Economic burden of neural tube defects in Germany

Public Health

Volumn 128, Issue 3, 2014, Pages 274-281

  Bowles, D ^a   Wasiak, R ^b   Kissner, M ^b   van Nooten, F ^b   Engel, S ^c   Linder, R ^c   Verheyen, F ^c   Greiner, W ^a  

^a BIELEFELD UNIVERSITY   (Germany)

^b Scientific Inst of TK for Benefit and Efficiency in Health Care Wissenschaftliches Institut der TK für Nutzen und Effizienz im Gesundheitswesen WINEG ^*

^c WINEG   (Germany)

Author keywords

Claims data; Encephalocoele; Healthcare expenditures; Healthcare utilization; Neural tube defects; Spina bifida

Indexed keywords

HEALTH CARE; HEALTH EXPENDITURE; HEALTH INSURANCE; MORBIDITY;

ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; ENCEPHALOCELE; FEMALE; GERMANY; HEALTH CARE COST; HEALTH ECONOMICS; HEALTH INSURANCE; HOSPITAL PATIENT; HUMAN; ICD-10; LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; MEDICAL LEAVE; MORBIDITY; NEURAL TUBE DEFECT; OUTPATIENT; PATIENT CARE; PRESCHOOL CHILD; PREVALENCE; REHABILITATION CARE; RETROSPECTIVE STUDY; SCHOOL CHILD; SPINAL DYSRAPHISM;

GERMANY;

CLAIMS DATA; ENCEPHALOCOELE; HEALTHCARE EXPENDITURES; HEALTHCARE UTILIZATION; NEURAL TUBE DEFECTS; SPINA BIFIDA;

ADOLESCENT; ADULT; AGED; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; DELIVERY OF HEALTH CARE; FEMALE; GERMANY; HEALTH EXPENDITURES; HUMANS; INFANT; INSURANCE, HEALTH; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; MIDDLE AGED; NEURAL TUBE DEFECTS; PREVALENCE; RETROSPECTIVE STUDIES; YOUNG ADULT;

EID: 84896492227     PISSN: 00333506     EISSN: 14765616     Source Type: Journal    
DOI: 10.1016/j.puhe.2013.12.001     Document Type: Article

References (30)

