How do intensive care nurses perceive families in intensive care? Insights from the United Kingdom and Australia

Journal of Clinical Nursing

Volumn 23, Issue 5-6, 2014, Pages 663-672

  Kean, Susanne ^a   Mitchell, Marion ^b  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

^b GRIFFITH UNIVERSITY   (Australia)

Author keywords

Family; Family nursing; Family centred care; ICU nurses; ICU nursing; Nurse family partnership

Indexed keywords

ADULT; AUSTRALIA; HUMAN; HUMAN RELATION; INTENSIVE CARE NURSING; MIDDLE AGED; NURSE PATIENT RELATIONSHIP; UNITED KINGDOM; YOUNG ADULT;

ADULT; AUSTRALIA; CRITICAL CARE NURSING; GREAT BRITAIN; HUMANS; MIDDLE AGED; NURSE-PATIENT RELATIONS; PROFESSIONAL-FAMILY RELATIONS; YOUNG ADULT;

EID: 84894226249     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/jocn.12195     Document Type: Article

References (65)

1. Adamson H, Murgo M, Boyle M, Kerr S, Crawford M & Elliott D (2004) Memories of intensive care and experiences of survivors of a critical illness: an interview study. Intensive and Critical Care Nursing 20, 257-263.
2. Ågård AS & Harder I (2007) Relatives' experiences in intensive care - Finding a place in a world of uncertainty. Intensive and Critical Care Nursing 23, 170-177.
3. Ågård AS & Lomborg K (2010) Flexible family visitation in the intensive care units: nurses' decision-making. Journal of Clinical Nursing 20, 1106-1144.
4. Australian Commission on Safety and Quality in Health Care (2010) Patient Centred Care: Improving Quality and Safety by Focusing Care on Patients and Consumers. Available at: http://www.safetyandquality.gov.au/internet/safety/publishing.nsf/Content/36AB39E5379378EBECA5372577B5373001D5379373C5379372B/$File/PCCC-DiscussPaper.pdf (accessed 19 January 2011).
5. Bailey J, Sabbagh M, Loiselle C, Boileau J & McVey L (2010) Supporting families in ICU: a descriptive correlational study of informational support, anxiety, and satisfaction with care. Intensive and Critical Care Nursing 26, 114-122.
6. Benner P, Hooper-Kyriakidis P & Stannard D (1999) Clinical Wisdom and Interventions in Critical Care. W.B Saunders Company, Philadelphia.
7. Bergbom I (2008) Family centered care across the life continuum. The World of Critical Care Nursing 6, 40-50.
8. Bergbom I & Askwall A (2000) The nearest and dearest: a lifeline for ICU patients. Intensive and Critical Care Nursing 16, 384-395.
9. Berti D, Ferdinande P & Moons P (2007) Beliefs and attitudes of intensive care nurses towards visits and open visiting policy. Intensive Care Medicine 33, 1060-1065.
10. Bloor M, Frankland J, Thomas M & Robson K (2001). Focus Groups in Social Research. SAGE Publications, London.
11. Callery P (1997) Caring for parents of hospitalized children: a hidden area of nursing work. Journal of Advanced Nursing 26, 992-998.
12. Carey MA (1994) The group effect in focus groups: planning, implementing, and interpreting focus group research. In Critical Issues in Qualitative Research Methods (Morse JM ed.). SAGE Publications, Thousand Oaks, pp. 225-241, chapter 212.
13. Casey A (1993) Development and use of the partnership model of nursing care. In Advances in Child Health Nursing (Glasper EA & Tucker A eds). Scutari Press, Harrow, pp. 183-193.
14. Casey A (1995) Partnership nursing: influences on involvement of informal carers. Journal of Advanced Nursing 22, 1058-1062.
15. Chaboyer W (2006) Editorial: Intensive care and beyond: improving the transitional experiences of critically ill patients and their families. Intensive and Critical Care Nursing 22, 187-193.
16. Charmaz K (1990) 'Discovering' chronic illness: using grounded theory. Social Science & Medicine 30, 1161-1172.
