메뉴 건너뛰기




Volumn 32, Issue 5, 2013, Pages 575-583

Transfer from paediatric rheumatology to the adult rheumatology setting: Experiences and expectations of young adults with juvenile idiopathic arthritis

Author keywords

Adolescent; Nursing; Qualitative research methods; Rheumatism; Young people

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; CONSULTATION; CONTENT ANALYSIS; DISEASE SEVERITY; EXPECTATION; FEMALE; HEALTH SERVICE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; PARENT; PARENTAL ATTITUDE; PATIENT TRANSPORT; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; RHEUMATOID ARTHRITIS; RHEUMATOLOGY; SEMI STRUCTURED INTERVIEW; TRANSITION TO ADULT CARE;

EID: 84878728011     PISSN: 07703198     EISSN: 14349949     Source Type: Journal    
DOI: 10.1007/s10067-012-2135-9     Document Type: Article
Times cited : (28)

References (39)
  • 1
    • 77957347051 scopus 로고    scopus 로고
    • Juvenile idiopathic arthritis
    • 20877765
    • Boros C, Whitehead B (2010) Juvenile idiopathic arthritis. Aust Fam Physician 39:630-636
    • (2010) Aust Fam Physician , vol.39 , pp. 630-636
    • Boros, C.1    Whitehead, B.2
  • 2
    • 79951790778 scopus 로고    scopus 로고
    • Juvenile idiopathic arthritis: Diagnosis and differential diagnosis
    • 21218014 10.3345/kjp.2010.53.11.931
    • Kim KH, Kim DS (2010) Juvenile idiopathic arthritis: diagnosis and differential diagnosis. Korean J Pediatr 53:931-935
    • (2010) Korean J Pediatr , vol.53 , pp. 931-935
    • Kim, K.H.1    Kim, D.S.2
  • 3
    • 12244292736 scopus 로고    scopus 로고
    • Prognostic factors in juvenile rheumatoid arthritis: A case-control study revealing early predictors and outcome after 14.9 years
    • 12563700
    • Flato B, Lien G, Smerdel A, Vinje O, Dale K, Johnston V, Sorskaar D, Moum T, Ploski R, Forre O (2003) Prognostic factors in juvenile rheumatoid arthritis: a case-control study revealing early predictors and outcome after 14.9 years. J Rheumatol 30:386-393
    • (2003) J Rheumatol , vol.30 , pp. 386-393
    • Flato, B.1    Lien, G.2    Smerdel, A.3    Vinje, O.4    Dale, K.5    Johnston, V.6    Sorskaar, D.7    Moum, T.8    Ploski, R.9    Forre, O.10
  • 4
    • 0036653280 scopus 로고    scopus 로고
    • Long-term outcomes and predictors of outcomes for patients with juvenile idiopathic arthritis
    • 12387804
    • Oen K (2002) Long-term outcomes and predictors of outcomes for patients with juvenile idiopathic arthritis. Best Pract Res Clin Rheumatol 16:347-360
    • (2002) Best Pract Res Clin Rheumatol , vol.16 , pp. 347-360
    • Oen, K.1
  • 5
    • 79959924109 scopus 로고    scopus 로고
    • Supporting the health care transition from adolescence to adulthood in the medical home
    • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group 21708806 10.1542/peds.2011-0969
    • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ (2011) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128:182-200
    • (2011) Pediatrics , vol.128 , pp. 182-200
    • Cooley, W.C.1    Sagerman, P.J.2
  • 6
    • 0036897603 scopus 로고    scopus 로고
    • A consensus statement on health care transitions for young adults with special health care needs
    • American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians-American Society of Internal Medicine
    • American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians-American Society of Internal Medicine (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110:1304-1306
    • (2002) Pediatrics , vol.110 , pp. 1304-1306
