Surviving polio in a post-polio world

Social Science and Medicine

Volumn 107, Issue , 2014, Pages 171-178

  Groce, Nora Ellen ^a   Banks, Lena Morgon ^b   Stein, Michael Ashley ^c  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^c HARVARD LAW SCHOOL   (United States)

Author keywords

Disability; Eradication; Global public health; Polio; Post polio; Rehabilitation

Indexed keywords

POLIOMYELITIS VACCINE;

DEVELOPING WORLD; DISABILITY; DISEASE CONTROL; HEALTH POLICY; IMMUNIZATION; POLIOMYELITIS; PUBLIC HEALTH; VACCINATION;

ARTICLE; DEMOGRAPHY; DEVELOPED COUNTRY; DEVELOPING COUNTRY; DISABILITY; DISEASE ERADICATION; EMPLOYMENT; FEMALE; HEALTH CARE ACCESS; HEALTH CARE POLICY; HEALTH CARE QUALITY; HEALTH PROGRAM; HUMAN; IMMUNIZATION; INCIDENCE; MALE; MEDICAL RESEARCH; PATIENT EDUCATION; POLIO SURVIVOR; POLIOMYELITIS; POLIOMYELITIS VIRUS; PUBLIC HEALTH; REHABILITATION; RURAL AREA; SOCIAL ISOLATION; SOCIAL STATUS; SOCIAL SUPPORT; VIRUS STRAIN; WILD TYPE;

POLIOVIRUS;

DISABILITY; ERADICATION; GLOBAL PUBLIC HEALTH; POLIO; POST-POLIO; REHABILITATION;

DISABLED PERSONS; DISEASE ERADICATION; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; IMMUNIZATION PROGRAMS; POLIOMYELITIS; POLIOVIRUS VACCINES; SOCIOECONOMIC FACTORS; SURVIVORS; WORLD HEALTH;

EID: 84897004653     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2014.02.024     Document Type: Article

References (96)

