Public health Research Involving Aboriginal peoples: Research ethics board Stakeholders' reflections on ethics principles and research processes

Canadian Journal of Public Health

Volumn 103, Issue 1, 2012, Pages 19-22

  Flicker, Sarah ^a   Worthington, Catherine A ^b  

^a YORK UNIVERSITY   (Canada)

^b UNIVERSITY OF VICTORIA   (Canada)

Author keywords

Aboriginal research; Community based participatory research; Ethical review; Ethics; Research

Indexed keywords

EID: 84856154860     PISSN: 00084263     EISSN: None     Source Type: Journal    
DOI: 10.1007/bf03404063     Document Type: Review

References (18)

1. Brant Castellano M. Ethics of Aboriginal research. J Aboriginal Health 2004;1(1):98-114.
2. Poff DC. The importance of story-telling: Research protocols in Aboriginal communities. J Empir Res Hum Res 2006;1(3):27-28.
3. Ball J, Janyst P. Enacting research ethics in partnerships with Indigenous communities in Canada: Do it in a good way. J Empir Res Hum Res 2008;3(2):33-51.
4. Bull JR. Research with Aboriginal Peoples: Authentic relationships as a precursor to ethical research. J Empir Res Hum Res 2010;5(4):13-22.
5. Schinke R, Enosse L, Peltier D, Watson J, Lightfoot N. Cultural missteps and ethical considerations with Indigenous populations: Preliminary reflections from Northeastern Ontario, Canada. J Academic Ethics 2010;8(4):233-42.
6. Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada. Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS2). Ottawa, ON: Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada, 2010.
7. First Nations Centre. OCAP: Ownership, Control, Access and Possession. Ottawa, ON: National Aboriginal Health Organization, 2007.
8. Jacklin K, Kinoshameg P. Developing a participatory Aboriginal health research project: "Only if it's going to mean something". J Empir Res Hum Res 2008;3(2):53-67.
9. Quigley D. A review of improved ethical practices in environmental and public health research: Case examples from Native communities. Health Educ Behav 2006;33(2):130-47.
10. Glass KC, Kaufert J. Research ethics review and Aboriginal community values: Can the two be reconciled? J Empir Res Hum Res 2007;2(2):25-40.
11. Cargo M, Delormier T, Lavesque L, Horm-Miller K, McComber A, Macaulay AC. Can the democratic ideal of participatory research be achieved? An inside look at an academic-indigenous community partnership. Health Educ Res 2008;23(5):904-14.
12. Cochran PAL, Marshall CA, Garcia-Downing C, Kendall E, Cook D, McCubin L, et al. Indigenous ways of knowing: Implications for participatory research and community. Am J Public Health 2008;98(1):22-27.
13. Couzos S, Lea T, Murray R, Culbong M. 'We are not just participants-We are in charge': The NACCHO ear trial and the process for Aboriginal community-controlled health research. Ethnic Health 2005;10(2):91-111.
14. Israel B, Shulz A, Parker E, Becker A. Review of community based research: Assessing partnership approaches to improve public health. Annu Rev Public Health 1998;19:173-202.
15. QSR International Pty Ltd., NVivo qualitative data analysis software, version 8. 2008.
16. Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. Int J Qual Meth 2006;5(1):67-79.
17. Boyatzis RE. Transforming Qualitative Information: Thematic Analysis and Code Development. Thousand Oaks, CA: Sage Publications Ltd., 1998.
18. Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Res Psychol 2006;3(2):77-101.