-
1
-
-
84967058340
-
-
Accessed 27 January 2012
-
23andMe (2012a) Core values. https://www.23andme.com/about/values. Accessed 27 January 2012
-
(2012)
Core Values
-
-
-
3
-
-
84874839895
-
-
Accessed 27 January 2012
-
23andMe (2012c) Terms of service. https://www.23andme.com/about/tos/. Accessed 27 January 2012
-
(2012)
Terms of Service
-
-
-
4
-
-
28644446593
-
Deficiency of knowledge of genetics and genetic tests among general practitioners, gynecologists, and pediatricians: A global problem
-
DOI 10.1097/01.gim.0000182895.28432.c7
-
Baars MJ, Henneman L, ten Kate LP (2005) Deficiency of knowledge of genetics and genetic tests among general practitioners, gynaecologists, and paediatricians: a global problem. Genet Med 7:605-610 (Pubitemid 41753011)
-
(2005)
Genetics in Medicine
, vol.7
, Issue.9
, pp. 605-610
-
-
Baars, M.J.H.1
Henneman, L.2
Ten, K.L.P.3
-
5
-
-
77955619710
-
Which way for genetic-test regulation? Leave test interpretation to specialists
-
Beaudet AL (2010) Which way for genetic-test regulation? Leave test interpretation to specialists. Nature 466:816-817
-
(2010)
Nature
, vol.466
, pp. 816-817
-
-
Beaudet, A.L.1
-
6
-
-
79851493086
-
Effect of direct-to-consumer genomewide profiling to assess disease risk
-
Bloss CS, Schork NJ, Topol EJ (2011a) Effect of direct-to-consumer genomewide profiling to assess disease risk. N Eng J Med 364:524-534
-
(2011)
N Eng J Med
, vol.364
, pp. 524-534
-
-
Bloss, C.S.1
Schork, N.J.2
Topol, E.J.3
-
8
-
-
84863725841
-
Legislation on direct-to-consumer genetic testing in seven European countries
-
advance publication online 25 January doi:10.1038/ejhg.2011.278
-
Borry P, van Hellemondt RE, Sprumont D, Fittipaldi Duarte Jales C, Rial-Sebbag E, Spranger TM, Curren L, Kaye J, Nys H, Howard H (advance publication online 25 January 2012) Legislation on direct-to-consumer genetic testing in seven European countries. Eur J Hum Gen. doi:10.1038/ejhg.2011.278
-
(2012)
Eur J Hum Gen
-
-
Borry, P.1
Van Hellemondt, R.E.2
Sprumont, D.3
Fittipaldi Duarte Jales, C.4
Rial-Sebbag, E.5
Spranger, T.M.6
Curren, L.7
Kaye, J.8
Nys, H.9
Howard, H.10
-
9
-
-
79959995540
-
Direct-to-consumer testing: If consumers are not anxious, why are policymakers?
-
Caulfield T (2011) Direct-to-consumer testing: if consumers are not anxious, why are policymakers? Hum Gen 130:23-25
-
(2011)
Hum Gen
, vol.130
, pp. 23-25
-
-
Caulfield, T.1
-
12
-
-
84899087063
-
-
Homepage Accessed 27 January 2012
-
deCODEme (2012a) Homepage. http://www.decodeme.com. Accessed 27 January 2012
-
(2012)
-
-
-
13
-
-
84899114021
-
-
Accessed 27 January 2012
-
deCODEme (2012b) About risk. http://www.decodeme.com/health-watch- information/about-risk. Accessed 27 January 2012
-
(2012)
About Risk
-
-
-
14
-
-
84899047809
-
-
Accessed 27 January 2012
-
deCODEme (2012c) Try our demo. http://www.decodeme.com/trydemo. Accessed 27 January 2012
-
(2012)
Try Our Demo
-
-
-
15
-
-
84899080606
-
-
Accessed 27 January 2012
-
