Development of a measure of asthma-specific quality of life among adults

Quality of Life Research

Volumn 23, Issue 3, 2014, Pages 837-848

  Eberhart, Nicole K ^a   Sherbourne, Cathy D ^a   Edelen, Maria Orlando ^a   Stucky, Brian D ^a   Sin, Nancy L ^b   Lara, Marielena ^a  

^a RAND CORPORATION   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Asthma; Instrument development; Patient reported outcomes; Quality of life

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; ASTHMA; EQUIPMENT; FEMALE; HUMAN; INFORMATION PROCESSING; MALE; METHODOLOGY; MIDDLE AGED; MULTICENTER STUDY; OUTCOME ASSESSMENT; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; SICKNESS IMPACT PROFILE; SOCIAL CLASS; UNITED STATES; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; ASTHMA; BOSTON; CALIFORNIA; FEMALE; FOCUS GROUPS; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; MIDDLE AGED; PATIENT OUTCOME ASSESSMENT; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE; SOCIAL CLASS; YOUNG ADULT;

EID: 84893749478     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-013-0510-x     Document Type: Article

References (33)

1. CDC. (2010). America breathing easier 2010: CDC's National Asthma Control Program at a Glance. (pp. 4): National Center for Environmental Health (NCEH): Division of Environmental Hazards and Health Effects, Center for Disease Control and Prevention, Atlanta, Georgia.
2. Moorman, J. E.; Rudd, R. A.; Johnson, C. A.; King, M.; Minor, P.; Bailey, C.; et al. (2007). National surveillance for asthma - United States, 1980-2004. Atlanta, GA: Department of Health and Human Services, Centers for Disease Control and Prevention.
3. Juniper, E. F.; Buist, A. S.; Cox, F. M.; Ferrie, P. J.; & King, D. R. (1999). Validation of a standardized version of the asthma quality of life questionnaire. Chest, 115(5), 1265-1270.
4. Juniper, E. F.; Guyatt, G. H.; Cox, F. M.; Ferrie, P. J.; & King, D. R. (1999). Development and validation of the mini asthma quality of life questionnaire. European Respiratory Journal, 14(1), 32-38.
5. Juniper, E. F.; Guyatt, G. H.; Epstein, R. S.; Ferrie, P. J.; Jaeschke, R.; & Hiller, T. K. (1992). Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials. Thorax, 47(2), 76-83.
6. Adams, R. J.; Ruffin, R. E.; & Smith, B. J. (2000). Validity of a modified version of the marks asthma quality of life questionnaire. Journal of Asthma, 37(2), 131-143.
7. Marks, G. B.; Dunn, S. M.; & Woolcock, A. J. (1993). An evaluation of an asthma quality of life questionnaire as a measure of change in adults with asthma. Journal of Clinical Epidemiology, 46(10), 1103-1111.
8. Marks, G. B.; Dunn, S. M.; & Woolcock, A. J. (1992). A scale for the measurement of quality of life in adults with asthma. Journal of Clinical Epidemiology, 45(5), 461-472.
9. Bayliss, M. S.; Espindle, D. M.; Buchner, D.; Blaiss, M. S.; & Ware, J. E. (2000). A new tool for monitoring asthma outcomes: the ITG asthma short form. Quality of Life Research, 9(4), 451-466.
10. Schatz, M.; Mosen, D.; Kosinski, M.; Vollmer, W. M.; O'Connor, E.; Cook, E. F.; et al. (2007). Validation of the asthma impact survey, a brief asthma-specific quality of life tool. Quality of Life Research, 16(2), 345-355. doi: 10.1007/s11136-006-9103-2.
11. Hyland, M. E. (1991). The living with asthma questionnaire. Respiratory medicine, 85 Suppl B, pp. 13-16; discussion 33-17.
12. Barley, E. A.; Quirk, F. H.; & Jones, P. W. (1998). Asthma health status measurement in clinical practice: validity of a new short and simple instrument. Respiratory Medicine, 92(10), 1207-1214.
13. Jones, P. W.; Quirk, F. H.; Baveystock, C. M.; & Littlejohns, P. (1992). A self-complete measure of health status for chronic airflow limitation. The St. George's respiratory questionnaire. American Review of Respiratory Disease, 145(6), 1321-1327.
14. Hyland, M. E.; Ley, A.; Fisher, D. W.; & Woodward, V. (1995). Measurement of psychological distress in asthma and asthma management programmes. British Journal of Clinical Psychology, 34(Pt 4), 601-611.
