp. 710-715
    • Rivera, J.1    Kurtzke, J.2    Booth, V.3    Corona, V.T.4
  • 9
    • 80055078651 scopus 로고    scopus 로고
    • AQP4 antibody-positive Thai cases: Clinical features and diagnostic problems
    • Siritho S, Nakashima I, Takahashi T, et al. AQP4 antibody-positive Thai cases: Clinical features and diagnostic problems. Neurology 2011;77:736-42
    • (2011) Neurology , vol.77 , pp. 736-742
    • Siritho, S.1    Nakashima, I.2    Takahashi, T.3
  • 10
    • 0037432257 scopus 로고    scopus 로고
    • Neuromyelitis optica: Clinical predictors of a relapsing course and survival
    • Wingerchuk DM, Weinshenker BG. Neuromyelitis optica: Clinical predictors of a relapsing course and survival. Neurology 2003;60: 848-53. (Pubitemid 36297372
    • (2003) Neurology , vol.60 , Issue.5 , pp. 848-853
    • Wingerchuk, D.M.1    Weinshenker, B.G.2
  • 11
    • 84864805525 scopus 로고    scopus 로고
    • A practical guide to the treatment of neuromyelitis optica
    • Palace J, Leite I, Jacob A. A practical guide to the treatment of neuromyelitis optica. Pract Neurol 2012;12:209-14
    • (2012) Pract Neurol , vol.12 , pp. 209-214
    • Palace, J.1    Leite, I.2    Jacob, A.3
  • 12
    • 79955985808 scopus 로고    scopus 로고
    • Current and future treatment approaches for neuromyelitis optica
    • Collongues N, De Seze J. Current and future treatment approaches for neuromyelitis optica. Ther Adv Neurol Disord 2011;4:111-21
    • (2011) Ther Adv Neurol Disord , vol.4 , pp. 111-121
    • Collongues, N.1    De Seze, J.2
  • 13
    • 80055085027 scopus 로고    scopus 로고
    • Pain in neuromyelitis optica and its effect on quality of life: A cross-sectional study
    • Kanamori Y, Nakashima I, Takai Y, et al. Pain in neuromyelitis optica and its effect on quality of life: A cross-sectional study. Neurology 2011;77:652-8
    • (2011) Neurology , vol.77 , pp. 652-658
    • Kanamori, Y.1    Nakashima, I.2    Takai, Y.3
  • 14
    • 84877847662 scopus 로고    scopus 로고
    • Neuropathic pruritus (itch) in neuromyelitis optica
    • Elsone L, Townsend T, Mutch K, et al. Neuropathic pruritus (itch) in neuromyelitis optica. Mult Scler 2012;19:475-9
    • (2012) Mult Scler , vol.19 , pp. 475-479
    • Elsone, L.1    Townsend, T.2    Mutch, K.3
  • 15
    • 84865643977 scopus 로고    scopus 로고
    • Painful tonic spasm in neuromyelitis optica: Incidence, diagnostic and clinical characteristics
    • Kim SM, Go MJ, Sung JJ, et al. Painful tonic spasm in neuromyelitis optica: Incidence, diagnostic and clinical characteristics. Arch Neurol 2012;69:1026-31
    • (2012) Arch Neurol , vol.69 , pp. 1026-1031
    • Kim, S.M.1    Go, M.J.2    Sung, J.J.3
  • 16
    • 0031253329 scopus 로고    scopus 로고
    • The lived experience of relapsing Multiple Sclerosis: A phenomenological study
    • Miller CM. The lived experience of relapsing Multiple Sclerosis: A phenomenological study. J Neurosci Nurs 1997;29:294-304
    • (1997) J Neurosci Nurs , vol.29 , pp. 294-304
    • Miller, C.M.1
  • 17
    • 0036417122 scopus 로고    scopus 로고
    • A purposeful approach to the constant comparative method in the analysis of qualitative interviews
    • Boeje H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant 2002;36: 391-409
    • (2002) Qual Quant , vol.36 , pp. 391-409
    • Boeje, H.1
  • 19
    • 84865552027 scopus 로고    scopus 로고
    • Living well with rheumatoid arthritis
    • Squire R. Living well with rheumatoid arthritis. Musculoskeletal Care 2012;10:127-34
    • (2012) Musculoskeletal Care , vol.10 , pp. 127-134
    • Squire, R.1
  • 20
    • 84861312076 scopus 로고    scopus 로고
    • MS and me: Exploring the impact of multiple sclerosis on perceptions of self
    • Mozo-Dutton L, Simpson J, Boot J. MS and me: Exploring the impact of multiple sclerosis on perceptions of self. Disabil Rehabil 2012;34:1208-17
    • (2012) Disabil Rehabil , vol.34 , pp. 1208-1217
    • Mozo-Dutton, L.1    Simpson, J.2    Boot, J.3
  • 21
    • 84874924558 scopus 로고    scopus 로고
    • Narrative review of the literature on adherence to disease-modifying therapies among patients with multiple sclerosis
    • Menzin J, Caon C, Nichols C, et al. Narrative review of the literature on adherence to disease-modifying therapies among patients with multiple sclerosis. J Manag Care Pharm 2013;19:S24-40
    • (2013) J Manag Care Pharm , vol.19
    • Menzin, J.1    Caon, C.2    Nichols, C.3
  • 22
    • 34447572979 scopus 로고    scopus 로고
    • Effectiveness of strategies for informing, educating, and involving patients
    • Coulter A, Ellins J. Effectiveness of strategies for informing, educating and involving patients. BMJ 2007;335:24-7. (Pubitemid 47066902
    • (2007) British Medical Journal , vol.335 , Issue.7609 , pp. 24-27
    • Coulter, A.1    Ellins, J.2
  • 23
    • 17444453945 scopus 로고    scopus 로고
    • The role of specialist nurses in multiple sclerosis: A rapid and systematic review
    • De Broe S, Christopher F, Waugh N. The role of specialist nurses in multiple sclerosis: A rapid and systematic review. Health Technol Assess 2001;5:1-52
    • (2001) Health Technol Assess , vol.5 , pp. 1-52
    • De Broe, S.1    Christopher, F.2    Waugh, N.3
  • 24
    • 2942691407 scopus 로고    scopus 로고
    • A survey of the information needs of people with multiple sclerosis
    • DOI 10.1177/1460458204040668
    • Hepworth M, Harrison J. A survey of the information needs of people with Multiple Sclerosis. Health Inform J 2004;10:49-69. (Pubitemid 38780092
    • (2004) Health Informatics Journal , vol.10 , Issue.1 , pp. 49-69
    • Hepworth, M.1    Harrison, J.2
  • 25
    • 50549084786 scopus 로고    scopus 로고
    • What can we learn from the personal insights of individuals living and coping with multiple sclerosis?
