Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: Findings from a qualitative investigation

BMC Medical Ethics

Volumn 15, Issue 1, 2014, Pages

  Killawi, Amal ^a   Khidir, Amal ^b   Elnashar, Maha ^b   Abdelrahim, Huda ^b   Hammoud, Maya ^a   Elliott, Heather ^c   Thurston, Michelle ^a   Asad, Humna ^b   Al Khal, Abdul Latif ^d   Fetters, Michael D ^a  

^a UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^b WEILL CORNELL MEDICAL COLLEGE   (Qatar)

^c UNIVERSITY OF MICHIGAN   (United States)

^d HAMAD GENERAL HOSPITAL   (Qatar)

Author keywords

Confidentiality; Cultural competence; Informed consent; Middle East; Qualitative research; Recruitment; Research compensation; Research ethics; Research participation; Vulnerability

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; COMPREHENSION; CULTURAL FACTOR; ECONOMICS; ETHICS; FEMALE; HEALTH CARE QUALITY; HUMAN; INCOME; INFORMED CONSENT; MALE; MEDICAL RESEARCH; METHODOLOGY; MIDDLE AGED; PATIENT SELECTION; QATAR; QUALITATIVE RESEARCH; QUESTIONNAIRE; RESEARCH ETHICS; RESEARCH SUBJECT;

ADOLESCENT; ADULT; AGED; BIOMEDICAL RESEARCH; COMPREHENSION; CULTURAL CHARACTERISTICS; ETHICS, RESEARCH; FEMALE; HUMANS; INCOME; INFORMED CONSENT; MALE; MIDDLE AGED; PATIENT SELECTION; QATAR; QUALITATIVE RESEARCH; QUALITY ASSURANCE, HEALTH CARE; QUESTIONNAIRES; RESEARCH DESIGN; RESEARCH SUBJECTS;

EID: 84897623254     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-15-9     Document Type: Article

References (32)

