Rehabilitation service utilization in children and youth with cerebral palsy

Child: Care, Health and Development

Volumn 40, Issue 2, 2014, Pages 275-282

  Majnemer, A ^a,b   Shikako Thomas, K ^a   Lach, L ^b,c   Shevell, M ^b,c   Law, M ^d   Schmitz, N ^c,e   Poulin, C ^c   Gardiner, Michele ^f   Guimond, Danielle ^f   Lepage, Celine ^f   Martineau, France ^f   Montpetit, Kathleen ^f   Thibault, Sylvie ^f  

^a MCGILL UNIVERSITY   (Canada)

^b MONTREAL CHILDREN S HOSPITAL   (Canada)

^c MCGILL UNIVERSITY   (Canada)

^d MCMASTER UNIVERSITY   (Canada)

^e DOUGLAS MENTAL HEALTH UNIVERSITY INSTITUTE   (Canada)

^f NONE

Author keywords

Cerebral palsy; Rehabilitation

Indexed keywords

ADOLESCENT; CEREBRAL PALSY; CHILD; COST BENEFIT ANALYSIS; DEVELOPMENTAL DISORDER; EDUCATION; FEMALE; HANDICAPPED CHILD; HUMAN; MALE; OCCUPATIONAL THERAPY; PARENT; PATIENT REFERRAL; PHYSIOTHERAPY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; REHABILITATION; REVIEW; SCHOOL HEALTH SERVICE; SPEECH THERAPY; UTILIZATION REVIEW; YOUNG ADULT;

CEREBRAL PALSY; REHABILITATION;

ADOLESCENT; CEREBRAL PALSY; CHILD; COST-BENEFIT ANALYSIS; DEVELOPMENTAL DISABILITIES; DISABLED CHILDREN; EDUCATION, SPECIAL; FEMALE; HUMANS; MALE; OCCUPATIONAL THERAPY; PARENTS; PHYSICAL THERAPY MODALITIES; QUESTIONNAIRES; REFERRAL AND CONSULTATION; SCHOOL HEALTH SERVICES; SPEECH THERAPY; YOUNG ADULT;

EID: 84893901495     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/cch.12026     Document Type: Article

References (28)

