-
1
-
-
80755128213
-
Clinical diagnosis and management of amyotrophic lateral sclerosis
-
Hardiman O, van den Berg LH, Kiernan MC. Clinical diagnosis and management of amyotrophic lateral sclerosis. Nat Rev Neurol. 2011 ; 7 (11). 639-649
-
(2011)
Nat Rev Neurol
, vol.7
, Issue.11
, pp. 639-649
-
-
Hardiman, O.1
Van Den Berg, L.H.2
Kiernan, M.C.3
-
3
-
-
84857044928
-
EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS) - Revised report of an EFNS task force
-
Andersen PM, Abrahams S, Borasio GD, et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS) - revised report of an EFNS task force. Eur J Neurol. 2012 ; 19 (3). 360-375
-
(2012)
Eur J Neurol
, vol.19
, Issue.3
, pp. 360-375
-
-
Andersen, P.M.1
Abrahams, S.2
Borasio, G.D.3
-
4
-
-
79952739161
-
Palliative care in amyotrophic lateral sclerosis: A review of current international guidelines and initiatives
-
Bede P, Oliver D, Stodart J, et al. Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives. J Neurol Neurosurg Psychiatry. 2011 ; 82 (4). 413-418
-
(2011)
J Neurol Neurosurg Psychiatry
, vol.82
, Issue.4
, pp. 413-418
-
-
Bede, P.1
Oliver, D.2
Stodart, J.3
-
5
-
-
12344250578
-
Living with motor neurone disease: Lives, experiences of services and suggestions for change
-
Hughes RA, Sinha A, Higginson I, et al. Living with motor neurone disease: lives, experiences of services and suggestions for change. Health Soc Care Community. 2005 ; 13 (1). 64-74
-
(2005)
Health Soc Care Community
, vol.13
, Issue.1
, pp. 64-74
-
-
Hughes, R.A.1
Sinha, A.2
Higginson, I.3
-
6
-
-
33846871180
-
An investigation of patients' and providers' views of services for motor neurone disease
-
Brown JB, Lattimer V, Tudball T. An investigation of patients' and providers' views of services for motor neurone disease. Br J Neurosci Nurs. 2005 ; 1 (5). 249-252
-
(2005)
Br J Neurosci Nurs
, vol.1
, Issue.5
, pp. 249-252
-
-
Brown, J.B.1
Lattimer, V.2
Tudball, T.3
-
7
-
-
0035522535
-
Service use and needs of people with motor neurone disease and their carers in Scotland
-
Van Teijlingen ER, Friend E, Kamal AD. Service use and needs of people with motor neurone disease and their carers in Scotland. Health Soc Care Community. 2001 ; 9 (6). 397-403
-
(2001)
Health Soc Care Community
, vol.9
, Issue.6
, pp. 397-403
-
-
Van Teijlingen, E.R.1
Friend, E.2
Kamal, A.D.3
-
8
-
-
84855382284
-
Social services homecare for people with motor neurone disease/amyotrophic lateral sclerosis: Why are such services used or refused?
-
O'Brien MR, Whitehead B, Murphy PN, et al. Social services homecare for people with motor neurone disease/amyotrophic lateral sclerosis: why are such services used or refused?. Palliat Med. 2012 ; 26 (2). 123-131
-
(2012)
Palliat Med
, vol.26
, Issue.2
, pp. 123-131
-
-
O'Brien, M.R.1
Whitehead, B.2
Murphy, P.N.3
-
9
-
-
11344285691
-
'I prefer contact this close': Perceptions of AAC by people with motor neurone disease and their communication partners
-
Murphy J. 'I prefer contact this close': perceptions of AAC by people with motor neurone disease and their communication partners. Augment Altern Comm. 2004 ; 20 (4). 259-271
-
(2004)
Augment Altern Comm
, vol.20
, Issue.4
, pp. 259-271
-
-
Murphy, J.1
-
10
-
-
32044458197
-
Ventilator dependence and expressions of need: A study of patients with amyotrophic lateral sclerosis in Japan
-
Hirano YM, Yamazaki Y, Shimizu J, et al. Ventilator dependence and expressions of need: a study of patients with amyotrophic lateral sclerosis in Japan. Soc Sci Med. 2006 ; 62 (6). 1403-1413
-
(2006)
Soc Sci Med
, vol.62
, Issue.6
