'DSM-V is taking away our identity': The reaction of the online community to the proposed changes in the diagnosis of Asperger's disorder

Health (United Kingdom)

Volumn 18, Issue 2, 2014, Pages 179-195

  Giles, David C ^a  

^a UNIVERSITY OF WINCHESTER   (United Kingdom)

Author keywords

discourse analysis; mental health; technology in health care

Indexed keywords

ARTICLE; ASPERGER SYNDROME; ATTITUDE TO HEALTH; AUTISM; CLASSIFICATION; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; DIFFERENTIAL DIAGNOSIS; DISCOURSE ANALYSIS; HUMAN; INTERPERSONAL COMMUNICATION; MENTAL HEALTH; PSYCHOLOGICAL ASPECT; SOCIAL BEHAVIOR; SOCIAL MEDIA; TECHNOLOGY IN HEALTH CARE;

DISCOURSE ANALYSIS; MENTAL HEALTH; TECHNOLOGY IN HEALTH CARE;

ASPERGER SYNDROME; ATTITUDE TO HEALTH; AUTISTIC DISORDER; COMMUNICATION; DIAGNOSIS, DIFFERENTIAL; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; HUMANS; SOCIAL IDENTIFICATION; SOCIAL MEDIA;

EID: 84894644011     PISSN: 13634593     EISSN: 14617196     Source Type: Journal    
DOI: 10.1177/1363459313488006     Document Type: Article

References (40)

