Development of a new occupational balance-questionnaire: Incorporating the perspectives of patients and healthy people in the design of a self-reported occupational balance outcome instrument

Health and Quality of Life Outcomes

Volumn 12, Issue 1, 2014, Pages

  Dür, Mona ^a   Steiner, Günter ^a   Fialka Moser, Veronika ^a   Kautzky Willer, Alexandra ^a   Dejaco, Clemens ^a   Prodinger, Birgit ^b   Stoffer, Michaela A ^a   Binder, Alexa ^c   Smolen, Josef ^a,d   Stamm, Tanja A ^a,e  

^a MEDICAL UNIVERSITY OF VIENNA   (Austria)

^b ICF Research Branch   (Switzerland)

^c Hospital Göttlicher Heiland   (Austria)

^d General Hospital Hietzing with Neurological Center Rosenhugel   (Austria)

^e Fachhochschule Campus Wien   (Austria)

Author keywords

Occupational science; Patient perspective; Qualitative research; Rasch analysis

Indexed keywords

ADULT; AGED; ARTICLE; AUTOIMMUNE DISEASE; CONSTRUCT VALIDITY; CONTROLLED STUDY; CROHN DISEASE; CRONBACH ALPHA COEFFICIENT; DIABETES MELLITUS; FEMALE; HUMAN; INTERNAL CONSISTENCY; LIFE EVENT; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; OCCUPATIONAL BALANCE QUESTIONNAIRE; OUTCOME ASSESSMENT; PERSONAL EXPERIENCE; PSYCHOMETRY; QUALITATIVE ANALYSIS; RASCH ANALYSIS; RHEUMATOID ARTHRITIS; SELF REPORT; STUDENT T TEST; SYSTEMIC LUPUS ERYTHEMATOSUS; SYSTEMIC SCLEROSIS;

ADULT; ARTHRITIS, RHEUMATOID; AUTOIMMUNE DISEASES; DIABETES MELLITUS, TYPE 1; EMPLOYMENT; FEMALE; HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; QUESTIONNAIRES; RELAXATION; REPRODUCIBILITY OF RESULTS; SCLERODERMA, SYSTEMIC; TREATMENT OUTCOME;

EID: 84899955694     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-12-45     Document Type: Article

References (51)

