Reducing bottlenecks: Professionals' and adolescents' experiences with transitional care delivery

BMC Health Services Research

Volumn 14, Issue , 2014, Pages

  Nieboer, Anna P ^a   Cramm, Jane M ^a   Sonneveld, Henk M ^a   Roebroeck, Marij E ^b   Van Staa, Anneloes ^a,c   Strating, Mathilde Mh ^a  

^a Erasmus University Rotterdam   (Netherlands)

^b ERASMUS MEDICAL CENTER   (Netherlands)

^c ROTTERDAM UNIVERSITY OF APPLIED SCIENCES   (Netherlands)

Author keywords

Adolescents; Bottlenecks; Quality improvement programme; Quality of care; Transition programme; Transitional care

Indexed keywords

ADOLESCENT; ARTICLE; CHRONIC DISEASE; FEMALE; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; HUMAN; MALE; NONBIOLOGICAL MODEL; ORGANIZATION AND MANAGEMENT; QUESTIONNAIRE; STANDARD; TOTAL QUALITY MANAGEMENT; TRANSITION TO ADULT CARE;

ADOLESCENT; ATTITUDE OF HEALTH PERSONNEL; CHRONIC DISEASE; FEMALE; HUMANS; MALE; MODELS, ORGANIZATIONAL; QUALITY IMPROVEMENT; QUALITY OF HEALTH CARE; QUESTIONNAIRES; TRANSITION TO ADULT CARE;

EID: 84893168403     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-14-47     Document Type: Article

References (35)