1. Aaby P., Jensen H., Garly M.L., Balé C., Martins C., Lisse I. Routine vaccinations and child survival in a war situation with high mortality: effect of gender. Vaccine 2002, 21(1):15-20.
2. Adegoke B.O., Oni A.A., Gbiri C.A., Akosile C.O. Paralytic poliomyelitis: quality of life of adolescent survivors. Hong Kong Physiotherapy Journal 2012, 30(20):93-98.
3. Andrus J.K., Banerjee K., Hull B.P., Smith J.C., Mochny I. Polio eradication in the World Health Organization South-East Asia Region by the year 2000: midway assessment of progress and future challenges. Journal of Infectious Diseases 1997, 175(Suppl.1):S89-S96.
4. Atwal A., Giles A., Spiliotopoulou G., Plastow N., Wilson L. Living with polio and postpolio syndrome in the United Kingdom. Scandinavian Journal of Caring Sciences 2013, 27(2):238-245.
5. Aylward R.B., Linkins J. Polio eradication: mobilizing and managing the human resources. Bulletin of the World Health Organization 2005, 83(4):268-273.
6. Becker L. Polio Survivors in the U.S., 1915-2000 Age Distribution Data 2006, Post-Polio Health International.
7. Becker H., Stuifbergen A. What makes it so hard? Barriers to health promotion experienced by people with multiple sclerosis and polio. Family & Community Health 2004, 27(1):75-85.
8. Black J.D. Physical rehabilitation in the refugee setting. Physiotherapy Theory and Practice 1996, 12(4):243-247.
9. Boyce W. Adaptation of community based rehabilitation in areas of armed conflict. Asia Pacific Disability Rehabilitation Journal 2000, 11(1):17-20.
10. Dai F., Zhang R.Z. Economic burden of poliomyelitis. Zhonghua Liu Xing Bing Xue Za Zhi=Zhonghua Liuxingbingxue Zazhi 1996, 17(3):169.
11. Dai F., Zhang R.Z. Social burden caused by poliomyelitis. Zhonghua Liu Xing Bing Xue Za Zhi=Zhonghua Liuxingbingxue Zazhi 1996, 17(6):353.
12. Davidson A.C., Auyeung V., Luff R., Holland M., Hodgkiss A., Weinman J. Prolonged benefit in post-polio syndrome from comprehensive rehabilitation: a pilot study. Disability & Rehabilitation 2009, 31(4):309-317.
13. Duintjer Tebbens R.J., Pallansch M.A., Cochi S.L., Wassilak S.G., Linkins J., Sutter R.W., Bruce Aylward R., Thompson K.M. Economic analysis of the global polio eradication initiative. Vaccine 2010, 29(2):334-343.
14. Elrod L.M., Jabben M., Oswald G., Szirony G.M. Vocational implications of post-polio syndrome. Work: a Journal of Prevention, Assessment and Rehabilitation 2005, 25(2):155-161.
15. Emmett T., Alant E. Women and disability: exploring the interface of multiple disadvantage. Development Southern Africa 2006, 23(4):445-460.
16. European Polio Union Polio & Post-Polio Syndrome 2012, Retrieved November 18, 2012.
17. Farbu E., Gilhus N.E. Poliomyelitis: long-time consequences for social life. Acta Neurologica Scandinavica 1997, 96(6):353-358.
18. Farbu E., Gilhus N.E. Education, occupation, and perception of health amongst previous polio patients compared to their siblings. European Journal of Neurology 2002, 9(3):233-241.
19. Farbu E., Rekand T., Aarli J.A., Gilhus N.E. Polio survivors-well educated and hard working. Journal of Neurology 2001, 248(6):500-505.
20. Fleischer D., Zames F. The Disability Rights Movement: From Charity to Confrontation 2011, Temple University Press.
21. Foster L.W., Berkman B., Wellen M., Schuster N. Postpolio survivors: needs for and access to social and health care services. Health & Social Work 1993, 18(2):139-148.
22. François I., Lambert M.L., Salort C., Slypen V., Bertrand F., Tonglet R. Causes of locomotor disability and need for orthopaedic devices in a heavily mined Taliban-controlled province of Afghanistan: issues and challenges for public health managers. Tropical Medicine & International Health 1998, 3(5):391-396.
23. Global Polio Eradication Initiative Polio Eradication and Endgame Strategic Plan: 2013-2018 2013.
