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Volumn 58, Issue 4, 2014, Pages 481-485

Do parents and children agree? Quality-of-life assessment of children with inflammatory bowel disease and their parents

Author keywords

Crohn disease; parent proxy; pediatric; quality of life; ulcerative colitis

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BODY IMAGE; CHILD; CHILDHOOD DISEASE; CLINICAL ARTICLE; COMPARATIVE STUDY; CORRELATION COEFFICIENT; CROHN DISEASE; DISEASE ACTIVITY; EFFECT SIZE; EMOTIONALITY; FEMALE; HUMAN; IMPACT III SCORE; INFLAMMATORY BOWEL DISEASE; MALE; POST HOC ANALYSIS; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; SCHOOL CHILD; SCORING SYSTEM; SELF REPORT; SOCIAL INTERACTION; STATISTICAL MODEL; STUDENT T TEST; ADAPTIVE BEHAVIOR; EMOTION; HEALTH STATUS; PARENT; PERCEPTION; PROXY; PSYCHOLOGY; SEVERITY OF ILLNESS INDEX; ULCERATIVE COLITIS;

EID: 84897047285     PISSN: 02772116     EISSN: 15364801     Source Type: Journal    
DOI: 10.1097/MPG.0000000000000236     Document Type: Article
Times cited : (37)

