Final decisions: How hospice enrollment prompts meaningful choices about life closure

Palliative and Supportive Care

Volumn 12, Issue 3, 2014, Pages 211-221

  Waldrop, Deborah P ^a   Meeker, Mary Ann ^a  

^a UNIVERSITY AT BUFFALO   (United States)

Author keywords

End of life; Hospice decision making; Human development; Life closure

Indexed keywords

AGED; CAREGIVER; CROSS-SECTIONAL STUDY; DECISION MAKING; FEMALE; HOSPICE CARE; HUMAN; INTERVIEW; MALE; PATIENT CARE; PSYCHOLOGY; QUALITATIVE RESEARCH; STANDARDS; TERMINALLY ILL PATIENT; VERY ELDERLY;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; CAREGIVERS; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; HOSPICE CARE; HUMANS; INTERVIEWS AS TOPIC; MALE; QUALITATIVE RESEARCH; TERMINALLY ILL;

EID: 84901011676     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951512001113     Document Type: Article

References (29)

1. Anderson, F., Downing, G.M., Hill, J., et al. (1996). Palliative performance scale (PPS): A newtool. Journal of Palliative Care, 12, 5-11.
2. Astrow, A.B., Sood, J.R., Nolan, M.T., et al. (2008). Decision-making in patients with advanced cancer compared with amyotrophic lateral sclerosis. Journal of Medical Ethics, 34, 664-668.
3. Back, A.L., Young, J.P., McCown, E., et al. (2009). Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: Loss of continuity and lack of closure. Archives of Internal Medicine, 169, 474-479.
4. Byock, I. (1996). The nature of suffering and the nature of opportunity at the End of Life. Clinics in Geriatric Medicine, 12, 237-251.
5. Dumont, I., Dumont, S. &Mongeau, S. (2008). End-of-life care and the grieving process: Family caregivers who have experienced the loss of a terminal-phase cancer patient. Qualitative Health Research, 18, 1049-1061.
6. Glaser, B. &Strauss, A. (1965). Awareness of Dying. Chicago: Aldine.
7. Good, P., Sneesby, L., Higgins, I., et al. (2011). Medical officers in acute care settings: Their views on medically assisted hydration at the end of life. Journal of Palliative Care, 27, 303-309.
8. Grainger, M.N., Hegarty, S., Schofield, P., et al. (2010). Discussing the transition to palliative care: evaluation of a brief communication skills training program for oncology clinicians. Palliative &Supportive Care, 8, 441-447.
9. Hancock, K., Clayton, J.M., Parker, S. M., et al. (2007). Discrepant perceptions about end-of-life communication: A systematic review. Journal of Pain & Symptom Management, 34, 190-200.
10. Jo, S., Brazil, K., Lohfeld, L., et al. (2007). Caregiving at the end of life: Perspectives from spousal caregivers and care recipients. Palliative &Supportive Care, 5, 11-17.
11. Knight, S.J.& Emanuel, L. (2007). Processes of adjustment to end-of-life losses: A reintegration model. Journal of Palliative Medicine, 10, 1190-1198
12. Levin, T.T., Li, Y., Weiner, J.S., et al. (2008). How do-notresuscitate orders are utilized in cancer patients: Timing relative to death and communication-training implications. Palliative &Supportive Care, 6, 341-348.
13. Lorenz, K.A., Lynn, J., Dy, S.M., et al. (2008). Evidence for improving palliative care at the end of life: A systematic review. Annals of Internal Medicine, 148, 147-159.
14. Marsella, A. (2009). Exploring the literature surrounding the transition into palliative care: A scoping review. International Journal of Palliative Nursing, 15, 186-189.
15. Meeker, M.A. &Jezewski, M. A. (2004). Avoice for the dying. Clinical Nursing Research, 13, 326-342.
16. Meeker, M.A. &Jezewski, M.A. (2005). Family decision making at end of life. Palliative &Supportive Care, 3, 131-142.
17. Miller, S.C., Kinzbrunner, B., Pettit, P. et al. (2003). How does the timing of hospice referral influence hospice care in the last days of life?. Journal of the American Geriatrics Society, 51, 798-806.
18. Padgett, D.K. (2008). Qualitative Methods in Social Work Research, 2nd ed. Thousand Oaks: Sage Publications.
19. Philip, J., Gold, M., Schwarz, M., et al. (2009). Patients' views on decision making in advanced cancer. Palliative &Supportive Care, 7, 181-185.
20. Schulman-Green, D., McCorkle, R., Curry, L., et al. (2004). At the crossroads: Making the transition to hospice. Palliative &Supportive Care, 2, 351-360
21. Strada, E. &Breitbart, W. (2009). Addressing the psychological and psychiatric domain of palliative care. Primary Psychiatry, 16, 23-24.
22. Teno, J.M., Shu, J.E., Casarett, D., et al. (2007). Timing of referral to hospice and quality of care: Length of stay and bereaved family members' perceptions of the timing of hospice referral. Journal of Pain &Symptom Management, 34, 120-125.
23. Townsend, A.L., Ishler, K.J., Shapiro, B.M., et al. (2010). Levels, types, and predictors of family caregiver strain during hospice home care for an older adult. Journal of Social Work In End-Of-Life &Palliative Care, 6, 51-72.
24. Vig, E.K., Starks, H., Taylor, J.S., et al. (2006). How do surrogate decision makers describe hospice?. Does it matter?. American Journal of Hospice &Palliative Medicine, 23, 91-99.
25. Waldrop, D.P., Kramer, B.J., Skretny, J.A., et al. (2005). Final transitions: Family caregiving at the end of life. Journal of Palliative Medicine, 8, 623-638.
26. Witt-Sherman, D. (1998). Reciprocal suffering: The need to improve caregivers' quality of life through palliative care. Journal of Palliative Medicine, 1, 357-366.
27. Wittenberg-Lyles, E., Goldsmith, J. &Ragan, S. (2011). The shift to early palliative care: A typology of illness journeys and the role of nursing. Clinical Journal of Oncology Nursing, 15, 304-310.
28. World HealthOrganization (2010) WHO Definition of Palliative Care. http://www.who.int/cancer/palliative/ definition/en/ (Accessed on August 7, 2013).
29. Zaider, T. &Kissane, D. (2009). The assessment and management of family distress during palliative care. Current Opinion in Supportive &Palliative Care, 3, 67-71.