Childhood cancer survivors' primary care and follow-up experiences

Supportive Care in Cancer

Volumn 22, Issue 6, 2014, Pages 1629-1635

  Kirchhoff, Anne C ^a,b   Montenegro, Roberto E ^c   Warner, Echo L ^a   Wright, Jennifer ^a,b   Fluchel, Mark ^a,b   Stroup, Antoinette M ^d,e   Park, Elyse R ^f   Kinney, Anita Y ^g,h  

^a UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF UTAH   (United States)

^c YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d RUTGERS SCHOOL OF PUBLIC HEALTH   (United States)

^e RUTGERS CANCER INSTITUTE OF NEW JERSEY   (United States)

^f MASSACHUSETTS GENERAL HOSPITAL   (United States)

^g UNIVERSITY OF NEW MEXICO SCHOOL OF MEDICINE   (United States)

^h UNIVERSITY OF NEW MEXICO   (United States)

Author keywords

Childhood cancer survivors; Primary care; Risk based care; Survivor care plans

Indexed keywords

ADULT; ARTICLE; CANCER REGISTRY; CANCER SURVIVOR; CHILDHOOD CANCER; CONTENT ANALYSIS; FEMALE; FOLLOW UP; GENERAL PRACTITIONER; HEALTH CARE COST; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MEDICAL HISTORY; PATIENT CARE PLANNING; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; SEMI STRUCTURED INTERVIEW;

ADOLESCENT; ADULT; CONTINUITY OF PATIENT CARE; FEMALE; FOLLOW-UP STUDIES; HEALTH CARE COSTS; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PRIMARY HEALTH CARE; RURAL POPULATION; SEER PROGRAM; SURVIVORS; UTAH; YOUNG ADULT;

EID: 84902304959     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-014-2130-6     Document Type: Article

References (27)

