"I have quality of life. . .but. . .": Exploring support needs important to quality of life in head and neck cancer

European Journal of Oncology Nursing

Volumn 18, Issue 2, 2014, Pages 192-200

  Moore, K A ^a   Ford, P J ^a   Farah, C S ^a  

^a UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

Content analysis; Head and neck cancer; Qualitative methods; Quality of life; Support needs; Supportive care

Indexed keywords

ADAPTATION; ADAPTIVE BEHAVIOR; AGED; ARTICLE; AUSTRALIA; CONTENT ANALYSIS; CROSS-SECTIONAL STUDY; FEMALE; HEAD AND NECK CANCER; HEAD AND NECK TUMOR; HUMAN; MENTAL STRESS; MIDDLE AGED; MULTIMODALITY CANCER THERAPY; NEEDS ASSESSMENT; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; QUALITATIVE METHODS; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL SUPPORT; STATISTICS; SUPPORT NEEDS; SUPPORTIVE CARE;

CONTENT ANALYSIS; HEAD AND NECK CANCER; QUALITATIVE METHODS; QUALITY OF LIFE; SUPPORT NEEDS; SUPPORTIVE CARE;

ADAPTATION, PHYSIOLOGICAL; ADAPTATION, PSYCHOLOGICAL; AGED; AUSTRALIA; COMBINED MODALITY THERAPY; CROSS-SECTIONAL STUDIES; FEMALE; HEAD AND NECK NEOPLASMS; HUMANS; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84894651797     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2013.10.010     Document Type: Article

References (42)