1. Johnston BC, Patrick DL, Busse JW, Schunemann HJ, Agarwal A, Guyatt GH. Patient-reported outcomes in meta-analyses-Part 1: assessing risk of bias and combining outcomes. Health Qual Life Outcomes 2013, 11:109. 10.1186/1477-7525-11-109, 3708764, 23815754.
2. Ahmed S, Berzon RA, Revicki DA, Lenderking WR, Moinpour CM, Basch E, Reeve BB, Wu AW, International Society for Quality of Life R The use of patient-reported outcomes (PRO) within comparative effectiveness research: implications for clinical practice and health care policy. Med Care 2012, 50:1060-1070. 10.1097/MLR.0b013e318268aaff, 22922434, International Society for Quality of Life R.
3. Dinan MA, Compton KL, Dhillon JK, Hammill BG, Dewitt EM, Weinfurt KP, Schulman KA. Use of patient-reported outcomes in randomized, double-blind, placebo-controlled clinical trials. Med Care 2011, 49:415-419. 3682647, 21368680.
4. Kirwan JR, Fries JF, Hewlett SE, Osborne RH, Newman S, Ciciriello S, van de Laar MA, Dures E, Minnock P, Heiberg T, Sanderson TC, Flurey CA, Leong AL, Montie P, Richards P. Patient perspective workshop: moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. J Rheumatol 2011, 38:1711-1715. 10.3899/jrheum.110391, 21807790.
5. Lasch KE, Marquis P, Vigneux M, Abetz L, Arnould B, Bayliss M, Crawford B, Rosa K. PRO development: rigorous qualitative research as the crucial foundation. Qual Life Res 2010, 19:1087-1096. 10.1007/s11136-010-9677-6, 2940042, 20512662.
6. Mokkink LB, Terwee CB, Knol DL, Stratford PW, Alonso J, Patrick DL, Bouter LM, de Vet HC. The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Med Res Methodol 2010, 10:22. 10.1186/1471-2288-10-22, 2848183, 20298572.
7. Meyer A. The philosophy of occupation therapy. Reprinted from the archives of occupational therapy, volume 1, pp. 1-10, 1922. Am J Occup Ther 1977, 31:639-642.
8. AOTA American occupational therapy association. The role of occupational therapy in disaster preparedness, repsonse and recovery. Am J Occup Ther 2011, 65:S11-S25. AOTA.
9. Backman CL. Occupational balance: exploring the relationships among daily occupations and their influence on well-being. Can J Occup Ther 2004, 71:202-209. 10.1177/000841740407100404, 15586852.
10. Jonsson H, Persson D. Towards an experimental model of occupational balance: an alternative perspective on flow theory analysis. J Occup Sci 2006, 13:62-73.
11. Stamm TA, Lovelock L, Stew G, Nell V, Smolen J, Machold K, Jonsson H, Sadlo G. I have a disease but I am not ill: a narrative study of occupational balance in people with rheumatoid arthritis. OTJR 2009, 29:32-39.
12. Wilcock AA. The relationship between occupational balance and health: a pilot study. Occup Ther Int 1997, 4:17-30.
13. Mokkink LB, Terwee CB, Patrick DL, Alonso J, Stratford PW, Knol DL, Bouter LM, de Vet HC. The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol 2010, 63:737-745. 10.1016/j.jclinepi.2010.02.006, 20494804.
14. Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993, 46:1417-1432. 10.1016/0895-4356(93)90142-N, 8263569.
15. Dür M, Sadlonova M, Haider S, Binder A, Stoffer M, Coenen M, Smolen J, Dejaco C, Kautzky-Willer A, Fialka-Moser V, Moser G, Stamm TA. Health determining concepts important to people with Crohn's disease and their coverage by patient-reported outcomes of health and wellbeing. J Crohns Colitis 2014, 8:45-55. 10.1016/j.crohns.2012.12.014, 3889494, 23375212.
16. Stange EF, Travis SP, Vermeire S, Beglinger C, Kupcinkas L, Geboes K, Barakauskiene A, Villanacci V, Von HA, Warren BF, Gasche C, Tilg H, Schreiber SW, Scholmerich J, Reinisch W. European evidence based consensus on the diagnosis and management of Crohn's disease: definitions and diagnosis. Gut 2006, 55(Suppl 1):i1-15. 1859998, 16481628.
17. Arnett FC, Edworthy SM, Bloch DA, McShane DJ, Fries JF, Cooper NS, Healey LA, Kaplan SR, Liang MH, Luthra HS. The american rheumatism association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis Rheum 1988, 31:315-324. 10.1002/art.1780310302, 3358796.
18. Manzi SM, Stark VE, Ramsey-Goldman R. Epidemiology and Classification of Systemic Lupus Erythematosus. Rheumatology 2003, 1291-1296. Mosby: Edinburgh, Hochberg MC, Silman A, Smolen JS, Weinblatt M, Weisman MH, Volume 3.
19. WHO International Statistical Classification of Diseases and Related Health Problems 10th Revision (ICD-10) Version for 2010 2010, Geneva, Switzerland: World Health Organization, WHO.
20. WHO Definition And Diagnosis Of Diabetes Mellitus And Intermediate Hyperglycemia: Report Of A Who/Idf Consultation 2006, Geneva, Switzerland: World Health Organization, WHO.
21. Stamm T, Wright J, Machold K, Sadlo G, Smolen J. Occupational balance of women with rheumatoid arthritis: a qualitative study. Musculoskeletal Care 2004, 2:101-112. 10.1002/msc.62, 17041974.
22. Rosenthal G. Reconstruction of Life Stories. Principles of Selection in Generating Stories of Narrative Biographical Interviews. The Narrative Study of Lives 1993, 59-91. Sage: Thousand Oaks, Josselson R, Lieblich A.
