EUROPLAN: A project to support the development of national plans on rare diseases in Europe

Public Health Genomics

Volumn 16, Issue 6, 2013, Pages 278-287

  Taruscio, D ^a   Gentile, A E ^a   De Santis, M ^a   Ferrelli, R M ^a   Posada De La Paz, M ^c   Hens, M ^c   Huizer, J ^d   Fregonese, L ^d   Stefanov, R ^e   Bottarelli, V ^f   Weinman, A ^f   Le Cam, Y ^f   Gavhed, D ^g   Mincarone, P ^b   Bushby, K ^h   Frazzica, R G ^a   Donati, C ^a   Vittozzi, L ^a   Jessop, E ⁱ  

^a ISTITUTO SUPERIORE DI SANITÀ   (Italy)

^b CNR   (Italy)

^c CENTRO DE INVESTIGACIÓN BIOMÉDICA EN RED DE ENFERMEDADES RARAS CIBERER   (Spain)

^d The Netherlands Organisation for Health Research and Development   (Netherlands)

^e Clinical and Information Centre for Rare Diseases   (Bulgaria)

^f Plateforme Maladies Rares   (France)

^g KAROLINSKA INSTITUTE   (Sweden)

^h NEWCASTLE UNIVERSITY   (United Kingdom)

ⁱ London Strategic Health Authority   (United Kingdom)

Author keywords

Indicators; National Plans; National Strategies; Patients; Public health; Rare diseases

Indexed keywords

ARTICLE; AWARENESS; CAPACITY BUILDING; CONSENSUS; EUROPEAN; HEALTH CARE ACCESS; HEALTH CARE ORGANIZATION; HEALTH CARE PLANNING; HEALTH CARE POLICY; HEALTH CARE SYSTEM; HEALTH PROGRAM; HUMAN; PRIORITY JOURNAL; PROGRAM DEVELOPMENT; PUBLIC HEALTH SERVICE; PUBLIC-PRIVATE PARTNERSHIP; RARE DISEASE; TOTAL QUALITY MANAGEMENT; EUROPEAN UNION; INTERNATIONAL COOPERATION; ORGANIZATION AND MANAGEMENT; PRACTICE GUIDELINE; PUBLIC HEALTH;

CAPACITY BUILDING; EUROPEAN UNION; GUIDELINES AS TOPIC; HEALTH POLICY; HUMANS; INTERNATIONAL COOPERATION; NATIONAL HEALTH PROGRAMS; PROGRAM DEVELOPMENT; RARE DISEASES;

EID: 84899968324     PISSN: 16624246     EISSN: 16628063     Source Type: Journal    
DOI: 10.1159/000355932     Document Type: Article

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