1. Institute of Medicine. From cancer patient to cancer survivor: lost in transition. Washington D.C.: Committee on Cancer Survivorship: Improving Care and Quality of Life 2006
2. Oeffinger KC, Mertens AC, Sklar CA, Kawashima T, Hudson MM, Meadows AT et al (2006) Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 355(15): 1572-1582 (Pubitemid 44547808)
3. Aziz NM, Oeffinger KC, Brooks S, Turoff AJ (2006) Comprehensive long-term follow-up programs for pediatric cancer survivors. Cancer 107(4):841-848. doi:10.1002/cncr.22096 (Pubitemid 44232676)
4. Eshelman-Kent D, Kinahan KE, Hobbie W, Landier W, Teal S, Friedman D et al (2011) Cancer survivorship practices, services, and delivery: a report from the Children's Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees. J Cancer Surviv 5(4):345-357. doi:10.1007/s11764- 011-0192-8
5. Nathan PC, Greenberg ML, Ness KK, Hudson MM, Mertens AC, Mahoney MC et al (2008) Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol 26(27):4401-4409
6. Oeffinger KC, Mertens AC, Hudson MM, Gurney JG, Casillas J, Chen H et al (2004) Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Fam Med 2(1):61-70 (Pubitemid 39318021)
7. Oeffinger KC, McCabe MS (2006) Models for delivering survivorship care. J Clin Oncol 24(32):5117-5124. doi:10.1200/JCO.2006.07.0474 (Pubitemid 46623197)
8. Kadan-Lottick NS, Robison LL, Gurney JG, Neglia JP, Yasui Y, Hayashi R et al (2002) Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA : J Am Med Assoc 287(14):1832-1839 (Pubitemid 34303628)
9. Nathan PC, Daugherty CK, Wroblewski KE (2013) Kigin ML. Stewart TV, Hlubocky FJ et al. Family physician preferences and knowledge gaps regarding the care of adolescent and young adult survivors of childhood cancer. J Cancer Surviv. doi:10.1007/s11764-013-0271-0
10. Meacham LR, Edwards PJ, Cherven BO, Palgon M, Espinoza S, Hassen-Schilling L et al (2012) Primary care providers as partners in long-term follow-up of pediatric cancer survivors. J Cancer Surviv 6(3):270-277. doi:10.1007/s11764-012-0224-z
11. Bober SL, Recklitis CJ, Campbell EG, Park ER, Kutner JS, Najita JS et al (2009) Caring for cancer survivors: a survey of primary care physicians. Cancer 115(18 Suppl):4409-4418. doi:10.1002/cncr.24590
12. Nissen MJ, Beran MS, Lee MW, Mehta SR, Pine DA, Swenson KK (2007) Views of primary care providers on follow-up care of cancer patients. Fam Med 39(7):477-482 (Pubitemid 47052517)
13. Del Giudice ME, Grunfeld E, Harvey BJ, Piliotis E, Verma S (2009) Primary care physicians' views of routine follow-up care of cancer survivors. J Clin Oncol 27(20):3338-3345. doi:10.1200/JCO.2008.20.4883
14. Henderson TO, Friedman DL, Meadows AT (2010) Childhood cancer survivors: transition to adult-focused risk-based care. Pediatrics 126(1):129-136. doi:10.1542/peds.2009-2802
15. Albritton KH, Wiggins CH, Nelson HE, Weeks JC (2007) Site of oncologic specialty care for older adolescents in Utah. J Clin Oncol 25(29):4616-4621. doi:10.1200/JCO.2006.08.4103 (Pubitemid 350035321)
16. Steliarova-Foucher E, Stiller C, Lacour B, Kaatsch P (2005) International classification of childhood cancer, 3rd edition. Cancer 103(7):1457-1467. doi:10.1002/cncr.20910 (Pubitemid 40410743)
17. Guest G, Bunce A, Johnson L (2006) How many interviews are enough? An experiment with data saturation and variability. Field Methods 18:59-82
18. Krippendorff K (2013) Content analysis: an introduction to its methodology, 3rd edn. Sage, Thousand Oaks
19. Hudson SV, Miller SM, Hemler J, Ferrante JM, Lyle J, Oeffinger KC et al (2012) Adult cancer survivors discuss follow-up in primary care: 'Not What I Want, But Maybe What I Need'. Ann Fam Med 10(5):418-427. doi:10.1370/afm.1379
20. Cheung WY, Neville BA, Cameron DB, Cook EF, Earle CC (2009) Comparisons of patient and physician expectations for cancer survivorship care. J Clin Oncol 27(15):2489-2495. doi:10.1200/JCO.2008.20.3232
21. Hewitt ME, Bamundo A, Day R, Harvey C (2007) Perspectives on post-treatment cancer care: qualitative research with survivors, nurses, and physicians. J Clin Oncol 25(16):2270-2273. doi:10.1200/JCO.2006.10.0826 (Pubitemid 46954654)
22. Zebrack BJ, Eshelman DA, Hudson MM, Mertens AC, Cotter KL, Foster BM et al (2004) Health care for childhood cancer survivors: insights and perspectives from a Delphi panel of young adult survivors of childhood cancer. Cancer 100(4):843-850 (Pubitemid 38176865)
23. Shalom MM, Hahn EE, Casillas J, Ganz PA (2011) Do survivorship care plans make a difference? A primary care provider perspective. J Oncolo Pract/Am Soc Clin Oncol 7(5):314-318. doi:10.1200/JOP.2010.000208
24. Horowitz ME, Fordis M, Krause S, McKellar J, Poplack DG (2009) Passport for care: implementing the survivorship care plan. J Oncolo Pract/Am Soc Clin Oncol 5(3):110-112. doi:10.1200/JOP.0934405
25. Park ER, Kirchhoff AC, Zallen JP, Weissman JS, Pajolek H, Mertens AC et al. Childhood Cancer Survivor Study participants' perceptions and knowledge of health insurance coverage: implications for the Affordable Care Act. J Cancer Surviv. 2012. doi:10.1007/s11764-012-0225-y
26. Gibson C, Jung K. Historical census statistics on population totals by race, 1790 to 1990, and by Hispanic origin, 1970 to 1990, for the United States, regions, divisions, and states. http://www.census.gov/population/www/ documentation/twps0056/tab59.pdf. Accessed 6 Jan 2013
27. Warner EL, RE M, Stroup A, Kinney AY, Kirchhoff AC. Health care concerns of rural childhood cancer survivors. J Health Care Poor (in press). 2014