deCODEme (2012d) About deCODEme. http://www.decodeme.com/about-decodeme. Accessed 27 January 2012
-
(2012)
About DeCODEme
-
-
-
16
-
-
84899053210
-
-
Accessed 27 January 2012
-
deCODEme (2012e) Service agreement. http://www.decodeme.com/service- agreement. Accessed 27 January 2012
-
(2012)
Service Agreement
-
-
-
17
-
-
77954333798
-
-
Accessed 27 January 2012
-
deCODEme (2012f) Frequently asked questions. http://www.decodeme.com/ faq#scan1. Accessed 27 January 2012
-
(2012)
Frequently Asked Questions
-
-
-
19
-
-
77957221388
-
-
Genetics and Public Policy Center Accessed 27 January 2012
-
Genetics and Public Policy Center (2010) DTC Genetic Testing Companies. http://www.dnapolicy.org/resources/DTCTableAug2011Alphabydisease.pdf. Accessed 27 January 2012
-
(2010)
DTC Genetic Testing Companies
-
-
-
20
-
-
69949186007
-
Public knowledge of benefits of breast and prostate cancer screening in Europe
-
Gigerenzer G, Mata J, Frank R (2009) Public knowledge of benefits of breast and prostate cancer screening in Europe. J Natl Cancer Inst 101:1216-1220
-
(2009)
J Natl Cancer Inst
, vol.101
, pp. 1216-1220
-
-
Gigerenzer, G.1
Mata, J.2
Frank, R.3
-
21
-
-
78650346972
-
Health-care referrals from direct-to-consumer genetic testing
-
Giovanni MA, Fickie MR, Lehmann LS, Green RC, Meckley LM, Veenstra D, Murray MF (2010) Health-care referrals from direct-to-consumer genetic testing. Genet Test Mol Biomarkers 14:817-819
-
(2010)
Genet Test Mol Biomarkers
, vol.14
, pp. 817-819
-
-
Giovanni, M.A.1
Fickie, M.R.2
Lehmann, L.S.3
Green, R.C.4
Meckley, L.M.5
Veenstra, D.6
Murray, M.F.7
-
22
-
-
80855148238
-
Motivations and perceptions of early adopters of personalized genomics: Perspectives from research participants
-
Gollust SE, Gordon ES, Zayac C, Griffin G, Christman MF, Pyeritz RE, Wawak L, Bernhardt BA (2012) Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants. Public Health Genomics 15:22-30
-
(2012)
Public Health Genomics
, vol.15
, pp. 22-30
-
-
Gollust, S.E.1
Gordon, E.S.2
Zayac, C.3
Griffin, G.4
Christman, M.F.5
Pyeritz, R.E.6
Wawak, L.7
Bernhardt, B.A.8
-
23
-
-
0842287359
-
A study of public opinion on the use of tissue samples from living subjects for clinical research
-
DOI 10.1136/jcp.2003.9886
-
Goodson ML, Vernon BG (2004) A study of public opinion on the use of tissue samples from living subjects for clinical research. J Clin Pathol 57:135-138 (Pubitemid 38177748)
-
(2004)
Journal of Clinical Pathology
, vol.57
, Issue.2
, pp. 135-138
-
-
Goodson, M.L.1
Vernon, B.G.2
-
24
-
-
79952766383
-
Personal genetics: Regulatory framework in Europe from a service provider 's perspective
-
Grimaldi KA, Look MP, Scioli GA, Clavero JC, Marinos S, Tagaris T (2011) Personal genetics: regulatory framework in Europe from a service provider 's perspective. Eur J Hum Gen 19:382-388
-
(2011)
Eur J Hum Gen
, vol.19
, pp. 382-388
-
-
Grimaldi, K.A.1
Look, M.P.2
Scioli, G.A.3
Clavero, J.C.4
Marinos, S.5
Tagaris, T.6
-
26
-
-
67649171897
-
Personal genomics services: Whose genomes?