References (39)
  • 1
    • 0030850204 scopus 로고    scopus 로고
    • Measuring quality of life
    • Jenney M, Campbell S. Measuring quality of life. Arch Dis Child 1997;77:347-54.
    • (1997) Arch Dis Child , vol.77 , pp. 347-354
    • Jenney, M.1    Campbell, S.2
  • 2
    • 0025293522 scopus 로고
    • Health status in inflammatory bowel disease: Biologic and behavioural considerations
    • Garrett J, Drossman D. Health status in inflammatory bowel disease: biologic and behavioural considerations. Gastroenterology 1990; 99:90-6.
    • (1990) Gastroenterology , vol.99 , pp. 90-96
    • Garrett, J.1    Drossman, D.2
  • 3
    • 0037010081 scopus 로고    scopus 로고
    • The IMPACT questionnaire: A valid measure of health-related quality of life in pediatric inflammatory bowel disease
    • Otley A, Smith C, Nicholas D, et al. The IMPACT questionnaire: a valid measure of health-related quality of life in pediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr 2002;35:557-63.
    • (2002) J Pediatr Gastroenterol Nutr , vol.35 , pp. 557-563
    • Otley, A.1    Smith, C.2    Nicholas, D.3
  • 4
    • 0036212762 scopus 로고    scopus 로고
    • Measuring quality of life in children with inflammatory bowel disease: The IMPACT-II (NL)
    • Loonen HJ, Grootenhuis MA, Last BF, et al. Measuring quality of life in children with inflammatory bowel disease: the IMPACT-II (NL). Qual Life Res 2002;11:47-56.
    • (2002) Qual Life Res , vol.11 , pp. 47-56
    • Loonen, H.J.1    Grootenhuis, M.A.2    Last, B.F.3
  • 5
    • 70349520050 scopus 로고    scopus 로고
    • IMPACT-III is a valid, reliable and responsive measure of health-related quality of life in pediatric Crohn's disease
    • Otley AR, Xu S, Yan S, et al. IMPACT-III is a valid, reliable and responsive measure of health-related quality of life in pediatric Crohn's disease. J Pediatr Gastroenterol Nutr 2006;43 (suppl 2):S49.
    • (2006) J Pediatr Gastroenterol Nutr , vol.43 , Issue.SUPPL. 2
    • Otley, A.R.1    Xu, S.2    Yan, S.3
  • 7
    • 0034951107 scopus 로고    scopus 로고
    • Measuring health-related quality of life of pediatric patients
    • Loonen HJ, Derkx BHF, Otley AR. Measuring health-related quality of life of pediatric patients. J Pediatr Gastroenterol Nutr 2001;32:523-6.
    • (2001) J Pediatr Gastroenterol Nutr , vol.32 , pp. 523-526
    • Loonen, H.J.1    Bhf, D.2    Otley, A.R.3
  • 8
    • 0035161833 scopus 로고    scopus 로고
    • Can parents rate their child's health-related quality of life? Results of a systematic review
    • Eiser C, Morse R. Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res 2001;10:347-57.
    • (2001) Qual Life Res , vol.10 , pp. 347-357
    • Eiser, C.1    Morse, R.2
  • 9
    • 0033404589 scopus 로고    scopus 로고
    • Measuring quality of life in paediatric patients
    • Connolly MAJJ. Measuring quality of life in paediatric patients. Phar-moeconomics 1999;16:605-25.
    • (1999) Phar-moeconomics , vol.16 , pp. 605-625
    • Connolly, M.A.J.J.1
  • 10
    • 0027939316 scopus 로고
    • Differential predictive value of parents' and teachers' reports of childrens' problem behaviors: A longitudinal study
    • Verhulst FC, Koot HM, Van der Ende J. Differential predictive value of parents' and teachers' reports of childrens' problem behaviors: a longitudinal study. J Abnorm Child Psychol 1994;22:531-5.
    • (1994) J Abnorm Child Psychol , vol.22 , pp. 531-535
    • Verhulst, F.C.1    Koot, H.M.2    Van Der Ende, J.3
  • 11
    • 0023085561 scopus 로고
    • Measuring the impact of medical care on children
    • Pantell RH, Lewis CC. Measuring the impact of medical care on children. J Chronic Dis 1987;40 (s1):99-108.
    • (1987) J Chronic Dis , vol.40 , Issue.S1 , pp. 99-108
    • Pantell, R.H.1    Lewis, C.C.2
  • 12
    • 77949485989 scopus 로고    scopus 로고
    • Health-related quality of life across pediatric chronic conditions
    • Ingerski LM, Modi AC, Hood KK, et al. Health-related quality of life across pediatric chronic conditions. J Pediatr 2010;156:639-44.
    • (2010) J Pediatr , vol.156 , pp. 639-644
    • Ingerski, L.M.1    Modi, A.C.2    Hood, K.K.3
  • 13
    • 77952676833 scopus 로고    scopus 로고
    • Health-related quality of life of youth with inflammatory bowel disease: A comparison with published data using the PedsQL 4.0 generic core scales
    • Kunz JH, Hommel KA, Greenley RN. Health-related quality of life of youth with inflammatory bowel disease: a comparison with published data using the PedsQL 4.0 generic core scales. Inflamm Bowel Dis 2010;16:939-46.
    • (2010) Inflamm Bowel Dis , vol.16 , pp. 939-946
    • Kunz, J.H.1    Hommel, K.A.2    Greenley, R.N.3
  • 14
    • 0036062527 scopus 로고    scopus 로고
    • Are parents able to rate the symptoms and quality of life of their offspring with IBD?
    • Loonen HJ, Derkx BH, Koopman HM, et al. Are parents able to rate the symptoms and quality of life of their offspring with IBD? Inflamm Bowel Dis 2002;8:270-6.
    • (2002) Inflamm Bowel Dis , vol.8 , pp. 270-276
    • Loonen, H.J.1    Derkx, B.H.2    Koopman, H.M.3
  • 15
