Developing a pilot e-mobile app for dementia caregiver support: Lessons learned | OJNI

Online Journal of Nursing Informatics

Volumn 18, Issue 1, 2014, Pages

  Davis, Boyd H ^a   Nies, Mary A ^b   Shehab, Mohammed ^c   Shenk, Dena ^a  

^a UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE   (United States)

^b IDAHO STATE UNIVERSITY   (United States)

^c University of North Carolina at Charlotte   (United States)

Author keywords

Caregivers; Dementia; E mobile; Recruiting; Smartphones

Indexed keywords

EID: 84897944084     PISSN: 10899758     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (31)

1. Alzheimer's Association (2012).2012 Facts and Figures.Alzheimer's& Dementia, 8, 131-168
2. Bank A, Argüelles S, Rubert M, Eisdorf er C, Czaja S. (2006). The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist, 46 134-38
3. Bédard, M., Molloy, D., Squire, L., Dubois, S., Lever, J., and O'Donnell, M. (2001). The Zarit Burden Interview: A new short version and screening version. Gerontologist, 41, 652-657
4. Capezuti, E. &Hamers, J. (2013). Perspectives on how to improve the nursing care of older adults. International Journal of Nursing Studies, 50, 1153-1155
5. Carillo M, Dishman E, Plowman T. (2009). Everyday technologies f or Alzheimer's disease care: Research f indings, directions and challenges. Alzheimer's & Dementia, 5, 479-488
6. Conn, V., Algase, D., Rawl, S., Zerwic, J. and Wyman, J. (2010).Publishing pilot intervention work.Western Journal of Nursing Research, 32, 994-1010
7. Cooper, C., Tandy, A., Balamurali, T., Livingston, G. (2010). A systematic review and meta-analysis of ethnic dif f erences in use of dementia treatment, care, and research. American Journal of Geriatric Psychiatry, 183, 193-203
8. Devor, M. &Renvall, M. An educational intervention to support caregivers of elders with dementia.American Journal of Alzheimer's Disease and Other Dementias, 23, 233-241
9. Feinberg L, Reinhard S, Houser A, Choula R. (2011). Valuing the invaluable: 2011 Update. The Growing contributions and costs of f amily caregiving. AARP Public Policy Institute http://www.aarp.org/ppi
10. Fiordelli, M., Diviani, N. & Schulz, P. (2013).Mapping mHealth research: A decade of evolution.JMIR Journal of Medical Internet Research, 15.http://222.jmir.org
11. Gaugler, J., Kane, R, Kane, R. and Newcomer, R. (2005). Early community-based service utilization and its ef f ect on institutionalization in dementia caregiving. Gerontologist, 45, 177-185
12. Greenhalgh T, Campbell-Richards D, Vijayaraghavan S, Collard A, Malik F, Griffin M, et al. (2011). New models of self -management education f or minority ethnic groups: pilot randomized trial of a story-sharing intervention. J Health Services Research & Policy, 16, 28-36
13. Gromik, N. (2010). Cell phone video recording f eature as a language learning tool: A case study. Computers & Education, 58, 223-230
14. Gubrium, A. (2009). Digital storytelling: An emergent method f or health promotion research and practice. Health Promotion Practice, 10, 186-191
15. Hebden, L., Cook, A., van der Ploeg, H., Allman-Farinelli, M. (2012). Development of smartpohone applications f or nutrition and physical activity behavior change.JMIR Research Protocols, 1.http://www.researchprotocols.org/2012/2/e9/
16. Hornillos C. & Crespo M. (2012). Support groups f or caregivers of Alzheimer patients: A historical review. Dementia, 11, 155-169
17. Houston, T, Allison, J., Sussman, M., Horn, W., Holt, C., Trobaugh, J. et al. (2011a). Culturally appropriate storytelling to improve blood pressure: A randomized trial. Annals of Internal Medicine, 154, 77-84
18. Houston T., Cherrington, A., Coley, H., Robin, K., Trobaug, J., Williams, J., Foster,P. et al. (2011b). The art and science of patient storytelling: Harnessing narrative communication f or behavioral interventions, the ACCE project. Journal of Health Communication, 16, 686-97
19. Kaellander, K., Tibenderana, J., Apogheneta, O., Strachan, D., Hill, Z., ten Asbroek, A. et al. (2013). Mobile health (mHealth) approaches and lessons f or increased perf ormance and retention of community health workers in low- and middle-income countries: A review. JMIR Journal of Medical Internet Research, 15. http://www.jmir.org/2013/1/e17/
20. Kaye, L. (1996). Assessing the ef f icacy of a self -help support group program f or older women. Journal of Women and Aging, 7, 11-30
21. Lenhart A. (2010). Cell phones and American adults.Pew Internet Trust.http://pewinternet.org/Reports/2010/Cell-Phones-and-American-Adults.aspx
22. Lowson, E., Hanratty, B., Holmes, L., Addington-Hall, J., Grande, G., Payne, S., Seymour, J., 2013. From 'conductor' to 'second f iddle': older adultcare recipients' perspectives on transitions in f amily caring at hospital (space)admission. International Journal of Nursing Studies 50, 1197-1205
23. Marziali, E. & Donahue P. (2006). Caring f or Others: Internet, videoconf erencing group intervention f or f amily caregivers of older adults with neurodegenerative disease.Gerontologist, 46, 398-403
24. Mendes E (2011). Most caregivers look af ter elderly parents; Invest a lot of time. Pf izer-ReACT/Gallup Poll http://www.gallup.com/poll/148682/Caregivers-Look-Elderly-Parent-Invest-Lot-Time.aspx
25. Ory M, Hof f man R, Yee J, Tennstedt S & Schulz R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39, 177-186.JMIR Journal of Medical Internet Research, 14. http://www.jmir.org/2012/5/e128/
26. Ozdalga, A., Ahuja, N. (2012). The smartphone in medicine: A review of current and potential use among physicians and students. JMIR Journal of Medical Internet Research, 14, http://www.jmir.org/2012/5/e128/
27. Quinn, C., Shardell, M., Terrin, M., Barr, E, Ballew, S., Gruber-Baldwin. (2011). Cluster-randomized trial of a mobile phone personalized behavioral intervention f or blood glucose control. Diabetes Care, 34, 1934-42
28. Spijker A, Vernooij-Dassen M, Vasse E, Adang E, Wollersheim H, Grol R &Verhey, F. (2008) Ef f ectiveness of nonpharmacological interventions in delaying the institutionalization of patients with dementia: A meta-analysis. Journal of the American Geriatric Society, 56, 1116-1128
29. Toussaint D, Villagrana M, Mora-Torres H, de Leon M, Haughey M. (2011). Personal stories: Voices of Latino youth health advocates in a diabetes prevention initiative. Progress in Comm Health Partnerships, 5, 313-316
30. Tremont, G, Davis J, Bishop D, Fortinsky R. (2008). Telephone-delivered psychosocial intervention reduces burden in dementia caregivers. Dementia, 7, 503-520
31. Yeh P, Bull M. (2012). Use of the resiliency model of f amily stress, adjustment and adaptation in the analysis of f amily caregiver reaction among f amilies of people with congestive heart failure. Journal of Older People Nursing, 7, 117-126