-
Gurwitz D, Bregman-Eschet Y (2009) Personal genomics services: whose genomes? Eur J Hum Gen 17:883-889
-
(2009)
Eur J Hum Gen
, vol.17
, pp. 883-889
-
-
Gurwitz, D.1
Bregman-Eschet, Y.2
-
27
-
-
38149036642
-
A systematic review of perceived risks, psychological and behavioral impacts of genetic testing
-
Heshka JT, Palleschi C, Howley H, Wilson B, Wells PS (2008) A systematic review of perceived risks, psychological and behavioral impacts of genetic testing. Genet Med 10:19-32
-
(2008)
Genet Med
, vol.10
, pp. 19-32
-
-
Heshka, J.T.1
Palleschi, C.2
Howley, H.3
Wilson, B.4
Wells, P.S.5
-
28
-
-
52949089274
-
The current landscape for direct-to-consumer genetic testing; legal, ethical, and policy issues
-
Hogarth S, Javitt G, Melzer D (2008) The current landscape for direct-to-consumer genetic testing; legal, ethical, and policy issues. Annu Rev Genom Hum Genet 8:161-182
-
(2008)
Annu Rev Genom Hum Genet
, vol.8
, pp. 161-182
-
-
Hogarth, S.1
Javitt, G.2
Melzer, D.3
-
29
-
-
84860778374
-
Is there a doctor in the house? The presence of physicians in the direct-to-consumer genetic testing context
-
Howard H, Borry P (2012) Is there a doctor in the house? The presence of physicians in the direct-to-consumer genetic testing context. J Community Genet 3:105-112
-
(2012)
J Community Genet
, vol.3
, pp. 105-112
-
-
Howard, H.1
Borry, P.2
-
30
-
-
77955055658
-
Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects
-
Howard HC, Knoppers BM, Borry P (2010) Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects. EMBO Rep 11:579-582
-
(2010)
EMBO Rep
, vol.11
, pp. 579-582
-
-
Howard, H.C.1
Knoppers, B.M.2
Borry, P.3
-
31
-
-
35348957507
-
ASHG statement on direct-to-consumer genetic testing in the United States
-
with the ASHG (American Society of Human Genetics) Social Issues Committee
-
Hudson K, Javitt G, Burke W, Byers P, with the ASHG (American Society of Human Genetics) Social Issues Committee (2007) ASHG statement on direct-to-consumer genetic testing in the United States. Am J Hum Gen 81:635-637
-
(2007)
Am J Hum Gen
, vol.81
, pp. 635-637
-
-
Hudson, K.1
Javitt, G.2
Burke, W.3
Byers P4
-
33
-
-
79952216252
-
Concordance study of 3 direct-to-consumer genetic-testing services
-
Imai K, Kricka LJ, Fortina P (2011) Concordance study of 3 direct-to-consumer genetic-testing services. Clin Chem 57:518-521
-
(2011)
Clin Chem
, vol.57
, pp. 518-521
-
-
Imai, K.1
Kricka, L.J.2
Fortina, P.3
-
34
-
-
77955626179
-
Which way for genetic-test regulation? Assign regulation appropriate to the level of risk
-
Javitt G (2010) Which way for genetic-test regulation? Assign regulation appropriate to the level of risk. Nature 466:817- 818
-
(2010)
Nature
, vol.466
, pp. 817-818
-
-
Javitt, G.1
-
35
-
-
58149327181
-
The regulation of direct-to-consumer genetic tests
-
Kaye J (2008) The regulation of direct-to-consumer genetic tests. Hum Mol Gen 17(R2):R180-R183
-
(2008)
Hum Mol Gen
, vol.17
, Issue.R2
-
-
Kaye, J.1
-
36
-
-
77952541090
-
Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers
-
Lachance CR, Erby LA, Ford BM, Allen VC Jr, Kaphingst KA (2010) Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers. Genet Med 12:304-312
-
(2010)
Genet Med
, vol.12
, pp. 304-312
-
-
Lachance, C.R.1
Erby, L.A.2
Ford, B.M.3
Allen Jr., V.C.4
Kaphingst, K.A.5
-
37
-
-
84859605343
-
Direct-to-consumer genetic testing: What's the prognosis?
