-
1
-
-
70349696251
-
Trends and determinants of end-of-life practices in ALS in the Netherlands
-
1:STN:280:DC%2BD1MnjvVyhtQ%3D%3D 19770471 10.1212/WNL.0b013e3181b87983
-
Maessen M, Veldink JH, Onwuteaka-Philipsen BD, de Vries JM, Wokke JH, van der Wal G, van den Berg LH (2009) Trends and determinants of end-of-life practices in ALS in the Netherlands. Neurology 73(12):954-961
-
(2009)
Neurology
, vol.73
, Issue.12
, pp. 954-961
-
-
Maessen, M.1
Veldink, J.H.2
Onwuteaka-Philipsen, B.D.3
De Vries, J.M.4
Wokke, J.H.5
Van Der Wal, G.6
Van Den Berg, L.H.7
-
2
-
-
77953731577
-
Some difficult decisions in ALS/MaND
-
10.3109/17482968.2010.487532
-
Oliver DJ, Turner MR (2010) Some difficult decisions in ALS/MaND. Amyotroph Later Scler 11(4):339-343
-
(2010)
Amyotroph Later Scler
, vol.11
, Issue.4
, pp. 339-343
-
-
Oliver, D.J.1
Turner, M.R.2
-
3
-
-
0037162098
-
Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands
-
12023997 10.1056/NEJMsa012739
-
Veldink JH, Wokke JH, van der Wal G, Vianney de Jong JM, van den Berg LH (2002) Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in The Netherlands. N Engl J Med 346:1638-1644
-
(2002)
N Engl J Med
, vol.346
, pp. 1638-1644
-
-
Veldink, J.H.1
Wokke, J.H.2
Van Der Wal, G.3
Vianney De Jong, J.M.4
Van Den Berg, L.H.5
-
4
-
-
0037162113
-
Physician-assisted death - A last resort?
-
12024002 10.1056/NEJM200205233462113
-
Ganzini L, Block S (2002) Physician-assisted death - a last resort? N Engl J Med 346:1663-1665
-
(2002)
N Engl J Med
, vol.346
, pp. 1663-1665
-
-
Ganzini, L.1
Block, S.2
-
5
-
-
77958134046
-
Reporting of euthanasia in medical practice in Flanders, Belgium: Cross sectional analysis of reported and unreported cases
-
2950259 20923842 10.1136/bmj.c5174
-
Smets T, Bilsen J, Cohen J, Rurup ML, Mortier F, Deliens L (2010) Reporting of euthanasia in medical practice in Flanders, Belgium: cross sectional analysis of reported and unreported cases. BMJ 341:c5174
-
(2010)
BMJ
, vol.341
, pp. 5174
-
-
Smets, T.1
Bilsen, J.2
Cohen, J.3
Rurup, M.L.4
Mortier, F.5
Deliens, L.6
-
6
-
-
0032189722
-
Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide
-
1:STN:280:DyaK1cvhvVKnuw%3D%3D 9753713 10.1056/NEJM199810013391406
-
Ganzini L, Johnston WS, Mcfarland BH, Tolle SW, Lee MA (1998) Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide. N Engl J Med 339:967-973
-
(1998)
N Engl J Med
, vol.339
, pp. 967-973
-
-
Ganzini, L.1
Johnston, W.S.2
McFarland, B.H.3
Tolle, S.W.4
Lee, M.A.5
-
7
-
-
0036758257
-
Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington
-
12458112 10.1016/S0885-3924(02)00496-7
-
Ganzini L, Silveira MJ, Johnston WS (2002) Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington. J Pain Symptom Manage 24(3):312-317
-
(2002)
J Pain Symptom Manage
, vol.24
, Issue.3
