Patients and methods of the PATH biobank - A resource for breast cancer research

Geburtshilfe und Frauenheilkunde

Volumn 74, Issue 4, 2014, Pages 361-369

  Waldmann, A ^a   Anzeneder, T ^b   Katalinic, A ^a,c  

^a Institut Für Sozialmedizin Und Epidemiologie   (Germany)

^b Stiftung PATH   (Germany)

^c Inst fur Krebsepidemiologie E v   (Germany)

Author keywords

breast; breast cancer; epidemiology

Indexed keywords

BISPHOSPHONIC ACID DERIVATIVE; TRASTUZUMAB;

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER DIAGNOSIS; CANCER HORMONE THERAPY; CANCER INCIDENCE; CANCER PATIENT; CANCER RADIOTHERAPY; CANCER RESEARCH; CANCER STAGING; CLINICAL FEATURE; CONSULTATION; CONTROLLED STUDY; FEMALE; FOLLOW UP; HUMAN; HUMAN TISSUE; INTERNET; MAJOR CLINICAL STUDY; MEDICAL INFORMATION SYSTEM; PATIENT CARE; PHYSICIAN; QUALITATIVE ANALYSIS; QUANTITATIVE ANALYSIS;

EID: 84899811319     PISSN: 00165751     EISSN: 14388804     Source Type: Journal    
DOI: 10.1055/s-0033-1360263     Document Type: Article

References (45)