, pp. 1403-1413
-
-
Hirano, Y.M.1
Yamazaki, Y.2
Shimizu, J.3
-
11
-
-
0029809010
-
The amyotrophic lateral sclerosis (ALS) patient perspective on misdiagnosis and its repercussions
-
Belsh JM, Schiffman PL. The amyotrophic lateral sclerosis (ALS) patient perspective on misdiagnosis and its repercussions. J Neurol Sci. 1996 ; 139: S110 - S116
-
(1996)
J Neurol Sci
, vol.139
-
-
Belsh, J.M.1
Schiffman, P.L.2
-
12
-
-
84861794904
-
Experiences of dying, death and bereavement in motor neurone disease: A qualitative study
-
Whitehead B, O'Brien MR, Jack BA, et al. Experiences of dying, death and bereavement in motor neurone disease: a qualitative study. Palliat Med. 2012 ; 26 (4). 368-378
-
(2012)
Palliat Med
, vol.26
, Issue.4
, pp. 368-378
-
-
Whitehead, B.1
O'Brien, M.R.2
Jack, B.A.3
-
13
-
-
84855389061
-
Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: A review
-
Foley G, Timonen V, Hardiman O. Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: a review. Amyotroph Lateral Scler. 2012 ; 13 (1). 11-24
-
(2012)
Amyotroph Lateral Scler
, vol.13
, Issue.1
, pp. 11-24
-
-
Foley, G.1
Timonen, V.2
Hardiman, O.3
-
14
-
-
84857331294
-
Rising to the challenge of palliative care for non-malignant disease
-
Fallon M, Foley P. Rising to the challenge of palliative care for non-malignant disease. Palliat Med. 2012 ; 26 (2). 99-100
-
(2012)
Palliat Med
, vol.26
, Issue.2
, pp. 99-100
-
-
Fallon, M.1
Foley, P.2
-
16
-
-
0035845256
-
Qualitative research: Standards, challenges, and guidelines
-
Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet. 2001 ; 358 (9280). 483-488
-
(2001)
Lancet
, vol.358
, Issue.9280
, pp. 483-488
-
-
Malterud, K.1
-
17
-
-
84896463274
-
-
Irish Motor Neurone Disease Register accessed 28 May 2013
-
Irish Motor Neurone Disease Register. http://www.hiqa.ie/resource-centre/ professionals/health-information-sources/irish-motor-neurone-disease-register (accessed 28 May 2013).
-
-
-
-
19
-
-
79953657976
-
-
Cambridge, MA: QSR International;
-
NVivo (version 9). Cambridge, MA: QSR International ; 2010 :
-
(2010)
NVivo (Version 9)
-
-
-
20
-
-
0035666375
-
Existential issues in palliative care: Interviews of patients with amyotrophic lateral sclerosis
-
Bolmsjo I. Existential issues in palliative care: interviews of patients with amyotrophic lateral sclerosis. J Palliat Med. 2001 ; 4 (4). 499-505
-
(2001)
J Palliat Med
, vol.4
, Issue.4
, pp. 499-505
-
-
Bolmsjo, I.1
-
21
-
-
33750443508
-
User, carer and professional experiences of care in motor neurone disease
-
Brown JB. User, carer and professional experiences of care in motor neurone disease. Prim Health Care Res Dev. 2003 ; 4 (3). 207-217
-
(2003)
Prim Health Care Res Dev
, vol.4
, Issue.3
, pp. 207-217
-
-
Brown, J.B.1
-
22
-
-
0023887506
-
Patients' perspectives of the role of care providers in amyotrophic lateral sclerosis
-
Beisecker AE, Cobb AK, Ziegler DK. Patients' perspectives of the role of care providers in amyotrophic lateral sclerosis. Arch Neurol. 1988 ; 45 (5). 553-556
-
(1988)
Arch Neurol
, vol.45
, Issue.5
, pp. 553-556
-
-
Beisecker, A.E.1
Cobb, A.K.2
Ziegler, D.K.3
-
23
-
-
84894099496
-
Choices and control when you have a life-shortening illness
-
Oxford: Picker Institute Europe accessed 2 April 2013
-
CooneyGLewando HundtGGoodallG. Choices and control when you have a life-shortening illness. Researching the views of people with motor neurone disease. Oxford: Picker Institute Europe, http://www.mndassociation.org/ Resources/MNDA/Life%20with%20MND/Documents/Choices%20and%20control%20FINAL.pdf (2012, accessed 2 April 2013).
