Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: Qualitative study of parents' intentions, views and support needs

Journal of Genetic Counseling

Volumn 23, Issue 3, 2014, Pages 409-420

  Ulph, Fiona ^a   Cullinan, Tim ^b   Qureshi, Nadeem ^c   Kai, Joe ^c  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b East Staffordshire Clinical Commissioning Group   (United Kingdom)

^c UNIVERSITY OF NOTTINGHAM   (United Kingdom)

Author keywords

Carrier; Cystic fibrosis; Family communication; Newborn screening; Qualitative research; Sickle cell disease

Indexed keywords

ADOLESCENT; ADULT; ANEMIA, SICKLE CELL; CHILD; CHILD PARENT RELATION; CROSS-SECTIONAL STUDY; CYSTIC FIBROSIS; FEMALE; HUMAN; MALE; MIDDLE AGED; NEWBORN; NEWBORN SCREENING; YOUNG ADULT;

ADOLESCENT; ADULT; ANEMIA, SICKLE CELL; CHILD; CROSS-SECTIONAL STUDIES; CYSTIC FIBROSIS; FEMALE; HUMANS; INFANT, NEWBORN; MALE; MIDDLE AGED; NEONATAL SCREENING; PARENT-CHILD RELATIONS; YOUNG ADULT;

EID: 84901939055     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-013-9675-2     Document Type: Article

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