23. SPSS SPSS Statistics 17.00 for Windows 2008, Chicago: SPSS Inc, SPSS.
24. Rumm Laboratory PL RUMM2030. Released in January 2010. License Re-structure from March 2012 2012, Australia, Duncraig, Rumm Laboratory PL.
25. Tennant A, Pallant JF. Unidimensionality Matters! (A Tale of Two Smiths?). Rasch Measurement Transactions 2006, 1048-1051. Volume 20, http://www.rasch.org/rmt/rmt201c.htm: Archives of the Rasch Measurement SIG, AERA.
26. Andrich D. RASCH Models for Measurement 1988, SAGE University Paper: Sara Miller McCune, SAGE Publications, Inc.
27. Rumm Laboratory PL Interpreting RUMM2030. PART I Dichotomus data 2009, Australia, Duncraig, Rumm Laboratory PL.
28. Smith EV. Detecting and evaluating the impact of multidimensionality using item fit statistics and principal component analysis of residuals. J Appl Meas 2002, 3:205-231.
29. Rumm Laboratry PL Extending the RUMM2030 Analysis. RUMM2030 Rasch Unidimensional Measurment Model 2012, 8, Rumm Laboratry PL.
30. Gibbons CJ, Mills RJ, Thornton EW, Ealing J, Mitchell JD, Shaw PJ, Talbot K, Tennant A, Young CA. Rasch analysis of the hospital anxiety and depression scale (HADS) for use in motor neurone disease. Health Qual Life Outcomes 2011, 9:82. 10.1186/1477-7525-9-82, 3192662, 21955749.
31. Bond TG, Fox CM. Applying the Rasch Model. Fundamental Measurement in the Human Science 2007, London: Lawrence Erlbaum Associates, Inc.
32. Harvey RF, Bradshaw JM. A simple index of Crohn's-disease activity. Lancet 1980, 1:514.
33. Executive summary: standards of medical care in diabetes--2009. Diabetes Care 2009, 32 Suppl 1:S6-12. 2613586, 19118288.
34. Aletaha D, Nell VP, Stamm T, Uffmann M, Pflugbeil S, Machold K, Smolen JS. Acute phase reactants add little to composite disease activity indices for rheumatoid arthritis: validation of a clinical activity score. Arthritis Res Ther 2005, 7:796-806.
35. Bombardier C, Gladman DD, Urowitz MB, Caron D, Chang CH. Derivation of the SLEDAI. A disease activity index for lupus patients. The committee on prognosis studies in SLE. Arthritis Rheum 1992, 35:630-640. 10.1002/art.1780350606, 1599520.
36. Formiga F, Moga I, Pac M, Mitjavila F, Rivera A, Pujol R. High disease activity at baseline does not prevent a remission in patients with systemic lupus erythematosus. Rheumatology (Oxford) 1999, 38:724-727. 10.1093/rheumatology/38.8.724, 10501419.
37. Seibold JR, McCloskey DA. Skin involvement as a relevant outcome measure in clinical trials of systemic sclerosis. Curr Opin Rheumatol 1997, 9:571-575. 10.1097/00002281-199711000-00014, 9375287.
38. Wagman P, Hakansson C, Bjorklund A. Occupational balance as used in occupational therapy: a concept analysis. Scand J Occup Ther 2012, 19:322-327. 10.3109/11038128.2011.596219, 21780985.
39. Gibbs L, Klinger L. Rest is a meaningful occupation for women with hip and knee osteoarthritis. OTJR 2011, 31:143-150.
40. Eriksson T, Westerberg Y, Jonsson H. Experiences of women with stress-related ill health in a therapeutic gardening program. Can J Occup Ther 2011, 78:273-281.
41. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992, 30:473-483. 10.1097/00005650-199206000-00002, 1593914.
42. De Vriendt T, Clays E, Moreno LA, Bergman P, Vicente-Rodriguez G, Nagy E, Dietrich S, Manios Y, De Henauw S, Group HS. Reliability and validity of the Adolescent Stress Questionnaire in a sample of European adolescents-the HELENA study. BMC Public Health 2011, 11:717. 10.1186/1471-2458-11-717, 3188495, 21943341.
43. Levenstein S, Prantera C, Varvo V, Scribano ML, Berto E, Luzi C, Andreoli A. Development of the perceived stress questionnaire: a new tool for psychosomatic research. J Psychosom Res 1993, 37:19-32.
44. Cohen S, Kamarck T, Mermelstein R. A global measure of perceived stress. J Health Soc Behav 1983, 24:385-396. 10.2307/2136404, 6668417.
45. Anaby DR, Backman CL, Jarus T. Measuring occupational balance: a theoretical exploration of two approaches. Can J Occup Ther 2010, 77:280-288. 10.2182/cjot.2010.77.5.4, 21268510.
46. Forhan M, Backman C. Exploring occupational balance in adults with rheumatoid arthritis. OTJR 2010, 30:133-141.
47. Jonsson H. A new direction in the conceptualization and categorization of occupation. J Occup Sci 2008, 15:3-8.
48. Anaby D, Jarus T, Backman CL, Zumbo BD. The role of occupational characteristics and occupational imbalance in explaining well-being. Appl Res Qual Life 2010, 5:81-104.
49. Riediger M, Freund AM. Interference and facilitation among personal goals: differential associations with subjective well-being and persistent goal pursuit. Pers Soc Psychol Bull 2004, 30:1511-1523. 10.1177/0146167204271184, 15536236.
50. Kirwan JR, Fries JF, Hewlett S, Osborne RH. Patient perspective: choosing or developing instruments. J Rheumatol 2011, 38:1716-1719. 10.3899/jrheum.110390, 21807791.
51. Jaccard J, Jacoby J. Theory Construction and Model-Building Skills (Methodology in the Social Sciences) 2009, London: Guilford Press.