Uniting postcolonial, discourse, and linguistic theory to explore participation of African Americans in cancer research as an effect of social and historical race relationships

Advances in Nursing Science

Volumn 37, Issue 1, 2014, Pages 32-47

  Somayaji, Darryl ^a,b   Cloyes, Kristin Gates ^c  

^a UNIVERSITY OF MASSACHUSETTS BOSTON   (United States)

^b ROSWELL PARK CANCER INSTITUTE   (United States)

^c UNIVERSITY OF UTAH   (United States)

Author keywords

African American; cancer research; discourse analysis; race; social identity

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; CLINICAL TRIAL (TOPIC); COMMUNICATION DISORDER; ETHNOLOGY; FEMALE; HISTORY; HUMAN; INFORMATION PROCESSING; LINGUISTICS; MALE; METHODOLOGY; MIDDLE AGED; NEOPLASM; NURSING RESEARCH; PATHOLOGY; PATIENT PARTICIPATION; PATIENT SELECTION; POLITICAL SYSTEM; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RACISM; REVIEW; SOCIAL BEHAVIOR; SOCIAL PROBLEM; STATISTICS; UNITED STATES;

ADULT; AFRICAN AMERICANS; AGED; CLINICAL TRIALS AS TOPIC; COLONIALISM; COMMUNICATION BARRIERS; FEMALE; FOCUS GROUPS; HISTORY, 19TH CENTURY; HISTORY, 20TH CENTURY; HISTORY, 21ST CENTURY; HUMANS; LINGUISTICS; MALE; MIDDLE AGED; NEOPLASMS; NURSING RESEARCH; PATIENT PARTICIPATION; PATIENT SELECTION; QUALITATIVE RESEARCH; RACE RELATIONS; RACISM; SOCIAL IDENTIFICATION; STATISTICS AS TOPIC; UNITED STATES;

EID: 84893226496     PISSN: 01619268     EISSN: 15505014     Source Type: Journal    
DOI: 10.1097/ANS.0000000000000015     Document Type: Review

References (33)