1. Allred S.Reframing Asperger syndrome: Lessons from other challenges to the Diagnostic and Statistical Manual and ICD approaches.Disability & Society. 2009;24 (3): 343-355.
2. Asperger H.Die 'Autistichen Psychopathen' im Kindesalter.Archiv für Psychiatrie und Nervenkrankheiten. 1944;117:76-136.
3. Baron-CohenS (2009) The short life of a diagnosis. The New York Times, 9November. Available at: http://www.nytimes.com/2009/11/10/opinion/10baron-cohen.html?_r=2&;ref=opinion (accessed 28 June 2012).
4. Baym NPersonal Connections in the Digital Age. Malden, MA: Polity Press; 2010:.
5. Benford P,Standen PJ.The Internet: A comfortable communication medium for people with Asperger syndrome (AS) or high functioning autism (HFA)?.Journal of Assistive Technologies. 2009;3 (2): 48-57.
6. Bennett T,Szatmari P,Bryson Set al.Differentiating autism and Asperger syndrome on the basis of language delay or impairment.Journal of Autism and Developmental Disorders. 2008;38 (4): 616-625.
7. Bentall RPDoctoring the Mind: Why Psychiatric Treatments Fail. London: Allen Lane; 2009:.
8. Billig MArguing and Thinking: A Rhetorical Approach to Social Psychology. Cambridge: Cambridge University Press; 1987:.
9. Brownlow C.Re-presenting autism: The construction of 'NT syndrome'.The Journal of Medical Humanities. 2010;31:243-255.
10. Brownlow C,O'Dell L.Constructing an autistic identity: AS voices online.Mental Retardation. 2006;44 (5): 315-321.
11. Chamak B.Autism and social movements: French parents' associations and international autistic individuals' organisations.Sociology of Health & Illness. 2008;30 (1): 76-96.
12. Charland L.A madness for identity: Psychiatric labels, consumer autonomy, and the perils of the Internet.Philosophy, Psychiatry, & Psychology. 2004;11 (4): 335-349.
13. Clarke J,Van Amerom G.Surplus suffering': Differences between organizational understandings of Asperger's syndrome and those people who claim the 'disorder.Disability & Society. 2007;22 (7): 261-276.
14. Flaskerud JH.DSM proposed changes, part I: Criticisms and influences on changes.Issues in Mental Health Nursing. 2010;31:686-688.
15. Giles DC.The Internet, information-seeking, and identity.The Psychologist. 2007;20 (7): 432-435.
16. Giles DC.'Is this normal?' The role of category predicates in constructing mental illness online.Journal of Computer-Mediated Communication. 2013;18 (4): 476-490.
17. Giles DC,Newbold J.Self- and other-diagnosis in user-led online mental health communities.Qualitative Health Research. 2011;21 (3): 419-428.
18. GroholJ. (2012). Final DSM 5 Approved by American Psychiatric Association. Psych Central. Retrieved from http://psychcentral.com/blog/archives/2012/12/02/final-dsm-5-approved-by-american-psychiatric-association/.
19. Hacking IRewriting the Soul: Multiple Personality and the Sciences of Memory. Princeton, NJ: Princeton University Press; 1995:.
20. Hacking I.How we have been learning to talk about autism: A role for stories.Metaphilosophy. 2009;40 (3-4): 499-516.
21. Hacking I.Autism fiction: A mirror of an Internet decade?.University of Toronto Quarterly. 2010;79 (2): 632-655.
22. Jordan CJ.Evolution of autism support and understanding via the World Wide Web.Intellectual and Developmental Disabilities. 2010;48 (3): 220-227.
23. Kanner L.Autistic disturbances of affective contact.The Nervous Child. 1943;2:217-250.
24. Kutchins H,Kirk SAMaking Us Crazy: DSM - The Psychiatric Bible and the Creation of Mental Disorders. New York: The Free Press; 1997:.
25. Lane CShyness: How Normal Behavior Became a Sickness. New Haven, CT: Yale University Press; 2007:.
26. McPartland JC,Reichow B,Volkmar FR.Sensitivity and specificity of proposed DSM-5 diagnostic criteria for autism spectrum disorder.Journal of the American Academy of Child and Adolescent Psychiatry. 2012;51 (4): 368-383.
27. Mayes SD,Calhoun SL,Crites DL.Does DSM-IV Asperger's disorder exist?.Journal of Abnormal Child Psychology. 2001;29:263-271.
28. Miller JN,Ozonoff S.Did Asperger's cases have Asperger disorder? A research note.Journal of Child Psychology and Psychiatry, and Allied Disciplines. 1997;38:247-251.
29. Molloy H,Vasil L.The social construction of Asperger syndrome: The pathologising of difference?.Disability & Society. 2002;17 (6): 659-669.
30. Moloney P.'How can a chord be weird if it expresses your soul?' Some critical reflections on the diagnosis of Aspergers syndrome.Disability & Society. 2010;25 (2): 135-148.
31. Murray SRepresenting Autism: Culture, Narrative, Fascination. Liverpool: Liverpool University Press; 2008:.
32. Ortega F,Choudhury S.'Wired up differently': Autism, adolescence and the politics of neurological identities.Subjectivity. 2011;4 (3): 323-345.
33. Silverman CUnderstanding Autism Parents, Doctors, and the History of a Disorder. Princeton, NJ: Princeton University Press; 2012:.
34. Szasz TSCoercion as Cure: A Critical History of Psychiatry. New Brunswick, NJ: Transaction; 2007:.
35. Timimi S,Gardner N,McCabe BThe Myth of Autism: Medicalising Men's and Boys' Social and Emotional Competence. Basingstoke: Palgrave Macmillan; 2011:.
36. Tryon PA,Mayes SD,Rhodes RLet al.Can Asperger's disorder be differentiated from autism using DSM-IV criteria?.Focus on Autism and Other Developmental Disabilities. 2006;21 (1): 2-6.
37. Volkmar FR,Klin A,Siegal Bet al.Field trial for autistic disorder in DSM-IV.The American Journal of Psychiatry. 1994;151 (9): 1361-1367.
38. Wing L.Asperger's syndrome: A clinical account.Psychological Medicine. 1981;11:115-130.
39. Wing LThe Autistic Spectrum: A Guide for Parents and Professionals. London: Constable & Robinson; 1996:.
40. Wing L,Gould J,Gillberg C.Autism spectrum disorders in the DSM-V: Better or worse than the DSM-IV?.Research in Developmental Disabilities. 2011;32:768-773.