Comprehensive care for mechanical circulatory support a new frontier for synergy with palliative care

Circulation: Heart Failure

Volumn 4, Issue 4, 2011, Pages 519-527

  Goldstein, Nathan E ^a,b   May, Christopher W ^c   Meier, Diane E ^a  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b VETERANS AFFAIRS MEDICAL CENTER   (United States)

^c INOVA HEART AND VASCULAR INSTITUTE   (United States)

Author keywords

Communication; Decision making; Heart failure; Palliative care; Ventricular assist device

Indexed keywords

ANXIETY; ARTICLE; ASSISTED CIRCULATION; CANCER THERAPY; CARDIAC PATIENT; CAREGIVER; CLERGY; CLINICAL DECISION MAKING; DEPRESSION; DYSPNEA; HEALTH PRACTITIONER; HEART FAILURE; HUMAN; LUNG CANCER; NURSE; PAIN; PALLIATIVE THERAPY; PATIENT CARE; PHYSICIAN; POSTTRAUMATIC STRESS DISORDER; PRIORITY JOURNAL; QUALITY OF LIFE; SOCIAL WORKER; STROKE; TREATMENT OUTCOME; DECISION MAKING; DISEASE COURSE; FOOD AND DRUG ADMINISTRATION; HEALTH CARE; HEART ASSIST DEVICE; OUTCOME ASSESSMENT; UNITED STATES;

COMPREHENSIVE HEALTH CARE; DECISION MAKING; DISEASE PROGRESSION; HEART FAILURE; HEART-ASSIST DEVICES; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; UNITED STATES; UNITED STATES FOOD AND DRUG ADMINISTRATION;

EID: 80052794705     PISSN: 19413289     EISSN: 19413297     Source Type: Journal    
DOI: 10.1161/CIRCHEARTFAILURE.110.957241     Document Type: Article

References (49)

