Preparedness planning before mechanical circulatory support: A "how-to" guide for palliative medicine clinicians

Journal of Pain and Symptom Management

Volumn 47, Issue 5, 2014, Pages

  Swetz, Keith M ^a   Kamal, Arif H ^b   Matlock, Daniel D ^c   Dose, Ann Marie ^a   Borkenhagen, Lynn S ^a   Kimeu, Ashley K ^a   Dunlay, Shannon M ^a   Feely, Molly A ^a  

^a MAYO CLINIC   (United States)

^b DUKE UNIVERSITY   (United States)

^c UNIVERSITY OF COLORADO   (United States)

Author keywords

advance care planning; end of life; Mechanical circulatory support; medical ethics; palliative care; preparedness planning; ventricular assist device

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; ASSISTED CIRCULATION; HEALTH CARE PLANNING; HEART FAILURE; HUMAN; MECHANICAL VENTILATOR; MEDICAL DEVICE COMPLICATION; PALLIATIVE THERAPY; PATIENT CARE; QUALITY OF LIFE; ADVERSE EFFECTS; AGED; COMORBIDITY; COST OF ILLNESS; DECISION MAKING; DEVICE FAILURE; ETHICS; FEMALE; HEART ASSIST DEVICE; INFORMED CONSENT; MALE; PHYSICIAN; PROCEDURES; PSYCHOLOGY;

ADVANCE CARE PLANNING; AGED; COMORBIDITY; COST OF ILLNESS; DECISION MAKING; EQUIPMENT FAILURE; FEMALE; HEART FAILURE; HEART-ASSIST DEVICES; HUMANS; INFORMED CONSENT; MALE; PALLIATIVE CARE; PALLIATIVE MEDICINE; PHYSICIANS; QUALITY OF LIFE;

EID: 84899971862     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2013.06.006     Document Type: Article

References (31)

