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Volumn 261, Issue 1, 2014, Pages 188-195

"I have got something positive out of this situation": Psychological benefits of caregiving in relatives of young people with muscular dystrophy

(29)  Magliano, Lorenza a   Patalano, Melania a   Sagliocchi, Alessandra a   Scutifero, Marianna a   Zaccaro, Antonella a   D'Angelo, Maria Grazia b   Civati, Federica b   Brighina, Erika b   Vita, Giuseppe c,d   Vita, Gian Luca c,d   Messina, Sonia c,d   Sframeli, Maria c,d   Pane, Marika e   Lombardo, Maria Elena e   Scalise, Roberta e   D'Amico, Adele f   Colia, Giulia f   Catteruccia, Michela f   Balottin, Umberto g,h   Berardinelli, Angela h   more..


Author keywords

Caregiving; Muscular dystrophy; Professional support; Psychological benefits; Social network

Indexed keywords

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ANALYSIS OF VARIANCE; CAREGIVERS; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; FAMILY; FEMALE; HUMANS; ITALY; MALE; MIDDLE AGED; MUSCULAR DYSTROPHIES; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84895076379     PISSN: 03405354     EISSN: 14321459     Source Type: Journal    
DOI: 10.1007/s00415-013-7176-8     Document Type: Article
Times cited : (32)

References (45)
  • 1
    • 0031226303 scopus 로고    scopus 로고
    • Interpersonal expectations, social support, and adjustment to chronic illness
    • 1:STN:280:DyaK2svktVKquw%3D%3D 9294902 10.1037/0022-3514.73.3.560
    • Hatchett L, Friend R, Symister PWN (1997) Interpersonal expectations, social support, and adjustment to chronic illness. J Pers Soc Psychol 73:560-573
    • (1997) J Pers Soc Psychol , vol.73 , pp. 560-573
    • Hatchett, L.1    Friend, R.2    Symister, P.W.N.3
  • 2
    • 0035432492 scopus 로고    scopus 로고
    • The marital relationship and psychosocial adaptation and glycemic control of individuals with diabetes
    • 1:STN:280:DC%2BD3MvisFagsQ%3D%3D 11473074 10.2337/diacare.24.8.1384
    • Trief PM, Himes CL, Orendorff RWR (2001) The marital relationship and psychosocial adaptation and glycemic control of individuals with diabetes. Diabetes Care 24:1384-1389
    • (2001) Diabetes Care , vol.24 , pp. 1384-1389
    • Trief, P.M.1    Himes, C.L.2    Orendorff, R.W.R.3
  • 3
    • 0037237463 scopus 로고    scopus 로고
    • The family and compliance in schizophrenia: The influence of clinical variables, relatives' knowledge and expressed emotion
    • 1:STN:280:DC%2BD3s%2FivFCluw%3D%3D 12537040 10.1017/S0033291702006888
    • Sellwood W, Tarrier N, Quinn JBC (2003) The family and compliance in schizophrenia: the influence of clinical variables, relatives' knowledge and expressed emotion. Psychol Med 33:91-96
    • (2003) Psychol Med , vol.33 , pp. 91-96
    • Sellwood, W.1    Tarrier, N.2    Quinn, J.B.C.3
  • 4
    • 84861419366 scopus 로고    scopus 로고
    • Fathers' contributions to the management of their child's long-term medical condition: A narrative review of the literature
    • 21624023 10.1111/j.1369-7625.2011.00674.x
    • Swallow V, Macfadyen A, Santacroce SJLH (2012) Fathers' contributions to the management of their child's long-term medical condition: a narrative review of the literature. Health Expect 15:157-175
    • (2012) Health Expect , vol.15 , pp. 157-175
    • Swallow, V.1    Macfadyen, A.2    Santacroce, S.3
  • 5
    • 0025001293 scopus 로고
    • Adherence among children and adolescents with insulin-dependent diabetes mellitus over a four-year longitudinal follow-up: II. Immediate and long-term linkages with the family milieu