1. Kirklin JK, Naftel DC, Kormos RL, Stevenson LW, Pagani FD, Miller MA, Ulisney KL, Baldwin JT, Young JB. Third INTERMACS annual report: the evolution of destination therapy in the United States. J Heart Lung Transplant. 2011;30:115-123.
2. Slaughter MS, Rogers JG, Milano CA, Russell SD, Conte JV, Feldman D, Sun B, Tatooles AJ, Delgado RM III, Long JW, Wozniak TC, Ghumman W, Farrar DJ, Frazier OH. Advanced heart failure treated with continuous-flow left ventricular assist device. N Engl J Med. 2009;361: 2241-2251.
3. Allen JG, Weiss ES, Schaffer JM, Patel ND, Ullrich SL, Russell SD, Shah AS, Conte JV. Quality of life and functional status in patients surviving 12 months after left ventricular assist device implantation. J Heart Lung Transplant. 2010;29:278-285.
4. Goodlin SJ. Palliative care in congestive heart failure. J Am Coll Cardiol. 2009;54:386-396.
5. Goodlin SJ, Hauptman PJ, Arnold R, Grady K, Hershberger RE, Kutner J, Masoudi F, Spertus J, Dracup K, Cleary JF, Medak R, Crispell K, Pina I, Stuart B, Whitney C, Rector T, Teno J, Renlund DG. Consensus statement: palliative and supportive care in advanced heart failure. J Card Fail. 2004;10:200-209. (Pubitemid 38869460)
6. Goodlin SJ, Quill TE, Arnold RM. Communication and decision-making about prognosis in heart failure care. J Card Fail. 2008;14:106-113. (Pubitemid 351312888)
7. Adler ED, Goldfinger JZ, Kalman J, Park ME, Meier DE. Palliative care in the treatment of advanced heart failure. Circulation. 2009;120: 2597-2606.
8. National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care. Pittsburgh, PA: National Consensus Project for Quality Palliative Care; 2004.
9. National Quality Forum. A National Framework and Preferred Practices for Palliative and Hospice Care Quality Washington, DC: National Quality Forum; 2006.
10. Morrison RS, Meier DE. Clinical practice: palliative care. N Engl J Med. 2004;350:2582-2590.
11. Centers for Medicare and Medicaid Services. Decisions Memo for Ventricular Assist Devices as Destination Therapy (CAG-00119R). Appendix B: Joint Commission Disease-Specific Certification Program: Ventricular Assist Device Destination Therapy Certification Final Recommendations. February 2007. Memo released March 27, 2007.
12. Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, Morton SC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Sun VC, Shekelle PG. Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med. 2008;148:147-159. (Pubitemid 351651557)
13. Harding R, Beynon T, Hodson F, Coady E, Kinirons M, Selman L, Higginson I. Provision of palliative care for chronic heart failure inpatients: how much do we need? BMC Palliat Care. 2009;8:8.
14. Casarett D, Pickard A, Bailey FA, Ritchie C, Furman C, Rosenfeld K, Shreve S, Chen Z, Shea JA. Do palliative consultations improve patient outcomes? J Am Geriatr Soc. 2008;56:593-599. (Pubitemid 351473505)
15. Morrison RS, Penrod JD, Cassel JB, Caust-Ellenbogen M, Litke A, Spragens L, Meier DE. Cost savings associated with US hospital palliative care consultation programs. Arch Intern Med. 2008;168: 1783-1790.
16. Norton SA, Hogan LA, Holloway RG, Temkin-Greener H, Buckley MJ, Quill TE. Proactive palliative care in the medical intensive care unit: effects on length of stay for selected high-risk patients. Crit Care Med. 2007;35:1530-1535. (Pubitemid 46809317)
17. Bakitas M, Lyons KD, Hegel MT, Balan S, Brokaw FC, Seville J, Hull JG, Li Z, Tosteson TD, Byock IR, Ahles TA. Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project Enable II Randomized Controlled Trial. JAMA. 2009;302: 741-749.
18. Connor SR, Pyenson B, Fitch K, Spence C, Iwasaki K. Comparing hospice and nonhospice patient survival among patients who die within a three-year window. J Pain Symptom Manage. 2007;33:238-246. (Pubitemid 46349540)
19. Teno JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R, Mor V. Family perspectives on end-of-life care at the last place of care. JAMA. 2004;291:88-93. (Pubitemid 38040539)
20. Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, Mitchell SL, Jackson VA, Block SD, Maciejewski PK, Prigerson HG. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300: 1665-1673.
21. Christakis NA, Iwashyna TJ. The health impact of health care on families: a matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Soc Sci Med. 2003;57: 465-475. (Pubitemid 36677507)
22. Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163-168. (Pubitemid 29045349)
23. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284: 2476-2482.
24. Caldwell PH, Arthur HM, Demers C. Preferences of patients with heart failure for prognosis communication. Can J Cardiol. 2007;23:791-796. (Pubitemid 47455341)
