Economic burden of childhood autism spectrum disorders

Pediatrics

Volumn 133, Issue 3, 2014, Pages

  Lavelle, Tara A ^a   Weinstein, Milton C ^b   Newhouse, Joseph P ^c   Munir, Kerim ^d   Kuhlthau, Karen A ^e   Prosser, Lisa A ^f  

^a HARVARD UNIVERSITY   (United States)

^b HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

^d BOSTON CHILDREN S HOSPITAL   (United States)

^e MASSACHUSETTS GENERAL HOSPITAL   (United States)

^f UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

Author keywords

Autism spectrum disorder; Cost of illness; Health economics

Indexed keywords

ADOLESCENT; AGE; ARTICLE; AUTISM; CAREGIVER SUPPORT; CHILD; CHILD HEALTH CARE; COMORBIDITY; CONSULTATION; CONTROLLED STUDY; COST OF ILLNESS; DEMOGRAPHY; DISEASE ASSOCIATION; DRUG USE; ETHNICITY; FAMILY CENTERED CARE; FEMALE; GENDER; HEALTH CARE COST; HEALTH CARE UTILIZATION; HEALTH INSURANCE; HEALTH SURVEY; HUMAN; INCOME; MAJOR CLINICAL STUDY; MALE; PRESCRIPTION; PRIORITY JOURNAL; RURAL POPULATION; SPECIAL EDUCATION; URBAN POPULATION;

AUTISM SPECTRUM DISORDER; COST OF ILLNESS; HEALTH ECONOMICS;

ADOLESCENT; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD, PRESCHOOL; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; MALE;

EID: 84895157983     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2013-0763     Document Type: Article

References (49)

1. Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators; Centers for Disease Control and Prevention. Prevalence of autism spectrum disorders-Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR Surveill Summ. 2012;61(3):1-19
2. Blumberg SJ, Bramlett MD, Kogan MD, Schieve LA, Jones JR, Lu MC. Changes in Prevalence of Parent-Reported Autism Spectrum Disorder in School-Aged U.S. Children: 2007 to 2011-2012 . Hyattsville, MD: National Center for Health Statistics; 2013
3. Ganz ML. The lifetime distribution of the incremental societal costs of autism. Arch Pediatr Adolesc Med. 2007;161(4):343-349 (Pubitemid 46556364)
4. Kogan MD, Strickland BB, Blumberg SJ, Singh GK, Perrin JM, van Dyck PC. A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006. Pediatrics. 2008;122(6). Available at: www.pediatrics.org/cgi/content/full/122/6/e1149
5. Cidav Z, Marcus SC, Mandell DS. Implications of childhood autism for parental employment and earnings. Pediatrics. 2012;129(4):617-623
6. Montes G, Halterman JS. Association of childhood autism spectrum disorders and loss of family income. Pediatrics. 2008;121(4). Available at: www.pediatrics.org/cgi/content/full/121/4/e821
7. Järbrink K, Fombonne E, Knapp M. Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study. J Autism Dev Disord. 2003;33(4):395-402 (Pubitemid 37127935)
8. Liptak GS, Stuart T, Auinger P. Health care utilization and expenditures for children with autism: data from U.S. national samples. J Autism Dev Disord. 2006;36(7):871-879 (Pubitemid 44440106)
9. Shimabukuro TT, Grosse SD, Rice C. Medical expenditures for children with an autism spectrum disorder in a privately insured population. J Autism Dev Disord. 2008;38(3):546-552 (Pubitemid 351322378)
10. Croen LA, Najjar DV, Ray GT, Lotspeich L, Bernal P. A comparison of health care utilization and costs of children with and without autism spectrum disorders in a large group-model health plan. Pediatrics. 2006;118(4). Available at: www.pediatrics.org/cgi/content/full/118/4/e1203
11. Peacock G, Amendah D, Ouyang L, Grosse SD. Autism spectrum disorders and health care expenditures: the effects of cooccurring conditions. J Dev Behav Pediatr. 2012;33(1):2-8
12. Peng CZ, Hatlestad P, Klug MG, Kerbeshian J, Burd L. Health care costs and utilization rates for children with pervasive developmental disorders in North Dakota from 1998 to 2004: impact on Medicaid. J Child Neurol. 2009;24(2):140-147
13. Mandell DS, Cao J, Ittenbach R, Pinto-Martin J. Medicaid expenditures for children with autistic spectrum disorders: 1994 to 1999. J Autism Dev Disord. 2006;36(4):475-485 (Pubitemid 43854344)
14. Amendah D, Grosse SD, Peacock G, Mandell DS. The economic costs of autism: a review. In: Amaral D, Geschwind D, Dawson G, eds. Autism Spectrum Disorders. New York, NY: Oxford University Press; 2011:1347 -1360
15. Cohen JW, Cohen SB, Banthin JS. The medical expenditure panel survey: a national information resource to support healthcare cost research and inform policy and practice. Med Care. 2009;47(7 suppl 1): S44-S50
16. Centers for Disease Control and Prevention About the National Health Interview Survey. Published 2012. Available at: www.cdc.gov/nchs/nhis/about- nhis.htm. Accessed March 23, 2012
17. Dennis JM. KnowledgePanel: processes & procedures contributing to sample representativeness & tests for self-selection bias. Published 2010. Updated March 2010. Available at: www.knowledgenetworks.com/ganp/docs/ knowledgepanelr-statistical-methods-note.pdf. Accessed February 14, 2013
18. GfK Custom Research, LLC. Respondent Incentives for KnowledgePanel. Published 2009. Available at: www.knowledgenetworks.com/ganp/irbsupport/docs/ KN%20IRB%20Doc%20-%20Section%204%20-%20Respondent%20Incentives.doc. Accessed December 23, 2013
19. Chambers JG, Shkolnik J, Pérez M. Total Expenditures for Students with Disabilities, 1999-2000: Spending Variation by Disability. Palo Alto, CA: American Institutes for Research; 2003
20. National Association of Independent Schools. Independent school facts at a glance for the Association of Boarding Schools (TABS). Published 2009. Updated May 2009
21. Levin HM, Schwartz HL. What is the cost of a preschool program? Published 2007. Updated March 23 2007. Available at: http://cbcse.org/wordpress/wp- content/uploads/2012/10/Cost-of-Preschool.pdf. Accessed June 24, 2013
22. Deninger M, O'Donnell R. Special education placements and costs in Massachusetts. Education Research Brief. Published 2009. Updated March 2009. Available at: www.doe.mass.edu/research/reports/0309sped.pdf. Accessed March 24, 2012