1. A.S. Go, D. Mozaffarian, and V.L. Roger et al. Heart disease and stroke statistics-2013 update: a report from the American Heart Association Circulation 127 2013 e6 e245
2. L.W. Miller, and K. Lietz Candidate selection for long-term left ventricular assist device therapy for refractory heart failure J Heart Lung Transplant 25 2006 756 764
3. J.K. Kirklin, D.C. Naftel, and R.L. Kormos et al. Fifth INTERMACS annual report: risk factor analysis from more than 6,000 mechanical circulatory support patients J Heart Lung Transplant 32 2013 141 156
4. E.A. Rose, A.C. Gelijns, and A.J. Moskowitz et al. Long-term use of a left ventricular assist device for end-stage heart failure N Engl J Med 345 2001 1435 1443
5. M.S. Slaughter, J.G. Rogers, and C.A. Milano et al. Advanced heart failure treated with continuous-flow left ventricular assist device N Engl J Med 361 2009 2241 2251
6. J.W. Entwistle, R.M. Sade, and R.J. Petrucci The ethics of mechanical support: the need for new guidelines Ann Thorac Surg 92 2011 1939 1942
7. N.E. Goldstein, C.W. May, and D.E. Meier Comprehensive care for mechanical circulatory support: a new frontier for synergy with palliative care Circ Heart Fail 4 2011 519 527
8. R.J. Petrucci, L.A. Benish, and B.L. Carrow et al. Ethical considerations for ventricular assist device support: a 10-point model ASAIO J 57 2011 268 273
9. K.M. Swetz, M.R. Freeman, and O.F. Abouezzeddine et al. Palliative medicine consultation for preparedness planning in patients receiving left ventricular assist devices as destination therapy Mayo Clin Proc 86 2011 493 500
10. D. Feldman, S.V. Pamboukian, and J.J. Teuteberg et al. The 2013 International Society for Heart and Lung Transplantation Guidelines for mechanical circulatory support: executive summary J Heart Lung Transplant 32 2013 157 187
11. The Joint Commission Disease-Specific Care Certification: Advanced Certification in Ventricular Assist Device. Available at http://www. jointcommission.org/certification/ventricular-assist-device.aspx. Accessed July 31, 2013.
12. P.S. Mueller, K.M. Swetz, and M.R. Freeman et al. Ethical analysis of withdrawing ventricular assist device support Mayo Clin Proc 85 2010 791 797
13. D.D. Matlock, C.T. Nowels, and D.B. Bekelman Patient perspectives on decision making in heart failure J Card Fail 16 2010 823 826
14. J.H. Retrum, C.T. Nowels, and D.B. Bekelman Patient and caregiver congruence: the importance of dyads in heart failure care J Cardiovasc Nurs 28 2013 129 136
15. J.C. Fang Rise of the machines - left ventricular assist devices as permanent therapy for advanced heart failure N Engl J Med 361 2009 2282 2285
16. T. Hasin, Y. Marmor, and W. Kremers et al. Readmissions after implantation of axial flow left ventricular assist device J Am Coll Cardiol 61 2013 153 163
17. K.A. Bramstedt Destination nowhere: a potential dilemma with ventricular assist devices ASAIO J 54 2008 1 2
18. A.G. Rizzieri, J.L. Verheijde, M.Y. Rady, and J.L. McGregor Ethical challenges with the left ventricular assist device as a destination therapy Philos Ethics Humanit Med 3 2008 20
19. K. Swetz, A. Ottenberg, and K. Cook et al. The choice for patients "without a choice": interviews with patients who received a left ventricular assist device as destination therapy J Card Fail 18 2012 S43
20. K.M. Swetz, M.R. Freeman, P.S. Mueller, and S.J. Park Clinical management of continuous-flow left ventricular assist devices in advanced heart failure J Heart Lung Transplant 29 2010 1081
21. M.A. Dew, R.L. Kormos, and S. Winowich et al. Human factors issues in ventricular assist device recipients and their family caregivers ASAIO J 46 2000 367 373
22. A. Kaan, Q.R. Young, S. Cockell, and M. Mackay Emotional experiences of caregivers of patients with a ventricular assist device Prog Transpl 20 2010 142 147
23. M.S. Slaughter, F.D. Pagani, and J.G. Rogers et al. Clinical management of continuous-flow left ventricular assist devices in advanced heart failure J Heart Lung Transplant 29 2010 S1 S39
24. M.B. Bevins The ethics of pacemaker deactivation in terminally ill patients J Pain Symptom Manage 41 2011 1106 1110
25. K.A. Bramstedt, and N.S. Wenger When withdrawal of life-sustaining care does more than allow death to take its course: the dilemma of left ventricular assist devices J Heart Lung Transplant 20 2001 544 548
26. D.P. Sulmasy Killing and allowing to die: another look J Law Med Ethics 26 1998 55 64 4
27. D.P. Sulmasy Within you/without you: biotechnology, ontology, and ethics J Gen Intern Med 23 Suppl 1 2008 69 72
28. T.S. Huddle, and F. Amos Bailey Pacemaker deactivation: withdrawal of support or active ending of life? Theor Med Bioeth 33 2012 421 433
29. M.Y. Rady, and J.L. Verheijde When is deactivating an implanted cardiac device physician-assisted death? Appraisal of the lethal pathophysiology and mode of death J Palliat Med 14 2011 1086 1088 discussion 1089-1090
30. M.Y. Rady, and J.L. Verheijde Ethical challenges with deactivation of durable mechanical circulatory support at the end of life: left ventricular assist devices and total artificial hearts J Intensive Care Med 2012 [Epub ahead of print]
31. R. Lampert, D.L. Hayes, and G.J. Annas et al. HRS expert consensus statement on the management of cardiovascular implantable electronic devices (CIEDs) in patients nearing end of life or requesting withdrawal of therapy Heart Rhythm 7 2010 1008 1026