    • 1:STN:280:DyaK3M%2FnvF2luw%3D%3D 2258799 10.1093/jpepsy/15.4.527
    • Hauser ST, Jacobson AM, Lavori P, Wolfsdorf JI, Herskowitz RD, Milley JE, Bliss R, Wertlieb DSJ (1990) Adherence among children and adolescents with insulin-dependent diabetes mellitus over a four-year longitudinal follow-up: II. Immediate and long-term linkages with the family milieu. J Pediatr Psychol 15:527-542
    • (1990) J Pediatr Psychol , vol.15 , pp. 527-542
    • Hauser, S.T.1    Jacobson, A.M.2    Lavori, P.3    Wolfsdorf, J.I.4    Herskowitz, R.D.5    Milley, J.E.6    Bliss, R.7    Wertlieb, D.S.J.8
  • 6
    • 84860120614 scopus 로고    scopus 로고
    • Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy
    • 22149389 10.3109/09638288.2011.628738
    • Pangalila RF, Van den Bos GA, Stam HJ et al (2012) Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy. Disabil Rehabil 34:988-996
    • (2012) Disabil Rehabil , vol.34 , pp. 988-996
    • Pangalila, R.F.1    Van Den Bos, G.A.2    Stam, H.J.3
  • 7
    • 77955372486 scopus 로고    scopus 로고
    • The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy
    • 20561071 10.1111/j.1365-2524.2010.00930.x
    • Kenneson A, Bobo JK (2010) The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy. Health Soc Care Community 18:520-528
    • (2010) Health Soc Care Community , vol.18 , pp. 520-528
    • Kenneson, A.1    Bobo, J.K.2
  • 8
    • 23644441480 scopus 로고    scopus 로고
    • Process utility from providing informal care: The benefit of caring
    • 16098415 10.1016/j.healthpol.2004.12.008
    • Brouwer WB, Van Exel NJ, Van den Berg B et al (2005) Process utility from providing informal care: the benefit of caring. Health Policy 74:85-99
    • (2005) Health Policy , vol.74 , pp. 85-99
    • Brouwer, W.B.1    Van Exel, N.J.2    Van Den Berg, B.3
  • 9
    • 53049099305 scopus 로고    scopus 로고
    • Physical and mental health effects of family caregiving
    • 10.1097/01.NAJ.0000336406.45248.4c
    • Schulz R, Sherwood PR (2009) Physical and mental health effects of family caregiving. Am J Nurs 108:23-27
    • (2009) Am J Nurs , vol.108 , pp. 23-27
    • Schulz, R.1    Sherwood, P.R.2
  • 10
    • 0036161234 scopus 로고    scopus 로고
    • Positive aspects of caregiving: Rounding out the caregiver experience
    • 11813283 10.1002/gps.561
    • Cohen C, Colantonio A, Vernich L (2002) Positive aspects of caregiving: rounding out the caregiver experience. Int J Geriatr Psychiatry 17:184-188
    • (2002) Int J Geriatr Psychiatry , vol.17 , pp. 184-188
    • Cohen, C.1    Colantonio, A.2    Vernich, L.3
  • 11
    • 18844371508 scopus 로고    scopus 로고
    • Family burden in long-term diseases: A comparative study in schizophrenia vs physical disorders
    • 15893048 10.1016/j.socscimed.2004.11.064
    • Magliano L, Fiorillo A, De Rosa C et al (2005) Family burden in long-term diseases: a comparative study in schizophrenia vs. physical disorders. Soc Sci Med 61:313-322
    • (2005) Soc Sci Med , vol.61 , pp. 313-322
    • Magliano, L.1    Fiorillo, A.2    De Rosa, C.3
  • 12
    • 38349057998 scopus 로고    scopus 로고
    • The burden of schizophrenia on caregivers
    • 18198934 10.2165/00019053-200826020-00005
    • Awad A, Voruganti L (2008) The burden of schizophrenia on caregivers. Pharmacoeconomics 26:149-162
    • (2008) Pharmacoeconomics , vol.26 , pp. 149-162
    • Awad, A.1    Voruganti, L.2
  • 13
    • 49249122418 scopus 로고    scopus 로고
    • Caregiver burden among dementia patient caregivers: A review of the literature