24. Gonzalez H., Olsson T., Borg K. Management of postpolio syndrome. The Lancet Neurology 2010, 9(6):634-642.
25. Graña M. Peru's polio survivors. Post-Polio Health 2002, 18(2).
26. Green-Abate C., Dekker P.A., Wapenaar A., Bekele G.M. Paralytic poliomyelitis in Addis Ababa: follow-up survey of registered children. Annals of Tropical Paediatrics 1989, 9(2):102-106.
27. Groce N. Disability, public health and social injustice. Social Injustice and Public Health 2013, Oxford University Press, Oxford. revised second ed. B. Levy, V. Sidel (Eds.).
28. Groce N., Kett M., Lang R., Trani J.F. Disability and poverty: the need for a more nuanced understanding of implications for development policy and practice. Third World Quarterly 2011, 32(8):1493-1513.
29. Groce N., Murray B., Loeb M., Tramontano C., Trani J.F., Mekonen A. Disabled Beggars in Addis Ababa, Ethiopia (No. 480691) 2013, International Labour Organization.
30. Halder S. Rehabilitation of women with physical disabilities in India: a huge gap. The Australian Journal of Rehabilitation Counselling 2008, 14(01):1-15.
31. Harrison T.C., Stuifbergen A.K. Life purpose: effect on functional decline and quality of life in polio survivors. Rehabilitation Nursing 2006, 31(4):149-154.
32. Hartley S., Finkenflugel H., Kuipers P., Thomas M. Community-based rehabilitation: opportunity and challenge. The Lancet 2009, 374(9704):1803-1804.
33. Howard R.S. Poliomyelitis and the postpolio syndrome. BMJ: British Medical Journal 2005, 330(7503):1314.
34. Huang C.B.G. Primary health care and community-based rehabilitation in the People's Republic of China. Disability & Rehabilitation 1999, 21(10-11):479-483.
35. Hull H.F. The future of polio eradication. The Lancet Infectious Diseases 2001, 1(5):299-303.
36. Hull H.F., Ward N.A., Hull B.P., Milstien J.B., de Quadros C. Paralytic poliomyelitis: seasoned strategies, disappearing disease. The Lancet 1994, 343(8909):1331-1337.
37. Iezzoni L.I., Killeen M.B., O'Day B.L. Rural residents with disabilities confront substantial barriers to obtaining primary care. Health Services Research 2006, 41(4p1):1258-1275.
38. Joseph B., Ravikumar R., John M., Natarajan K., Steinhoff M.C., John T.J. Comparison of techniques for the estimation of the prevalence of poliomyelitis in developing countries. Bulletin of the World Health Organization 1983, 61(5):833.
39. Kang J.H., Lin H.C. Comorbidity profile of poliomyelitis survivors in a Chinese population: a population-based study. Journal of Neurology 2011, 258(6):1026-1033.
40. Kemp B.J., Adams B.M., Campbell M.L. Depression and life satisfaction in aging polio survivors versus age-matched controls: relation to postpolio syndrome, family functioning, and attitude toward disability. Archives of Physical Medicine and Rehabilitation 1997, 78(2):187-192.
41. Kinder M. Eliminating Polio in Latin America and the Caribbean 2006, Center for Global Development, Washington, DC.
42. Knipe D., Peter M. Fields Virology 2007, Wolters Kluwer, Philadelphia, PA.
43. Kumakura N., Takayanagi M., Hasegawa T., Ihara K., Yano H., Kimizuka M. Self-assessed secondary difficulties among paralytic poliomyelitis and spinal cord injury survivors in Japan. Archives of Physical Medicine and Rehabilitation 2002, 83(9):1245-1251.
44. LaForce F.M., Lichnevski M.S., Keja J., Henderson R.H. Clinical survey techniques to estimate prevalence and annual incidence of poliomyelitis in developing countries. Bulletin of the World Health Organization 1980, 58(4):609.
45. Lagerkvist B. Community-based rehabilitation-outcome for the disabled in the Philippines and Zimbabwe. Disability & Rehabilitation 1992, 14(1):44-50.
46. Lin K.H., Lim Y.W. Post-poliomyelitis syndrome: case report and review of the literature. Annals-academy of MEDICINE SINGAPORE 2005, 34(7):447.
47. Lund M.L., Lexell J. Relationship between participation in life situations and life satisfaction in persons with late effects of polio. Disability & Rehabilitation 2009, 31(19):1592-1597.
