The social support model for people with chronic health conditions: A proposal for future research

Social Theory and Health

Volumn 12, Issue 2, 2014, Pages 218-234

  Frohlich, Dennis Owen ^a  

^a UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

Author keywords

chronic illness; health; model; social support; support group; theory

Indexed keywords

EID: 84898951623     PISSN: 14778211     EISSN: 1477822X     Source Type: Journal    
DOI: 10.1057/sth.2014.3     Document Type: Article

References (60)

1. Abbott, S. (2009) Social capital and health: The problematic roles of social networks and social surveys. Health Sociology Review 18(3): 297-306.
2. Acton, G.J. and Malathum, P. (2000) Basic need status and health-promoting self-care behavior in adults. Western Journal of Nursing Research 22(7): 796-811.
3. Bennett, S.J., Perkins, S.M., Lane, K.A., Deer, M., Brater, D.C. and Murray, M.D. (2001) Social support and health-related quality of life in chronic heart failure patients. Quality of Life Research 10(8): 671-682. (Pubitemid 34145318)
4. Braithwaite, D.O., Waldron, V.R. and Finn, J. (1999) Communication of social support in computermediated groups for people with disabilities. Health Communication 11(2): 123-151.
5. Bunde, M., Suls, J., Martin, R. and Barnett, K. (2006) Hystersisters online: Social support and social comparison among hysterectomy patients on the internet. Annals of Behavioral Medicine 31(3): 271-278. (Pubitemid 43833154)
6. Calsyn, R.J., Winter, J.P. and Burger, G.K. (2005) The relationship between social anxiety and social support in adolescents: A test of competing causal models. Adolescence 40(157): 103-113. (Pubitemid 40653838)
7. Campbell, K. and Wright, K.B. (2002) On-line support groups: An investigation of relationships among source credibility, dimensions of relational communication, and perceptions of emotional support. Communication Research Reports 19(2): 183-193.
8. Capodice, J.L. and Katz, A.E. (2006) What patients take without telling you: Holistic approach for BPH. World Journal of Urology 24(4): 378-382. (Pubitemid 44304933)
9. Cienki, J.J. and Zaret, L. (2010) An internet misadventure: Bloodroot salve toxicity. Journal of Alternative and Complementary Medicine 16(10): 1125-1127.
10. Cobb, N.K., Graham, A.L. and Abrams, D.B. (2010) Social network structure of a large online community for smoking cessation. American Journal of Public Health 100(7): 1282-1289.
11. Colineau, N. and Paris, C. (2010) Talking about your health to strangers: Understanding the use of online social networks by patients. New Review of Hypermedia and Multimedia 16(1/2): 141-160.
12. Coulson, N.S. and Knibb, R.C. (2007) Coping with food allergy: Exploring the role of the online support group. Cyber Psychology and Behavior 10(1): 145-148. (Pubitemid 46385794)
13. Cutrona, C.E. and Suhr, J.A. (1992) Controllability of stressful events and satisfaction with spouse support behaviors. Communication Research 19(2): 154-174.
14. de Medeiros, L.M. et al (2008) Complementary and alternative remedies: An additional source of potential systemic nickel exposure. Contact Dermatitis 58(2): 97-100.
15. DiMatteo, M.R. (2004) Social support and patient adherence to medical treatment: A meta-analysis. Health Psychology 23(2): 207-218.
16. Eichhorn, K.C. (2008) Soliciting and providing social support over the internet: An investigation of online eating disorder support groups. Journal of Computer-Mediated Communication 14(1): 67-78.
17. Eysenbach, G., Powell, J., Englesakis, M., Rizo, C. and Stern, A. (2004) Health related virtual communities and electronic support groups: Systematic review of the effects of online peer to peer interactions. British Medical Journal, 328(1166). http://www.bmj.com/content/328/7449/1166, accessed 11 November 2011.
18. Finfgeld-Connett, D. (2005) Clarification of social support. Journal of Nursing Scholarship 37(1): 4-9.