    • 18786017 10.1111/j.1745-7599.2008.00342.x
    • Etters L, Goodall D, Harrison BE (2008) Caregiver burden among dementia patient caregivers: a review of the literature. J Am Acad Nurse Pract 20:423-428
    • (2008) J Am Acad Nurse Pract , vol.20 , pp. 423-428
    • Etters, L.1    Goodall, D.2    Harrison, B.E.3
  • 14
    • 84879768575 scopus 로고    scopus 로고
    • Tools to measure quality of life and carer burden in informal carers of heart failure patients: A narrative review
    • 23442879 10.1177/0269216313477179
    • Whittingham K, Barnes S, Gardiner C (2013) Tools to measure quality of life and carer burden in informal carers of heart failure patients: a narrative review. Palliat Med 27:596-607
    • (2013) Palliat Med , vol.27 , pp. 596-607
    • Whittingham, K.1    Barnes, S.2    Gardiner, C.3
  • 15
    • 78649457772 scopus 로고    scopus 로고
    • Review of the literature on the effects of caring for a patient with cancer
    • 10.1002/pon.1670
    • Stenberg U, Ruland C, Miaskowski C (2010) Review of the literature on the effects of caring for a patient with cancer. Psychooncolgy 19:1013-1025
    • (2010) Psychooncolgy , vol.19 , pp. 1013-1025
    • Stenberg, U.1    Ruland, C.2    Miaskowski, C.3
  • 16
    • 33751245900 scopus 로고    scopus 로고
    • We're tired, not sad": Benefits and burdens of mothering a child with a disability
    • 17014946 10.1016/j.socscimed.2006.08.025
    • Green SE (2007) "We're tired, not sad": benefits and burdens of mothering a child with a disability. Soc Sci Med 64:150-163
    • (2007) Soc Sci Med , vol.64 , pp. 150-163
    • Green, S.E.1
  • 17
    • 84890127581 scopus 로고    scopus 로고
    • Receiving while giving: The differential roles of receiving help and satisfaction with help on caregiver rewards among spouses and adult-children
    • 10.1002/gps.3967 23606378
    • Savundranayagam MY (2013) Receiving while giving: the differential roles of receiving help and satisfaction with help on caregiver rewards among spouses and adult-children. Int J Geriatr Psychiatry. doi: 10.1002/gps.3967
    • (2013) Int J Geriatr Psychiatry
    • Savundranayagam, M.Y.1
  • 18
    • 84867335005 scopus 로고    scopus 로고
    • What predicts whether caregivers of people with dementia find meaning in their role?
    • 22334416 10.1002/gps.3773
    • Quinn C, Clare L, Woods RT (2012) What predicts whether caregivers of people with dementia find meaning in their role? Int J Geriatr Psychiatry 27:1195-1202
    • (2012) Int J Geriatr Psychiatry , vol.27 , pp. 1195-1202
    • Quinn, C.1    Clare, L.2    Woods, R.T.3
  • 19
    • 84874738531 scopus 로고    scopus 로고
    • Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient
    • 10.1002/pon.3033
    • Kang J, Shin DW, Choi JE et al (2013) Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient. Psychooncology 571:564-571
    • (2013) Psychooncology , vol.571 , pp. 564-571
    • Kang, J.1    Shin, D.W.2    Choi, J.E.3
  • 20
    • 84886419295 scopus 로고    scopus 로고
    • The positive aspects of caregiving for cancer patients: A critical review of the literature and directions for future research
    • 10.1002/pon
    • Li QP, Loke AY (2013) The positive aspects of caregiving for cancer patients: a critical review of the literature and directions for future research. Psychooncology. doi: 10.1002/pon
    • (2013) Psychooncology
    • Li, Q.P.1    Loke, A.Y.2
  • 21
    • 34247487460 scopus 로고    scopus 로고
    • Benefit-finding in the cancer caregiving experience
    • 17420443 10.1097/PSY.0b013e3180417cf4
