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Volumn 29, Issue 7, 2014, Pages 670-681

Participation in biobanks for research by incapacitated adults: Review and discussion of current guidelines

Author keywords

biobanks; bioethics; guidelines; incapacitated adults; neuropsychiatric patients

Indexed keywords

BIOLOGICAL FACTOR;

EID: 84902273905     PISSN: 08856230     EISSN: 10991166     Source Type: Journal    
DOI: 10.1002/gps.4059     Document Type: Review
Times cited : (5)

References (27)
  • 1
    • 4444258303 scopus 로고    scopus 로고
    • Research consent for cognitively impaired adults. Recommendations for Institutional Review Boards and Investigators
    • Alzheimer's Association.
    • Alzheimer's Association. 2004. Research consent for cognitively impaired adults. Recommendations for Institutional Review Boards and Investigators. Alzheimer Dis Assoc Disord 18: 171-175.
    • (2004) Alzheimer Dis Assoc Disord , vol.18 , pp. 171-175
  • 5
    • 33845354052 scopus 로고    scopus 로고
    • Trends in ethical and legal frameworks for the use of human biobanks
    • Cambon-Thomsen A, Rial-Sebbag E, Knoppers BM,. 2007. Trends in ethical and legal frameworks for the use of human biobanks. Eur Respir J 30: 373-382.
    • (2007) Eur Respir J , vol.30 , pp. 373-382
    • Cambon-Thomsen, A.1    Rial-Sebbag, E.2    Knoppers, B.M.3
  • 6
    • 34547963039 scopus 로고    scopus 로고
    • Ethical questions in the treatment of subjects with dementia. Part I. Respecting autonomy: Awareness, competence and behavioural disorders
    • Defanti CA, Tiezzi A, Gasparini M, et al,. 2007. Ethical questions in the treatment of subjects with dementia. Part I. Respecting autonomy: awareness, competence and behavioural disorders. Neurol Sci 28: 216-231.
    • (2007) Neurol Sci , vol.28 , pp. 216-231
    • Defanti, C.A.1    Tiezzi, A.2    Gasparini, M.3
  • 7
    • 0035847590 scopus 로고    scopus 로고
    • Advance directives as acts of communication
    • Ditto PH, Danks JH, Smucker WD, et al,. 2001. Advance directives as acts of communication. Arch Intern Med 161: 421-430.
    • (2001) Arch Intern Med , vol.161 , pp. 421-430
    • Ditto, P.H.1    Danks, J.H.2    Smucker, W.D.3
  • 8
    • 85047699614 scopus 로고    scopus 로고
    • Assessing decisional capacity for clinical research or treatment: A review of instruments
    • Dunn LB, Nowrangi MA, Palmer BW, et al,. 2006. Assessing decisional capacity for clinical research or treatment: a review of instruments. Am J Psychiatry 163: 1323-1334.
    • (2006) Am J Psychiatry , vol.163 , pp. 1323-1334
    • Dunn, L.B.1    Nowrangi, M.A.2    Palmer, B.W.3
  • 9
    • 0026511742 scopus 로고
    • Proxy decision making for incompetent patients
    • Emanuel EJ, Emanuel LL,. 1992. Proxy decision making for incompetent patients. JAMA 267: 2067-2071.
    • (1992) JAMA , vol.267 , pp. 2067-2071
    • Emanuel, E.J.1    Emanuel, L.L.2
  • 10
    • 77949693630 scopus 로고    scopus 로고
    • Biobank governance in post-genomic age
    • Gottweis H, Lauss G,. 2010. Biobank governance in post-genomic age. Per Med 2: 187-195.
    • (2010) Per Med , vol.2 , pp. 187-195
    • Gottweis, H.1    Lauss, G.2
  • 11
    • 58149242554 scopus 로고    scopus 로고
    • Ethics and biobanks
    • Hansson MG,. 2009. Ethics and biobanks. Br J Cancer 100: 8-12.
    • (2009) Br J Cancer , vol.100 , pp. 8-12
    • Hansson, M.G.1
  • 12
    • 67749109823 scopus 로고    scopus 로고
    • Biological sample collections from minors for genetic research: A systematic review of guidelines and position papers
    • Hens K, Nys H, Cassiman JJ, et al,. 2009. Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers. Eur J Hum Genet 17: 979-990.
    • (2009) Eur J Hum Genet , vol.17 , pp. 979-990
    • Hens, K.1    Nys, H.2    Cassiman, J.J.3
  • 13
    • 60149102137 scopus 로고    scopus 로고
    • Broadening consent - And diluting ethics?
