Examining issues affecting african american participation in research studies

Journal of Black Studies

Volumn 40, Issue 4, 2010, Pages 619-636

  Huang, Hsin hsin ^a   Coker, Angela D ^a  

^a UNIVERSITY OF MISSOURI ST LOUIS   (United States)

Author keywords

African Americans; Community participatory research; Culturally sensitive research; Intervention research; Recruitment; Research issues; Research participation

Indexed keywords

EID: 77649254415     PISSN: 00219347     EISSN: 15524566     Source Type: Journal    
DOI: 10.1177/0021934708317749     Document Type: Article

References (46)

1. Akbar, N. (1991). Paradigms of African American research. In R. L. Jones (Ed.), Black psychology (3rd ed., pp. 709-725). Berkeley, CA: Cobb & Henry.
2. Ammerman, A., Corbie-Smith, G., St. George, D. M., Washington, C., Weathers, B., & Jackson-Christian, B. (2003). Research expectations among African American church leaders in the PRAISE! project: A randomized trial guided by community-based participatory research. American Journal of Public Health, 93, 1720-1727.
3. Armstrong, T.D., Crum, L.D., Rieger, R.H., Bennett, T.A., & Edwards, L.J. (1990). Attitudes of African Americans toward participation in medical research. Journal of Applied Social Psychology, 29, 552-574.
4. Asante, M.K. (1998). The Afrocentric idea. Philadelphia: Temple University Press.
5. Ashing-Giwa, K. (1999). The recruitment of breast cancer survivors into cancer control studies: A focus on African American women. Journal of the National Medical Association, 91, 255-260.
6. Balcazar, F.E. (1993). Intervention research and the empowerment of African-American men. Journal of Men's Studies, 1, 277-286.
7. Balcazar, F.E., Seekins, T., Fawcett, S.B., & Hopkins, B.L. (1990). Empowering people with physical disabilities through advocacy skills training. American Journal of Community Psychology, 18, 281-296.
8. Banks-Wallace, J. (2000). Womanist ways of knowing: Theoretical considerations for research with African American women. Advances in Nursing Science, 22, 33-45.
9. Beatty, L.A., Wheeler, D., & Gaiter, J. (2004). HIV Prevention research for African Americans: Current and future directions. Journal of Black Psychology, 30, 40-58.
10. Breland-Noble, A.M., Bell, C., & Nicolas, G. (2006). Family first: The development of an evidence-based family intervention for increasing participation in psychiatric clinical care and research in depressed African American adolescents. Family Process, 45, 153-169.
11. Cochran, D.L. (1997). African American fathers focus on the family: A group approach to increasing visibility in research. Social Work With Groups, 20, 75-88.
12. Coker, A.D., & Bryant, R. (2003, Fall). Counseling African Americans: Understanding racial tasks and cultural values. American Association of Behavioral and Social Sciences- AABSS Journal, pp. 7-18.
13. Collins, P.H. (1990). Black feminist thought: Knowledge, consciousness, and the politics of empowerment. Boston: Unwin Hyman.
14. Cook, D.A. (1993). Research in African-American churches: A mental health counseling imperative. Journal of Mental Health Counseling, 15, 320-333.
15. Corbie-Smith, G., Thomas, S.B., Williams, M.V., & Moody-Ayers, S. (1999). Attitudes and beliefs of African Americans toward participation in medical research. Journal of General Internal Medicine, 14, 537-546.
16. Dennis, B.P., & Neese, J.B. (2000). Recruitment and retention of African American elders into community-based research: Lessons learned. Archives of Psychiatric Nursing, 14, 3-11.
17. Earl, C.E., & Penney, P.J. (2001). The significance of trust in the research consent process with African Americans. Western Journal of Nursing Research, 23, 753-762.
18. Freimuth, V.S., Quinn, S.C., Thomas, S.B., Cole, G., Zook, E., & Duncan, T. (2001). African American's views on research and the Tuskegee syphilis study. Social Science & Medicine, 52, 797-808.
19. Gamble, V.N. (1993). A legacy of distrust: African Americans and medical research. American Journal of Preventive Medicine, 9, 35-38.
20. Gary, L.E. (1991). Mental health of African Americans: Research trends and directions. In R. L. Jones (Ed.), Black psychology (3rd ed., pp. 727-745). Berkeley, CA: Cobb & Henry.
21. Gibson, P., & Abrams, L. (2003). Racial difference in engaging, recruiting, and interviewing African American women in qualitative research. Qualitative Social Work: Research and Practice, 2, 457-476.
22. Gorelick, P.B., Harris, Y., Burnett, B., & Bonecutter, F.J. (1998). The recruitment triangle: Reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. An interim report from the African-American Antiplatelet Stroke Prevention Study (AAASPS). Journal of the National Medical Association, 90, 141-145.