48. Lundgren-Lindquist B., Nordholm L. Community-based rehabilitation-a survey of disabled in a village in Botswana. Disability & Rehabilitation 1993, 15(2):83-89.
49. Marincek H.B.C. The influence of post-polio syndrome on independence and life satisfaction. Disability & Rehabilitation 2000, 22(7):318-322.
50. McNeal D.R., Somerville N.J., Wilson D.J. Work problems and accommodations reported by persons who are postpolio or have a spinal cord injury. Assistive Technology 1999, 11(2):137-157.
51. Mitchell J.M., Adkins R.H., Kemp B.J. The effects of aging on employment of people with and without disabilities. Rehabilitation Counseling Bulletin 2006, 49(3):157-165.
52. Mukti Services - Mukti India 2012, From:, (accessed 23.01.14.). http://www.muktiindia.org/services.html.
53. Nathanson N., Kew O.M. From emergence to eradication: the epidemiology of poliomyelitis deconstructed. American Journal of Epidemiology 2010, 172(11):1213-1229.
54. Neumann D.A. Polio: its impact on the people of the United States and the emerging profession of physical therapy. The Journal of Orthopaedic and Sports Physical Therapy 2004, 34(8):479.
55. Nielsen N.M., Rostgaard K., Askgaard D., Skinhøj P., Aaby P. Life-long morbidity among Danes with poliomyelitis. Archives of Physical Medicine and Rehabilitation 2004, 85(3):385-391.
56. NIH Post-Polio Syndrome Fact Sheet 2012, N.I.H. National Institute of Neurological Disorders and Stroke, Bethesda, MD.
57. Ofosu-Amaah S. The challenge of poliomyelitis in tropical Africa. Reviews of Infectious Diseases 1984, 6(Suppl.2):S318-S320.
58. Ofosu-Amaah S., Kratzer J.H., Nicholas D.D. Is poliomyelitis a serious problem in developing countries?-lameness in Ghanaian schools. British Medical Journal 1977, 1(6067):1012.
59. On A.Y., Oncu J., Atamaz F., Durmaz B. Impact of post-polio-related fatigue on quality of life. Journal of Rehabilitation Medicine 2006, 38(5):329.
60. Oshinsky D. Polio. Vaccines: a Biography 2010, 207-221. R.M. Andrews (Ed.).
61. Park S.K., Yoon J.Y., Henderson T. Factors affecting employment among people with mobility disabilities in South Korea. International Journal of Rehabilitation Research 2007, 30(1):19-25.
62. Parnes P., Cameron D., Christie N., Cockburn L., Hashemi G., Yoshida K. Disability in low-income countries: issues and implications. Disability and Rehabilitation 2009, 31(14):1170-1180.
63. Peters C., Lynch M. The Late Effects of Polio: Information for General Practitioners 2001, Queensland Health, Queensland.
64. Pinto P.E., Sahu N. Working with People with Disabilities: an Indian Perspective 2001, Center for International Rehabilitation Research Information and Exchange.
65. Pountney D. Identifying and managing post-polio syndrome. British Journal of Neuroscience Nursing 2009, 5(11):508.
66. Ramlow J., Alexander M., LaPorte R., Kaufmann C., Kuller L. Epidemiology of the post-polio syndrome. American Journal of Epidemiology 1992, 136(7):769-786.
67. Rekand T., Kõrv J., Farbu E., Roose M., Gilhus N.E., Langeland N., Aarli J.A. Long term outcome after poliomyelitis in different health and social conditions. Journal of Epidemiology & Community Health 2003, 57(5):368-372.
68. Renne E. Polio and associations for the disabled in Nigeria. The Journal of the International Institute 2006, 13(2).
69. Saeki S., Takemura J., Matsushima Y., Chisaka H., Hachisuka K. Workplace disability management in postpolio syndrome. Journal of Occupational Rehabilitation 2001, 11(4):299-307.
70. Schanke A.K. Psychological distress, social support and coping behaviour among polio survivors: a 5-year perspective on 63 polio patients. Disability & Rehabilitation 1997, 19(3):108-116.
71. Shaar K.H., McCarthy M. Disadvantage as a measure of handicap: a paired sibling study of disabled adults in Lebanon. International Journal of Epidemiology 1992, 21(1):101-107.