  • 7
    • 33750687322 scopus 로고    scopus 로고
    • Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease
    • 17098515 10.1016/j.ccl.2006.08.010 vi
    • Knauth A, Verstappen A, Reiss J, Webb GD (2006) Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Cardiol Clin 24:619-29, vi
    • (2006) Cardiol Clin , vol.24 , pp. 619-629
    • Knauth, A.1    Verstappen, A.2    Reiss, J.3    Webb, G.D.4
  • 8
    • 79955009064 scopus 로고    scopus 로고
    • Patients' perspective on factors that facilitate transition from child-centered to adult-centered health care: A theory integrated metasummary of quantitative and qualitative studies
    • 21501800 10.1016/j.jadohealth.2010.10.016
    • Lugasi T, Achille M, Stevenson M (2011) Patients' perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolesc Health 48:429-440
    • (2011) J Adolesc Health , vol.48 , pp. 429-440
    • Lugasi, T.1    Achille, M.2    Stevenson, M.3
  • 9
    • 0033913233 scopus 로고    scopus 로고
    • Audit of rheumatology services for adolescents and young adults in the UK
    • British Paediatric Rheumatology Group 10.1093/rheumatology/39.6.596 1:STN:280:DC%2BD3cvis1GrsA%3D%3D
    • McDonagh JE, Foster HE, Hall MA, Chamberlain MA, British Paediatric Rheumatology Group (2000) Audit of rheumatology services for adolescents and young adults in the UK. Rheumatology (Oxford) 39:596-602
    • (2000) Rheumatology (Oxford) , vol.39 , pp. 596-602
    • McDonagh, J.E.1    Foster, H.E.2    Hall, M.A.3    Chamberlain, M.A.4
  • 10
    • 76749125866 scopus 로고    scopus 로고
    • High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis
    • 20148143 10.1186/1546-0096-8-2
    • Hazel E, Zhang X, Duffy CM, Campillo S (2010) High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatr Rheumatol Online J 8:2
    • (2010) Pediatr Rheumatol Online J , vol.8 , pp. 2
    • Hazel, E.1    Zhang, X.2    Duffy, C.M.3    Campillo, S.4
  • 11
    • 78650584425 scopus 로고    scopus 로고
    • Adolescents with juvenile idiopathic arthritis: Who cares after the age of 16?
    • 20863450 1:STN:280:DC%2BC3cbivVKrtg%3D%3D
    • Hilderson D, Corstjens F, Moons P, Wouters C, Westhovens R (2010) Adolescents with juvenile idiopathic arthritis: who cares after the age of 16? Clin Exp Rheumatol 28:790-797
    • (2010) Clin Exp Rheumatol , vol.28 , pp. 790-797
    • Hilderson, D.1    Corstjens, F.2    Moons, P.3    Wouters, C.4    Westhovens, R.5
  • 12
    • 84872269467 scopus 로고    scopus 로고
    • Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare
    • Hilderson D, Moons P, Westhovens R, and Wouters C (2011) Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare. Rheumatol Int 32(12):3887-96
    • (2011) Rheumatol Int , vol.32 , Issue.12 , pp. 3887-3896
    • Hilderson, D.1    Moons, P.2    Westhovens, R.3    Wouters, C.4
  • 14
    • 3042551137 scopus 로고    scopus 로고
    • Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care
    • 10.1093/rheumatology/keh163 1:STN:280:DC%2BD2c3ms1Shsg%3D%3D
    • McDonagh JE, Southwood TR, Shaw KL (2004) Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology (Oxford) 43:737-743
    • (2004) Rheumatology (Oxford) , vol.43 , pp. 737-743
    • McDonagh, J.E.1    Southwood, T.R.2    Shaw, K.L.3
  • 15
    • 33845564020 scopus 로고    scopus 로고
    • The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis
    • 10.1093/rheumatology/kel198 1:STN:280:DC%2BD28jis12gtA%3D%3D
    • McDonagh JE, Southwood TR, Shaw KL (2007) The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 46:161-168