-
Accessed 27 January 2012
-
Lerner-Ellis JP, Ellis JD, Green R (2010) Direct-to-consumer genetic testing: what's the prognosis? Genewatch 23(4):6-7 http://www. councilforresponsiblegenetics.org/GeneWatch/GeneWatchPage.aspx?pageId0277. Accessed 27 January 2012
-
(2010)
Genewatch
, vol.23
, Issue.4
, pp. 6-7
-
-
Lerner-Ellis, J.P.1
Ellis, J.D.2
Green, R.3
-
38
-
-
84857535084
-
DTC genetic testing companies fail transparency prescriptions
-
Lewis NP, Treise D, Hsu SI, Allen WL, Kang H (2011) DTC genetic testing companies fail transparency prescriptions. New Gen Soc 30:291-307
-
(2011)
New Gen Soc
, vol.30
, pp. 291-307
-
-
Lewis, N.P.1
Treise, D.2
Hsu, S.I.3
Allen, W.L.4
Kang, H.5
-
39
-
-
81755164733
-
Direct-to-consumer testing: More risks than opportunities
-
Lippi G, Favarolo EJ, Plebani M (2011) Direct-to-consumer testing: more risks than opportunities. Int J Clin Pract 65:1221-1229
-
(2011)
Int J Clin Pract
, vol.65
, pp. 1221-1229
-
-
Lippi, G.1
Favarolo, E.J.2
Plebani, M.3
-
40
-
-
55049135914
-
Effects of communicating DNA-based disease risk estimates on risk-reducing behaviours
-
doi:10.1002/14651858.CD007275.pub2
-
Marteau TM, French DP, Griffin SJ, Prevost AT, Sutton S, Watkinson C, Attwood S, Hollands GJ (2010) Effects of communicating DNA-based disease risk estimates on risk-reducing behaviours. Cochrane Database Syst Rev 10:CD007275. doi:10.1002/14651858.CD007275.pub2
-
(2010)
Cochrane Database Syst Rev
, vol.10
-
-
Marteau, T.M.1
French, D.P.2
Griffin, S.J.3
Prevost, A.T.4
Sutton, S.5
Watkinson, C.6
Attwood, S.7
Hollands, G.J.8
-
41
-
-
84899121162
-
-
Accessed 27 January 2012
-
Mayo Clinic (2012) Cancer risk: what the numbers mean. http://www.mayoclinic.com/health/cancer/CA00053. Accessed 27 January 2012
-
(2012)
Cancer Risk: What the Numbers Mean.
-
-
-
42
-
-
77956943445
-
Personal genomics and individual identities: Motivations and moral imperatives of early users
-
McGowan ML, Fishman JR, Lambrix MA (2010) Personal genomics and individual identities: motivations and moral imperatives of early users. New Gen Soc 29(3):261-290
-
(2010)
New Gen Soc
, vol.29
, Issue.3
, pp. 261-290
-
-
McGowan, M.L.1
Fishman, J.R.2
Lambrix, M.A.3
-
43
-
-
57449092873
-
An unwelcome side effect of direct-to-consumer personal genome testing: Raiding the medical commons
-
McGuire AL, Burke W (2008) An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons. JAMA 300:2669-2671
-
(2008)
JAMA
, vol.300
, pp. 2669-2671
-
-
McGuire, A.L.1
Burke, W.2
-
44
-
-
78650414687
-
Health system implications of direct-to-consumer personal genome testing
-
McGuire AL, Burke W (2011) Health system implications of direct-to-consumer personal genome testing. Public Health Genomics 14:53-58
-
(2011)
Public Health Genomics
, vol.14
, pp. 53-58
-
-
McGuire, A.L.1
Burke, W.2
-
45
-
-
70449719034
-
Social networkers' attitudes toward direct-to-consumer personal genome testing
-
McGuire AL, Diaz CM, Wang T, Hilsenbeck SG (2009) Social networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth 9(6-7):3-10
-
(2009)
Am J Bioeth
, vol.9
, Issue.6-7
, pp. 3-10
-
-
McGuire, A.L.1
Diaz, C.M.2
Wang, T.3
Hilsenbeck, S.G.4
-
46
-
-
84899127186
-
-
Homepage Accessed 27 January 2012
-
Navigenics (2012a) Homepage. http://www.navigenics.com/. Accessed 27 January 2012
-
(2012)
-
-
-
48
-
-
84899088551
-
-
Accessed 27 January 2012
-
Navigenics (2012c) Demo. http://www.navigenics.com/demo/tutorial. Accessed 27 January 2012