    • 0025796809 scopus 로고
    • Development and validation of a Pediatric Crohn's Disease Activity Index
    • Hyams JS, Ferry GD, Mandel FS, et al. Development and validation of a Pediatric Crohn's Disease Activity Index. J Pediatr Gastroenterol Nutr 1991;12:439-47.
    • (1991) J Pediatr Gastroenterol Nutr , vol.12 , pp. 439-447
    • Hyams, J.S.1    Ferry, G.D.2    Mandel, F.S.3
  • 16
    • 26044457921 scopus 로고    scopus 로고
    • Evaluation of the Pediatric Crohn Disease Activity Index: A prospective multicenter experience
    • Hyams J, Markowitz J, Otley A, et al. Evaluation of the Pediatric Crohn Disease Activity Index: a prospective multicenter experience. J Pediatr Gastroenterol Nutr 2005;41:416-21.
    • (2005) J Pediatr Gastroenterol Nutr , vol.41 , pp. 416-421
    • Hyams, J.1    Markowitz, J.2    Otley, A.3
  • 17
    • 34547563048 scopus 로고    scopus 로고
    • Development and evaluation of a Pediatric Ulcerative Colitis Activity Index: A prospective multicenter study
    • Turner D, Otley AR, Mack D, et al. Development and evaluation of a Pediatric Ulcerative Colitis Activity Index: a prospective multicenter study. Gastroenterology 2007;133:423-32.
    • (2007) Gastroenterology , vol.133 , pp. 423-432
    • Turner, D.1    Otley, A.R.2    Mack, D.3
  • 18
    • 18244395608 scopus 로고    scopus 로고
    • A review of activity indices and end points for clinical trials in children with Crohn's disease
    • Griffiths AM, Otley AR, Hyams J, et al. A review of activity indices and end points for clinical trials in children with Crohn's disease. Inflamm Bowel Dis 2005;11:185-96.
    • (2005) Inflamm Bowel Dis , vol.11 , pp. 185-196
    • Griffiths, A.M.1    Otley, A.R.2    Hyams, J.3
  • 19
    • 34547563048 scopus 로고    scopus 로고
    • Development, validation, and evaluation of a Pediatric Ulcerative Colitis Activity Index: A prospective multicenter study
    • Turner D, Otley AR, Mack D, et al. Development, validation, and evaluation of a Pediatric Ulcerative Colitis Activity Index: a prospective multicenter study. Gastroenterology 2007;133:423-32.
    • (2007) Gastroenterology , vol.133 , pp. 423-432
    • Turner, D.1    Otley, A.R.2    Mack, D.3
  • 20
    • 0034671451 scopus 로고    scopus 로고
    • Guidelines for the process of cross-cultural adaptation of self-report measures
    • Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 2000; 25:3186-91.
    • (2000) Spine , vol.25 , pp. 3186-3191
    • Beaton, D.E.1    Bombardier, C.2    Guillemin, F.3
  • 22
    • 40049094361 scopus 로고    scopus 로고
    • Special issues in pediatric inflammatory bowel disease
    • Dubinsky M. Special issues in pediatric inflammatory bowel disease. World J Gastroenterol 2008;14:413-20.
    • (2008) World J Gastroenterol , vol.14 , pp. 413-420
    • Dubinsky, M.1
  • 23
    • 0034957270 scopus 로고    scopus 로고
    • Quality of life in inflammatory bowel disease: A cross-cultural comparison of English and Canadian children
    • Richardson G, Griffiths A, Miller V, et al. Quality of life in inflammatory bowel disease: a cross-cultural comparison of English and Canadian children. J Pediatr Gastroenterol Nutr 2001;32:573-8.
    • (2001) J Pediatr Gastroenterol Nutr , vol.32 , pp. 573-578
    • Richardson, G.1    Griffiths, A.2    Miller, V.3
  • 24
    • 34249706286 scopus 로고    scopus 로고
    • Health-related quality of life in children and adolescents with inflammatory bowel disease
    • Cunningham C, Hurd L, Culton K, et al. Health-related quality of life in children and adolescents with inflammatory bowel disease. Child Health Care 2007;36:29-43.
    • (2007) Child Health Care , vol.36 , pp. 29-43
    • Cunningham, C.1    Hurd, L.2    Culton, K.3
  • 25
    • 17444424968 scopus 로고    scopus 로고
    • Health-related quality of life and psychosocial functioning of adolescents with inflammatory bowel disease
    • De Boer M, Grootenhuis M, Derkx B, et al. Health-related quality of life and psychosocial functioning of adolescents with inflammatory bowel disease. Inflamm Bowel Dis 2005;11:400-6.
    • (2005) Inflamm Bowel Dis , vol.11 , pp. 400-406
    • De Boer, M.1    Grootenhuis, M.2    Derkx, B.3
  • 26
    • 79958799780 scopus 로고    scopus 로고
    • Disease activity, behavioral dysfunction, and health-related quality of life in adolescents with inflammatory bowel disease
    • Gray WN, Denson LA, Baldassano RN, et al. Disease activity, behavioral dysfunction, and health-related quality of life in adolescents with inflammatory bowel disease. Inflamm Bowel Dis 2011;17:1581-6.
    • (2011) Inflamm Bowel Dis , vol.17 , pp. 1581-1586
    • Gray, W.N.1    Denson, L.A.2    Baldassano, R.N.3
  • 27
    • 0036212446 scopus 로고    scopus 로고
    • Quality of life in paediatric inflammatory bowel disease measured by a generic and a disease-specific questionnaire
    • Loonen HJ, Grootenhuis MA, Last BF, et al. Quality of life in paediatric inflammatory bowel disease measured by a generic and a disease-specific questionnaire. Acta Paediatr 2002;91:348-54.
    • (2002) Acta Paediatr , vol.91 , pp. 348-354