72. Souphan Inthirat R., Sihabandith Thonglith T. Community-based rehabilitation in the Lao People's Democratic Republic. Disability & Rehabilitation 1999, 21(10-11):469-473.
73. Stanghelle J.K., Festvåg L.V. Postpolio syndrome: a 5 year follow-up. Spinal Cord 1997, 35(8):503-508.
74. Stuifbergen A.K. Secondary conditions and life satisfaction among polio survivors. Rehabilitation Nursing 2005, 30(5):173-179.
75. Ten Katen K., Beelen A., Nollet F., Frings-Dresen M.H., Sluiter J.K. Overcoming barriers to work participation for patients with postpoliomyelitis syndrome. Disability and Rehabilitation 2011, 33(5):522-529.
76. Thompson K.M., Tebbens R.J.D. Retrospective cost-effectiveness analyses for polio vaccination in the United States. Risk Analysis 2006, 26(6):1423-1440.
77. Thorén-Jönsson A.L., Hedberg M., Grimby G. Distress in everyday life in people with poliomyelitis sequelae. Journal of Rehabilitation Medicine 2001, 33(3):119-127.
78. Tomas N. 'Double Disadvantage': Barriers Facing Women with Disabilities in Accessing Employment, Education and Training Opportunities: a Discussion Paper 1991, Disability Employment Action Centre.
79. Trevelyan B., Smallman-Raynor M., Cliff A.D. The spatial dynamics of poliomyelitis in the United States: from epidemic emergence to vaccine-induced retreat, 1910-1971. Annals of the Association of American Geographers 2005, 95(2):269-293.
80. Trojan D.A., Cashman N.R. Post-poliomyelitis syndrome. Muscle & Nerve 2005, 31(1):6-19.
81. UC Atlas of Global Inequality Health Care Spending 2006, Retrieved November 24, 2012.
82. UNICEF State of the World's Children: Children with Disabilities 2013, UNICEF, New York, (accessed 23.01.14.). http://www.unicef.org/sowc2013/report.html.
83. United Nations United Nations Convention on the Rights of Persons with Disabilities 2006, (accessed 23.01.14.). http://www.un.org/disabilities/default.asp?navid=12%26pid=150.
84. Veiby G., Daltveit A.K., Gilhus N.E. Pregnancy, delivery and perinatal outcome in female survivors of polio. Journal of the Neurological Sciences 2007, 258(1):27-32.
85. Walsh F. Bill Gates: the World Can Defeat Polio 2013, (accessed 23.01.14.). http://www.bbc.co.uk/news/health-21207601.
86. Ward N.A., Milstien J.B., Hull H.F., Hull B.P., Kim-Farley R.J. The WHO-EPI initiative for the global eradication of poliomyelitis. Biologicals 1993, 21(4):327-333.
87. WHO International Classification of Functioning, Disability and Health 2001, WHO, Geneva.
88. WHO Community Based Rehabilitation Guidelines 2011, WHO, Geneva, (accessed 23.01.14.). http://www.who.int/disabilities/cbr/guidelines/en/.
89. WHO Poliomyelitis 2013, Fact Sheet No. 114, WHO, Geneva, (accessed 23.01.14.). http://www.who.int/mediacentre/factsheets/fs114/en/index.html.
90. WHO Polio Case Count 2013, (accessed 23.01.14.). http://apps.who.int/immunization_monitoring/en/diseases/poliomyelitis/case_count.cfm.
91. WHO/ILOU AStrategy for Rehabilitation, Equalization of Opportunities, Poverty Reduction and Social Inclusion of People with Disabilities 2004, WHO, Geneva.
92. WHO/World Bank World Report on Disability 2011, WHO, Geneva, (accessed 23.01.14.). http://www.who.int/disabilities/world_report/2011/en/index.html.
93. Wyatt H.V. Poliomyelitis in India: past, present and future. Indian Journal of Pediatrics 1998, 65(1 Suppl). (SI).
94. Yeo R. Disability, poverty and the new development agenda. Disability Knowledge and Research 2005, 1-33.
95. Yeo R., Moore K. Including disabled people in poverty reduction work: "Nothing about us, without us". World Development 2003, 31(3):571-590.
96. Zhang R. Asurvey on polio paralysis in Shandong province department of program immunization, cooperation group on the survey of polio paralysis. Zhonghua Liu Xing Bing Xue Za Zhi= Zhonghua Liuxingbingxue Zazhi 1991, 12(2):79.