1. Adams-Campbell LL, Ahaghotu C, Gaskins M, et al. Enrollment of African Americans onto clinical treatment trials: study design barriers. J Clin Oncol. 2004;22(4):730-734. (Pubitemid 41095078)
2. Corbie-Smith G, Miller WC, Ransohoff DF. Interpretations of appropriate minority inclusion in clinical research. Am J Med. 2004;116(4):249-252. (Pubitemid 38224232)
3. Corbie-Smith G, Thomas SB, St. George DMM. Distrust, race, and research. Arch Intern Med. 2002;162(21):2458-2463.
4. Lamerato LE, Marcus PM, Jacobsen G, Johnson CC. Recruitment in the Prostate, Lung, Colorectal, and Ovarian (PLCO) Cancer Screening Trial: the first phase of recruitment at Henry Ford Health System. Cancer Epidemiol Biomarkers Prev. 2008;17(4):827-833. (Pubitemid 351536412)
5. Murthy VH, Krumholz HM, Gross CP. Participation in cancer clinical trials. JAMA. 2004;291(22):2720-2726.
6. Shavers VL, Lynch CF, Burmeister LF. Racial differences in factors that influence the willingness to participate in medical research studies. Ann Epidemiol. 2002;12(4):248-256. (Pubitemid 34414937)
7. Shaya FT, Gbarayor CM, Huiwen Keri Y, Agyeman-Duah M, Saunders E. A perspective on African American participation in clinical trials. Contemp Clin Trials. 2007;28(2):213-217. (Pubitemid 44937882)
8. Gee JP. An Introduction to Discourse Analysis Theory and Method. Vol 2. New York: Routledge; 2005.
9. Bucholtz M, Hall K. Identity and interaction: a sociocultural linguistic approach. Discourse Stud. 2005;7(4/5):585-614. (Pubitemid 41555861)
10. Somayaji D. Negotiating Participation in Oncology Clinical Trials for African-Americans: Race, Identity, Power, and Barriers to Health [Unpublished dissertation]. Salt Lake City, UT: University of Utah; 2012.
11. Bradley EH, Curry LA, Devers KJ. Qualitative data analysis for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007;42(4):1758-1772. (Pubitemid 47024850)
12. Bolen S, Tilburt J, Baffi C, et al. Defining "success" in recruitment of underrepresented populations to cancer clinical trials. Cancer Nurs. 2006;106(6):1197-1204.
13. DiehlKM, Green EM,Weinberg A, et al. Features associated with successful recruitment of diverse patients onto cancer clinical trials: report from the American College of Surgeons Oncology Group. Ann Surg Oncol. 2011;18(13):3544-3550.
14. Duda C, Mahon I, Chen MH, et al. Impact and costs of targeted recruitment of minorities to the National Lung Screening Trial. Clin Trials. 2011;8(2):214-223.
15. Heiney SP, Arp Adams S, Drake BF, Bryant LH, Bridges L, Hebert JR. Successful subject recruitment for a prostate cancer behavioral intervention trial. Clin Trials. 2010;7(4):411-417.
16. Huang H, Coker AD. Examining issues affecting African American participation in research studies. J Black Stud. 2010;40(4):619-636.
17. Lai GY, Gary TL, Tilburt J, et al. Effectiveness of strategies to recruit underrepresented populations into cancer clinical trials. Clin Trials. 2006;3(2):133-141. (Pubitemid 43829213)
18. Taylor JY. Recruitment of three generations of African American Women into genetics research. J Transcult Nurs. 2009;20(2):219-226.
19. Wujcik D, Wolf SN. Recruitment of African Americans to national clinical trials through a clinical trial shared resource. J Health Care Poor Underserved. 2010;21(1A):38-50.
20. Epstein S. The rise of "recruitmentology": clinical research, racial knowledge, and the politics of inclusion and difference. Soc Stud Sci. 2008;38(5): 801-832.
21. Anderson JM, Reimer Kirkham S, Browne AJ, Lynam MJ. Continuing the dialogue: postcolonial feminist scholarship and Bourdieu-discourses of culture and points of connection. Nurs Inq. 2007; 14(3):178-188.
22. Kirkham SR, Anderson JM. Postcolonial nursing scholarship: from epistemology to method. Ans Adv Nurs Sci. 2002;25(1):1-17.
23. Mohammed SA. Moving beyond the "exotic": applying postcolonial theory in health research. Ans Adv Nurs Sci. 2006;29(2):98-109. (Pubitemid 43832884)
24. Ashcroft B, Griffiths G, Tiffin H. Postcolonial Studies. 2nd ed. New York: Routledge; 2007.
25. Public Broadcasting Service. http://www.pbs.org/wnet/aaworld/timeline. html. Accessed June 30, 2013.
26. Skloot R. The Immortal Life of Henrietta Lacks. New York: Random House; 2010.
27. Streubert HJ, Carpenter DR. Qualitative Research in Nursing. Advancing the Humanistic Imperative. Vol 5. Philadelphia, PA: Wolters Kluwer Health/Lippincott Williams & Wilkins; 2011.
28. Thurmond VA. The point of triangulation. J Nurs Scholarsh. 2001;33(3):253-258. (Pubitemid 33614655)
29. Williams P., Laura C, eds. Colonial Discourse and Post-Colonial Theory: A Reader. New York, NY: Columbia University Press; 1994.
30. Hall JM, Fields B. Continuing the conversation in nursing on race and racism. Nursing Outlook. 2013;61(3):164-173.
31. Kagan PN, Smith MC, Cowling WR III, Chinn PL. A nursing manifesto: an emancipatory call for knowledge development, conscience, and praxis. Nurs Philos. 2010;11(1):67-84.
32. Gee JP. How to Do Discourse Analysis: A Toolkit. New York: Routledge; 2011.
33. Ford CL, Airhihenbuwa CO. Critical race theory, race equity, and public health: toward antiracism praxis. Am J Public Health. 2010;100(suppl 1):S30-S35.