    • Kim Y, Schulz R, Carver CS (2007) Benefit-finding in the cancer caregiving experience. Psychosom Med 69:283-291
    • (2007) Psychosom Med , vol.69 , pp. 283-291
    • Kim, Y.1    Schulz, R.2    Carver, C.S.3
  • 22
    • 79953011182 scopus 로고    scopus 로고
    • Exploring predictors of optimism among parents of children with cancer
    • 20878838 10.1002/pon.1743
    • Fayed N, Klassen AF, Dix D et al (2011) Exploring predictors of optimism among parents of children with cancer. Psychooncology 20:411-418
    • (2011) Psychooncology , vol.20 , pp. 411-418
    • Fayed, N.1    Klassen, A.F.2    Dix, D.3
  • 23
    • 84862258149 scopus 로고    scopus 로고
    • Positive experiences of caregiving in stroke: A systematic review
    • 22309576 10.3109/09638288.2011.650307
    • Mackenzie A, Greenwood N (2012) Positive experiences of caregiving in stroke: a systematic review. Disabil Rehabil 34:1413-1422
    • (2012) Disabil Rehabil , vol.34 , pp. 1413-1422
    • Mackenzie, A.1    Greenwood, N.2
  • 24
    • 84863460291 scopus 로고    scopus 로고
    • Scale for positive aspects of caregiving experience: Development, reliability, and factor structure
    • 1:STN:280:DC%2BC38jjt1KnsA%3D%3D 22714876
    • Kate N, Grover S, Kulhara P, Nehra R (2012) Scale for positive aspects of caregiving experience: development, reliability, and factor structure. East Asian Arch Psychiatry 22:62-69
    • (2012) East Asian Arch Psychiatry , vol.22 , pp. 62-69
    • Kate, N.1    Grover, S.2    Kulhara, P.3    Nehra, R.4
  • 25
    • 77949627803 scopus 로고    scopus 로고
    • Religious coping and posttraumatic growth among family caregivers of cancer patients in India
    • 20391074 10.1080/07347330903570537
    • Thombre A, Sherman A, Simonton S (2010) Religious coping and posttraumatic growth among family caregivers of cancer patients in India. J Psychosoc Oncol 28:173-188
    • (2010) J Psychosoc Oncol , vol.28 , pp. 173-188
    • Thombre, A.1    Sherman, A.2    Simonton, S.3
  • 26
    • 84861077169 scopus 로고    scopus 로고
    • Current issues resilience in families living with a child with a physical disability
    • 22549626 10.1002/RNJ.00018
    • Greeff AP, Vansteenwegen A, Gillard J (2012) Current issues resilience in families living with a child with a physical disability. Rehabil Nurs 37:97-104
    • (2012) Rehabil Nurs , vol.37 , pp. 97-104
    • Greeff, A.P.1    Vansteenwegen, A.2    Gillard, J.3
  • 27
    • 2642564546 scopus 로고    scopus 로고
    • Caregiving process and caregiver burden: Conceptual models to guide research and practice
    • 331415 14723791 10.1186/1471-2431-4-1
    • Raina P, O'Donnell M, Schwellnus H et al (2004) Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatrics 4:1
    • (2004) BMC Pediatrics , vol.4 , pp. 1
    • Raina, P.1    O'Donnell, M.2    Schwellnus, H.3
  • 28
    • 0037160782 scopus 로고    scopus 로고
    • The muscular dystrophies
    • 1:CAS:528:DC%2BD38Xhs1yntbw%3D 11879882 10.1016/S0140-6736(02)07815-7
    • Emery AEH (2002) The muscular dystrophies. Lancet 359:687-695
    • (2002) Lancet , vol.359 , pp. 687-695
    • Emery, A.E.H.1
  • 29
    • 84860315266 scopus 로고    scopus 로고
    • A national profile of health care and family impacts of children with muscular dystrophy and special health care needs in the United States
    • 21954427 10.1177/0883073811420719
    • Ouyang L, Grosse SD, Fox MH, Bolen J (2012) A national profile of health care and family impacts of children with muscular dystrophy and special health care needs in the United States. J Child Neurol 27:569-576