, pp. 312-317
-
-
Ganzini, L.1
Silveira, M.J.2
Johnston, W.S.3
-
8
-
-
62349135420
-
Oregonians' reasons for requesting physician aid in dying
-
19273779 10.1001/archinternmed.2008.579
-
Ganzini L, Goy ER, Dobscha SK (2009) Oregonians' reasons for requesting physician aid in dying. Arch Intern Med 169(5):489-492
-
(2009)
Arch Intern Med
, vol.169
, Issue.5
, pp. 489-492
-
-
Ganzini, L.1
Goy, E.R.2
Dobscha, S.K.3
-
9
-
-
42549142242
-
Palliative care and circumstances of dying in German ALS patients using non-invasive ventilation
-
10.1080/17482960701830495
-
Kühnlein P, Kübler A, Raubold S, Worell M, Kurt A, Gdynia HJ, Sperfeld AD, Ludolph AC (2008) Palliative care and circumstances of dying in German ALS patients using non-invasive ventilation. Amyotroph Later Scler 9:91-98
-
(2008)
Amyotroph Later Scler
, vol.9
, pp. 91-98
-
-
Kühnlein, P.1
Kübler, A.2
Raubold, S.3
Worell, M.4
Kurt, A.5
Gdynia, H.J.6
Sperfeld, A.D.7
Ludolph, A.C.8
-
10
-
-
84870882302
-
Attitudes toward assisted suicide and life-prolonging measures in Swiss ALS patients and their caregivers
-
3481003 23112784 10.3389/fpsyg.2012.00443
-
Stutzki R, Schneider U, Reiter-Theil S, Weber M (2012) Attitudes toward assisted suicide and life-prolonging measures in Swiss ALS patients and their caregivers. Front Psychol 3:443
-
(2012)
Front Psychol
, vol.3
, pp. 443
-
-
Stutzki, R.1
Schneider, U.2
Reiter-Theil, S.3
Weber, M.4
-
11
-
-
84874797594
-
What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives
-
Hogden A, Greenfield D, Nugus P, Kiernan MC (2012) What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Prefer Adherence 6:819-838
-
(2012)
Patient Prefer Adherence
, vol.6
, pp. 819-838
-
-
Hogden, A.1
Greenfield, D.2
Nugus, P.3
Kiernan, M.C.4
-
12
-
-
25644433660
-
Discussing living wills. A qualitative study of a German sample of neurologists and ALS patients
-
16009378 10.1016/j.jns.2005.05.013
-
Burchardi N, Rauprich O, Hecht M, Beck M, Vollmann J (2005) Discussing living wills. A qualitative study of a German sample of neurologists and ALS patients. J Neurol Sci 237(1-2):67-74
-
(2005)
J Neurol Sci
, vol.237
, Issue.1-2
, pp. 67-74
-
-
Burchardi, N.1
Rauprich, O.2
Hecht, M.3
Beck, M.4
Vollmann, J.5
-
13
-
-
33750979008
-
Complexities in decision making for persons with disabilities nearing end of life
-
17082170 10.1310/tsr1304-54
-
Robinson EM, Phipps M, Purtilo RB, Tsoumas A, Hamel-Nardozzi M (2006) Complexities in decision making for persons with disabilities nearing end of life. Top Stroke Rehabil 13(4):54-67
-
(2006)
Top Stroke Rehabil
, vol.13
, Issue.4
, pp. 54-67
-
-
Robinson, E.M.1
Phipps, M.2
Purtilo, R.B.3
Tsoumas, A.4
Hamel-Nardozzi, M.5
-
14
-
-
0037390369
-
Threats to "informed" advance directives for the severely physically challenged?
