Health research involving First Nations, Inuit and Métis children and their communities

Paediatrics and Child Health (Canada)

Volumn 19, Issue 2, 2014, Pages 99-102

  Starkes, Jill M ^h   Baydala, Lola T ^h   Abelson, William H ^h   Banerji, Anna ^h   DuMont Maurice, Raven ^h   Irvine, James ^h   Jetty, Radha ^h   Menard, Keith M ^h   Wong, Sam K ^h   Young, Michael J ^h   Cyr, Halina ^a   Jarvis, James ^b   Monkman, Lisa ^c   Morningstar, Melanie ^d   Ryan, Anna Claire ^e   Sangster, Anthony ^a   Thornton, Nancy ^a   Vides, Eduardo ^f   Wasekeesikaw, Fjola Hart ^g  

^a HEALTH CANADA   (Canada)

^b AMERICAN ACADEMY OF PEDIATRICS   (United States)

^c Indigenous Physicians Association of Canada   (Canada)

^d Assembly of First Nations   (Canada)

^e Inuit Tapiriit Kanatami Health and Environment   (Canada)

^f Inuit and Métis Health Committee   (Canada)

^g Aboriginal Pharmacists Association of Canada (APAC)   (Canada)

^h NONE

Author keywords

Aboriginal; Community based participatory research; Indigenous; Research methods; Social determinants of health

Indexed keywords

ABORIGINE; ARTICLE; BIOETHICS; CANADA; CHILD HEALTH; CULTURAL FACTOR; ESKIMO; HEALTH CARE POLICY; HEALTH DISPARITY; HEALTH SERVICE; HUMAN; JUVENILE; KNOWLEDGE; MEDICAL RESEARCH; PARTICIPATORY RESEARCH; PRACTICE GUIDELINE; SCIENTIST;

EID: 84893743928     PISSN: 12057088     EISSN: None     Source Type: Journal    
DOI: 10.1093/pch/19.2.99     Document Type: Article

References (40)