1. Agency for Healthcare Research and Quality (2002) AHRQ Annual Report on Research and Financial Management. US Department of Health and Human Services, Rockville, MD, USA.
2. Binks, J. A., Barden, W. S., Burke, T. A. & Young, N. L. (2007) What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Archives of Physical Medicine and Rehabilitation, 88, 1064-1073.
3. Chiarello, L. A., O'Neil, M., Dichter, C. G., Westcott, S. L., Orlin, M., Marchese, V. G., Tieman, B. & Rose, R. U. (2005) Exploring physical therapy clinical decision making for children with spastic diplegia: survey of pediatric practice. Pediatric Physical Therapy, 17, 46-54.
4. Crompton, J., Imms, C., McCoy, A. T., Randall, M., Eldridge, B., Scoullar, B. & Galea, M. P. (2007) Group-based task-related training for children with cerebral palsy: a pilot study. Physical and Occupational Therapy in Pediatrics, 27, 43-65.
5. Darrah, J., Magill-Evans, J. & Galamos, N. L. (2010) Community services for young adults with Motor disabilities - a paradox. Disability and Rehabilitation, 32, 223-229.
6. Deci, E. L. & Ryan, R. M. (2000) The 'what' and 'why' of goal pursuits: human needs and the self-determination of behavior. Psychological Inquiry, 11, 227-268.
7. Donabedian, A. (1988) The quality of care: how can it be assessed? JAMA, 260, 1743-1748.
8. Ehrmann Feldman, D., Champagne, F., Korner-Bitensky, N. & Meshefedjian, G. (2002) Waiting time for rehabilitation services for children with physical disabilities. Child: Care, Health and Development, 28, 351-358.
9. Elrod, C. S. & DeJong, G. (2008) Determinants of utilization of physical rehabilitation services for persons with chronic and disabling conditions: an exploratory study. Archives of Physical Medicine and Rehabilitation, 89, 114-120.
10. Feldman, D., Swaine, B., Gosselin, J., Meshefedjian, G. & Grilli, L. (2008) Is waiting for Rehabilitation services associated with changes in function and quality of life in children with physical disabilities. Physical and Occupational Therapy in Pediatrics, 28, 291-304.
11. Kaminker, M. K., Chiarello, L. A., O'Neil, M. E. & Dichter, C. G. (2004) Decision making for Physical therapy service delivery in schools: a nationwide survey of pediatric physical therapists. Physical Therapy, 84, 919-933.
12. Kaminker, M. K., Chiarello, L. A. & Chiarini Smith, J. A. (2006) Decision making for physical therapy service delivery in schools: a nationawide analysis by geographic region. Pediatric Physical Therapy, 18, 204-213.
13. King, G., Tucker, M. A., Bladwin, P., Lowry, K., LaPorta, J. & Martens, L. (2002) A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities. Physical and Occupational Therapy in Pediatrics, 22, 53-77.
14. Leatherman, S. & Sutherland, K. (2010) Quality of healthcare in Canada: a chartbook. Canadian Health Services Research Foundation, Ottawa, ON, Canada.
15. Majnemer, A., Shevell, M. I., Rosenbaum, P. & Abrahamowicz, M. (2002) Early rehabilitation service utilization patterns in young children with developmental delays. Child: Care, Health and Development, 28, 29-37.
16. Majnemer, A., Shevell, M., Rosenbaum, P., Law, M. & Poulin, C. (2007) Determinants of life quality in school-age children with cerebral palsy. The Journal of Pediatrics, 151, 470-475.
17. Majnemer, A., Shevell, M., Law, M., Birnbaum, R., Chilingaryan, G., Rosenbaum, P. & Poulin, C. (2008) Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Developmental Medicine and Child Neurology, 50, 751-758.
18. Mazer, B. & Majnemer, A. (2009) Service utilization and health promotion of children with neurodevelopmental disabilities. In: Neurodevelopmental Disabilities: Clinical and Scientific Foundations (ed. M. Shevell ), International Review of Child Neurology Series, pp. 426-441. MacKeith Press, London, UK.
19. Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E. & Galuppi, B. (1997) Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine and Child Neurology, 39, 214-223.
20. Parkes, J., Hill, N., Dolk, H. & Donnelly, M. (2004) What influences physiotherapy use by children with cerebral palsy? Child: Care, Health and Development, 30, 151-160.
21. Roid, G. H. & Miller, L. J. (1997) Leiter International Performance Scale-Revised. Stoelting Co., Wood Dale, IL, USA.
22. Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., Dan, B. & Jacobsson, B. (2007) A report: the definition and classification of cerebral palsy. Developmental Medicine and Child Neurology, 109 (Suppl.), 8-14.
23. Russell, D. J., Avery, L. M., Rosenbaum, P. L., Raina, P. S., Walter, S. D. & Palisano, R. J. (2000) Improved scaling of the gross motor function measure for children with cerebral palsy: evidence of reliability and validity. Physical Therapy, 80, 873-885.
24. Shevell, M. I., Dagenais, L. & Hall, N. (2009) The relationship of cerebral palsy subtype and functional motor impairment: a population-based study. Developmental Medicine and Child Neurology, 51, 872-877.
25. Shikako-Thomas, K., Lach, L., Shevell, M., Law, M., Schmitz, N., Poulin, C., Majnemer, A. & QUALA group (in press) Picture me playing - a portrait of participation and enjoyment of leisure activities in adolescents with cerebral palsy. Research in Developmental Disabilities.
26. Sparrow, S. S., Cicchetti, D. V. & Balla, D. A. (2005) Vineland Adaptive Behavior Scales: Second Edition (Vineland II). Survey Interview Form/Caregiver Rating Form. Livionia, Minnesota, USA.
27. Weindling, A. M., Cunningham, C. C., Glenn, S. M., Edwards, R. T. & Reeves, D. J. (2007) Additional therapy for young children with spastic cerebral palsy: a randomized controlled trial. International Journal of Technology Assessment in Health Care, 11, iii-iiv, ix-x, 1-71.
28. Young, N. L., Steele, C., Fehlings, D., Jutai, J., Olmsted, N. & Williams, J. I. (2005) Use of health care among adults with chronic and complex physical disabilities of childhood. Disability and Rehabilitation, 27, 1455-1460.