17. Charmaz K (2000) Grounded theory - objectivist and constructivist methods. In Handbook of Qualitative Research, 2nd edn (Denzin N & Lincoln Y eds). SAGE Publications, Thousand Oaks, CA, pp. 509-535.
18. Charmaz K (2006) Constructing Grounded Theory - A Practical Guide through Qualitative Analysis. SAGE Publications, London.
19. Coyne I (1995) Partnership in care: parents' views of participation in their hospitalized child's care. Journal of Clinical Nursing 4, 71-79.
20. Coyne I & Cowley S (2007) Challenging the philosophy of partnership with parents: a grounded theory study. International Journal of Nursing Studies 44, 893-904.
21. Dahle Olsen K, Dysvik E & Hansen BS (2009) The meaning of family members' presence during intensive care stay: a qualitative study. Intensive and Critical Care Nursing 25, 190-198.
22. Darbyshire P (1993b) Parents, nurses and paediatric nursing: a critical review. Journal of Advanced Nursing 18, 1670-1680.
23. Darbyshire P (1994). Living with a Sick Child in Hospital. Chapman & Hall, London.
24. Eggenberger S & Nelms T (2007) Being family: the family experience when an adult member is hospitalized with a critical illness. Journal of Clinical Nursing 16, 1618-1628.
25. Engström Å & Söderberg S (2007) Close relatives in intensive care from the perspective of critical care nurses. Journal of Clinical Nursing 16, 1651-1659.
26. Engström B, Uusitalo A & Engström Å (2010) Relatives' involvement in nursing care: a qualitative study describing critical care nurses' experiences. Intensive and Critical Care Nursing. doi:10.1016/j.iccn.2010.11.004.
27. Garrouste-Orgeas M, Willems V, Timsit J-F, Diaw F, Brochon S, Vesin A, Philippart F, Tabah A, Coquet I, Bruel C, Moulard M-L, Carlet J & Misset B (2010) Opinions of families, staff, and patients about family participation in care in intensive care units. Journal of Critical Care 25, 634-640.
28. Glaser BG (1978) Theoretical Sensitivity. The Sociology Press, San Francisco, CA.
29. Glaser B & Strauss A (1967) The Discovery of Grounded Theory. Aldine DeGruyter, New York.
30. Griffiths R (2010) Intensive care unit-acquired weakness. Critical Care Medicine 38, 779-787.
31. Hammond F (1995) Involving families in care within the intensive care environment: a descriptive study. Intensive and Critical Care Nursing 11, 256-264.
32. Haycock-Stuart E, Baggaley S, Kean S & Carson M (2010) Understanding leadership in community nursing in Scotland. Community Practitioner 83, 24-28.
33. Heimer CA & Staffen LR (1998) For the Sake of the Children - The Social Organisation of Responsibility in the Hospital and the Home. University of Chicago Press, Chicago, IL.
34. Hunter J, Goddard C, Rothwell M, Ketharaju S & Cooper H (2010) A survey of intensive care unit visiting policies in the United Kingdom. Anaesthesia 65, 1101-1105.
35. Hupcey J (1999) Looking out for the patient and ourselves - the process of family integration into the ICU. Journal of Clinical Nursing 8, 253-262.
36. Hupcey J (2000) Feeling safe: the psychosocial needs of ICU patients. Journal of Nursing Scholarship 32, 361-367.
37. Jones C, Griffiths R & Humphris G (2000) Disturbed memory and amnesia related to intensive care. Memory 8, 79-94.
38. Kean S (2008) The emergence of negotiated family care in intensive care. unpublished Ph.D. Thesis, University of Edinburgh, Edinburgh.
39. Kitzinger J (1994) The methodology of Focus Groups: the importance of interaction between research participants. Sociology of Health & Illness 16, 103-221.
40. Lee P (2007) What does partnership in care mean for children's nurses? Journal of Clinical Nursing 16, 518-526.
41. Leske JS (1992) Needs of adult family members after critical illness. Critical Care Nursing Clinics of North America 4, 587-596.