    • Malcomson KS, Lowe-Strong AS, Dunwoody L. What can we learn from the personal insights of individuals living and coping with multiple sclerosis?. Disabil Rehabil 2008;30:662-74
    • (2008) Disabil Rehabil , vol.30 , pp. 662-674
    • Malcomson, K.S.1    Lowe-Strong, A.S.2    Dunwoody, L.3
  • 26
    • 84865384019 scopus 로고    scopus 로고
    • The experiences and needs of persons with spinal cord injury who can walk
    • Jannings W, Pryor J. The experiences and needs of persons with spinal cord injury who can walk. Disabil Rehabil 2012;34: 1820-26
    • (2012) Disabil Rehabil , vol.34 , pp. 1820-1826
    • Jannings, W.1    Pryor, J.2
  • 27
    • 0034235566 scopus 로고    scopus 로고
    • Anxiety and depression after spinal cord injury: A longitudinal analysis
    • DOI 10.1053/apmr.2000.5580
    • Kennedy P, Rogers BA. Anxiety and depression after spinal cord injury: A longitudinal analysis. Arch Phy Med Rehabil 2000;81: 932-7. (Pubitemid 30460809
    • (2000) Archives of Physical Medicine and Rehabilitation , vol.81 , Issue.7 , pp. 932-937
    • Kennedy, P.1    Rogers, B.A.2
  • 28
    • 84860121562 scopus 로고    scopus 로고
    • Factors influencing acceptance of disability in individuals with spinal cord injury in Neiva, Columbia, South America
    • Nicholls E, Lehan T, Plaza SL, et al. Factors influencing acceptance of disability in individuals with spinal cord injury in Neiva, Columbia, South America. Disabil Rehabil 2012;34:1082-8
    • (2012) Disabil Rehabil , vol.34 , pp. 1082-1088
    • Nicholls, E.1    Lehan, T.2    Plaza, S.L.3
  • 29
    • 80053308338 scopus 로고    scopus 로고
    • Getting on with life: Positive experiences of living with a spinal cord injury
    • Weitzner E, Sarca S, Wiese S, et al. Getting on with life: Positive experiences of living with a spinal cord injury. Qual Health Res 2011;21:1455-68
    • (2011) Qual Health Res , vol.21 , pp. 1455-1468
    • Weitzner, E.1    Sarca, S.2    Wiese, S.3
  • 30
    • 84860114627 scopus 로고    scopus 로고
    • Emotional well-being and adjustment to vision loss in later life: A meta-synthesis of qualitative studies
    • Nyman S, Dibb B, Victor C. Emotional well-being and adjustment to vision loss in later life: A meta-synthesis of qualitative studies. Disabil Rehabil 2012;34:971-81
    • (2012) Disabil Rehabil , vol.34 , pp. 971-981
    • Nyman, S.1    Dibb, B.2    Victor, C.3
  • 31
    • 31144440486 scopus 로고    scopus 로고
    • Understanding the process of adjustment to illness
    • DOI 10.1016/j.socscimed.2005.07.010, PII S0277953605003813
    • Sharpe L, Curran L. Understanding the process of adjustment to illness. Soc Sci Med 2006;62:1153-66. (Pubitemid 43129580
    • (2006) Social Science and Medicine , vol.62 , Issue.5 , pp. 1153-1166
    • Sharpe, L.1    Curran, L.2
  • 32
    • 0031598517 scopus 로고    scopus 로고
    • Sense making in multiple sclerosis: The information needs of people during an acute exacerbation
    • Baker LM. Sense making in multiple sclerosis: The information needs of people during an acute exacerbation. Qual Health Res 1998;8:106-20.
    • (1998) Qual Health Res , vol.8 , pp. 106-120
    • Baker, L.M.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.