-
10.1053/apmr.2003.50243
-
Bach JR (2003) Threats to "informed" advance directives for the severely physically challenged? Arch Phys Med Rehabil 84(4:2):23-28
-
(2003)
Arch Phys Med Rehabil
, vol.84
, Issue.42
, pp. 23-28
-
-
Bach, J.R.1
-
15
-
-
77955757492
-
Coping with amyotrophic lateral sclerosis: An integrative view
-
20587497 10.1136/jnnp.2009.201285
-
Matuz T, Birbaumer N, Hautzinger M, Kübler A (2010) Coping with amyotrophic lateral sclerosis: an integrative view. J Neurol Neurosurg Psychiatry 81(8):893-898
-
(2010)
J Neurol Neurosurg Psychiatry
, vol.81
, Issue.8
, pp. 893-898
-
-
Matuz, T.1
Birbaumer, N.2
Hautzinger, M.3
Kübler, A.4
-
16
-
-
24044432930
-
Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis
-
16093409 10.1177/1545968305276583
-
Kübler A, Winter S, Ludolph AC, Hautzinger M, Birbaumer N (2005) Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis. Neurorehabil Neural Repair 19:182-193
-
(2005)
Neurorehabil Neural Repair
, vol.19
, pp. 182-193
-
-
Kübler, A.1
Winter, S.2
Ludolph, A.C.3
Hautzinger, M.4
Birbaumer, N.5
-
17
-
-
48649096092
-
Depression and quality of life in patients with amyotrophic lateral sclerosis
-
2696844 19626161
-
Lulé D, Häcker S, Ludolph A, Birbaumer N, Kübler A (2008) Depression and quality of life in patients with amyotrophic lateral sclerosis. Dtsch Arztebl Int 105(23):397-403
-
(2008)
Dtsch Arztebl Int
, vol.105
, Issue.23
, pp. 397-403
-
-
Lulé, D.1
Häcker, S.2
Ludolph, A.3
Birbaumer, N.4
Kübler, A.5
-
18
-
-
84889591765
-
Quality of life in fatal disease: The flawed judgement of the social environment
-
23989341 10.1007/s00415-013-7068-y
-
Lulé D, Ehlich B, Lang D, Sorg S, Heimrath J, Kübler A, Birbaumer N, Ludolph AC (2013) Quality of life in fatal disease: the flawed judgement of the social environment. J Neurol 260(11):2836-2843
-
(2013)
J Neurol
, vol.260
, Issue.11
, pp. 2836-2843
-
-
Lulé, D.1
Ehlich, B.2
Lang, D.3
Sorg, S.4
Heimrath, J.5
Kübler, A.6
Birbaumer, N.7
Ludolph, A.C.8
-
19
-
-
55549093756
-
Prevalence of depression and anxiety in patients requesting physicians' aid in dying: Cross sectional survey
-
2562435 18842645 10.1136/bmj.a1682
-
Ganzini L, Goy ER, Dobscha SK (2008) Prevalence of depression and anxiety in patients requesting physicians' aid in dying: cross sectional survey. BMJ 337:a1682
-
(2008)
BMJ
, vol.337
, pp. 1682
-
-
Ganzini, L.1
Goy, E.R.2
Dobscha, S.K.3
-
20
-
-
0033550496
-
Quality end-of-life care: Patients' perspectives
-
1:STN:280:DyaK1M7hsVWmug%3D%3D 9917120 10.1001/jama.281.2.163
-
Singer PA, Martin DK, Kelner M (1999) Quality end-of-life care: patients' perspectives. JAMA 281:163-168
-
(1999)
JAMA
, vol.281
, pp. 163-168
-
-
Singer, P.A.1
Martin, D.K.2
Kelner, M.3
-
21
-
-
84155172791
-
The syndrome of cognitive impairment in amyotrophic lateral sclerosis: A population-based study
-
21836033 10.1136/jnnp-2011-300188
-
Phukan J, Elamin M, Bede P, Jordan N, Gallagher L, Byrne S, Lynch C, Pender N, Hardiman O (2012) The syndrome of cognitive impairment in amyotrophic lateral sclerosis: a population-based study. J Neurol Neurosurg Psychiatry 83(1):102-108
-
(2012)
J Neurol Neurosurg Psychiatry
, vol.83
, Issue.1
, pp. 102-108
-
-
Phukan, J.1
Elamin, M.2
Bede, P.3
Jordan, N.4
Gallagher, L.5
Byrne, S.6
Lynch, C.7
Pender, N.8
Hardiman, O.9
-
22
-
-
84881128873
-
Predicting survival of patients with amyotrophic lateral sclerosis at presentation: A 15-year experience