    • (2012) J Child Neurol , vol.27 , pp. 569-576
    • Ouyang, L.1    Grosse, S.D.2    Fox, M.H.3    Bolen, J.4
  • 30
    • 84873516202 scopus 로고    scopus 로고
    • Australian families living with rare disease: Experiences of diagnosis, health services use and needs for psychosocial support
    • 3599672 23398775 10.1186/1750-1172-8-22
    • Anderson M, Elliott EJ, Zurynski YA (2013) Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J Rare Dis 8:22
    • (2013) Orphanet J Rare Dis , vol.8 , pp. 22
    • Anderson, M.1    Elliott, E.J.2    Zurynski, Y.A.3
  • 31
    • 66549112009 scopus 로고    scopus 로고
    • The lived experience of hope among parents of a child with Duchenne muscular dystrophy: Perceiving the human being beyond the illness
    • 19474233 10.1177/1742395309104343
    • Samson A, Tomiak E, Dimillo J et al (2009) The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness. Chronic Illness 5:103-114
    • (2009) Chronic Illness , vol.5 , pp. 103-114
    • Samson, A.1    Tomiak, E.2    Dimillo, J.3
  • 32
    • 84931562628 scopus 로고    scopus 로고
    • The condition of the families of children and young adults with muscular dystrophies in Italy
    • Submitted to
    • Magliano L, Patalano M, Sagliocchi A, et al (2013) The condition of the families of children and young adults with muscular dystrophies in Italy. Submitted to BMC Neurol
    • (2013) BMC Neurol
    • Magliano, L.1    Patalano, M.2    Sagliocchi, A.3
  • 33
    • 0002462750 scopus 로고
    • Routine assessment pool in psychiatry: The questionnaire of family attitudes and burden
    • Morosini PL, Roncone R, Veltro F, Palomba UCM (1991) Routine assessment pool in psychiatry: the questionnaire of family attitudes and burden. It J Psychiatry Behav Sci 1:95-101
    • (1991) It J Psychiatry Behav Sci , vol.1 , pp. 95-101
    • Morosini, P.L.1    Roncone, R.2    Veltro, F.3    Palomba, U.C.M.4
  • 34
    • 0031712981 scopus 로고    scopus 로고
    • Burden on the families of patients with schizophrenia: Results of the BIOMED i study
    • 1:STN:280:DyaK1cvjvFejsQ%3D%3D 9766166 10.1007/s001270050073
    • Magliano L, Fadden G, Madianos M et al (1998) Burden on the families of patients with schizophrenia: results of the BIOMED I study. Soc Psychiatry Psychiatr Epidemiol 33:405-412
    • (1998) Soc Psychiatry Psychiatr Epidemiol , vol.33 , pp. 405-412
    • Magliano, L.1    Fadden, G.2    Madianos, M.3
  • 36
    • 32044435634 scopus 로고    scopus 로고
    • Social network in long-term diseases: A comparative study in relatives of persons with schizophrenia and physical illnesses versus a sample from the general population
    • 16162379 10.1016/j.socscimed.2005.08.003
    • Magliano L, Fiorillo A, Malangone C et al (2006) Social network in long-term diseases: a comparative study in relatives of persons with schizophrenia and physical illnesses versus a sample from the general population. Soc Sci Med 62:1392-1402
    • (2006) Soc Sci Med , vol.62 , pp. 1392-1402
    • Magliano, L.1    Fiorillo, A.2    Malangone, C.3
  • 37
    • 84876189360 scopus 로고    scopus 로고
    • Quality of life and mental health among parents of children with cerebral palsy: The influence of self-efficacy and coping strategies
    • 23461414 10.1111/jocn.12124
    • Guillamón N, Nieto R, Pousada M et al (2013) Quality of life and mental health among parents of children with cerebral palsy: the influence of self-efficacy and coping strategies. J Clin Nurs 22:1579-1590
    • (2013) J Clin Nurs , vol.22 , pp. 1579-1590
    • Guillamón, N.1    Nieto, R.2    Pousada, M.3