23. Green, T.D., Bischoff, L., Coleman, C.L., Sperry, L., & Robinson-Zanartu, C. (2007). The whole truth and nothing but the truth? African American students and university research participation. Journal of Black Studies, 37, 655-676.
24. Hardy, C.M., Wynn, T.A., Huckaby, F., Lisovicz, N., & White-Johnson, F. (2005). African American community health advisors trained as research partners: Recruitment and training. Family & Community Health, 28, 28-40.
25. Hatch, J., Moss, N., Saran, A., Presley-Cantrell, L., & Mallory, C. (1993). Community research: Partnership in Black communities. American Journal of Preventive Medicine, 9, 27-34.
26. Hatchett, B.F., Holmes, K., Duran, D.A., & Davis, C. (2000). African Americans and research participation: The recruitment process. Journal of Black Studies, 30, 664-675.
27. Kerkorian, D., Traube, D.E., & McKay, M.M. (2007). Understanding the African American research experience (KAARE): Implications for HIV prevention. Social Work in Mental Health, 5, 295-312.
28. Leininger, M.M. (1984). Care: An essential human need. Detroit, MI: Wayne State University.
29. Leininger, M.M. (1990). Ethnomethods: The philosophic and epistemic bases to explicate transcultural nursing knowledge. Journal of Transcultural Nursing, 1, 40-51.
30. Mason, S.E. (2005). Offering African Americans opportunities to participate in clinical trials research: How social workers can help. Health & Social Work, 30, 296-304.
31. Morrison, B., & Lilford, R. (2001). How can action research apply to health services? Qualitative Health Research, 11, 436-449.
32. Moynihan, D.P. (1965). The Negro family: The case for national action. Washington, DC: U.S. Department of Labor.
33. Murray, C., & Herrnstein, R. (1994). The bell curve: Intelligence and class structure in American life. New York: Free Press.
34. Nápoles-Springer, A.M., Grumbach, K., Alexander, M., Moreno-John, G., Forte, D., Rangel-Lugo, M.,et al.(2000). Clinical research with older African Americans and Latinos: Perspectives from the community. Research on Aging, 22, 668-691.
35. Plowden, K.O., & Wenger, A.F.Z. (2001). Stranger to friend enabler: Creating a community of caring in African American research using ethnonursing methods. Journal of Transcultural Nursing, 12, 34-39.
36. Qualls, C.D. (2002). Recruitment of African American adults as research participants for a language in aging study: Example of a principled, creative, and vulture-based approach. Journal of Allied Health, 31, 241-246.
37. Robinson, T.L. (2005). The convergence of race, ethnicity, and gender (2nd ed.). Upper Saddle River, NJ: Merrill / Prentice Hall.
38. Rowley, D.L. (1994). Research issues in the study of very low birthweight and preterm delivery among African-American women. Journal of the National Medical Association, 86, 761-764.
39. Smith, Y.R., Johnson, A.M., Newman, L.A., Greene, A., Johnson, T.R.B., & Rogers, J.L. (2007). Perceptions of clinical research participation among African American women. Journal of Women's Health, 16, 423-428.
40. Strauss, R.P., Sengupta, S., Kegeles, S., McLellan, E., Metzger, D., & Eyre, S.,et al.(2001). Willingness to volunteer in future preventive HIV vaccine trials: Issues and perspectives from three U.S. communities. Journal of Acquired Immune Deficiency Syndromes, 26, 63-71.
41. Stringer, E.T. (1999). Action research (2nd ed.). Thousand Oaks, CA: Sage.
42. Thompson, E.E., Neighbors, H.W., Munday, C., & Jackson, J.S. (1996). Recruitment and retention of African American patients for clinical research: An exploration of response rates in an urban psychiatric hospital. Journal of Consulting and Clinical Psychology, 64, 861-867.
43. Tillman, L.C. (2006). Researching and writing from an African-American perspective: Reflective notes on three research studies. International Journal of Qualitative Studies in Education, 19, 265-287.
44. Welsh, K.A., Ballard, E., Nash, F., Raiford, K., & Harrell, L. (1994). Issues affecting minority participation in research studies of Alzheimer disease. Alzheimer Disease & Associated Disorders, 8, 38-48.
45. Wheeler, D.P. (2003). Methodological issues in conducting community-based health and social services research among urban Black and African American LGBT populations. Journal of Gay & Lesbian Social Services: Issues in Practice, Policy & Research, 15, 65-78.
46. Wyche, K.F. (1993). Psychology and African-American women: Findings from applied research. Applied & Preventive Psychology, 2, 115-121.