    • (2007) Rheumatology (Oxford) , vol.46 , pp. 161-168
    • McDonagh, J.E.1    Southwood, T.R.2    Shaw, K.L.3
  • 16
    • 29144479889 scopus 로고    scopus 로고
    • Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care
    • 15994281 10.1136/ard.2004.032292 1:STN:280:DC%2BD28%2FgtlOitw%3D%3D
    • Robertson LP, McDonagh JE, Southwood TR, Shaw KL (2006) Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care. Ann Rheum Dis 65:74-80
    • (2006) Ann Rheum Dis , vol.65 , pp. 74-80
    • Robertson, L.P.1    McDonagh, J.E.2    Southwood, T.R.3    Shaw, K.L.4
  • 17
    • 1242274614 scopus 로고    scopus 로고
    • Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: Results of a postal survey
    • 10.1093/rheumatology/keh018 1:STN:280:DC%2BD2c%2FktVWnsQ%3D%3D
    • Shaw KL, Southwood TR, McDonagh JE (2004) Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatology (Oxford) 43:211-219
    • (2004) Rheumatology (Oxford) , vol.43 , pp. 211-219
    • Shaw, K.L.1    Southwood, T.R.2    McDonagh, J.E.3
  • 18
    • 24944491010 scopus 로고    scopus 로고
    • Growing up and moving on in rheumatology: A multicentre cohort of adolescents with juvenile idiopathic arthritis
    • 10.1093/rheumatology/keh603 1:STN:280:DC%2BD2M3mslSisg%3D%3D
    • Shaw KL, Southwood TR, McDonagh JE (2005) Growing up and moving on in rheumatology: a multicentre cohort of adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 44:806-812
    • (2005) Rheumatology (Oxford) , vol.44 , pp. 806-812
    • Shaw, K.L.1    Southwood, T.R.2    McDonagh, J.E.3
  • 19
    • 34249676154 scopus 로고    scopus 로고
    • From childhood to adult life with juvenile idiopathic arthritis (JIA): A pilot study
    • 17364799 10.1080/09638280600835994
    • Ostlie IL, Dale O, Moller A (2007) From childhood to adult life with juvenile idiopathic arthritis (JIA): a pilot study. Disabil Rehabil 29:445-452
    • (2007) Disabil Rehabil , vol.29 , pp. 445-452
    • Ostlie, I.L.1    Dale, O.2    Moller, A.3
  • 20
    • 68049096115 scopus 로고    scopus 로고
    • Struggle and adjustment to an insecure everyday life and an unpredictable life course. Living with juvenile idiopathic arthritis from childhood to adult life - An interview study
    • 18979305 10.1080/09638280802305986
    • Ostlie IL, Johansson I, Moller A (2009) Struggle and adjustment to an insecure everyday life and an unpredictable life course. Living with juvenile idiopathic arthritis from childhood to adult life - an interview study. Disabil Rehabil 31:666-674
    • (2009) Disabil Rehabil , vol.31 , pp. 666-674
    • Ostlie, I.L.1    Johansson, I.2    Moller, A.3
  • 21
    • 3042646229 scopus 로고    scopus 로고
    • User perspectives of transitional care for adolescents with juvenile idiopathic arthritis
    • 10.1093/rheumatology/keh175 1:STN:280:DC%2BD2c3ms1Shug%3D%3D
    • Shaw KL, Southwood TR, McDonagh JE (2004) User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 43:770-778
    • (2004) Rheumatology (Oxford) , vol.43 , pp. 770-778
    • Shaw, K.L.1    Southwood, T.R.2    McDonagh, J.E.3
  • 22
    • 4344639085 scopus 로고    scopus 로고
    • Transitional care for adolescents with juvenile idiopathic arthritis: A Delphi study
    • 10.1093/rheumatology/keh216 1:STN:280:DC%2BD2czlsFOksw%3D%3D
    • Shaw KL, Southwood TR, McDonagh JE (2004) Transitional care for adolescents with juvenile idiopathic arthritis: a Delphi study. Rheumatology (Oxford) 43:1000-1006
    • (2004) Rheumatology (Oxford) , vol.43 , pp. 1000-1006