25. Fried TR, O'Leary JR. Using the experiences of bereaved caregivers to inform patient- and caregiver-centered advance care planning. J Gen Intern Med. 2008;23:1602-1607.
26. Apatira L, Boyd EA, Malvar G, Evans LR, Luce JM, Lo B, White DB. Hope, truth, and preparing for death: perspectives of surrogate decision makers. Ann Intern Med. 2008;149:861-868.
27. Silveira MJ, Kim SY, Langa KM. Advance directives and outcomes of surrogate decision making before death. N Engl J Med. 2010;362: 1211-1218.
28. Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340:c1345.
29. Hickman SE, Nelson CA, Perrin NA, Moss AH, Hammes BJ, Tolle SW. A comparison of methods to communicate treatment preferences in nursing facilities: traditional practices versus the physician orders for life-sustaining treatment program. J Am Geriatr Soc. 2010;58:1241-1248.
30. Swetz KM, Mueller PS, Ottenberg AL, Dib C, Freeman MRL, Sulmasy DP. The use of advance directives among patients with left ventricular assist devices. Hosp Pract (Minneap). 2011;39:78-84.
31. Bogaev RC, Pamboukian SV, Moore SA, Chen L, John R, Boyle AJ, Sundareswaran KS, Farrar DJ, Frazier OH. Comparison of outcomes in women versus men using a continuous-flow left ventricular assist device as a bridge to transplantation. J Heart Lung Transplant. 2011;30: 515-522.
32. Kirklin JK, Naftel DC, Kormos RL, Stevenson LW, Pagani FD, Miller MA, Ulisney KL, Baldwin JT, Young JB. Second INTERMACS annual report: more than 1,000 primary left ventricular assist device implants. J Heart Lung Transplant. 2010;29:1-10.
33. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010;363:733-742.
34. Back AL, Arnold RM, Baile WF, Fryer-Edwards KA, Alexander SC, Barley GE, Gooley TA, Tulsky JA. Efficacy of communication skills training for giving bad news and discussing transitions to palliative care. Arch Intern Med. 2007;167:453-460. (Pubitemid 46425657)
35. Back AL, Arnold RM, Tulsky JA, Baile WF, Fryer-Edwards KA. Teaching communication skills to medical oncology fellows. J Clin Oncol. 2003;21:2433-2436. (Pubitemid 46621881)
36. Fried TR, Bradley EH, O'Leary J. Prognosis communication in serious illness: perceptions of older patients, caregivers, and clinicians. J Am Geriatr Soc. 2003;51:1398-1403. (Pubitemid 37259868)
37. Goldstein NE, Concato J, Bradley EH, O'Leary J, Fried TR. Doctorpatient communication about prognosis: the influence of race and financial status. J Palliat Med. 2005;8:998-1004. (Pubitemid 41579241)
38. Rizzieri AG, Verheijde JL, Rady MY, McGregor JL. Ethical challenges with the left ventricular assist device as a destination therapy. Philos Ethics Humanit Med. 2008;3:20.
39. Meier DE, Back AL, Morrison RS. The inner life of physicians and care of the seriously ill. JAMA. 2001;286:3007-3014. (Pubitemid 33140368)
40. Meier DE, Casarett DJ, von Gunten CF, Smith WJ, Storey CP. Palliative medicine: politics and policy. J Palliat Med. 2010;13:141-146.
41. Wiegand DL, Kalowes PG. Withdrawal of cardiac medications and devices. AACN Adv Crit Care. 2007;18:415-425.
42. The EPEC Project: Goals of Care. In: Emanuel L, von Gunten C, Ferris F, Hauser J, eds. EPEC Participant's Handbook. Chicago, IL: Northwestern University Press; 2003:Module 7.
43. Goldstein NE, Back AL, Morrison RS. Titrating guidance: a model to guide physicians in assisting patients and family members who are facing complex decisions. Arch Intern Med. 2008;168:1733-1739.
44. Back AL, Arnold R, Tulsky JA. Mastering Communication With Seriously Ill Patients. Cambridge, MA: Cambridge University Press; 2009.
45. Fried TR, Byers AL, Gallo WT, Van Ness PH, Towle VR, O'Leary JR, Dubin JA. Prospective study of health status preferences and changes in preferences over time in older adults. Arch Intern Med. 2006;166: 890-895.
46. Krumholz HM, Phillips RS, Hamel MB, Teno JM, Bellamy P, Broste SK, Califf RM, Vidaillet H, Davis RB, Muhlbaier LH, Connors AF Jr, Lynn J, Goldman L. Resuscitation preferences among patients with severe congestive heart failure: results from the SUPPORT project. Circulation. 1998;98:648-655. (Pubitemid 28387491)
47. Byock I. Dying Well. New York, NY: Riverhead Books; 1997:140.
48. Kutner JS, Kilbourn KM. Bereavement: addressing challenges faced by advanced cancer patients, their caregivers, and their physicians. Prim Care. 2009;36:825-844.
49. Kearney MK, Weininger RB, Vachon ML, Harrison RL, Mount BM. Self-care of physicians caring for patients at the end of life: "being connected: a key to my survival." JAMA. 2009;301:1155-1164.