Comparing face-to-face and online qualitative research with people with multiple sclerosis

Qualitative Health Research

Volumn 24, Issue 3, 2014, Pages 431-438

  Synnot, Anneliese ^a   Hill, Sophie ^a   Summers, Michael ^a   Taylor, Michael ^a  

^a LA TROBE UNIVERSITY   (Australia)

Author keywords

disability disabled persons; focus groups; multiple sclerosis (MS); research, online; research, qualitative

Indexed keywords

ADULT; AGED; COMPARATIVE STUDY; DISABLED PERSON; FAMILY; FEMALE; HUMAN; INFORMATION PROCESSING; INTERNET; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PSYCHOLOGY; QUALITATIVE RESEARCH;

ADULT; AGED; DISABLED PERSONS; FAMILY; FEMALE; FOCUS GROUPS; HUMANS; INTERNET; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; QUALITATIVE RESEARCH;

EID: 84896777285     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732314523840     Document Type: Article

References (31)

1. Allsop J. Researching health: Qualitative, quantitative and mixed methods. 2013 ). Competing paradigms and health research: Design and process. In SaksM.AllsopJ. (Eds.), Researching health: Qualitative, quantitative and mixed methods (2nd ed., pp. 18-41). London: Sage. Saks M. Allsop J., ed. London: Sage ; 2013: 18-41.
2. Australian Bureau of Statistics. (2009). Household use of information technology, Australia, 2008-2009. ABS Catalogue No. 8146.0. Canberra, ACT, Australia: Author. Retrieved from www.ausstats.abs.gov.au/Ausstats/subscriber. nsf/0/9B44779BD8AF6A9CCA25768D0021EEC3/anddollar;File/81460-2008-09.pdf
3. Australian Bureau of Statistics. (2011). Household use of information technology, Australia, 2010-2011. ABS Catalogue No. 8146.0. Canberra, ACT, Austgralia: Author. Retrieved from www.abs.gov.au/AUSSTATS/abs@nsf/DetailsPage/ 8146.02010-11?OpenDocument
4. Benford P., Standen P. J.. The use of email-facilitated interviewing with higher functioning autistic people participating in a grounded theory study. International Journal of Social Research Methodology. 2011 ; 14: 353-368
5. Bishop M., Frain M. P., Espinosa C. T., Stenhoff D. M.. Sources of information about multiple sclerosis: Information seeking and personal, demographic, and MS variables. Journal of Vocational Rehabilitation. 2009 ; 31: 107-117
6. Bowker N., Tuffin K.. Using the online medium for discursive research about people with disabilities. Social Science Computer Review. 2004 ; 22: 228-241
7. CampbellM. K.MeierA.CarrC.EngaZ.JamesA. S.ReedyJ.ZhengB. (2001). Health behavior changes after colon cancer: A comparison of findings from face-to-face and on-line focus groups. Family andamp; Community Health, 24(3), 88-103. Retrieved from http://journals.lww.com/familyandcommunityhealth/pages/default. aspx
8. Carter S., Henderson L. Handbook of health research methods: Investigation, measurement and analysis. Bowling A. Ebrahim S., ed. Berkshire, United Kingdom: Open University Press ; 2005: 215-229.
9. Commonwealth Department of Health and Aged Care. (2001). Measuring remoteness: Accessibility/remoteness index of Australia (ARIA; Rev. ed.). Occasional Paper New Series No. 14. Canberra, ACT, Australia: Author. Retrieved from www.health.gov.au/internet/main/publishing.nsf/Content/ 7B1A5FA525DD0D39CA25748200048131/anddollar;File/ocpanew14.pdf
10. Compston A., Coles A.. Multiple sclerosis. Lancet. 2002 ; 359: 1221-1231
11. Dattilo J., Estrella G., Estrella L. J., Light J., McNaughton D., Seabury M.. "I have chosen to live life abundantly": Perceptions of leisure by adults who use augmentative and alternative communication. Augmentative and Alternative Communication. 2008 ; 24: 16-28
12. Egan J., Chenoweth L., McAuliffe D.. Email-facilitated qualitative interviews with traumatic brain injury survivors: A new and accessible method. Brain Injury. 2006 ; 20: 1283-1294