    • Shaw, K.L.1    Southwood, T.R.2    McDonagh, J.E.3
  • 24
    • 49349112888 scopus 로고    scopus 로고
    • Transition to adult care: Experiences and expectations of adolescents with a chronic illness
    • 18796047 10.1111/j.1365-2214.2008.00844.x 1:STN:280: DC%2BD1cngvVCrsg%3D%3D
    • Tuchman LK, Slap GB, Britto MT (2008) Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child Care Health Dev 34:557-563
    • (2008) Child Care Health Dev , vol.34 , pp. 557-563
    • Tuchman, L.K.1    Slap, G.B.2    Britto, M.T.3
  • 25
    • 79954450596 scopus 로고    scopus 로고
    • What does it mean to grow up with juvenile idiopathic arthritis? A qualitative study on the perspectives of patients
    • 20383546 10.1007/s10067-010-1444-0
    • Eyckmans L, Hilderson D, Westhovens R, Wouters C, Moons P (2011) What does it mean to grow up with juvenile idiopathic arthritis? A qualitative study on the perspectives of patients. Clin Rheumatol 30:459-465
    • (2011) Clin Rheumatol , vol.30 , pp. 459-465
    • Eyckmans, L.1    Hilderson, D.2    Westhovens, R.3    Wouters, C.4    Moons, P.5
  • 26
    • 1242331407 scopus 로고    scopus 로고
    • Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness
    • 14769454 10.1016/j.nedt.2003.10.001 1:STN:280:DC%2BD2c%2FmvVKquw%3D%3D
    • Graneheim UH, Lundman B (2004) Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 24:105-112
    • (2004) Nurse Educ Today , vol.24 , pp. 105-112
    • Graneheim, U.H.1    Lundman, B.2
  • 27
    • 63649127136 scopus 로고    scopus 로고
    • The transition of kidney transplant recipients: A work in progress
    • 19238453 10.1007/s00467-009-1124-y
    • Chaturvedi S, Jones CL, Walker RG, Sawyer SM (2009) The transition of kidney transplant recipients: a work in progress. Pediatr Nephrol 24:1055-1060
    • (2009) Pediatr Nephrol , vol.24 , pp. 1055-1060
    • Chaturvedi, S.1    Jones, C.L.2    Walker, R.G.3    Sawyer, S.M.4
  • 28
    • 33845380753 scopus 로고    scopus 로고
    • There to here: Young adult patients' perceptions of the process of transition from pediatric to adult transplant care
    • 17183937
    • McCurdy C, DiCenso A, Boblin S, Ludwin D, Bryant-Lukosius D, Bosompra K (2006) There to here: young adult patients' perceptions of the process of transition from pediatric to adult transplant care. Prog Transplant 16:309-316
    • (2006) Prog Transplant , vol.16 , pp. 309-316
    • McCurdy, C.1    Dicenso, A.2    Boblin, S.3    Ludwin, D.4    Bryant-Lukosius, D.5    Bosompra, K.6
  • 29
    • 0032826355 scopus 로고    scopus 로고
    • Transition from paediatric to adult care for persons with cystic fibrosis: Patient and parent perspectives
    • 10571755 10.1046/j.1440-1754.1999.355394.x 1:STN:280: DC%2BD3c%2FjvF2qtg%3D%3D
    • Westwood A, Henley L, Willcox P (1999) Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives. J Paediatr Child Health 35:442-445
    • (1999) J Paediatr Child Health , vol.35 , pp. 442-445
    • Westwood, A.1    Henley, L.2    Willcox, P.3
  • 30
    • 79956321751 scopus 로고    scopus 로고
    • Improving the transition between paediatric and adult healthcare: A systematic review
    • 21388969 10.1136/adc.2010.202473 1:STN:280:DC%2BC3MrgtFCgtg%3D%3D
    • Crowley R, Wolfe I, Lock K, McKee M (2011) Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 96:548-553
    • (2011) Arch Dis Child , vol.96 , pp. 548-553
    • Crowley, R.1    Wolfe, I.2    Lock, K.3    McKee, M.4
  • 31
    • 16244366147 scopus 로고    scopus 로고
    • Transition of the adolescent patient with rheumatic disease: Issues to consider