42. Leske JS (1998) Acute care and adult family interventions. In Family Nursing Practice (Vaughan-Cole B, Johnson MA, Malone J & Walker BL eds). W.B. Saunders Company, Philadelphia, PA, pp. 163-195.
43. Maxwell KE, Stuenkel D & Saylor C (2007) Needs of family members of critically ill patients: a comparison of nurse and family perception. Heart and Lung 36, 367-376.
44. McKiernan M & McCarthy G (2010) Family members' lived experience in the intensive care unit: a phenomenological study. Intensive and Critical Care Nursing 26, 254-261.
45. Mitchell M & Chaboyer W (2010) Family centred care: a way to connect patients, families and nurses in critical care. Intensive and Critical Care Nursing 26, 154-160.
46. Mitchell M & Courtney M (2005) An intervention study to improve the transfer of ICU patients to the ward - evaluation by ICU nurses. Australian Critical Care 18, 123-128.
47. Mitchell M, Chaboyer W, Burmeister E & Foster M (2009) Positive effects of a nursing intervention on family-centered care in adult critical care. American Journal of Critical Care 18, 543-552.
48. Morgan D (1995) Why things (sometimes) go wrong in Focus Groups. Qualitative Health Research 5, 516-523.
49. Morgan DL (1997). Focus Groups as Qualitative Research, 2edn. SAGE Publications, Thousand Oaks.
50. Paul F & Rattray J (2008) Short - and long-term impact of critical illness on relatives: literature review. Journal of Advanced Nursing 62, 276-292.
51. Plowright CI (1998) Intensive therapy unit nurses' beliefs about and attitudes towards visiting in three district general hospitals. Intensive and Critical Care Nursing 14, 262-270.
52. Price A (2004) Intensive care nurses' experiences of assessing and dealing with patients' psychological needs. Nursing in Critical Care 9, 134-142.
53. Richmond T, Thompson H, Deatrick J & Kauder D (2000) Journey towards recovery following physical trauma. Journal of Advanced Nursing 32, 1341-1347.
54. Scottish Government (2007) Better Health. Better Care. Scottish Government, Edinburgh.
55. Scottish Government (2010) The Healthcare Quality Strategy for NHSScotland. The Scottish Government, Edinburgh.
56. Shields L & Tanner A (2004) Pilot study of a tool to investigate perceptions of family-centered care in different settings. Pediatric Nursing 30, 189-197.
57. Simpson T (1991) The family as a source of support for the critically ill adult. AACN Clinical Issues in Critical Care Nursing 2, 229-235.
58. Spreen A & Schuurmans M (2010) Visiting policies in the adult intensive care units: a complete survey of Dutch ICUs. Intensive and Critical Care Nursing 27, 27-30.
59. Stayt L (2007) Nurses' experiences of caring for families with relatives in intensive care units. Journal of Advanced Nursing 57, 623-630.
60. Vandall-Walker V, Jensen L & Oberle K (2007) Nursing support for family members of critically ill adults. Qualitative Health Research 17, 1207-1218.
61. VanHorn E & Kautz D (2007) Promotion of family integrity in the acute care setting. Dimensions of Critical Care Nursing 26, 101-107.
62. Walters AJ (1995) A hermeneutic study of the experiences of relatives of critically ill patients. Journal of Advanced Nursing 22, 996-1005.
63. Whitecomb J, Roy D & Blackman VS (2010) Evidence-based practice in military intensive care unit family visitation. Nursing Research 59, S32-S39.
64. Williams C (2005) The identification of family members' contribution to patients' care in the intensive care unit: a naturalistic inquiry. Nursing in Critical Care 10, 6-14.
65. Wright LM & Leahey M (2005) Nurses and Families - A Guide to Family Assessment and Intervention, 4th edn. F.A Davis Company, Philadelphia, PA.