-
22922503 10.1159/000341316
-
Gordon PH, Salachas F, Lacomblez L, Le Forestier N, Pradat PF, Bruneteau G, Elbaz A, Meininger V (2012) Predicting survival of patients with amyotrophic lateral sclerosis at presentation: a 15-year experience. Neurodegener Dis 12(2):81-90
-
(2012)
Neurodegener Dis
, vol.12
, Issue.2
, pp. 81-90
-
-
Gordon, P.H.1
Salachas, F.2
Lacomblez, L.3
Le Forestier, N.4
Pradat, P.F.5
Bruneteau, G.6
Elbaz, A.7
Meininger, V.8
-
23
-
-
0035978743
-
Amyotrophic lateral sclerosis
-
1:CAS:528:DC%2BD3MXkslWjtbo%3D 11386269 10.1056/NEJM200105313442207
-
Rowland LP, Shneider NA (2001) Amyotrophic lateral sclerosis. N Engl J Med 344:1688-1700
-
(2001)
N Engl J Med
, vol.344
, pp. 1688-1700
-
-
Rowland, L.P.1
Shneider, N.A.2
-
24
-
-
0033995351
-
Legalized physician-assisted suicide in Oregon - The second year
-
1:STN:280:DC%2BD3c7jt1ehtQ%3D%3D 10684921 10.1056/NEJM200002243420822
-
Sullivan AD, Hedberg K, Fleming DW (2000) Legalized physician-assisted suicide in Oregon - the second year. N Engl J Med 342:598-604
-
(2000)
N Engl J Med
, vol.342
, pp. 598-604
-
-
Sullivan, A.D.1
Hedberg, K.2
Fleming, D.W.3
-
25
-
-
0032692481
-
The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III)
-
1:STN:280:DC%2BD3c%2FgvFKqtg%3D%3D 10540002 10.1016/S0022-510X(99)00210-5
-
Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A (1999) The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci 169(1-2):13-21
-
(1999)
J Neurol Sci
, vol.169
, Issue.1-2
, pp. 13-21
-
-
Cedarbaum, J.M.1
Stambler, N.2
Malta, E.3
Fuller, C.4
Hilt, D.5
Thurmond, B.6
Nakanishi, A.7
-
26
-
-
0016823810
-
Mini-mental state (a practical method for grading the state of patients for the clinician)
-
1:STN:280:DyaE28%2FntFKjtw%3D%3D 1202204 10.1016/0022-3956(75)90026-6
-
Folstein MF, Folstein SE, McHugh PR (1975) Mini-mental state (a practical method for grading the state of patients for the clinician). J Psychiatr Res 12:189-198
-
(1975)
J Psychiatr Res
, vol.12
, pp. 189-198
-
-
Folstein, M.F.1
Folstein, S.E.2
McHugh, P.R.3
-
27
-
-
0032898156
-
Measuring desire for death among the medically ill: The schedule of attitudes toward hastened death
-
1:STN:280:DyaK1M7gslehsw%3D%3D 9892303
-
Rosenfeld B, Breitbart W, Stein K, Funesti-Esch J, Kaim M, Krivo S, Galietta M (1999) Measuring desire for death among the medically ill: the schedule of attitudes toward hastened death. Am J Psychiatry 156:94-100
-
(1999)
Am J Psychiatry
, vol.156
, pp. 94-100
-
-
Rosenfeld, B.1
Breitbart, W.2
Stein, K.3
Funesti-Esch, J.4
Kaim, M.5
Krivo, S.6
Galietta, M.7
-
28
-
-
0032839975
-
How to get serious answers to the serious question: 'How have you been?': Subjective quality of life (QOL) as an individual experiential emergent construct
-
11657238 10.1111/1467-8519.00156
-
Bernheim JL (1999) How to get serious answers to the serious question: 'How have you been?': subjective quality of life (QOL) as an individual experiential emergent construct. Bioethics 13:272-287
-
(1999)
Bioethics
, vol.13
, pp. 272-287
-
-
Bernheim, J.L.1
-
29
-
-
0029999423
-
A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS
-
1:STN:280:DyaK283otVGlug%3D%3D 2351443 8664768 10.1136/bmj.313.7048.29
-
Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W (1996) A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ 313:29-33
-
(1996)
BMJ
, vol.313
, pp. 29-33
-
-
Hickey, A.M.1
Bury, G.2
O'Boyle, C.A.3
Bradley, F.4
O'Kelly, F.D.5
Shannon, W.6