    • 15820382 10.1016/j.pcl.2005.01.008 viii
    • Tucker LB, Cabral DA (2005) Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 52:641-52, viii
    • (2005) Pediatr Clin North Am , vol.52 , pp. 641-652
    • Tucker, L.B.1    Cabral, D.A.2
  • 32
    • 0036690019 scopus 로고    scopus 로고
    • Transitioning an adolescent dialysis patient to adult health care
    • 12224372
    • Myers PS (2002) Transitioning an adolescent dialysis patient to adult health care. Nephrol Nurs J 29:375-376
    • (2002) Nephrol Nurs J , vol.29 , pp. 375-376
    • Myers, P.S.1
  • 33
    • 62549125550 scopus 로고    scopus 로고
    • Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program
    • 19306789 10.1016/j.jadohealth.2008.11.007
    • Moons P, Pinxten S, Dedroog D, Van DK, Gewillig M, Hilderson D, Budts W (2009) Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. J Adolesc Health 44:316-322
    • (2009) J Adolesc Health , vol.44 , pp. 316-322
    • Moons, P.1    Pinxten, S.2    Dedroog, D.3    Van, D.K.4    Gewillig, M.5    Hilderson, D.6    Budts, W.7
  • 34
    • 67650496605 scopus 로고    scopus 로고
    • Transition of patients with sickle cell disease from pediatric to adult care: Assessing patient readiness
    • 19229973 10.1002/pbc.21974
    • McPherson M, Thaniel L, Minniti CP (2009) Transition of patients with sickle cell disease from pediatric to adult care: assessing patient readiness. Pediatr Blood Cancer 52:838-841
    • (2009) Pediatr Blood Cancer , vol.52 , pp. 838-841
    • McPherson, M.1    Thaniel, L.2    Minniti, C.P.3
  • 36
    • 80054771716 scopus 로고    scopus 로고
    • Crossing the transition chasm: Experiences and recommendations for improving transitional care of young adults, parents and providers
    • 22007982 10.1111/j.1365-2214.2011.01261.x
    • van Staa AL, Jedeloo S, Van MJ, Latour JM (2011) Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev 37:821-832
    • (2011) Child Care Health Dev , vol.37 , pp. 821-832
    • Van Staa, A.L.1    Jedeloo, S.2    Van, M.J.3    Latour, J.M.4
  • 37
    • 0036823501 scopus 로고    scopus 로고
    • Self-management approaches for people with chronic conditions: A review
    • 12401421 10.1016/S0738-3991(02)00032-0
    • Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J (2002) Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 48:177-187
    • (2002) Patient Educ Couns , vol.48 , pp. 177-187
    • Barlow, J.1    Wright, C.2    Sheasby, J.3    Turner, A.4    Hainsworth, J.5
  • 38
    • 33644774192 scopus 로고    scopus 로고
    • Growing up and moving on in rheumatology: Development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis
    • 16464931 10.1177/1367493506060203
    • McDonagh JE, Shaw KL, Southwood TR (2006) Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. J Child Health Care 10:22-42
    • (2006) J Child Health Care , vol.10 , pp. 22-42
    • McDonagh, J.E.1    Shaw, K.L.2    Southwood, T.R.3
  • 39
    • 79951950582 scopus 로고    scopus 로고
    • Readiness to transfer to adult care of adolescents with chronic conditions: Exploration of associated factors
    • 21338902 10.1016/j.jadohealth.2010.07.009
    • van Staa A, van der Stege HA, Jedeloo S, Moll HA, Hilberink SR (2011) Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Health 48:295-302
    • (2011) J Adolesc Health , vol.48 , pp. 295-302
    • Van Staa, A.1    Van Der Stege, H.A.2    Jedeloo, S.3    Moll, H.A.4    Hilberink, S.R.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.