Approaches to enhancing the early detection of autism spectrum disorders: A systematic review of the literature

Journal of the American Academy of Child and Adolescent Psychiatry

Volumn 53, Issue 2, 2014, Pages 141-152

  Daniels, Amy M ^a   Halladay, Alycia K ^b   Shih, Andy ^b   Elder, Lauren M ^b   Dawson, Geraldine ^c  

^a Public Health Research at Autism Speaks   (United States)

^b Environmental and Clinical Sciences at Autism Speaks ^*  (United States)

^c DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

age; autism; diagnosis; early detection; screening

Indexed keywords

AUTISM; CHILD; CLINICAL EFFECTIVENESS; CLINICAL PRACTICE; EARLY DIAGNOSIS; EARLY INTERVENTION; FOLLOW UP; GROWTH RETARDATION; HUMAN; INFORMATION RETRIEVAL; INTERNET; MEDICAID; PARENT; PATIENT REFERRAL; PEER REVIEW; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; QUALITY CONTROL; RANDOMIZED CONTROLLED TRIAL (TOPIC); REVIEW; SCREENING; UNITED STATES; AWARENESS; DIAGNOSTIC APPROACH ROUTE; OUTCOME ASSESSMENT; SYSTEMATIC REVIEW; CHILD DEVELOPMENT DISORDERS, PERVASIVE;

CHILD DEVELOPMENT DISORDERS, PERVASIVE; EARLY DIAGNOSIS; HUMANS;

EID: 84893183376     PISSN: 08908567     EISSN: 15275418     Source Type: Journal    
DOI: 10.1016/j.jaac.2013.11.002     Document Type: Review

References (66)

