Health Care for Childhood Cancer Survivors: Insights and Perspectives from a Delphi Panel of Young Adult Survivors of Childhood Cancer

Cancer

Volumn 100, Issue 4, 2004, Pages 843-850

  Zebrack, Brad J ^a,g   Eshelman, Debra A ^b   Hudson, Melissa M ^c   Mertens, Ann C ^d   Cotter, Kelly L ^e   Foster, Barbara M ^f   Loftis, Lauren ^f   Sozio, Margaret ^f   Oeffinger, Kevin C ^f  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b CHILDREN S MEDICAL CENTER   (United States)

^c ST JUDE CHILDREN S RESEARCH HOSPITAL   (United States)

^d UNIVERSITY OF MINNESOTA   (United States)

^e CHILDREN S ONCOLOGY GROUP   (United States)

^f UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER   (United States)

^g UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Childhood cancer; Delphi panel; Follow up care; Long term studies; Survivor

Indexed keywords

ADULT; ADULTHOOD; ANAMNESIS; ARTICLE; CANCER SURVIVAL; CHILDHOOD CANCER; CLINICAL ARTICLE; FEMALE; FOLLOW UP; HEALTH CARE; HEALTH CARE UTILIZATION; HUMAN; LONG TERM CARE; MALE; MEDICAL EDUCATION; PATIENT EDUCATION; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; QUESTIONNAIRE; RISK FACTOR; SELF CARE; SOCIAL PSYCHOLOGY;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; DELPHI TECHNIQUE; FEMALE; HEALTH CARE SURVEYS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES; HUMANS; INFANT; LONG-TERM CARE; MALE; MIDDLE AGED; NEOPLASMS; PHYSICIAN'S ROLE; QUALITY OF HEALTH CARE; SURVIVORS;

EID: 0842325858     PISSN: 0008543X     EISSN: None     Source Type: Journal    
DOI: 10.1002/cncr.20033     Document Type: Article

References (20)

1. Hewitt M, Weiner SL, Simone J, editors. Institute of Medicine, National Research Council. Childhood cancer survivorship: improving care and quality of life. Washington, DC: National Academy Press, 2003.
2. Mertens AC, Yasui Y, Neglia JP, et al. Late mortality experience in five-year survivors of childhood and adolescent cancer: the Childhood Cancer Survivor Study. J Clin Oncol. 2001;19:3163-3172.
3. Garre ML, Gandus S, Cesana B, et al. Health status of long-term survivors after cancer in childhood. Results of a uniinstitutional study in Italy. Am J Pediatr Hematol Oncol. 1994;16:143-152.
4. Stevens MC, Mahler H, Parkes S. The health status of adult survivors of cancer in childhood. Eur J Cancer. 1998;34:694-698.
5. Sklar CA. Overview of the effects of cancer therapies: the nature, scale and breadth of the problem. Acta Paediatr. 1999;(Suppl 88):1-4.
6. Oeffinger KC, Eshelman DA, Tomlinson GE, Buchanan GR, Foster BM. Grading of late effects in young adult survivors of childhood cancer followed in an ambulatory adult setting. Cancer. 2000;88:1687-1695.
7. Kadan-Lottick NS, Robison LL, Gurney JG, et al. Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA. 2002; 287:1832-1839.
8. Hudson MM, Mertens AC, Yasui Y, et al. Health status of adult survivors who are long-term childhood cancer survivors: a report for the Childhood Cancer Survivor Study. JAMA. 2003;290:1583-1592.
9. Bleyer WA, Smith RA, Green DM, et al. American Cancer Society Workshop on Adolescents and Young Adults with Cancer. Workgroup #1: Long-term care and lifetime follow-up. Cancer. 1993;71:2413.
10. Meadows AT, Black B, Nesbit ME Jr., et al. Long-term survival. Clinical care, research, and education. Cancer. 1993; 71:3213-3215.
11. Neglia JP, Nesbit ME Jr. Care and treatment of long-term survivors of childhood cancer. Cancer. 1993;71:3386-3391.
12. Oeffinger KC. Longitudinal risk-based health care for adult survivors of childhood cancer. Curr Probl Cancer. 2003;27: 143-167.
13. White PH. Access to health care: health insurance considerations for young adults with special health care needs/ disabilities. Pediatrics. 2002;110:1328-1335.
14. Oeffinger KC, Mertens AC, Hudson MM, et al. Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Family Med. In press.
15. Ambrosiadou BV, Goulis DG. The DELPHI method as a consensus and knowledge acquisition tool for the evaluation of the DIABETES system for insulin administration. Med Inform Internet Med. 1999;24:257-268.
16. Chan EC, Sulmasy DP. What should men know about prostate-specific antigen screening before giving informed consent? Am J Med 1998;105:266-274.
17. Jones J, Hunter D. Consensus methods for medical and health services research. BMJ. 1995;311:376-380.
18. Richter A, Ostrowski C, Dombeck MP, Gondek K, Hutchinson JL. Delphi panel study of current hypertension treatment patterns. Clin Ther. 2001;23:160-167.
19. Zebrack B, Walsh-Burke K. Advocacy needs of adolescent and young adult cancer survivors: perspectives of pediatric oncology social workers. J Psychosoc Oncol. In press.
20. Zebrack BJ, Chesler MA. Managed care: the new context for social work in health care-implications for survivors of childhood cancer and their families. Soc Work Health Care. 2000;31:89-103.