1. Abendstein H., Nordgren M., Boysen M., Jannert M., Silander E., Ahlner-Elmqvist M., et al. Quality of life and head and neck cancer: a 5 year prospective study. Laryngoscope 2005, 115(12):2183-2192.
2. Ang K.K. Multidisciplinary management of locally advanced SCCHN: optimizing treatment outcomes. Oncologist 2008, 13(8):899-910.
3. Argiris A., Karamouzis M.V., Raben D., Ferris R.L. Head and neck cancer. Lancet 2008, 371(9625):1695-1709.
4. Bigatti S.M., Steiner J.L., Miller K.D. Cognitive appraisals, coping and depressive symptoms in breast cancer patients. Stress Health 2012, 28(5):355-361.
5. Bowman K.F., Deimling G.T., Smerglia V., Sage P., Kahana B. Appraisal of the cancer experience by older long-term survivors. Psycho-Oncology 2003, 12(3):226-238.
6. Bradley P.J., Ferlito A., Silver C.E., Takes R.P., Woolgar J.A., Strojan P., et al. Neck treatment and shoulder morbidity: still a challenge. Head Neck 2011, 33(7):1060-1067.
7. Chandu A., Smith A.C.H., Rogers S.N. Health-related quality of life in oral cancer: a review. J.Oral Maxillofac. Surg. 2006, 64(3):495-502.
8. Chen A.M., Jennelle R.L.S., Grady V., Tovar A., Bowen K., Simonin P., et al. Support needs of patients with oral cancer and burden to their family caregivers. Cancer Nurs. 2009, 32(6):473-481.
9. Cremonese G., Bryden G., Bottcher C. Amultidisciplinary team approach to preservation of quality of life for patients following oral cancer surgery. ORL-Head Neck Nurs. 2000, 18(2):6-11.
10. Elani H.W., Allison P.J. Coping and psychological distress among head and neck cancer patients. Support. Care Cancer 2011, 19(11):1735-1741.
11. Epstein J.B., Huhmann M.B. Dietary and nutritional needs of patients after therapy for head and neck cancer. J.Am. Dental Assoc. 2012, 143(6):588-592.
12. Fang F.M., Chien C.Y., Kuo S.C., Chiu H.C., Wang C.J. Changes in quality of life of head-and-neck cancer patients following postoperative radiotherapy. Acta Oncol. 2004, 43(6):571-578.
13. Folkman S. Stress, coping, and hope. Psycho-Oncology 2010, 19(9):901-908.
14. Frydrych A.M., Slack-Smith L.M. Dental attendance of oral and oropharyngeal cancer patients in a public hospital in Western Australia. Aust. Dental J. 2011, 56(3):278-283.
15. Garcia-Peris P., Paron L., Velasco C., de la Cuerda C., Camblor M., Breton I., et al. Long-term prevalence of oropharyngeal dysphagia in head and neck cancer patients: impact on quality of life. Clin. Nutr. 2007, 26(6):710-717.
16. Gold D. The psychosocial care needs of patients with HPV-related head and neck cancer. Otolaryngol. Clin. N. Am. 2012, 45(4):879-897.
17. Hansen D.G., Larsen P.V., Holm L.V., Rottmann N., Bergholdt S.H., Sondergaard J. Association between unmet needs and quality of life of cancer patients: a population-based study. Acta Oncol. 2013, 52(2):391-399.
18. Hansen E. Successful Qualitative Health Research: A Practical Introduction 2006, Crows Nest Allen & Unwin.
19. Hsieh H.F., Shannon S.E. Three approaches to qualitative content analysis. Qual. Health Res. 2005, 15(9):1277-1288.
20. Humphris G.M. The missing member of the head and neck multidisciplinary team: the psychologist. Why we need them. Curr. Opin. Otolaryngol. Head Neck Surg. 2008, 16(2):108-112.
21. Isaacs J.H., Stiles W.A., Cassisi N.J., Million R.R., Parsons J.T. Postoperative radiation of open head and neck wounds-updated. Head Neck 1997, 19(3):194-199.
22. Kelly S.L., Jackson J.E., Hickey B.E., Szallasi F.G., Bond C.A. Multidisciplinary clinic care improves adherence to best practice in head and neck cancer. Am. J. Otolaryngol. 2013, 34(1):57-60.
23. Lawrence M., Aleid W., McKechnie A. Access to dental services for head and neck cancer patients. Br. J. Oral Maxillofac. Surg. 2013, 51(5):404-407.
24. Lazarus R. Coping with the stress of illness. WHO Reg. Publ. Eur. Ser. 1992, 44:11-31.
25. Lazarus R., Folkman S. Stress, Appraisal and Coping 1984, Springer Publishing Inc., New York.
26. Molassiotis A., Rogers M. Symptom experience and regaining normality in the first year following a diagnosis of head and neck cancer: a qualitative longitudinal study. Palliat. Support. Care 2012, 10(3):197-204.
27. Morton R.P. Toward comprehensive multidisciplinary care for head and neck cancer patients: quality of life versus survival. Otolaryngol. Head Neck Surg. 2012, 147(3):404-406.
28. Murphy B.A., Gilbert J., Ridner S.H. Systemic and global toxicities of head and neck treatment. Expert. Rev. Anticancer Ther. 2007, 7(7):1043-1053.
29. Oskam I.M., Verdonck-de Leeuw I.M., Aaronson N.K., Witte B.I., de Bree R., Doornaert P., et al. Prospective evaluation of health-related quality of life in long-term oral and oropharyngeal cancer survivors and the perceived need for supportive care. Oral Oncol. 2013, 49(5):443-448.
30. Osthus A.A., Aarstad A.K., Olofsson J., Aarstad H.J. Prediction of 5 year survival from level of perceived distress in newly diagnosed head and neck squamous cell carcinoma patients. Oral Oncol. 2013, 49(9):964-969.
31. Pandey M., Devi N., Ramdas K., Krishnan R., Kumar V. Higher distress relates to poor quality of life in patients with head and neck cancer. Int. J. Oral Maxillofac. Surg. 2009, 38(9):955-959.
32. Patton M.Q. Qualitative Research & Evaluation Methods 2002, Sage Publications, Thousand Oaks, Calif.
33. Penner J.L. Psychosocial care of patients with head and neck cancer. Semin. Oncol. Nurs. 2009, 25(3):231-241.
34. Penner J.L., McClement S.E., Sawatzky J.A. Management of dysphagia in advanced oropharyngeal cancer. Int. J. Palliat. Nurs. 2007, 13(5):206-212.
35. Rogers S.N. Quality of life perspectives in patients with oral cancer. Oral Oncol. 2010, 46(6):445-447.
36. Rogers S.N., Ahad S.A., Murphy A.P. Astructured review and theme analysis of papers published on 'quality of life' in head and neck cancer: 2000-2005. Oral Oncol. 2007, 43(9):843-868.
37. Roing M., Hirsch J.M., Holmstrom I. The uncanny mouth - a phenomenological approach to oral cancer. Patient Educat. Counsel. 2007, 67(3):301-306.
38. Rose-Ped A.M., Bellm L.A., Epstein J.B., Trotti A., Gwede C., Fuchs H.J. Complications of radiation therapy for head and neck cancers. The patient's perspective. Cancer Nurs. 2002, 25(6):461-467. (quiz 468-469).
39. Sherman A.C., Simonton S. Advances in quality of life research among head and neck cancer patients. Curr. Oncol. Rep. 2010, 12(3):208-215.
40. Vakharia K.T., Ali M.J., Wang S.J. Quality-of-life impact of participation in a head and neck cancer support group. Otolaryngol. Head Neck Surg. 2007, 136(3):405-410.
41. van den Berg M.G., Rasmussen-Conrad E.L., van Nispen L., van Binsbergen J.J., Merkx M.A. Aprospective study on malnutrition and quality of life in patients with head and neck cancer. Oral Oncol. 2008, 44(9):830-837.
42. White K., D'Abrew N., Katris P., O'Connor M., Emery L. Mapping the psychosocial and practical support needs of cancer patients in Western Australia. Eur. J. Cancer Care 2012, 21(1):107-116.