1. Challenges and Opportunities of US and Arab Collaborations in Health Services Research: A Case Study from Qatar. Hammoud MM, Elnashar M, Abdelrahim H, Khidir A, Elliott HAK, Killawi A, Padela AI, Al Khal AL, Bener A, Fetters MD, Glob J Health Sci 2012 4 6 148 159
2. Informed consent in human subject research: a comparison of current international and Nigerian guidelines. Fadare JO, Porteri C, J Empir Res Hum Res Ethics 2010 5 1 67 73 10.1525/jer.2010.5.1.67
3. Views of US researchers about informed consent in international collaborative research. Dawson L, Kass NE, Soc Sci Med 2005 61 6 1211 1222 10.1016/j.socscimed.2005.02.004 15970232
4. Negotiating the informed-consent process in developing countries: a comparison of Swaziland and Pakistan. Upvall M, Hashwani S, Int Nurs Rev 2001 48 3 188 192 10.1046/j.1466-7657.2001.00063.x 11558694
5. Informed consent and collaborative research: perspectives from the developing world. Hyder AA, Wali SA, Dev World Bioeth 2006 6 1 33 40 10.1111/j.1471-8847.2006.00134.x 16436172
6. Beyond Informed Consent. Bhutta ZA, Bull World Health Organ 2004 82 10 771 777 15643799
7. Diverse Perceptions of the Informed Consent Process: Implications for the Recruitment and Participation of Diverse Communities in the National Children's Study. Lakes KD, Vaughan E, Jones M, Burke W, Baker D, Swanson JM, Am J Community Psychol 2012 49 1-2 215 232 21671109
8. "Cultural competence" and informed consent in international health research. Marshall PA, Camb Q Healthc Ethics 2008 17 2 206 215 18312735
9. Nursing research with refugee clients: a call for more qualitative approaches. Halabi JO, Int Nurs Rev 2005 52 4 270 275 10.1111/j.1466-7657.2005. 00440.x 16238723
10. Informed consent for research: international perspectives. Macklin R, J Am Med Wom Assoc 2000 55 5 290 293 11070649
11. Research and informed consent in Africa - another look. IJsselmuiden CB, Faden RR, N Engl J Med 1992 326 12 830 833 10.1056/NEJM199203193261212 1538731
12. Informed consent in medical research. Minimum ethical standards should not vary among countries. Holmes W, BMJ 1997 314 7092 1479
13. The ethics of clinical research in the Third World. Angell M, N Engl J Med 1997 337 12 847 849 10.1056/NEJM199709183371209 9295243
14. Islam and informed consent: notes from Doha. Del Pozo PR, Fins JJ, Camb Q Healthc Ethics 2008 17 3 273 279 18495067
15. Obtaining informed consent in an Egyptian research study. Rashad AM, MacVane PF, Haith-Cooper N, BMC Med Ethics 2007 29 8 9
16. Ethical practices for health research in the Eastern Mediterranean region of the World Health Organization: A retrospective data analysis. Abdur RM, Afzal M, Abou-Zeid A, Silverman H, Plos One 2008 3 5 2094 10.1371/journal.pone. 0002094 18461183
17. Attitudes, understanding, and concerns regarding medical research amongst Egyptians: a qualitative pilot study. Khalil SS, Silverman HJ, Raafat M, El-Kamary S, El-Setouhy M, BMC Med Ethics 2007 8 9 10.1186/1472-6939-8-9 17727728
18. Obtaining informed consent: observations from community research with refugee and impoverished youth. Nakkash R, Makhoul J, Afifi R, J Med Ethics 2009 35 10 638 643 10.1136/jme.2008.028936 19793946
19. The adequacy of informed consent forms in genetic research in Oman: a pilot study. Al-Riyami A, Jaju D, Jaju S, Silverman HJ, J Med Ethics 2009 35 10 638 643 10.1136/jme.2008.028936 19793946
20. Clinical, social and ethical aspects of HIV-1 infections in an Arab Gulf State. Milder JE, Novelli VM, J Trop Med Hyg 1992 95 2 128 131 1560481
21. Strategies for recruiting Middle Eastern-American young adults for physical activity research: a case of snowballs and Salaam. Kahan D, Al-Tamimi A, J Immigr Minor Health 2009 11 5 380 390 10.1007/s10903-008-9117-7 18214678
22. Public support and consent preference for biomedical research and biobanking in Jordan. Ahram M, Othman A, Shahrouri M, Eur J Hum Genet 2012 21 5 567 570 22968133
23. Developing cultural competence and overcoming ethical challenges in the informed consent process: An experience from Egypt. Abdel-Messih IA, El-Setouhy M, Crouch MM, Earhart KC, J Res Adm 2008 39 2 33 40
24. Agency for Healthcare Quality and Research (AHRQ): CAHPS http://www.cahps.ahrq.gov/about.htm; http://www.cahps.ahrq.gov/
25. Cultural competence springs up in the desert: The story of The Center for Cultural Competence in Health Care at Weill Cornell Medical College in Qatar. Elnashar M, Abdelrahim H, Fetters MD, Acad Med 2012 87 6 759 766 10.1097/ACM.0b013e318253d6c6 22534600
26. Qatar Statistics Authority: Population Structure http://www.qsa.gov.qa/ eng/PopulationStructure.htm
27. Anatomy of a globalized state. Paschyn CM, Think 2012 16 http://christinapaschyn.com/2012/featured/qatar-globalized-state-immigration/
28. Hancock B, Ockeleford E, Windridge K, An Introduction to Qualitative Research http://www.rds-yh.nihr.ac.uk/wp-content/uploads/2013/05/5-Introduction- to-qualitative-research-2009.pdf
29. Sanjek R, Fieldnotes-The Makings of Anthropology Ithaca, NY: Cornell University 1990
30. Scientific Software Development: ATLAS.ti software http://www.atlasti. com/index.html
31. Validity and Qualitative Research: An Oxymoron? Onwuegbuzie AJ, Leech NL, Quality & Quantity 2007 41 2 233 249 10.1007/s11135-006-9000-3
32. Review of national research ethics regulations and guidelines in Middle Eastern Arab countries. Alahmad G, Al-Jumah M, Dierickx K, BMC Med Ethics 2012 13 34 10.1186/1472-6939-13-34 23234422