1. Verity C.M., Firth H., French-Constant C. Developmental abnormalities of the central nervous system. Oxford textbook of medicine 2005, vol. 3:1201-1215. Oxford University Press, Oxford/New York.
2. Frey L., Hauser W.A. Epidemiology of neural tube defects. Epilepsia 2003, 44(Suppl. 3):4-13.
3. Kondo A., Kamihira O., Ozawa H. Neural tube defects: prevalence, etiology and prevention. Int J Urol 2009, 16(1):49-57.
4. De-Regil L.M., Fernandez-Gaxiola A.C., Dowswell T., Pena-Rosas J.P. Effects and safety of periconceptional folate supplementation for preventing birth defects. Cochrane Database Syst Rev 2010, (10):CD007950.
5. Grosse S.D., Waitzman N.J., Romano P.S., Mulinare J. Reevaluating the benefits of folic acid fortification in the United States: economic analysis, regulation, and public health. Am J Public Health 2005, 95(11):1917-1922.
6. Llanos A., Hertrampf E., Cortes F., Grosse S.D., Uauy R. Cost-effectiveness of a folic acid fortification program in Chile. Health Policy 2007, 83(2-3):295-303.
7. Mitchell L.E., Adzick N.S., Melchionne J., Pasquariello P.S., Sutton L.N., Whitehead A.S. Spina bifida. Lancet 20-26 November 2004, 364(9448):1885-1895.
8. European Surveillance of Congenital Anomalities Prevalence data tables 2010, (accessed 25 May 2012). http://www.eurocat-network.eu/.
9. Bol K.A., Collins J.S., Kirby R.S., National Birth Defects Prevention Network Survival of infants with neural tube defects in the presence of folic acid fortification. Pediatrics 2006, 117(3):803-813.
10. Wong L.Y., Paulozzi L.J. Survival of infants with spina bifida: a population study, 1979-94. Paediatr Perinat Epidemiol 2001, 15(4):374-378.
11. Dicianno B.E., Kurowski B.G., Yang J.M., Chancellor M.B., Bejjani G.K., Fairman A.D., Lewis N., Sotirake J. Rehabilitation and medical management of the adult with spina bifida. Am J Phys Med Rehabil 2008, 87(12):1027-1050.
12. Thompson D.N. Postnatal management and outcome for neural tube defects including spina bifida and encephalocoeles. Prenat Diagn 2009, 29(4):412-419.
13. Bowman R.M., McLone D.G., Grant J.A., Tomita T., Ito J.A. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg 2001, 34(3):114-120.
14. Ouyang L., Grosse S.D., Armour B.S., Waitzman N.J. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. Birth Defects Res A Clin Mol Teratol Jul 2007, 79(7):552-558.
15. Centers for Disease Control and Prevention Hospital stays, hospital charges, and in-hospital deaths among infants with selected birth defects - United States, 2003. MMWR Morb Mortal Wkly Rep 19 2007, 56(2):25-29.
16. Tilford J.M., Grosse S.D., Goodman A.C., Li K. Labor market productivity costs for caregivers of children with spina bifida: a population-based analysis. Med Decis Making 2009, 29(1):23-32.
17. Dicianno B.E., Wilson R. Hospitalizations of adults with spina bifida and congenital spinal cord anomalies. Arch Phys Med Rehabil 2010, 91(4):529-535.
18. Bamer A.M., Connell F.A., Dudgeon B.J., Johnson K.L. Frequency of purchase and associated costs of assistive technology for Washington State Medicaid program enrollees with spina bifida by age. Disabil Health J 2010, 3(3):155-161.
19. Ireys H.T., Anderson G.F., Shaffer T.J., Neff J.M. Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993. Pediatrics 1997, 100(2 Pt 1):197-204.
20. Young N.L., Steele C., Fehlings D., Jutai J., Olmsted N., Williams J.I. Use of health care among adults with chronic and complex physical disabilities of childhood. Disabil Rehabil 15 December 2005, 27(23):1455-1460.
21. German Federal Insurance Office. Information on the risk compensation scheme in 2006, 2007 and 2008 [in German]. Several years; (accessed 25 May 2012). http://www.bundesversicherungsamt.de.
22. Schmidt D., Wittmann R., Goepffarth D. Datenmeldungen für den morbiditätsorientierten Risikostrukturausgleich. Jahrbuch Risikostrukturausgleich 2009/2010. Von der Selektion zur Manipulation? 2010, 211-240. [in German], Medhochzwei, Heidelberg. D. Goepffarth, S. Greß, K. Jacobs, J. Wasem (Eds.).
23. Otto F., Goepffarth D. RSA-Jahresausgleich 2007 - Daten und Fakten. Jahrbuch Risikostrukturausgleich 2009/2010. Von der Selektion zur Manipulation? 2010, 169-209. [in German], Medhochzwei, Heidelberg. D. Goepffarth, S. Greß, K. Jacobs, J. Wasem (Eds.).
24. Yi Y., Lindemann M., Colligs A., Snowball C. Economic burden of neural tube defects and impact of prevention with folic acid: a literature review. Eur J Pediatr 2011, 170(11):1391-1400.
25. Wilson R., Lewis S.A., Dicianno B.E. Targeted preventive care may be needed for adults with congenital spine anomalies. PM R 2011, 3(8):730-738.
26. Johnson K.L., Dudgeon B., Kuehn C., Walker W. Assistive technology use among adolescents and young adults with spina bifida. Am J Public Health 2007, 97(2):330-336.
27. Czeizel A.E., Dudas I. Prevention of the first occurrence of neural-tube defects by periconceptional vitamin supplementation. N Engl J Med 24 1992, 327(26):1832-1835.
28. MRC Vitamin Study Research Group Prevention of neural tube defects: results of the Medical Research Council Vitamin Study. Lancet 20 1991, 338(8760):131-137.
29. Blencowe H., Cousens S., Modell B., Lawn J. Folic acid to reduce neonatal mortality from neural tube disorders. Int J Epidemiol 2010, 39(Suppl. 1):i110-121.
30. Wolff T., Witkop C.T., Miller T., Syed S.B. Folic acid supplementation for the prevention of neural tube defects: an update of the evidence for the U.S. Preventive Services Task Force. Ann Intern Med 5 2009, 150(9):632-663.