-
(2012)
Demo
-
-
-
49
-
-
4243877339
-
-
Accessed 27 January 2012
-
Navigenics (2012d) Genetic counseling. http://www.navigenics.com/visitor/ what-we-offer/genetic-counseling/. Accessed 27 January 2012
-
(2012)
Genetic Counseling
-
-
-
50
-
-
79952325539
-
Confidence of primary care physicians in their ability to carry out basic medical genetic tasks - A European survey in five countries - Part 1
-
Nippert I, Harris HJ, Julian-Reynier C, Kristoffersson U, ten Kate LP, Anionwu E, Benjamin C, Challen K, Schmidtke J, Nippert RP, Rodney Harris R (2011) Confidence of primary care physicians in their ability to carry out basic medical genetic tasks - a European survey in five countries - part 1. J Comm Gen 2:1-11
-
(2011)
J Comm Gen
, vol.2
, pp. 1-11
-
-
Nippert, I.1
Harris, H.J.2
Julian-Reynier, C.3
Kristoffersson, U.4
Ten Kate, L.P.5
Anionwu, E.6
Benjamin, C.7
Challen, K.8
Schmidtke, J.9
Nippert, R.P.10
Rodney Harris, R.11
-
51
-
-
44249111489
-
Genetics and Identity
-
Nordgren A (2008) Genetics and Identity. Community Genet 11:252-266
-
(2008)
Community Genet
, vol.11
, pp. 252-266
-
-
Nordgren, A.1
-
52
-
-
84899119019
-
The rhetoric appeal to identity on websites of companies offering non-health-related DNA testing
-
Nordgren A (2010) The rhetoric appeal to identity on websites of companies offering non-health-related DNA testing. Ident Inform Soc 3:473-487
-
(2010)
Ident Inform Soc
, vol.3
, pp. 473-487
-
-
Nordgren, A.1
-
54
-
-
70449685963
-
Can genomics tell me who I am? Essentialistic rhetoric in direct-to-consumer DNA testing
-
Nordgren A, Juengst ET (2009) Can genomics tell me who I am? Essentialistic rhetoric in direct-to-consumer DNA testing. New Gen Soc 28:157-172
-
(2009)
New Gen Soc
, vol.28
, pp. 157-172
-
-
Nordgren, A.1
Juengst, E.T.2
-
55
-
-
84899058674
-
-
Homepage Accessed 27 January 2012
-
Pathway Genomics (2012) Homepage. https://www.pathway.com/. Accessed 27 January 2012
-
(2012)
-
-
-
56
-
-
74049101159
-
Personal genomics: Information can be harmful
-
Ransohoff DF, Khoury MJ (2010) Personal genomics: information can be harmful. Eur J Clin Invest 40:64-68
-
(2010)
Eur J Clin Invest
, vol.40
, pp. 64-68
-
-
Ransohoff, D.F.1
Khoury, M.J.2
-
57
-
-
84856502646
-
Users' motivations to purchase direct-to-consumer genome-wide testing: An exploratory study of personal stories
-
Su Y, Howard HC, Borry P (2011) Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories. J Comm Genet 2(3):135-146
-
(2011)
J Comm Genet
, vol.2
, Issue.3
, pp. 135-146
-
-
Su, Y.1
Howard, H.C.2
Borry, P.3
-
59
-
-
84884677287
-
Statistical illiteracy in doctors. In: Gigerenzer G, Muir G (eds) Better doctors, better patients, better decisions: Envisioning health care 2020
-
MIT Press, Cambridge
-
Wegwart O, Gigerenzer G (2011) Statistical illiteracy in doctors. In: Gigerenzer G, Muir G (eds) Better doctors, better patients, better decisions: envisioning health care 2020. strungmann forum reports, vol 6, J Lupp. MIT Press, Cambridge, pp 137-151
-
(2011)
Strungmann Forum Reports
, vol.6
, Issue.J LUPP
, pp. 137-151
-
-
Wegwart, O.1
Gigerenzer, G.2
-
60
-
-
77957225686
-
Size of the direct-to-consumer genomic testing market
-
Wright CF, Gregory-Jones S (2010) Size of the direct-to-consumer genomic testing market. Genet Med 12:594
-
(2010)
Genet Med
, vol.12
, pp. 594
-
-
Wright, C.F.1
Gregory-Jones, S.2
|