    • Hofmann B,. 2009. Broadening consent-and diluting ethics? J Med Ethics 35: 125-129.
    • (2009) J Med Ethics , vol.35 , pp. 125-129
    • Hofmann, B.1
  • 14
    • 0036085343 scopus 로고    scopus 로고
    • Current state of research on decision-making competence of cognitively impaired elderly persons
    • Kim SY, Karlawish JH, Caine ED,. 2002. Current state of research on decision-making competence of cognitively impaired elderly persons. Am J Geriatr Psychiatry 10: 151-165.
    • (2002) Am J Geriatr Psychiatry , vol.10 , pp. 151-165
    • Kim, S.Y.1    Karlawish, J.H.2    Caine, E.D.3
  • 15
    • 0036255394 scopus 로고    scopus 로고
    • Science and society: Children and incompetent adults in genetic research: Consent and safeguards
    • Knoppers BM, Avard D, Cardinal G, et al,. 2002. Science and society: children and incompetent adults in genetic research: consent and safeguards. Nat Rev Genet 3: 221-225.
    • (2002) Nat Rev Genet , vol.3 , pp. 221-225
    • Knoppers, B.M.1    Avard, D.2    Cardinal, G.3
  • 18
    • 39449125938 scopus 로고    scopus 로고
    • Assessing mental capacity: The Mental Capacity Act
    • Nicholson TRJ, Cutter W, Hotopf M,. 2008. Assessing mental capacity: the Mental Capacity Act. BMJ 336: 322-325.
    • (2008) BMJ , vol.336 , pp. 322-325
    • Nicholson, T.R.J.1    Cutter, W.2    Hotopf, M.3
  • 19
    • 72049088098 scopus 로고    scopus 로고
    • Nuffield Council of Bioethics London
    • Nuffield Council of Bioethics. 2009. Dementia: ethical issues. London.
    • (2009) Dementia: Ethical Issues
  • 21
    • 77951910319 scopus 로고    scopus 로고
    • 'Vague Oviedo': Autonomy, culture and the case of previously competent patients
    • Pascalev A, Vidalis T,. 2010. 'Vague Oviedo': autonomy, culture and the case of previously competent patients. Bioethics 24: 145-152.
    • (2010) Bioethics , vol.24 , pp. 145-152
    • Pascalev, A.1    Vidalis, T.2
  • 22
    • 66849087510 scopus 로고    scopus 로고
    • Understanding information on clinical trials by persons with Alzheimer's dementia. A pilot study
    • Porteri C, Andreatta C, Anglani L, et al,. 2009. Understanding information on clinical trials by persons with Alzheimer's dementia. A pilot study. Aging Clin Exp Res 21: 158-166.
    • (2009) Aging Clin Exp Res , vol.21 , pp. 158-166
    • Porteri, C.1    Andreatta, C.2    Anglani, L.3
  • 23
    • 0344583749 scopus 로고    scopus 로고
    • Competence to refuse treatment in anorexia nervosa
    • Tan J, Hope T, Stewart A,. 2003. Competence to refuse treatment in anorexia nervosa. Int J Law Psychiatry 26: 697-707.
    • (2003) Int J Law Psychiatry , vol.26 , pp. 697-707
    • Tan, J.1    Hope, T.2    Stewart, A.3
  • 24
    • 38749151536 scopus 로고    scopus 로고
    • Genetic research into Alzheimer's disease: A European focus group study on ethical issues
    • van der Vorm A, Rikkert MO, Vernooij-Dassen M, et al,. 2008. Genetic research into Alzheimer's disease: a European focus group study on ethical issues. Int J Geriatr Psychiatry 23: 11-15.
    • (2008) Int J Geriatr Psychiatry , vol.23 , pp. 11-15
    • Van Der Vorm, A.1    Rikkert, M.O.2    Vernooij-Dassen, M.3
  • 25
    • 77951102340 scopus 로고    scopus 로고
    • Genetic research with stored biological materials: Ethics and practice
    • Wolf LE, Bouley TA, McCulloch CE,. 2010. Genetic research with stored biological materials: ethics and practice. IRB 32: 7-18.
    • (2010) IRB , vol.32 , pp. 7-18
    • Wolf, L.E.1    Bouley, T.A.2    McCulloch, C.E.3
  • 27
    • 48949119309 scopus 로고    scopus 로고
    • Sample, data use and protection in biobanking in Europe: Legal issues
    • Zika E, Schulte In den Bäumen T, Kaye J, et al,. 2008. Sample, data use and protection in biobanking in Europe: legal issues. Pharmacogenomics 9: 773-781.
    • (2008) Pharmacogenomics , vol.9 , pp. 773-781
    • Zika, E.1    Schulte In Den Bäumen, T.2    Kaye, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.