    • Loonen, H.J.1    Grootenhuis, M.A.2    Last, B.F.3
  • 28
    • 0023300346 scopus 로고
    • Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity
    • Achenbach TM, McConaughy SH, Howell CT. Child/adolescent behavioral and emotional problems: implications of cross-informant correlations for situational specificity. Psychol Bull 1987;101:213-32.
    • (1987) Psychol Bull , vol.101 , pp. 213-232
    • Achenbach, T.M.1    McConaughy, S.H.2    Howell, C.T.3
  • 29
    • 0036750106 scopus 로고    scopus 로고
    • Correlates of depressive symptoms in adolescents with type i diabetes
    • Whittemore R, Kanner S, Singleton S, et al. Correlates of depressive symptoms in adolescents with type I diabetes. Pediatr Diabetes 2002;3:135-43.
    • (2002) Pediatr Diabetes , vol.3 , pp. 135-143
    • Whittemore, R.1    Kanner, S.2    Singleton, S.3
  • 30
    • 77954888018 scopus 로고    scopus 로고
    • Psychosocial functioning in children and adolescents with gastrointestinal complaints and disorders
    • Hommel KA, McGraw KL, Ammerman RT, et al. Psychosocial functioning in children and adolescents with gastrointestinal complaints and disorders. J Clin Psychol Med Settings 2010;17:159-66.
    • (2010) J Clin Psychol Med Settings , vol.17 , pp. 159-166
    • Hommel, K.A.1    McGraw, K.L.2    Ammerman, R.T.3
  • 31
    • 79957558377 scopus 로고    scopus 로고
    • Quality of life reporting by parent-child dyads in Japan, as grouped by depressive status
    • Kobayashi K, Kamibeppu K. Quality of life reporting by parent-child dyads in Japan, as grouped by depressive status. Nurs Health Sci 2011;13:170-7.
    • (2011) Nurs Health Sci , vol.13 , pp. 170-177
    • Kobayashi, K.1    Kamibeppu, K.2
  • 32
    • 79952314413 scopus 로고    scopus 로고
    • Patient and parent psychosocial factors associated with health-related quality of life in pediatric inflammatory bowel disease
    • Herzer M, Denson LA, Baldassano RN, et al. Patient and parent psychosocial factors associated with health-related quality of life in pediatric inflammatory bowel disease. Gastroenterology 2011; 52:295-9.
    • (2011) Gastroenterology , vol.52 , pp. 295-299
    • Herzer, M.1    Denson, L.A.2    Baldassano, R.N.3
  • 33
    • 84856104521 scopus 로고    scopus 로고
    • The proxy problem anatomized: Child-parent disagreement in health related quality of life reports of chronically ill adolescents
    • Sattoe JN, van Staa A, Moll HA. The proxy problem anatomized: child-parent disagreement in health related quality of life reports of chronically ill adolescents. Health Qual Life Outcomes 2012; 10:10.
    • (2012) Health Qual Life Outcomes , vol.10 , pp. 10
    • Sattoe, J.N.1    Van Staa, A.2    Moll, H.A.3
  • 34
    • 33750018655 scopus 로고    scopus 로고
    • Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales
    • Creemens J, Eiser C, Blades M. Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2006;4:58.
    • (2006) Health Qual Life Outcomes , vol.4 , pp. 58
    • Creemens, J.1    Eiser, C.2    Blades, M.3
  • 35
    • 27344433293 scopus 로고    scopus 로고
    • Quality of life in children newly diagnosed with cancer and their mothers
    • Eiser C, Eiser J, Stride C. Quality of life in children newly diagnosed with cancer and their mothers. Health Qual Life Outcomes 2005;3: 29.
    • (2005) Health Qual Life Outcomes , vol.3 , pp. 29
    • Eiser, C.1    Eiser, J.2    Stride, C.3
  • 36
    • 24644514517 scopus 로고    scopus 로고
    • Quality of life in families with congenital heart disease
    • Goldbeck L, Melches J. Quality of life in families with congenital heart disease. Qual Life Res 2005;14:1915-24.
    • (2005) Qual Life Res , vol.14 , pp. 1915-1924
    • Goldbeck, L.1    Melches, J.2
  • 37
    • 80053981759 scopus 로고    scopus 로고
    • Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease
    • Kunz JH, Greenley RN, Howard M. Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease. Qual Life Res 2011;20:1197-204.
    • (2011) Qual Life Res , vol.20 , pp. 1197-1204
    • Kunz, J.H.1    Greenley, R.N.2    Howard, M.3
  • 38
    • 79953027867 scopus 로고    scopus 로고
    • The contributions of child behavioral functioning and parent distress to family functioning in pediatric inflammatory bowel disease
    • Odell S, Sander E, Denson LA, et al. The contributions of child behavioral functioning and parent distress to family functioning in pediatric inflammatory bowel disease. J Clin Psychol Med Settings 2011;18:39-45.
    • (2011) J Clin Psychol Med Settings , vol.18 , pp. 39-45
    • Odell, S.1    Sander, E.2    Denson, L.A.3
  • 39
    • 84897063720 scopus 로고    scopus 로고
    • Pediatric inflammatory bowel disease in a Latin-American population from Buenos Aires: A multicenter study
    • Ruiz J, Orsi M, Aliboni V, et al. Pediatric inflammatory bowel disease in a Latin-American population from Buenos Aires: a multicenter study. Acta Gastroenterol Latinoamer 2009;39:47.
    • (2009) Acta Gastroenterol Latinoamer , vol.39 , pp. 47
    • Ruiz, J.1    Orsi, M.2    Aliboni, V.3


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