13. Eysenbach G., Till J. E.. Ethical issues in qualitative research on internet communities. BMJ. 2001 ; 323: 1103-1105
14. FoxS.PurcellK. (2010). Chronic disease and the Internet. Retrieved from Pew Internet andamp; American Life Project Web site: www.pewinternet.org/ Reports/2010/Chronic-Disease.aspx
15. Green J. Researching health: Qualitative, quantitative and mixed methods. 2013 ). The use of focus groups in research into health. In SaksM.AllsopJ. (Eds.), Researching health: Qualitative, quantitative and mixed methods (2nd ed., pp. 128-147). London: Sage. Saks M. Allsop J., ed. London: Sage ; 2013: 128-147.
16. Guise J., Widdicombe S., McKinlay A.. "What is it like to have ME?": The discursive construction of ME in computer-mediated communication and face-to-face interaction. Health. 2007 ; 11: 87-108
17. Hill S., Filippini G., Synnot A., Summers M., Beecher D., Colombo C.,... Hawkins M.. Presenting evidence-based health information for people with multiple sclerosis: The IN-DEEP project protocol. BMC Medical Informatics and Decision Making. 2012 ; 12: 20
18. HoholM. J.OravE. J.WeinerH. L. (1995). Disease steps in multiple sclerosis: A simple approach to evaluate disease progression. Neurology, 45, 251-255. Retrieved from www.neurology.org/
19. Ison N. L.. Having their say: Email interviews for research data collection with people who have verbal communication impairment. International Journal of Social Research Methodology. 2009 ; 12: 161-172
20. Kenny A. J.. Interaction in cyberspace: An online focus group. Journal of Advanced Nursing. 2005 ; 49: 414-422
21. Krueger R. A., Casey M. A. Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage ; 2009 :
22. Lejbkowicz I., Paperna T., Stein N., Dishon S., Miller A.. Internet usage by patients with multiple sclerosis: Implications to participatory medicine and personalized healthcare. Multiple Sclerosis International. 2010 ; 2010: 640749
23. Mann C., Stewart F. Internet communication in qualitative research: A handbook for researching online. London: Sage ; 2000 :
24. NicholasD.LachL.KingG.ScottM.BoydellK.SawatzkyB. J.... YoungN. L. (2010). Contrasting Internet and face-to-face focus groups for children with chronic health conditions: Outcomes and participant experiences. International Journal of Qualitative Methods, 9, 105-121. Retrieved from http://ejournals.library. ualberta.ca/index.php/IJQM/index
25. Melbourne, Australia: Author ; 2008 :
26. Seymour W. S.. In the flesh or online? Exploring qualitative research methodologies. Qualitative Research. 2001 ; 1: 147-168
27. StancanelliJ. (2010). Conducting an online focus group. Qualitative Report, 15, 761-765. Retrieved from www.nova.edu/ssss/QR/QR15-3/ofg2.pdf
28. Synnot A. J., Hill S., Beecher D., Colombo C., Filippini G., Mosconi P.,... Summers M.. The Internet and treatment information-seeking by people with multiple sclerosis. International Journal of MS Care. 2011 ; 13: 58
29. TurneyL.PockneeC. (2005). Virtual focus groups: New frontiers in research. International Journal of Qualitative Methods, 4(2), 32-43. Retrieved from http://ejournals.library.ualberta.ca/index.php/IJQM/index
30. WilliamsS.Giatsi ClausenM.RobertsonA.PeacockS.McPhersonK. (2012). Methodological reflections on the use of asynchronous online focus groups in health research. International Journal of Qualitative Methods, 11, 368-383. Retrieved from http://ejournals.library.ualberta.ca/index.php/IJQM/index
31. WollinJ. A.FulcherG.McDonaldE.SpencerN.MortlockM. Y.BourneM. (2010). Psychosocial factors that influence quality of life and potential for self-management in multiple sclerosis. International Journal of MS Care, 12, 133-141. Retrieved from http://ijmsc.org/