-
31
-
-
84896495560
-
Fragebogen zur sozialen Unterstützung (F-SozU): Normierung der Kurzform (K-14)Social Support Questionnaire (F-SozU): Standardization of short form (K-14)
-
Fydrich T, Sommer G, Tydecks T, Brähler E (2009) Fragebogen zur sozialen Unterstützung (F-SozU): Normierung der Kurzform (K-14)Social Support Questionnaire (F-SozU): Standardization of short form (K-14). Z Med Psychol 18:1
-
(2009)
Z Med Psychol
, vol.18
, pp. 1
-
-
Fydrich, T.1
Sommer, G.2
Tydecks, T.3
Brähler, E.4
-
34
-
-
84879430180
-
With the blink of an eye: D2 attention test in the severely paralysed
-
Lulé D, Heizmann C, Sorg S, Ludolph AC (2010) With the blink of an eye: d2 attention test in the severely paralysed. Amyotroph Lateral Scler 11(1):143-149
-
(2010)
Amyotroph Lateral Scler
, vol.11
, Issue.1
, pp. 143-149
-
-
Lulé, D.1
Heizmann, C.2
Sorg, S.3
Ludolph, A.C.4
-
35
-
-
0035957088
-
Quality of life in ALS is maintained as physical function declines
-
1:STN:280:DC%2BD3M7ps1Kiuw%3D%3D 11222784 10.1212/WNL.56.4.442
-
Robbins R, Simmons Z, Bremer B, Walsh S, Fischer S (2001) Quality of life in ALS is maintained as physical function declines. Neurology 56:442-444
-
(2001)
Neurology
, vol.56
, pp. 442-444
-
-
Robbins, R.1
Simmons, Z.2
Bremer, B.3
Walsh, S.4
Fischer, S.5
-
36
-
-
67649550204
-
The dynamics of quality of life in ALS patients and caregivers
-
19350337 10.1007/s12160-009-9092-9
-
Roach AR, Averill AJ, Segerstrom SC, Kasarskis EJ (2009) The dynamics of quality of life in ALS patients and caregivers. Ann Behav Med 37(2):197-206
-
(2009)
Ann Behav Med
, vol.37
, Issue.2
, pp. 197-206
-
-
Roach, A.R.1
Averill, A.J.2
Segerstrom, S.C.3
Kasarskis, E.J.4
-
37
-
-
84876883961
-
Outcome of percutaneous endoscopic gastrostomy insertion in respiratory impaired amyotrophic lateral sclerosis patients under non-invasive ventilation
-
23107129
-
Czell D, Bauer M, Binek J, Schocjh OD, Weber M (2013) Outcome of percutaneous endoscopic gastrostomy insertion in respiratory impaired amyotrophic lateral sclerosis patients under non-invasive ventilation. Respir Care 58(5):838-844
-
(2013)
Respir Care
, vol.58
, Issue.5
, pp. 838-844
-
-
Czell, D.1
Bauer, M.2
Binek, J.3
Schocjh, O.D.4
Weber, M.5
-
38
-
-
36649001381
-
Patients' experiences of being a burden on family in terminal illness
-
2632772 19183701 10.1097/01.NJH.0000289656.91880.f2
-
Johnson JO, Sulmasy DP, Nolan MT (2007) Patients' experiences of being a burden on family in terminal illness. J Hosp Palliat Nurs 9(5):264-269
-
(2007)
J Hosp Palliat Nurs
, vol.9
, Issue.5
, pp. 264-269
-
-
Johnson, J.O.1
Sulmasy, D.P.2
Nolan, M.T.3
-
39
-
-
0030028940
-
Evaluation of the psychological status of ventilatory-supported patients with ALS/MND
-
1:STN:280:DyaK28vhvVCjsw%3D%3D 8821186 10.1177/026921639601000106
-
McDonald ER, Hillel A, Wiedenfeld S (1996) Evaluation of the psychological status of ventilatory-supported patients with ALS/MND. Palliat Med 10:35-41
-
(1996)
Palliat Med
, vol.10
, pp. 35-41
-
-
McDonald, E.R.1
Hillel, A.2
Wiedenfeld, S.3
-
40
-
-
35148882227
-
End-of-life decision making in 42 patients with amyotrophic lateral sclerosis
-
17650354
-
Munroe CA, Sirdofsky MD, Kuru T, Anderson ED (2007) End-of-life decision making in 42 patients with amyotrophic lateral sclerosis. Respir Care 52(8):996-999
-
(2007)
Respir Care
, vol.52
, Issue.8
, pp. 996-999
-
-
Munroe, C.A.1
Sirdofsky, M.D.2
Kuru, T.3
Anderson, E.D.4
|