European variation in decision-making and parental involvement during preterm birth

Archives of Disease in Childhood: Fetal and Neonatal Edition

Volumn 99, Issue 3, 2014, Pages

  Gallagher, Katie ^a   Martin, John ^b   Keller, Matthias ^c   Marlow, Neil ^b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

^c Department of Paediatrics Dritter Orden Children's Hospital   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

AUSTRIA; BELGIUM; CZECH REPUBLIC; DENMARK; ESTONIA; EUROPE; FAMILY DECISION MAKING; FEMALE; FINLAND; FRANCE; GERMANY; GESTATIONAL AGE; HEALTH CARE POLICY; HEALTH SURVEY; HUMAN; INTERVENTION STUDY; ITALY; MEDICAL DOCUMENTATION; MEDICAL SOCIETY; NETHERLANDS; NORWAY; PARENTAL BEHAVIOR; PORTUGAL; PREMATURE LABOR; PREMATURITY; PRIORITY JOURNAL; RESUSCITATION; REVIEW; SLOVAKIA; SLOVENIA; SPAIN; SWEDEN; SWITZERLAND; TURKEY (REPUBLIC); UNITED KINGDOM;

HEALTH SERVICE; INTENSIVE CARE; NEONATOLOGY; RESUSCITATION;

DATA COLLECTION; DECISION MAKING; EUROPE; FEMALE; GESTATIONAL AGE; HUMANS; INFANT, EXTREMELY PREMATURE; OBSTETRIC LABOR, PREMATURE; PARENTS; POLICY MAKING; PRACTICE GUIDELINES AS TOPIC; PREGNANCY; RESUSCITATION ORDERS;

EID: 84898544746     PISSN: 13592998     EISSN: 14682052     Source Type: Journal    
DOI: 10.1136/archdischild-2013-305191     Document Type: Review

References (25)

1. Blencowe H, Cousens S, Oestergaard MZ, et al. National, regional, and worldwide estimates of preterm birth rates in the year 2010 with time trends since 1990 for selected countries: a systematic analysis and implications. Lancet 2012;379:2162-72.
2. World Health Organisation. Preterm Birth. 2012. http://www.who.int
3. Costeloe K, Hennessy E, Gibson AT, et al. The EPICure Study: Outcomes to Discharge From Hospital for Infants Born at the Threshold of Viability. Pediatrics 2000;106:659-71.
4. The Express Group (2009). One-Year Survival of Extremely Preterm Infants After Active Perinatal Care in Sweden. JAMA 2009;301:2225-33.
5. Beck S, Wojdyla D, Say L, et al. The worldwide incidence of preterm birth: a systematic review of maternal mortality and morbidity. Bull World Health Organ 2010;88:31 -8.
6. Costeloe KL, Hennessy E, Haider S, et al. Short term outcomes after extreme preterm birth in England: comparison of two birth cohorts in 1995 and 2006 (the EPICure studies). BMJ 2012;345:e7976.
7. Liu L, Johnson HL, Cousens S, et al. Global, regional, and national causes of child mortality: an updated systematic analysis for 2010 with time trends since 2000. Lancet 2012;379:2151-61.
8. Johnson S, Hennessy E, Smith R, et al. Academic attainment and special educational needs in extremely preterm children at 11 years of age: the EPICure Study. Arch Dis Child Fetal Neonatal Ed 2009;94:F283-9.
9. Guillén Ú, Suh S, Munson D, et al. Development and Pretesting of a Decision-Aid to Use When Counseling Parents Facing Imminent Extreme Premature Delivery. Pediatrics 2012;160:382-7.
10. Janvier A, Lorenz JM, Lantos JD. Antenatal counselling for parents facing an extremely preterm birth: limitations of the medical evidence. Acta Paediatr 2012;101:800-4.
11. Gallagher K, Marlow N, Edgley A, et al. The attitudes of neonatal nurses towards extremely preterm infants. J Adv Nurs 2012;68:1768-99.
12. Saigal S, Rosenbaum PL, Feeny D, et al . Parental Perspectives of the Health Status and Health-Related Quality of Life of Teen-Aged Children Who Were Extremely Low Birth Weight and Term Controls. Pediatrics 2000;105:569-74. (Pubitemid 30129673)
13. Marcello KR, Stefano JL, Lampron K, et al. The Influence of Family Characteristics on Perinatal Decision Making. Pediatrics 2011;127:e934-9.
14. de Leeuw R, Cuttini M, Nadai M, et al. Treatment choices for extremely premature infants: an international perspective. Pediatrics 2000;137:608-16.
15. Berger TM, Bernet V, El Alama S, et al. Perinatal care at the limit of viability between 22 and 26 completed weeks of gestation in Switzerland. Swiss Med Wkly 2011;141:w13280.
16. Cuttini M, Nadai M, Kaminski M, et al. End of life decisions in neonatal intensive care: physicians' self-reported practices in seven European countries. Lancet 2000;355:2112-18. (Pubitemid 30364660)
17. Mangham LJ, Petrou S, Doyle LW, et al. The cost of preterm birth throughout childhood in England and Wales. Pediatrics 2009;123:312-19.
18. O'Connor AM, Bennett CL, Stacey D, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev 2009;3:CD001431.
19. Anderson LB, Melvaer LB, Videbech P, et al. Risk factors for developing post-traumatic stress disorder following childbirth: a systematic review. Acta Obstet Gynecol Scand 2012;91:1261-72.
20. Starcke K, Brand M. Decision making under stress: a selective review. Neurosci Biobehav Rev 2012;36:1228-48.
21. De Rouck S, Leys M. Information needs of parents of children admitted to a neonatal intensive care unit: a review of the literature (1990-2008). Patient Educ Couns 2009;76:159-73.
22. Matrinez AM, Partridge C, Yu V, et al. Physician Counselling practices and decision making for extremely preterm infants in the Pacific Rim. J Paediatr Child Health 2005;41:209-14. (Pubitemid 40646632)
23. Duffy D, Reynolds P. Babies born at the threshold of viability: attitudes of paediatric consultants and trainees in the South East England. Acta Paediatr 2011;100:42-6.
24. European Commission (1975) Treaty of Rome. http://ec.europa.eu/
25. European Foundation for the Care of Newborn Infants. Caring for Tomorrow: EFCNI White Paper on Maternal and Newborn Health and Aftercare Services. 2011. http://www.efcni.org