  • 38
    • 0023459263 scopus 로고
    • Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers
    • 1:STN:280:DyaK3c%2Fislertg%3D%3D 3268224 10.1037/0882-7974.2.4.323
    • Haley W, Levine E, Brown S, Bartolucci A (1987) Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychol Aging 2:323-330
    • (1987) Psychol Aging , vol.2 , pp. 323-330
    • Haley, W.1    Levine, E.2    Brown, S.3    Bartolucci, A.4
  • 39
    • 27744526640 scopus 로고    scopus 로고
    • The health and well-being of caregivers of children with cerebral palsy
    • 15930188 10.1542/peds.2004-1689
    • Raina P, O'Donnell M, Rosenbaum P et al (2005) The health and well-being of caregivers of children with cerebral palsy. Pediatrics 115:e626-e636
    • (2005) Pediatrics , vol.115
    • Raina, P.1    O'Donnell, M.2    Rosenbaum, P.3
  • 40
    • 33645466651 scopus 로고    scopus 로고
    • Being the next of kin of an adult person with muscular dystrophy
    • 16638828 10.1177/1054773805285706
    • Boström K, Ahlström G, Sunvisson H (2006) Being the next of kin of an adult person with muscular dystrophy. Clin Nurs Res 15:86-104
    • (2006) Clin Nurs Res , vol.15 , pp. 86-104
    • Boström, K.1    Ahlström, G.2    Sunvisson, H.3
  • 41
    • 79957609976 scopus 로고    scopus 로고
    • Quality of life in Duchenne muscular dystrophy: The subjective impact on children and parents
    • 21482750 10.1177/0883073810389043
    • Baiardini I, Minetti C, Bonifacino S et al (2011) Quality of life in Duchenne muscular dystrophy: the subjective impact on children and parents. J Child Neurol 26:707-713
    • (2011) J Child Neurol , vol.26 , pp. 707-713
    • Baiardini, I.1    Minetti, C.2    Bonifacino, S.3
  • 42
    • 34548669613 scopus 로고    scopus 로고
    • Family function in families of children with Duchenne muscular dystrophy
    • 17873636
    • Chen J, Clark M (2007) Family function in families of children with Duchenne muscular dystrophy. Fam Community Health 30:296-304
    • (2007) Fam Community Health , vol.30 , pp. 296-304
    • Chen, J.1    Clark, M.2
  • 43
    • 0031667095 scopus 로고    scopus 로고
    • Social and clinical factors influencing the choice of coping strategies in relatives of patients with schizophrenia: Results of the BIOMED i study
    • 1:STN:280:DyaK1cvjvFejtg%3D%3D 9766167 10.1007/s001270050074
    • Magliano L, Fadden G, Economou M et al (1998) Social and clinical factors influencing the choice of coping strategies in relatives of patients with schizophrenia: results of the BIOMED I study. Soc Psychiatry Psychiatr Epidemiol 33:413-419
    • (1998) Soc Psychiatry Psychiatr Epidemiol , vol.33 , pp. 413-419
    • Magliano, L.1    Fadden, G.2    Economou, M.3
  • 44
    • 0029282584 scopus 로고
    • Social support and schizophrenia: A review of the literature
    • 1:STN:280:DyaK2M3nsFSlug%3D%3D 7755410 10.1016/S0883-9417(95)80003-4
    • Buchanan J (1995) Social support and schizophrenia: a review of the literature. Arch Psychiatr Nurs 9:68-76
    • (1995) Arch Psychiatr Nurs , vol.9 , pp. 68-76
    • Buchanan, J.1
  • 45
    • 77952347707 scopus 로고    scopus 로고
    • Social comparison within self-help groups: Views of parents of children with Duchenne muscular dystrophy
    • 20460405 10.1177/1359105309355491
    • Hodges L, Dibb B (2010) Social comparison within self-help groups: views of parents of children with Duchenne muscular dystrophy. J Health Psychol 15:483-492
    • (2010) J Health Psychol , vol.15 , pp. 483-492
    • Hodges, L.1    Dibb, B.2


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