15. National Heart, Lung, and Blood Institute. (2007). Expert Panel Report 3: Guidelines for the Diagnosis and Management of Asthma. National Institutes of Public Health Publication No. 97-4051. Bethesda, MD: National Heart, Lung, and Blood Institute.
16. Wilson, S. R.; Rand, C. S.; Cabana, M. D.; Foggs, M. B.; Halterman, J. S.; Olson, L.; et al. (2012). Asthma outcomes: Quality of life. Journal of Allergy and Clinical Immunology, 129(3 Suppl), S88-S123. doi: 10.1016/j.jaci.2011.12.988.
17. Dijkers, M. P. (2003). Individualization in quality of life measurement: instruments and approaches. Archives of Physical Medicine and Rehabilitation, 84(4 Suppl 2), S3-14. doi: 10.1053/apmr.2003.50241.
18. Adams, R.; Rosier, M.; Campbell, D.; & Ruffin, R. (2005). Assessment of an asthma quality of life scale using item-response theory. Respirology, 10(5), 587-593.
19. Turner-Bowker, D. M.; Saris-Baglama, R. N.; Anatchkova, M.; & Mosen, D. M. (2010). A computerized asthma outcomes measure is feasible for disease management. The American Journal of Pharmacy Benefits, 2(2), 119-124.
20. Embretson, S. E.; & Reise, S. (2000). Psychometric methods: Item response theory for psychologists. Mahwah, N.J.: Lawrence Erlbaum Associates, Publishers.
21. Wainer, H.; & Mislevy, R. J. (2000). Item response theory, item calibration, and proficiency estimation. In H. Wainer, N. J. Dorans, D. Eignor, R. Flaugher, B. F. Green, R. J. Mislevy, et al. (Eds.), Computerized adaptive testing: a primer, 2nd ed. Mahwah, N.J.: Lawrence Erlbaum Associates, pp. xxiii, 335 p.
22. Reeve, B.; Hays, R.; Bjorner, J.; Cook, K.; Crane, P.; Teresi, J.; et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(1), S22-S31.
23. DeWalt, D. A.; Rothrock, N.; Yount, S.; & Stone, A. A. (2007). Evaluation of item candidates: the PROMIS qualitative item review. Medical Care, 45(5 Suppl 1), S12-S21. doi: 10.1097/01.mlr.0000254567.79743.e2.
24. Benninger, M. S.; & Senior, B. A. (1997). The development of the rhinosinusitis disability index. Archives of Otolaryngology - Head & Neck Surgery, 123(11), 1175-1179.
25. Sibbald, B.; Collier, J.; & D'Souza, M. (1986). Questionnaire assessment of patients' attitudes and beliefs about asthma. Family Practice, 3(1), 37-41.
26. Tu, S. P.; McDonell, M. B.; Spertus, J. A.; Steele, B. G.; & Fihn, S. D. (1997). A new self-administered questionnaire to monitor health-related quality of life in patients with COPD. Ambulatory Care Quality Improvement Project (ACQUIP) Investigators. Chest, 112(3), 614-622.
27. Yeatts, K. B.; Stucky, B.; Thissen, D.; Irwin, D.; Varni, J. W.; DeWitt, E. M.; et al. (2010). Construction of the pediatric asthma impact scale (PAIS) for the patient-reported outcomes measurement information system (PROMIS). Journal of Asthma, 47(3), 295-302. doi: 10.3109/02770900903426997.
28. Nathan, R. A.; Sorkness, C. A.; Kosinski, M.; Schatz, M.; Li, J. T.; Marcus, P.; et al. (2004). Development of the asthma control test: a survey for assessing asthma control. Journal of Allergy and Clinical Immunology, 113(1), 59-65. doi: 10.1016/j.jaci.2003.09.008.
29. Vollmer, W. M.; Markson, L. E.; O'Connor, E.; Sanocki, L. L.; Fitterman, L.; Berger, M.; et al. (1999). Association of asthma control with health care utilization and quality of life. American Journal of Respiratory and Critical Care Medicine, 160(51), 6.
30. Lara, M.; Ramos, G.; Gonzales, J.; Lopez, F.; Morales, B.; Marin, H.; et al. (2013). Reducing quality of care disparities for childhood asthma: La Red de Asma Infantil Intervention in San Juan, Puerto Rico. Pediatrics, 131(Suppl1), S26-S37.
31. Cabana, M. D.; Slish, K. K.; Nan, B.; & Clark, N. M. (2004). Limits of the HEDIS criteria in determining asthma severity for children. Pediatrics, 114(4), 1049-1055. doi: 10.1542/peds.2003-1162-L.
32. Harrington, S.; & Glauber, J. (2011). Improving outcomes in asthma: Advancing quality using NCQA HEDIS measures. http://www.ncqa.org/Portals/0/ Education/NCQA%20Asthma%20webinar%20Oct%202011.pdf. Accessed October 4, 2012.
33. Lara, M.; Sherbourne, C.; Duan, N.; Morales, L.; Gergen, P.; & Brook, R. H. (2000). An English and Spanish pediatric asthma symptom scale. Medical Care, 38(3), 342-350.