-
(2012)
Researching the Views of People with Motor Neurone Disease
-
-
Cooney, G.1
Lewando Hundt, G.2
Goodall, G.3
-
24
-
-
33747059832
-
Perceptions of patients on the utility or futility of end-of-life treatment
-
Rodriguez KL, Young AJ. Perceptions of patients on the utility or futility of end-of-life treatment. J Med Ethics. 2006 ; 32 (8). 444-449
-
(2006)
J Med Ethics
, vol.32
, Issue.8
, pp. 444-449
-
-
Rodriguez, K.L.1
Young, A.J.2
-
25
-
-
82655171889
-
Cancer patients' preferences for control at the end of life
-
Volker DL, Wu HL. Cancer patients' preferences for control at the end of life. Qual Health Res. 2011 ; 21 (12). 1618-1631
-
(2011)
Qual Health Res
, vol.21
, Issue.12
, pp. 1618-1631
-
-
Volker, D.L.1
Wu, H.L.2
-
26
-
-
33644758133
-
What matters most in end-of-life care: Perceptions of seriously ill patients and their family members
-
Heyland DK, Dodek P, Rocker G, et al. What matters most in end-of-life care: perceptions of seriously ill patients and their family members. CMAJ. 2006 ; 174 (5). 627-633
-
(2006)
CMAJ
, vol.174
, Issue.5
, pp. 627-633
-
-
Heyland, D.K.1
Dodek, P.2
Rocker, G.3
-
27
-
-
84869877436
-
Older patients' attitudes towards and experiences of patient-physician end-of-life communication: A secondary analysis of interviews from British, Dutch and Belgian patients
-
Evans N, Pasman RW, Payne SA, et al. Older patients' attitudes towards and experiences of patient-physician end-of-life communication: a secondary analysis of interviews from British, Dutch and Belgian patients. BMC Palliat Care. 2012 ; 11: 24
-
(2012)
BMC Palliat Care
, vol.11
, pp. 24
-
-
Evans, N.1
Pasman, R.W.2
Payne, S.A.3
-
28
-
-
79952200354
-
What does care mean? Perceptions of people approaching the end of life
-
Janssen AL, Macleod RD. What does care mean? Perceptions of people approaching the end of life. Palliat Support Care. 2010 ; 8 (4). 433-440
-
(2010)
Palliat Support Care
, vol.8
, Issue.4
, pp. 433-440
-
-
Janssen, A.L.1
MacLeod, R.D.2
-
29
-
-
84883317640
-
The views of patients with severe chronic obstructive pulmonary disease on advance care planning: A qualitative study
-
MacPherson A, Walshe C, O'Donnell V, et al. The views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative study. Palliat Med. 2013 ; 27 (3). 265-272
-
(2013)
Palliat Med
, vol.27
, Issue.3
, pp. 265-272
-
-
MacPherson, A.1
Walshe, C.2
O'Donnell, V.3
-
30
-
-
70350149848
-
Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional, and respiratory therapies (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology
-
Miller RG, Jackson CE, Kasarskis EJ, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009 ; 73 (15). 1218-1226
-
(2009)
Neurology
, vol.73
, Issue.15
, pp. 1218-1226
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
-
31
-
-
84887583948
-
Multidisciplinary team working in motor neurone disease: Patient and family carer views
-
O'Brien M, Whitehead B, Jack B, et al. Multidisciplinary team working in motor neurone disease: patient and family carer views. Br J Neurosci Nurs. 2011 ; 7 (4). 580-585
-
(2011)
Br J Neurosci Nurs
, vol.7
, Issue.4
, pp. 580-585
-
-
O'Brien, M.1
Whitehead, B.2
Jack, B.3
-
32
-
-
84874797594
-
What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives
-
Hogden A, Greenfield D, Nugus P, et al. What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Prefer Adherence. 2012 ; 6: 829-838
-
(2012)
Patient Prefer Adherence
, vol.6
, pp. 829-838
-
-
Hogden, A.1
Greenfield, D.2
Nugus, P.3
-
33
-
-
37349011221
-
ALS patients' and caregivers' communication preferences and information seeking behaviour
-
Chio A, Montuschi A, Cammarosano S, et al. ALS patients' and caregivers' communication preferences and information seeking behaviour. Eur J Neurol. 2008 ; 15 (1). 55-60
-
(2008)
Eur J Neurol
, vol.15
, Issue.1
, pp. 55-60
-
-
Chio, A.1
Montuschi, A.2
Cammarosano, S.3
-
34
-
-
0029812083
-
Home mechanical ventilation for amyotrophic lateral sclerosis: Nasal compared to tracheostomy-intermittent positive pressure ventilation
-
Cazzolli PA, Oppenheimer EA. Home mechanical ventilation for amyotrophic lateral sclerosis: nasal compared to tracheostomy-intermittent positive pressure ventilation. J Neurol Sci. 1996 ; 139: s123 - s128
-
(1996)
J Neurol Sci
, vol.139
-
-
Cazzolli, P.A.1
Oppenheimer, E.A.2
-
35
-
-
70350138259
-
Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioural impairment (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology
-
Miller RG, Jackson CE, Kasarskis EJ, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioural impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009 ; 73 (15). 1227-1233
-
(2009)
Neurology
, vol.73
, Issue.15
, pp. 1227-1233
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
|