23. US Department of Labor, Bureau of Labor Statistics. Economy at a glance. Published 2012. Available at: www.bls.gov/eag/eag.us.htm. Accessed March 23, 2012
24. Wilcox RR. Some practical reasons for reconsidering the Kolmogorov-Smirnov test. Br J Math Stat Psychol. 1997;50(1):9-20 (Pubitemid 127447191)
25. Nelder JA, Wedderburn, RWM. Generalized linear models. J R Stat Soc Ser a-G. 1972;135(3):370-384
26. Newacheck PW, Wong ST, Galbraith AA, Hung YY. Adolescent health care expenditures: a descriptive profile. J Adolesc Health. 2003;32(6 suppl):3-11 (Pubitemid 36629260)
27. Newacheck PW, Inkelas M, Kim SE. Health services use and health care expenditures for children with disabilities. Pediatrics. 2004;114(1):79-85 (Pubitemid 38857569)
28. Liptak GS, Shone LP, Auinger P, Dick AW, Ryan SA, Szilagyi PG. Short-term persistence of high health care costs in a nationally representative sample of children. Pediatrics. 2006;118(4). Available at: www.pediatrics.org/cgi/content/ full/118/4/e1001
29. Congressional Budget Officee. Geographic variation in health care spending. Medicare spending per beneficiary, 2005. Published 2008. Available at: www.cbo.gov/ftpdocs/89xx/doc8972/02-15-GeogHealth.pdf. Accessed February 17, 2012
30. Myers SM, Johnson CP; American Academy of Pediatrics Council on Children With Disabilities. Management of children with autism spectrum disorders. Pediatrics. 2007;120(5):1162-1182 (Pubitemid 350085560)
31. Wolraich M. Developmental-Behavioral pediatrics: Evidence and Practice. Philadelphia, PA: Mosby/Elsevier; 2008
32. Tuchman R, Rapin I. Epilepsy in autism. Lancet Neurol. 2002;1(6):352-358 (Pubitemid 37159160)
33. Newschaffer CJ, Croen LA, Daniels J, et al. The epidemiology of autism spectrum disorders. Annu Rev Public Health. 2007;28:235-258 (Pubitemid 46833342)
34. Efron B. Better bootstrap confidence-intervals. J Am Stat Assoc. 1987;82(397):171 -185
35. Lin LI. A concordance correlation coefficient to evaluate reproducibility. Biometrics. 1989;45(1):255-268
36. Bureau of Economic Analysis. National Income and Product Accounts Tables. Real Gross Domestic Product, Quantity Indexes. Published 2012. Updated July 30, 2012. Available at: www.bea.gov/iTable/iTable.cfm?ReqID=9&step=1#reqid= 9&-step=3&isuri=1&903=3. Accessed November 15, 2012
37. Kogan MD, Blumberg SJ, Schieve LA, et al. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009;124(5):1395-1403
38. Järbrink K. The economic consequences of autistic spectrum disorder among children in a Swedish municipality. Autism. 2007;11(5):453-463 (Pubitemid 47616529)
39. Knapp M, Romeo R, Beecham J. Economic cost of autism in the UK. Autism. 2009;13(3):317-336
40. Organization for Economic Co-operation and Development. PPPs and exchange rates. OECDStatExtracts. Published 2013. Updated November 17, 2013. Available at: http://stats.oecd.org/Index.aspx?datasetcode=SNA-TABLE4. Accessed November 17, 2013
41. National Conference of State Legislatures. Insurance coverage for autism and insurance coverage state laws. Published 2012. Updated August 2012. Available at: www.ncsl.org/issues-research/health/autism-and-insurance-coverage- state-laws.aspx. Accessed February 14, 2013
42. Parish S, Thomas K, Rose R, Kilany M, McConville R. State insurance parity legislation for autism services and family financial burden. Intellect Dev Disabil. 2012;50(3):190-198
43. Bernier R. How do we measure autism severity? Published 2012. Updated March 20, 2012. Available at: http://sfari.org/news-andopinion/viewpoint/2012/ how-do-we-measure-autism-severity. Accessed July 27, 2012
44. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Washington, DC: American Psychiatric Association; 2013
45. Turner LM, Stone WL. Variability in outcome for children with an ASD diagnosis at age 2. J Child Psychol Psychiatry. 2007;48(8):793-802 (Pubitemid 47226284)
46. Daniels AM, Rosenberg RE, Anderson C, Law JK, Marvin AR, Law PA. Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. J Autism Dev Disord. 2012;42(2):257-265
47. Bhandari A, Wagner T. Self-reported utilization of health care services: improving measurement and accuracy. Med Care Res Rev. 2006;63(2):217-235 (Pubitemid 43344151)
48. Gold MR. Cost-effectiveness in Health and Medicine. New York, NY: Oxford University Press; 1996
49. Lee LC, Harrington RA, Louie BB, Newschaffer CJ. Children with autism: quality of life and parental concerns. J Autism Dev Disord. 2008;38(6):1147-1160