1. Canadian Institutes of Health Research; Natural Sciences and Engineering Research Council of Canada; Social Sciences and Humanities Research Council of Canada. Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, or "TCPS 2". Secretariat on Research Ethics, November 29, 2010: http://www.ethics.gc.ca/eng/resources-ressources/newsnouvelles/nr-cp/2010- 12-07/ (Accessed November 18, 2013).
2. Fernandez C; Canadian Paediatric Society, Bioethics Committee. Ethical issues in health research in children. Paediatr Child Health 2008;13(8):707-20: http://www.cps.ca/en/documents/position/ethical-issues-in-health-research-in- children (Accessed January 2, 2014)
3. American Academy of Pediatrics, Committee on Native American Child Health; Committee on Community Health Services. Ethical considerations in research with socially identifiable populations. Pediatrics 2004;113(1 Pt 1):148-51.
4. Centre of Genomics and Policy (CGP), Maternal Infant Child and Youth Research Network (MICYRN), 2012. Best practices for health research involving children and adolescents: Genetic, pharmaceutical, and longitudinal studies: http://www.genomicsandpolicy.org/best-practices.html (Accessed November 18, 2013).
5. Greenwood ML, de Leeuw SN. Social determinants of health and the future well-being of Aboriginal children in Canada. Paediatr Child Health 2012;17(7):381-4.
6. Smylie J, Fell D, Ohlsson A; Joint Working Group on First Nations Indian Inuit; Métis Infant Mortality of the Canadian Perinatal Surveillance System. A review of Aboriginal infant mortality rates in Canada: Striking and persistent Aboriginal/non-Aboriginal inequities. Can J Public Health 101(2):143-8.
7. MacMillan HL, Jamieson E, Walsh C, Boyle M, Crawford A, MacMillan A. The health of Canada's Aboriginal children: Results from the First Nations and Inuit Regional Health Survey. Int J Circumpolar Health 2010;69(2):158-67.
8. Smylie J, Adomako P. Indigenous children's health report: Health assessment in action. Toronto: Keenan Research Centre, 2009.
9. Findlay L, Janz T. Health of First Nations children living off reserve and Métis children younger than age 6. Health Rep 2012;23(1):31-9.
10. Raphael D. The health of Canada's children. Part I: Canadian children's health in comparative perspective. Paediatr Child Health 2010;15(1):23-9.
11. Elton-Marshall T, Leatherdale ST, Burkhalter R, Brown KS. Changes in tobacco use, susceptibility to future smoking, and quit attempts among Canadian youth over time: A comparison of off-reserve Aboriginal and non-Aboriginal youth. Int J Environ Res Public Health 2013;10(2):729-41.
12. Webster PC. Prescription drug abuse rising among Aboriginal youths. CMAJ 2012;184(12):E647-8.
13. Rawana JS, Ames ME. Protective predictors of alcohol use trajectories among Canadian Aboriginal youth. J Youth Adolesc 2012;41(2):229-43.
14. Chachamovich E, Haggarty J, Cargo M, Hicks J, Kirmayer LJ, Turecki G. A psychological autopsy study of suicide among Inuit in Nunavut: Methodological and ethical considerations, feasibility and acceptability. Int J Circumpolar Health 2013;72:20078.
15. Ning A, Wilson K. A research review: Exploring the health of Canada's Aboriginal youth. Int J Circumpolar Health 2012;71.
16. Marmot M, Wilkinson RG, eds. Social Determinants of Health, 2nd edn. New York: Oxford University Press, 2005.
17. King M, Smith A, Gracey M. Indigenous health part 2: The underlying causes of the health gap. Lancet 2009;374(9683): 76-85.
18. Viner RM, Ozer EM, Denny S, et al. Adolescence and the social determinants of health. Lancet 2012;379(9826):1641-52.
19. Hertzman C, Siddiqi A, Hertzman E, et al. Bucking the inequality gradient through early child development. BMJ 2010;340:c468.
20. Reading CL, Wien F. Health inequalities and the social determinants of Aboriginal peoples' health. Prince George: National Collaborating Centre for Aboriginal Health, 2009: http://www.nccah-ccnsa.ca/docs/social%20determinates/ nccah-loppie-wien-report.pdf (Accessed November 18, 2013).
21. Smylie J, Anderson M. Understanding the health of Indigenous peoples in Canada: Key methodological and conceptual challenges. CMAJ 2006;175(6):602-5.
22. Postl BD, Cook CL, Moffatt M. Aboriginal child health and the social determinants: Why are these children so disadvantaged? Health Q 2010;14(Spec No 1):42-51.
23. Castellano MB. From truth to reconciliation: Transforming the legacy of residential schools. Ottawa: Aboriginal Healing Foundation Research Series, 2008: http://www.ahf.ca/downloads/from-truth-to-reconciliation-transforming-the- legacy-of-residential-schools.pdf (Accessed November 18, 2013).
24. Mosby I. Administering colonial science: Nutrition research and human biomedical experimentation in Aboriginal communities and residential schools, 1942-1952. Soc Hist 2013;46(91):145-72.
25. Schnarch B. Ownership, control, access, and possession (OCAP) or self-determination applied to research: A critical analysis of contemporary First Nations research and some options for First Nations communities. J Aboriginal Health 2004;1(1):80-95.
26. Young TK. Review of research on aboriginal populations in Canada: Relevance to their health needs. BMJ 2003;327(7412): 419-22.
27. Wilson K, Young TK. An overview of Aboriginal health research in the social sciences: Current trends and future directions. Int J Circumpolar Health 2008;67(2-3):179-89.
28. Castellano MB. Ethics of Aboriginal research. J Aboriginal Health 2004;1(1):98-114.
29. Fletcher F, Baydala L, Letendre L, et al. "No lone person:" The ethics consent process as an ethical dilemma in carrying out community-based participatory research with a First Nations community. Pimatisiwin 2011;9(2):323-46.
30. Baydala L, Letendre S. "Why do I need to sign it?" Issues in carrying out child assent in school-based prevention research within a First Nation community. First Peoples Child and Family Review 2011;6(1):99-113.
31. CIHR Guidelines for Health Research Involving Aboriginal People. Ottawa: Canadian Institutes of Health Research, 2007: http://www.cihr-irsc.gc.ca/e/ 29134.html (Accessed November 19, 2013).
32. Flicker S, Worthington CA. Public health research involving aboriginal peoples: Research ethics board stakeholders' reflections on ethics principles and research processes. Can J Public Health 2012;103(1):19-22.
33. Maar MA, Lightfoot NE, Sutherland ME, et al. Thinking outside the box: Aboriginal people's suggestions for conducting health studies with Aboriginal communities. Public Health 2011;125(11):747-53.
34. Israel BA, Eng E, Schulz AJ, Parker EA, eds. Methods in Community-based Participatory Research for Health. San Francisco: Jossey Bass/John Wiley & Sons, 2005.
35. Wesley-Esquimaux C, Calliou B. Best practices in Aboriginal community development: A literature review and wise practices approach. Banff, Alta: The Banff Centre, 2010: http://www.banffcentre.ca/indigenous-leadership/library/pdf/ best-practices-in-aboriginal-community-development.pdf (Accessed November 18, 2013).
36. Watson R, Castleden H, Tui'kn Partnership, Masuda J, King M, Stewart M. Identifying gaps in asthma education, health promotion, and social support for Mi'kmaq families in Unama'ki (Cape Breton), Nova Scotia, Canada. Prev Chronic Dis 2012;9:E139.
37. McClymont Peace D, Myers E. Community-based participatory process - climate change and health adaptation program for Northern First Nations and Inuit in Canada. Int J Circumpolar Health 2012;71:1-8.
38. Baydala LT, Sewlal B, Rasmussen C, et al. A culturally adapted drug and alcohol abuse prevention program for aboriginal children and youth. Prog Community Health Partnersh 2009;3(1): 37-46.
39. Pufall EL, Jones AQ, McEwen SA, Lyall C, Peregrine AS, Edge VL. Community-derived research dissemination strategies in an Inuit community. Int J Circumpolar Health 2011;70(5):532-41.
40. Blackstock C, Bruyere D, Moreau E. Many Hands, One Dream: Principles for a new perspective on the health of First Nations, Inuit and Métis children and youth. Ottawa: Canadian Paediatric Society, 2006: http://www.manyhandsonedream.ca/english/manyhandsprinciples.pdf (Accessed December 17, 2013).