19. Frohlich, D. O. (2012a) Defining moments: People supersede illness. Health Communication 27(6): 623-627.
20. Frohlich, D. O. (2012b) Self-disclosing my ostomy to the dominant culture: An autoethnography. Journal of Wound, Ostomy and Continence Nursing 39(6): 627-631.
21. Frohlich, D. O. (in press) For people with inflammatory bowel disease, support often outweighs stigma. Gastroenterology Nursing.
22. Frohlich, D. O. and Birnbrauer, K. (in press) Discrepancies in health information found on websites discussing cures for inflammatory bowel disease, an 'incurable' disease. Inflammatory Bowel Diseases.
23. Frohlich, D. O. and Zmyslinski-Seelig, A. (2012a) How Uncover Ostomy challenges ostomy stigma, and encourages others to do the same. Paper presented at the National Communication Association 2012 convention, Orlando, Florida, November.
24. Frohlich, D. O. and Zmyslinski-Seelig, A. (2012b) The presence of social support messages on YouTube videos about inflammatory bowel disease and ostomies. Health Communication 27(5): 421-428.
25. Fukkink, R. (2011) Peer counseling in an online chat service: A content analysis of social support. Cyber Psychology, Behavior and Social Networking 14(4): 247-251.
26. Ginossar, T. (2008) Online participation: A content analysis of differences in utilization of two online cancer communities by men and women, patients and family members. Health Communication 23(1): 1-12.
27. Gold, J.I., Treadwell, M., Weissman, L. and Vichinsky, E. (2008) An expanded transactional stress and coping model for siblings of children with sickle cell disease: Family functioning and sibling coping, self-efficacy, and perceived social support. Child: Care, Health and Development 34(4): 491-502. (Pubitemid 351818804)
28. Goldsmith, D.J. and Albrecht, T.L. (2011) Social support, social networks, and health. In: T.L. Thompson, R. Parrott and J.F. Nussbaum (eds.) The Routledge Handbook of Health Communication: Second Edition. New York: Routledge, pp. 335-348.
29. Goodman, R.A., Posner, S.F., Huang, E.S., Parekh, A.K. and Koh, H.K. (2013) Defining and measuring chronic conditions: Imperatives for research, policy, program, and practice. Preventing Chronic Disease 10. http://www.cdc.gov/Pcd/issues/2013/12-0239.htm, accessed 11 September 2013.
30. House, J.S., Landis, K.R. and Umberson, D. (1988) Social relationships and health. Science 241(4865): 540-545.
31. Hwang, K.O. et al (2011) Measuring social support for weight loss in an internet weight loss community. Journal of Health Communication 16(2): 198-211.
32. Kang, S. (2007) Disembodiment in online social interaction: Impact of online chat on social support and psychosocial well-being. Cyber Psychology and Behavior 10(3): 475-477.
33. Lepore, S.J., Glaser, D. and Roberts, K. (2008) On the positive relation between received social support and negative affect: A test of the triage and self-esteem threat models in women with breast cancer. Psycho-Oncology 17(12): 1210-1215.
34. Lindsay, S., Smith, S., Bellaby, P. and Baker, R. (2009) The health impact of an online heart disease support group: A comparison of moderated versus unmoderated support. Health Education Research 24(4): 646-654.
35. Mo, P.K.H. and Coulson, N.S. (2008) Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group. Cyber Psychology and Behavior 11(3): 1-4.
36. National Center for Chronic Disease Prevention and Health Promotion. (2013) Chronic disease prevention and health promotion. The Centers for Disease Control and Prevention. http://www .cdc.gov/chronicdisease/index.htm, accessed on 11 September 2013.
37. Nicholas, D.B. et al (2009) Evaluation of an online peer support network for adolescents with chronic kidney disease. Journal of Technology in Human Services 27(1): 23-33.
38. Percy, C.A., Gibbs, T., Potter, L. and Boardman, S. (2009) Nurseled peer support group: Experiences of women with polycystic ovary syndrome. Journal of Advanced Nursing 65(10): 2046-2055.
