Patient-reported measurement of time to diagnosis in cancer: Development of the Cancer Symptom Interval Measure (C-SIM) and randomised controlled trial of method of delivery

BMC Health Services Research

Volumn 14, Issue , 2014, Pages

  Neal, Richard D ^a   Nafees, Sadia ^a   Pasterfield, Diana ^a   Hood, Kerenza ^b   Hendry, Maggie ^a   Gollins, Simon ^c   Makin, Matthew ^c   Stuart, Nick ^c   Turner, Jim ^c   Carter, Ben ^b   Wilkinson, Clare ^a   Williams, Nefyn ^a   Robling, Mike ^b  

^a BANGOR UNIVERSITY   (United Kingdom)

^b CARDIFF UNIVERSITY   (United Kingdom)

^c YSBYTY GWYNEDD   (United Kingdom)

Author keywords

Appraisal; Cancer symptoms; Diagnosis; Patient intervals; Primary care intervals; Randomised controlled trial; Tool development

Indexed keywords

ANXIETY; ARTICLE; CLINICAL PATHWAY; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; EARLY DIAGNOSIS; HUMAN; INTERVIEW; NEOPLASM; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; REPRODUCIBILITY; TIME;

ANXIETY; CRITICAL PATHWAYS; EARLY DIAGNOSIS; HUMANS; INTERVIEWS AS TOPIC; NEOPLASMS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; TIME FACTORS;

EID: 84894226434     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-14-3     Document Type: Article

References (27)

1. A visual summary of the EUROCARE-4 results: a UK perspective. Moller H, Linklater KM, Robinson D, Br J Cancer 2009 101 suppl 110 114
2. What if cancer survival in Britain were the same as in Europe: how many deaths are avoidable? Abdel-Rahman M, Stockton D, Rachet D, Hakulinen T, Coleman MP, Br J Cancer 2009 101 suppl 115 124
3. The national awareness and early diagnosis initiative in England: assembling the evidence. Richards MA, Br J Cancer 2009 101 suppl 1 4 19513070
4. The size of the prize for earlier cancer diagnosis of cancer in England. Richards MA, Br J Cancer 2009 101 suppl 125 129
5. Delays in the diagnosis of six cancers: analysis of data from the national survey of NHS patients: cancer. Allgar VL, Neal RD, Br J Cancer 2005 92 1959 1970 10.1038/sj.bjc.6602587 15870714 (Pubitemid 40897416)
6. Five misconceptions in cancer diagnosis. Hamilton W, Br J Gen Pract 2009 59 441 447 10.3399/bjgp09X420860 19520027
7. Department of Health, The national survey of NHS patients-cancer London: Department of Health 2002
8. Routes to diagnosis for cancer-determining the patient journey using multiple routine data sets. Elliss-Brookes L, McPhail S, Ives A, Greenslade M, Shelton J, Hiom S, Richards M, Br J Cancer 2012 107 1220 1226 10.1038/bjc.2012.408 22996611
9. Do diagnostic delays in cancer matter? Neal RD, Br J Cancer 2009 101 suppl 9 12
10. Time to diagnosis and mortality in colorectal cancer: a cohort study in primary care. Tørring ML, Frydenberg M, Hansen RP, Olesen F, Hamilton W, Vedsted P, Br J Cancer 2011 104 934 940 10.1038/bjc.2011.60 21364593
11. Patient delay in cancer studies: a discussion of methods and measures. Andersen RS, Vedsted P, Olesen F, Bro F, Søndergaard J, BMC Health Serv Res 2009 9 189 10.1186/1472-6963-9-189 19840368
12. The model of pathways to treatment: conceptualisation and integration with existing theory. Scott SE, Walter FM, Webster A, Sutton S, Emery JD, Br J Health Psych 2013 18 45 65 10.1111/j.2044-8287.2012.02077.x
13. The Andersen model of total patient delay: a systematic review of its application in cancer diagnosis. Walter FM, Scott SE, Webster A, Emery JD, J Health Serv Res & Policy 2012 17 110 118 10.1258/jhsrp.2011.010113 22008712
14. The Aarhus statement: improving design and reporting of studies on early cancer diagnosis. Weller D, Vedsted P, Rubin G, Walter F, Emery J, Scott S, Campbell C, Andersen RS, Hamilton W, Olesen F, Rose P, Nafees S, Van Rijswijk E, Muth C, Beyer M, Neal RD, Br J Cancer 2012 106 1262 1267 10.1038/bjc.2012.68 22415239
15. Determining patient and primary care delay in the diagnosis of cancer-lessons from a pilot study of patients referred for suspected cancer. Neal RD, Pasterfield DM, Wilkinson C, Hood K, Makin M, Lawrence H, BMC Fam Pract 2008 9 9 10.1186/1471-2296-9-9 18234092 (Pubitemid 351328648)
16. Evaluating patient-based outcome measures for use in clinical trials. Fitzpatrick R, Davey C, Buxton MJ, Jones DR, Health Technol Assess 1998 2 14
17. Streiner DL, Norman GR, Health measurement scales: a practical guide to their development and use Oxford: Oxford University Press 4 2008
18. Cognitive psychology and self-reports: models and methods. Jobe JB, Qual Life Res 2003 12 219 227 10.1023/A:1023279029852 12769134 (Pubitemid 36549530)
19. Willis GB, Cognitive Interviewing: a tool for improving questionnaire design Thousand Oaks: Sage Publications 2005
20. Tourangeau R, Rips LJ, Rasinski K, The psychology of survey response Cambridge: Cambridge University Press 2000
21. Improving the response rates to questionnaires. Smeeth L, Fletcher AE, BMJ 2002 324 1168 1169 10.1136/bmj.324.7347.1168 12016167
22. Increasing response rates to postal questionnaires: systematic review. Edwards P, Roberts I, Clarke M, DiGuiseppi C, Pratap S, Wentz R, Kwan I, BMJ 2002 324 1183 10.1136/bmj.324.7347.1183 12016181
23. Mode of data elicitation, acquisition and response to surveys: a systematic review. Hood K, Robling M, Ingledew D, Gillespie D, Greene G, Ivins R, Russell I, Sayers A, Shaw C, Williams J, Health Technol Assess 2012 16 27
24. The development of a six-item short-form of the state scale of the Spielberger state-trait anxiety inventory (STAI). Marteau TM, Bekker H, Br J Clin Psychol 1992 31 301 306 10.1111/j.2044-8260.1992.tb00997.x 1393159
25. Development and validation of a questionnaire to assess delay in treatment of breast cancer. Unger-Saldana K, Pelaez-Ballestas I, Infante-Castaneda C, BMC Cancer 2012 12 626 10.1186/1471-2407-12-626 23272645
26. Is later diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Corner J, Hopkinson J, Fitzsimmons D, Barclay S, Muers M, Thorax 2005 60 314 319 10.1136/thx.2004. 029264 15790987 (Pubitemid 40522368)
27. Cochrane handbook for systematic reviews of interventions. Higgins JPT, Green S, Cochrane Collaboration 2011 Version 5.1.0 Available from http://www.cochrane.org/training/cochrane-handbook