1. C.P. Johnson, S.M. Myers and the Council on Children with Disabilities Clinical report - identification and evaluation of children with autism spectrum disorders Pediatrics 120 2007 1183 1215 (Pubitemid 350085561)
2. G. Dawson, S. Rogers, and J. Munson et al. Randomized, controlled trial of an intervention for toddlers with autism: The Early Start Denver model Pediatrics 125 2010 e17 e23
3. B. Reichow Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders J Autism Dev Disord 42 2012 512 520
4. B. Reichow, E.E. Barton, B.A. Boyd, and K. Hume Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD) Cochrane Database Syst Rev 10 2012 CD009260
5. P.T. Shattuck, M. Durkin, and M. Maenner et al. Timing of identification among children with an autism spectrum disorder: findings from a population-based surveillance study J Am Acad Child Adolesc Psychiatry 48 2009 474 483
6. Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators, Centers for Disease Control and Prevention Prevalence of autism spectrum disorders - autism and developmental disabilities monitoring network, 14 sites, United States, 2008 MMWR Surveill Summ 61 2012 1 19
7. Daniels AM, Mandell DS. Explaining differences in age at autism spectrum disorder diagnosis: a critical review [published online ahead of print June 2013]. Autism. http://dx.doi.org/10.1177/1362361313480277.
8. C.A. Boyle, S. Boulet, and L.A. Schieve et al. Trends in the prevalence of developmental disabilities in US children, 1997-2008 Pediatrics 127 2011 1034 1042
9. M.D. Kogan, S.J. Blumberg, and L.A. Schieve et al. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007 Pediatrics 124 2009 1395 1403
10. V.G. Jarquin, L.D. Wiggins, L.A. Schieve, and K. Van Naarden-Braun Racial disparities in community identification of autism spectrum disorders over time; metropolitan Atlanta, Georgia, 2000-2006 J Dev Behav Pediatr 32 2011 179 187
11. Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators, Centers for Disease Control and Prevention (CDC) Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006 MMWR Surveill Summ 58 2009 1 20
12. K.L. Daniel, C. Prue, M.K. Taylor, J. Thomas, and M. Scales 'Learn the signs. Act early': A campaign to help every child reach his or her full potential Public Health 123 Suppl 1 2009 e11 e16
13. S. Klein, and D. McCarthy North Carolina's ABCD program: Using community care networks to improve the delivery of childhood developmental screening and referral to early intervention services Issue Brief (Commonwealth Fund) 66 2009 1 28
14. Interagency Autism Coordinating Committee. 2011 strategic plan for autism disorder research. 2011:1-105. Available at: http://iacc.hhs.gov/strategic- plan/2011/index.shtml. Accessed August 1, 2013.
15. A.C. Weller Mounting evidence that librarians are essential for comprehensive literature searches for meta-analyses and Cochrane reports J Med Libr Assoc 92 2004 163 164 (Pubitemid 39359117)
16. K.A. Kobak, W.L. Stone, O.Y. Ousley, and A. Swanson Web-based training in early autism screening: results from a pilot study Telemed e-Health 17 2011 640 644
17. L.M. Nalven, D. Hofkosh, H. Feldman, and K. Kelleher Teaching pediatric residents about early intervention and special education J Dev Behav Pediatr 18 1997 371 376 (Pubitemid 127454822)
18. S.T. Elmensdorp Training physicians on the early behavioral characteristics of autism: the use of a brief, group didactic training module [PhD thesis] 2011 University of California Santa Barbara Santa Barbara, CA 17
19. C.M. Bruhn, D. Duval, and R. Louderman Centralized assessment of early developmental delays in children in foster care: a program that works Child Youth Serv Rev 30 2007 536 545
20. M.F. Earls, J.E. Andrews, and S.S. Hay A longitudinal study of developmental and behavioral screening and referral in North Carolina's Assuring Better Child Health and Development participating practices Clin Pediatr (Phila) 48 2009 824 833
21. M.F. Earls, and S.S. Hay Setting the stage for success: Implementation of developmental and behavioral screening and surveillance in primary care practice - the North Carolina Assuring Better Child Health and Development (ABCD) project Pediatrics 118 2006 e183 e188
22. G.E. Eddey, K.L. Robey, P. Zumoff, and Z.Q. Maliq Multi-disciplinary screening in an arena setting for developmental delay in children from birth to six years of age Infant-Toddler Interv 5 1995 233 242
23. D.S. Grossman, A.L. Mendelsohn, M.G. Tunik, B. Dreyer, S.B. Berkule, and G.L. Foltin Screening for developmental delay in high-risk users of an urban pediatric emergency department Pediatr Emerg Care 26 2010 793 797
24. J.P. Guevara, M. Gerdes, and R. Localio et al. Effectiveness of developmental screening in an urban setting Pediatrics 131 2013 30 37
25. J. Kavanagh, M. Gerdes, K. Sell, M. Jimenez, and J. Guevara Series: an integrated approach to supporting child development PolicyLab 2012 1 16
26. G.F. Gura, M.T. Champagne, and J.E. Blood-Siegfried Autism spectrum disorder screening in primary care J Dev Behav Pediatr 32 2011 48 51
27. J.W. Harrington, R. Bai, and A.M. Perkins Screening children for autism in an urban clinic using an electronic M-CHAT Clin Pediatr 52 2013 35 41
28. S.L. Hepburn, C. DiGuiseppi, S. Rosenberg, K. Kaparich, C. Robinson, and L. Miller Use of a teacher nomination strategy to screen for autism spectrum disorders in general education classrooms: a pilot study J Autism Dev Disord 38 2008 373 382 (Pubitemid 351161430)
29. H. Hix-Small, K. Marks, J. Squires, and R. Nickel Impact of implementing developmental screening at 12 and 24 months in a pediatric practice Pediatrics 120 2007 381 389 (Pubitemid 47219509)
30. K. Marks, H. Hix-Small, K. Clark, and J. Newman Lowering developmental screening thresholds and raising quality improvement for preterm children Pediatrics 123 2009 1516 1523
31. S.H. Jee, M. Szilagyi, and C. Ovenshire et al. Improved detection of developmental delays among young children in foster care Pediatrics 125 2010 282 289
32. T.M. King, S.D. Tandon, and M.M. Macias et al. Implementing developmental screening and referrals: lessons learned from a national project Pediatrics 125 2010 350 360
33. Mauch D, Pfefferle S, Booker C, Pustell M, Levin J. Report on state services to individuals with autism spectrum disorders (ASD), center for Medicare and Medicaid services (CMS) ASD services project. 2011;2-10 CMS-33, no. 2.