1. RKI GEKID Krebs in Deutschland 2007 - 2008. Häufigkeiten und Trends. 8. überarbeitete Auflage. Saarbrücken Robert Koch-Institut und die Gesellschaft der epidemiologischen Krebsregister in Deutschland, Hrsg.: 2012
2. Brenner H., Stegmaier C., Ziegler H. Long-term survival of cancer patients in Germany achieved by the beginning of the third millenium. Ann Oncol: 2005; 16 981 986
3. De Angelis R., Tavilla A., Verdecchia A. et al. Breast cancer survivors in the United States: geographic variability and time trends, 2005-2015. Cancer: 2009; 115 1954 1966
4. Warren J. L., Mariotto A. B., Meekins A. et al. Current and future utilization of services from medical oncologists. J Clin Oncol: 2008; 26 3242 3247
5. Herpel E., Hummel M. [Research biobanks-development and structure]. Dtsch Med Wochenschr: 2013; 138 1069 1072
6. Hewitt R. E. Biobanking: the foundation of personalized medicine. Curr Opin Oncol: 2011; 23 112 119
7. Fick E., Anzeneder T., Katalinic A. et al. Bisphosphonates and their role in therapy for breast cancer - results from the PATH biobank [Bisphosphonate und ihre Rolle in der Therapie des Mammakarzinoms - Ergebnisse aus der Biobank PATH]. Geburtsh Frauenheilk: 2013; 73 412 421
8. Gevensleben H., Gohring U. J., Buttner R. et al. Comparison of MammaPrint and TargetPrint results with clinical parameters in German patients with early stage breast cancer. Int J Mol Med: 2010; 26 837 843
9. Kloten V., Becker B., Winner K. et al. Promoter hypermethylation of the tumor-suppressor genes ITIH5, DKK3, and RASSF1A as novel biomarkers for blood-based breast cancer screening. Breast Cancer Res: 2013; 15 R4
10. WBC Westdeutsches Brust-Centrum GmbH Hrsg. Benchmarking WBC. Jahresbericht 2009. Bonn Mediengestaltung Claus: 2010
11. Donnachie E., Hofmann F., Keller M. et al., Hrsg. Qualitätsbericht 2010. Disease Management Programme in Bayern. München: 2011
12. Hagen B., Altenhofen L., Blaschy S. et al. Hrsg Qualitä tssicherungsbericht 2009. Disease-Management-Programme in Nordrhein. Aufl. Köln-Weiden Echo VERLAGSGRUPPE GmbH: 2010
13. Altman D., Machin D., Bryant T. N. et al. Statistics with confidence: confidence intervals and statistical guidelines. London John Wiley & Sons: 2003
14. Waldmann A., Pritzkuleit R., Raspe H. et al. Guideline-compatible treatment of breast cancer patients: the status quo in Schleswig-Holstein. Dtsch Arztebl Int: 2008; 105 337 343
15. Arndt V., Merx H., Sturmer T. et al. Age-specific detriments to quality of life among breast cancer patients one year after diagnosis. Eur J Cancer: 2004; 40 673 680
16. Kemeny M. M., Peterson B. L., Kornblith A. B. et al. Barriers to clinical trial participation by older women with breast cancer. J Clin Oncol: 2003; 21 2268 2275
17. Lakerveld J., Ijzelenberg W., van Tulder M. W. et al. Motives for (not) participating in a lifestyle intervention trial. BMC Med Res Methodol: 2008; 8 17
18. Pritzkuleit R., Waldmann A., Raspe H. et al. The population-based oncological health care study OVIS - recruitment of the patients and analysis of the non-participants. BMC Cancer: 2008; 8 311
19. Simon M. S., Du W., Flaherty L. et al. Factors associated with breast cancer clinical trials participation and enrollment at a large academic medical center. J Clin Oncol: 2004; 22 2046 2052
20. Arndt V., Merx H., Stegmaier C. et al. Quality of life in patients with colorectal cancer 1 year after diagnosis compared with the general population: a population-based study. J Clin Oncol: 2004; 22 4829 4836
21. Lehto U. S., Ojanen M., Kellokumpu-Lehtinen P. Predictors of quality of life in newly diagnosed melanoma and breast cancer patients. Ann Oncol: 2005; 16 805 816
22. Karakiewicz P. I., Tanguay S., Kattan M. W. et al. Erectile and urinary dysfunction after radical prostatectomy for prostate cancer in Quebec: a population-based study of 2415 men. Eur Urol: 2004; 46 188 194
23. Arndt V., Stegmaier C., Ziegler H. et al. A population-based study of the impact of specific symptoms on quality of life in women with breast cancer 1 year after diagnosis. Cancer: 2006; 107 2496 2503
24. Adelstein B., Irwig L., Macaskill P. et al. A self administered reliable questionnaire to assess lower bowel symptoms. BMC Gastroenterol: 2008; 8 8 17
25. Oberst K., Bradley C. J., Schenk M. Breast and prostate cancer patient's reliability of treatment reporting. J Registry Manag: 2009; 36 12 15
26. Penfold R. B., Kullgren J. T., Miroshnik I. et al. Reliability of a patient survey assessing cost-related changes in health care use among high deductible health plan enrollees. BMC Health Serv Res: 2011; 11 133
27. Radbruch L., Sabatowski R., Elsner F. et al. Validation of the German version of the brief fatigue inventory. J Pain Symptom Manage: 2003; 25 449 458
28. Renzi C., Mastroeni S., Mannooranparampil T. J. et al. Reliability of self-reported information on skin cancer among elderly patients with squamous cell carcinoma. Ann Epidemiol: 2011; 21 551 554
29. Slanger T., Mutschelknauss E., Kropp S. et al. Test-retest reliability of self-reported reproductive and lifestyle data in the context of a German case-control study on breast cancer and postmenopausal hormone therapy. Ann Epidemiol: 2007; 17 993 998
30. Waldmann A., Dreckschmidt J., Pritzkuleit R. et al. Test-Retest Reliabilität des OVIS-Fragebogens - ein Instrument zur Evaluation der onkologischen Versorgung aus Patientensicht. [Test-retest reliability of the OVIS Questionnaire - an instrument to evaluate oncological care from a patient's point of view]. Gesundheitswesen: 2010; 72 707 713
31. Greenlaw S. M., Yentzer B. A., O'Neill J. L. et al. Assessing adherence to dermatology treatments: a review of self-report and electronic measures. Skin Res Technol: 2010; 16 253 258
32. Gupta V., Gu K., Chen Z. et al. Concordance of self-reported and medical chart information on cancer diagnosis and treatment. BMC Med Res Methodol: 2011; 11 72
33. Jones J. M., McPherson C. J., Zimmermann C. et al. Assessing agreement between terminally ill cancer patients' reports of their quality of life and family caregiver and palliative care physician proxy ratings. J Pain Symptom Manage: 2011; 42 354 365
34. Ritterhoff N. Wie gut kennen Patienten ihre Krankheit und Behandlung? Ein Vergleich von Patientenangaben, Arztangeben und Registerdaten in der onkologischen Versorgung. Dissertation. Institut für Krebsepidemiologie e.V., Universität zu Lübeck: 2010
35. Fisher D. A., Voils C. I., Coffman C. J. et al. Validation of a questionnaire to assess self-reported colorectal cancer screening status using face-to-face administration. Dig Dis Sci: 2009; 54 1297 1306
36. McAdams M. A., Maynard J. W., Baer A. N. et al. Reliability and sensitivity of the self-report of physician-diagnosed gout in the campaign against cancer and heart disease and the atherosclerosis risk in the community cohorts. J Rheumatol: 2011; 38 135 141
37. Cowan C., Hoskins R. Information preferences of women receiving chemotherapy for breast cancer. Eur J Cancer Care: 2007; 16 543 550
38. Raupach J. C., Hiller J. E. Information and support for women following the primary treatment of breast cancer. Health Expect: 2002; 5 289 301
39. Nagler R. H., Gray S. W., Romantan A. et al. Differences in information seeking among breast, prostate, and colorectal cancer patients: results from a population-based survey. Patient Educ Couns: 2010; 81 (Suppl.) S54 S62
40. Rokade A., Kapoor P. K., Rao S. et al. Has the internet overtaken other traditional sources of health information? Questionnaire survey of patients attending ENT outpatient clinics. Clin Otolaryngol Allied Sci: 2002; 27 526 528
41. Talosig-Garcia M., Davis S. W. Information-seeking behavior of minority breast cancer patients: an exploratory study. J Health Commun: 2005; 10 01 53 64
42. Satterlund M. J., McCaul K. D., Sandgren A. K. Information gathering over time by breast cancer patients. J Med Internet Res: 2003; 5 e15
43. Mancini J., Nogues C., Adenis C. et al. Patients' characteristics and rate of Internet use to obtain cancer information. J Public Health (Oxf): 2006; 28 235 237
44. Sharpley C. F., Christie D. R. Patient information preferences among breast and prostate cancer patients. Australas Radiol: 2007; 51 154 158
45. van de Poll-Franse L. V., van Eenbergen M. C. Internet use by cancer survivors: current use and future wishes. Support Care Cancer: 2008; 16 1189 1195