Depression and quality of life in patients with amyotrophic lateral sclerosis;Originalarbeit: Depression und lebensqualität bei patienten mit amyotropher lateralsklerose

Deutsches Arzteblatt

Volumn 105, Issue 23, 2008, Pages 397-403

  Lulé, Dorothée ^a,b   Häcker, Sonja ^b   Ludolph, Albert ^a,e   Birbaumer, Niels ^b,c   Kübler, Andrea ^b,d  

^a UNIVERSITY OF ULM   (Germany)

^b UNIVERSITY OF TÜBINGEN   (Germany)

^c NATIONAL INSTITUTES OF HEALTH   (United States)

^d UNIVERSITY OF ROEHAMPTON   (United Kingdom)

^e Rehabilitationskrankenhaus Ulm gGmbH   (Germany)

Author keywords

Amyotrophic lateral sclerosis; Assisted suicide; Depression; Quality of life; Respiratory insufficiency

Indexed keywords

AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; ASSISTED SUICIDE; CORRELATION ANALYSIS; DEPRESSION; DISABILITY; EDUCATIONAL STATUS; EMOTIONALITY; EUTHANASIA; HUMAN; LONG TERM CARE; LONGITUDINAL STUDY; MENTAL DISEASE; PALLIATIVE THERAPY; PATIENT DECISION MAKING; PATIENT SATISFACTION; PHYSICAL DISABILITY; PHYSICAL DISEASE; QUALITY OF LIFE; RESPIRATORY FAILURE; TERMINAL DISEASE;

EID: 48649096092     PISSN: 00121207     EISSN: None     Source Type: Journal    
DOI: 10.3238/arztebl.2008.0397     Document Type: Article

References (25)

1. Ganzini L, Block S: Physician-assisted death - a last resort? N Engl J Med 2002; 346: 1663-5.
2. McDonald ER, Hillel A, Wiedenfeld SA: Evaluation of the psychological status of ventilatory-supported patients with ALS/MND. Palliat Med 1996; 10: 35-41.
3. Moss AH, Casey P, Stocking CB, Roos RP, Brooks BR, Siegler M: Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs, and patient, family, and physician attitudes. Neurology 1993; 43: 438-43.
4. Borasio GD, Voltz R: Discontinuation of mechanical ventilation in patients with amyotrophic lateral sclerosis. J Neurol 1998; 245: 717-22.
5. Veldink JH, Wokke JH, van der Wal G, Vianney de Jong JM, van den Berg LH: Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med 2002; 346: 1638-44.
6. Kubler A, Winter S, Ludolph AC, Hautzinger M, Birbaumer N: Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis. Neurorehabil Neural Repair 2005; 19: 182-93.
7. Hammer EM, Häcker S, Hautzinger M, Meyer TD, Kübler A: Validity of the ALS-Depression-Inventory (ADI-12) - A new screening instrument for depressive disorders in patients with amyotrophic lateral sclerosis. J Affect Disord 2008 Feb 7 (Epub ahead of print).
8. Neudert C, Wasner M, Borasio GD: Patients' assessment of quality of life instruments: a randomized study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis. J Neurol Sci 2001; 191: 103-9.
9. Bungener C, Piquard A, Pradat PF, Salachas F, Meininger V, Lacomblez L: Psychopathology in amyotrophic lateral sclerosis: a preliminary study with 27 ALS patients. Amyotroph Lateral Scler Other Motor Neuron Disord 2005; 6: 221-5.
10. Lou JS, Reeves A, Benice T, Sexton G: Fatigue and depression are associated with poor quality of life in ALS. Neurology 2003; 60: 122-3.
11. Ganzini L, Johnston WS, Hoffman WF: Correlates of suffering in amyotrophic lateral sclerosis. Neurology 1999; 52: 1434-40.
12. Rabkin JG, Wagner GJ, Del Bene M: Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med 2000; 62: 271-9.
13. Rabkin JG, Albert SM, Del Bene ML et al.: Prevalence of depressive disorders and change over time in late-stage ALS. Neurology 2005; 65: 62-7.
14. Kurt A, Nijboer F, Matuz T, Kubler A: Depression and anxiety in individuals with amyotrophic lateral sclerosis: epidemiology and management. CNS Drugs 2007; 21: 279-91.
15. Robbins RA, Simmons Z, Bremer BA, Walsh SM, Fischer S: Quality of life in ALS is maintained as physical function declines. Neurology 2001; 56: 442-4.
16. Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S: Quality of life in ALS depends on factors other than strength and physical function. Neurology 2000; 55: 388-92.
17. Simmons Z: Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death. The Neurologist 2005; 11: 257-70.
18. Goldstein LH, Atkins L, Landau S, Brown RG, Leigh PN: Longitudinal predictors of psychological distress and self-esteem in people with ALS. Neurology 2006; 67: 1652-8.
19. Neudert C, Wasner M, Borasio GD: Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis. J Palliat Med 2004; 7: 551-7.
20. Fegg MJ, Wasner M, Neudert C, Borasio GD: Personal values and individual quality of life in palliative care patients. J Pain Symptom Manage 2005; 30: 154-9.
21. Albert SM, Rabkin JG, Del Bene ML et al.: Wish to die in end-stage ALS. Neurology 2005; 65: 68-74.
22. Quill T: Highlights and Commentary: ALS, depression, and desire for a hastened death: (how) are they related? Neurology 2005; 65: 1.
23. Bascom PB, Tolle SW: Responding to requests for physician-assisted suicide: "These are uncharted waters for both of us ...". JAMA 2002; 288: 91-8.
24. Kühnlein P, Kübler A, Raubold S et al.: Palliative care and circumstances of dying in German ALS patients using non-invasive ventilation. Amyotroph Lateral Scler. (In press).
25. Hecht M, Hillemacher T, Grasel E et al.: Subjective experience and coping in ALS. Amyotroph Lateral Scler Other Motor Neuron Disord 2002; 3: 225-31.