39. Peterson, J.L. (2009) 'You have to be positive'. Social support processes of an online support group for men living with HIV. Communication Studies 60(5): 526-541.
40. Qian, Y. and Mao, Y. (2010) A content analysis of online social support behaviors of overseas Chinese prenatal and postnatal women. China Media Research 6(4): 43-54.
41. Reeves, P.M. (2000) Coping in cyberspace: The impact of internet use on the ability of HIV-positive individuals to deal with their illness. Journal of Health Communication 5(S1): 47-59.
42. Rodham, K., McCabe, C. and Blake, D. (2009) Seeking support: An interpretive phenomenological analysis of an internet message board for people with complex regional pain syndrome. Psychology and Health 24(6): 619-634.
43. Scott, J. (1988) Social network analysis. Sociology 22(1): 109-127.
44. Shaw, B.R., Hawkins, R., McTavish, F., Pingree, S. and Gustafson, D.H. (2006) Effects of insightful disclosure within computer mediated support groups on women with breast cancer. Health Communication 19(2): 133-142. (Pubitemid 43603410)
45. Shoemaker, P.J., Tankard, J.W. and Lasorsa, D.L. (2004) How to Build Social Science Theories. Thousand Oaks, CA: Sage Publications.
46. Shu, B.C. and Lung, F.W. (2005) The effect of support group on the mental health and quality of life for mothers with autistic children. Journal of Intellectual Disability Research 49(1): 47-53.
47. Smith, K.P. and Christakis, N.A. (2008) Social networks and health. Annual Review of Sociology 34: 405-429.
48. Streeter, C.L. and Gillespie, D.F. (1993) Social network analysis. Journal of Social Service Research 16(1-2): 201-222.
49. Svavarsdottir, E.K. (2008) Connectedness, belonging and feelings about school among healthy and chronically ill Icelandic school children. Scandinavian Journal of Caring Sciences 22(3): 463-471.
50. Tanis, M., Das, E. and Fortgens-Sillmann, M. (2011) Finding care for the caregiver? Active participation in online health forums attenuates the negative effect of caregiver strain on wellbeing. Communications: The European Journal of Communication Research 36(1): 51-66.
51. Tichon, J.G. and Shapiro, M. (2003) The process of sharing social support in cyberspace. Cyber Psychology and Behavior 6(2): 161-170. (Pubitemid 36539077)
52. Uccelli, M.M., Mohr, L.M., Battaglia, M.A., Zagami, P. and Mohr, D.C. (2004) Peer support groups in multiple sclerosis: Current effectiveness and future directions. Multiple Sclerosis 10(1): 80-84. (Pubitemid 38100531)
53. Uchino, B.N. (2006) Social support and health: A review of physiological processes potentially underlying links to disease outcomes. Journal of Behavioral Medicine 29(4): 377-387.
54. Umberson, D. (1987) Family status and health behaviors: Social control as a dimension of social integration. Journal of Health and Social Behavior 28(3): 306-319.
55. Ussher, J., Kirsten, L., Butow, P. and Sandoval, M. (2006) What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Social Science and Medicine 62(10): 2565-2576.
56. Westaway, M.S., Seager, J.R., Rheeder, P. and Van Zyl, D.G. (2005) The effects of social support on health, well-being and management of diabetes mellitus: A black South African perspective. Ethnicity and Health 10(1): 73-89.
57. White, A.M., Philogene, S., Fine, L. and Sinha, S. (2009) Social support and self-reported health status of older adults in the United States. American Journal of Public Health 99(10): 1872-1878.
58. Wilks, S. and Croom, B. (2008) Perceived stress and resilience in Alzheimer's disease caregivers: Testing moderation and mediation models of social support. Aging and Mental Health 12(3): 357-365.
59. World Health Organization. (2011) Noncommunicable diseases country profiles 2011. http:// whqlibdoc.who.int/publications/2011/9789241502283-eng. pdf, accessed 10 September 2013.
60. World Health Organization. (2013) Chronic diseases. http://www.who.int/ topics/noncommunicable- diseases/en/, accessed 10 September 2013.