34. E. McGookin, and V. D'Sa Developmental screening in a pediatric care practice Med Health R I 94 2011 194 196
35. J.S. Miller, T. Gabrielsen, and M. Villalobos et al. The Each Child Study: systematic screening for autism spectrum disorders in a pediatric setting Pediatrics 127 2011 866 871
36. M.T. O'Hara, C.C. Church, and S.D. Blatt Home-based developmental screening of children in foster care Pediatr Nurs 24 1998 113 117
37. K. Pierce, C. Carter, and M. Weinfeld et al. Detecting, studying, and treating autism early: The one-year well-baby check-up approach J Pediatr 159 2011 458 465 e1-6
38. J.A. Pinto-Martin, M.C. Souders, E. Giarelli, and S.E. Levy The role of nurses in screening for autistic spectrum disorder in pediatric primary care J Pediatr Nurs 20 2005 163 169 (Pubitemid 40755445)
39. A.M. Roux, P. Herrera, C.M. Wold, M.C. Dunkle, F.P. Glascoe, and P.T. Shattuck Developmental and autism screening through 2-1-1: reaching underserved families Am J Prev Med 43 6 Suppl 5 2012 S457 S463
40. D.A. Rybski, and E. Wilder A pilot study to identify developmental delay in children in underserved urban community child care settings J Allied Health 37 2008 e34 e49
41. A. Schonwald, N. Huntington, E. Chan, W. Risko, and C. Bridgemohan Routine developmental screening implemented in urban primary care settings: more evidence of feasibility and effectiveness Pediatrics 123 2009 660 668
42. S.A. Thomas, W. Cotton, X. Pan, and K. Ratliff-Schaub Comparison of systematic developmental surveillance with standardized developmental screening in primary care Clin Pediatr (Phila) 51 2012 154 159
43. S.G. Allen, A.D. Berry, J.A. Brewster, R.K. Chalasani, and P.K. Mack Enhancing developmentally oriented primary care: an Illinois initiative to increase developmental screening in medical homes Pediatrics 126 2010 S160 S164
44. S.C. Bauer, P.J. Smith, A.T. Chien, A.D. Berry, and M.E. Msall Educating pediatric residents about developmental and social-emotional health Infants Young Child 22 2009 309 320
45. L. Honigfeld, L. Chandhok, and K. Spiegelman Engaging pediatricians in developmental screening: the effectiveness of academic detailing J Autism Dev Disord 42 2011 1175 1182
46. L.K. Koegel, R.L. Koegel, N. Nefdt, R. Fredeen, E.F. Klein, and Y.E. Bruinsma First S.T.E.P.: A model for the early identification of children with autism spectrum disorders J Pos Behav Interv 7 2005 247 252 (Pubitemid 41767067)
47. K. McKay Evaluating model programs to support dissemination: an evaluation of strengthening the developmental surveillance and referral practices of child health providers J Dev Behav Pediatr 27 2006 S26 S29
48. J. Bogin Enhancing developmental services in primary care: the Help Me Grow experience J Dev Behav Pediatr 27 2006 S8 S12
49. P. Shannon, and R. Anderson Developmental screening in community health care centers and pediatric practices: an evaluation of the Baby Steps program Intellect Dev Disabil 46 2008 281 289
50. R. Solomon, S. Clougherty, D. Shaffer, D. Hofkosh, and M. Edwards Community-based developmental assessment sites: a new model for pediatric "child find" activities Infants Young Child 7 1994 67 71
51. Z. Warren, W. Stone, and Q. Humberd A training model for the diagnosis of autism in community pediatric practice J Dev Behav Pediatr 30 2009 442 446
52. P.L. Webb Screening for autism spectrum disorders during well-child visits in a primary care setting J Nurse Pract 7 2011 229 235
53. S. Silow-Carroll Iowa's 1st Five Initiative: improving early childhood developmental services through public-private partnerships Commonwealth Fund 47 2008 1176
54. S. Dosreis, C.L. Weiner, L. Johnson, and C.J. Newschaffer Autism spectrum disorder screening and management practices among general pediatric providers J Dev Behav Pediatr 27 2 Suppl 2006 S88 S94
55. L. Sices, C. Feudtner, J. McLaughlin, D. Drotar, and M. Williams How do primary care physicians manage children with possible developmental delays? A national survey with an experimental design Pediatrics 113 2004 274 282 (Pubitemid 38177077)
56. M.V. Davis, A. Vincus, and M. Eggers et al. Effectiveness of public health quality improvement training approaches: application, application, application J Public Health Manag Pract 18 2012 E1 E7
57. S.J. Phillips, D. Lie, J. Encinas, C.S. Ahearn, and S. Tiso Effective use of interpreters by family nurse practitioner students: is didactic curriculum enough? J Am Acad Nurse Pract 23 2011 233 238
58. J. Gulmans, M. Vollenbroek-Hutten, L. van Gemert-Pijnen, and W. van Harten A Web-based communication system for integrated care in cerebral palsy: experienced contribution to parent-professional communication Int J Integr Care 12 2012 e9
59. L.C. Burton, G.F. Anderson, and I.W. Kues Using electronic health records to help coordinate care Milbank Q 82 2004 457 481 (Pubitemid 39297504)
60. L. Holzer, R. Mihailescu, and C. Rodrigues-Degaeff et al. Community introduction of practice parameters for autistic spectrum disorders: advancing early recognition J Autism Dev Disord 36 2006 249 262 (Pubitemid 43885383)
61. D. Rydz, M. Srour, and M. Oskoui et al. Screening for developmental delay in the setting of a community pediatric clinic: a prospective assessment of parent-report questionnaires Pediatrics 118 2006 e1178 e1186
62. C.B. McCoy, M. Pereyra, L.R. Metsch, F. Collado-Mesa, S.E. Messiah, and S. Sears A community-based breast cancer screening program for medically underserved women: its effect on disease stage at diagnosis and on hazard of death Rev Panam Salud Publica 15 2004 160 167 (Pubitemid 38541756)
63. M.E. Mitchell-Beren, M.E. Dodds, K.L. Choi, and T.R. Waskerwitz A colorectal cancer prevention, screening, and evaluation program in community black churches CA Cancer J Clin 39 1989 115 118 (Pubitemid 19127236)
64. M.E. Fernandez, M. DeBor, M. Candreia, and B. Flores Dissemination of a breast and cervical cancer early detection program through a network of community-based organizations Health Promot Pract 11 2010 654 664
65. H.P. Freeman Patient navigation: a community based strategy to reduce cancer disparities J Urban Health 83 2006 139 141 (Pubitemid 44341563)
66. C.L. Holt, M. Shipp, M. Eloubeidi, M.N. Fouad, K. Britt, and M. Norena Your body is the temple: impact of a spiritually based colorectal cancer educational intervention delivered through community health advisors Health Promot Pract 12 2011 577 588