1. The challenges and opportunities for transitional care research. McDonagh JE, Kelly DA, Pediatr Transplant 2010 14 6 688 700 10.1111/j.1399-3046.2010. 01343.x 20557475
2. Good practices that address continuity during transition from child to adult care: synthesis of the evidence. While A, Forbes A, Ullman R, Lewis S, Mathes L, Griffiths P, Child Care Health Dev 2004 30 5 439 452 10.1111/j.1365-2214.2004.00440.x 15320921 (Pubitemid 39255777)
3. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the society for adolescent medicine. Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM, J Adolesc Health 2003 33 309 311 10.1016/S1054-139X(03)00208-8 14519573
4. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the society for adolescent medicine. Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB, J Adolesc Health 1993 14 570 576 10.1016/1054-139X(93)90143-D 8312295 (Pubitemid 23345069)
5. Adolescents' and young adults' transition experiences when transferring from paediatric to adult care. Fegran L, Hall EO, Uhrenfeldt L, Aagaard H, Ludvigsen MS, Int J Nurs Stud 2013 doi:10.1016/j.ijnurstu.2013.02.001
6. Improving the transition between paediatric and adult healthcare: a systematic review. Crowley R, Wolfe I, Lock K, McKee M, Arch Dis Child 2011 96 6 548 553 10.1136/adc.2010.202473 21388969
7. Translating transition: a critical review of the diabetes literature. Nakhla M, Daneman D, Frank M, Guttmann A, J Pediatr Endocrinol Metab 2008 21 507 516 18717235
8. A critical appraisal of literature reviews about the transition to adulthood for youth with disabilities. Stewart D, Stavness C, King G, Antle B, Law M, Phys Occup Ther Pediatr 2006 26 5 24 (Pubitemid 44800467)
9. Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence. Lotstein DS, Seid M, Klingensmith G, Case D, Lawrence JM, Pihoker C, Dabelea D, Mayer-Davis EJ, Gilliam LK, Corathers S, Imperatore G, Dolan L, Anderson A, Bell RA, Waitzfelder B, SEARCH for Diabetes in Youth Study Group, Pediatrics 2013 131 4 1062 1070 10.1542/peds.2012-1450
10. Patients' Perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. Lugasi T, Achille M, Stevenson M, J Adolesc Health 2011 48 5 429 440 10.1016/j.jadohealth.2010.10.016 21501800
11. Transition from pediatric to adult services: are we getting it right? Kennedy A, Sawyer S, Curr Opin Pediatr 2008 20 4 403 409 10.1097/MOP. 0b013e328305e128 18622194
12. Adult outcomes and lifespan issues for people with childhood-onset physical disability. Roebroeck ME, Jahnsen R, Carona C, Kent RM, Chamberlain MA, Dev Med Child Neurol 2009 51 670 678 10.1111/j.1469-8749.2009.03322.x 19627341
13. Transitions in the lives of young people with complex healthcare needs. Kirk S, Child Care Health Dev 2008 34 5 567 575 10.1111/j.1365-2214.2008.00862.x 18796049
14. Lost in transition? Between paediatric and adult services. McDonagh JE, Viner RM, BMJ 2006 332 7539 435 436 10.1136/bmj.332.7539.435 16497736 (Pubitemid 43342038)
15. What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Binks JA, Barden WS, Burke TA, Binks JA, Barden WS, Burke TA, Young NL, Arch Phys Med Rehabil 2007 88 1064 1073 10.1016/j.apmr.2007.04.018 17678671 (Pubitemid 47126391)
16. Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices. McLaughlin SE, Diener-West M, Indurkhya A, Rubin H, Heckmann R, Boyle MP, Pediatrics 2008 121 1160 e1166 10.1542/peds.2007-2217 18450860
17. A comparison of five transition programmes for youth with chronic illness in Canada. Grant C, Pan J, Child Care Health Dev 2011 37 6 815 820 10.1111/j.1365-2214.2011.01322.x 22007981
18. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. van Staa AL, Jedeloo S, van Meeteren J, Latour JM, Child Care Health Dev 2011 37 6 821 832 10.1111/j.1365-2214.2011.01261.x 22007982
19. Transitie in zorg van jongeren met chronische aandoeningen in Nederland nog onder de maat. [Transition of care for young people with chronic conditions: substandard in the Netherlands.]. van Staa AL, de Burgt AE ES-v, van der Stege HA, Hilberink SR, Tijdschr Kindergeneeskd 2010 78 6 227 236 10.1007/s12456-010- 0056-6
20. Institute for Healthcare Improvement (IHI), The Breakthrough Series: IHI's Collaborative Model for Achieving Breakthrough Improvement Boston: Institute for Healthcare Improvement 2003 IHI Innovation Series white paper
21. Gaps in transitional care: what are the perceptions of adolescents, parents and providers? Sonneveld HM, Strating MM, van Staa AL, Nieboer AP, Child Care Health Dev 2013 39 1 69 80 10.1111/j.1365-2214.2011.01354.x 22329453
22. The importance of general selfefficacy for the quality of life of adolescents with chronic conditions. Cramm JM, Strating MMH, Roebroeck ME, Nieboer AP, Soc Indic Res 2013 113 1 551 561 10.1007/s11205-012-0110-0 23874059
23. The longitudinal relationship between satisfaction with transitional care and social and emotional quality of life among chronically ill adolescents. Cramm JM, Strating MMH, Sonneveld HM, Nieboer AP, Appl Res Qual Life 2013 8 481 491 10.1007/s11482-012-9209-3 24058386
24. Relationships between quality of life and satisfaction with care and self-efficacy in adolescents with diabetes. Cramm JM, Strating MMH, Sonneveld HM, Nieboer AP, Child Indic Res. 6 3 593 604
25. van Staa AL, Schoots JW, Op Eigen Benen Vooruit! Betere transitiezorg voor jongeren met chronische aandoeningen. Resultaten van het Actieprogramma Op Eigen Benen Vooruit! (2008-2012). [On Your Own Feet Ahead! Better transitional care for youth with chronic conditions. Results of the Action Programme On Your Own Feet Ahead! (2008-2012) Rotterdam: Hogeschool Rotterdam/Rotterdam University 2012
26. Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. McDonagh JE, Southwood TR, Shaw KL, J Child Health Care 2006 10 1 22 42 10.1177/1367493506060203 16464931
27. Users' perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Shaw KL, Southwood TR, McDonagh JE, Rheumatology 2004 43 770 778 10.1093/rheumatology/keh175 15039498 (Pubitemid 38807436)
28. Development and preliminary validation of the 'mind the gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis. Shaw KL, Southwood TR, McDonagh JE, Child Care Health Dev 2007 33 4 380 388 10.1111/j.1365-2214.2006.00699.x 17584392 (Pubitemid 46909323)
29. Voices not heard: a systematic review of adolescents' and emerging adults' perspectives of health care transition. Betz CL, Lobo ML, Nehring WM, Bui K, Nurs Outlook 2013 61 5 311 336 10.1016/j.outlook.2013.01.008 23876260
30. Towards safer, better healthcare: harnessing the natural properties of complex sociotechnical systems. Braithwaite J, Runciman WB, Merry AF, Qual Saf Health Care 2009 18 1 37 41 10.1136/qshc.2007.023317 19204130
31. Evidence for the impact of quality improvement collaboratives: systematic review. Schouten LM, Hulscher ME, van Everdingen JJ, Huijsman R, Grol RP, BMJ 2008 336 7659 1491 1494 10.1136/bmj.39570.749884.BE 18577559 (Pubitemid 351977022)
32. High-quality chronic care delivery improves experiences of chronically ill patients receiving care. Cramm JM, Nieboer AP, Int J Qual Health Care 2013 25 6 689 695 10.1093/intqhc/mzt065 24123243
33. In the Netherlands, rich interaction among professionals conducting disease management led to better chronic care. Cramm JM, Nieboer AP, Health Aff (Millwood) 2012 31 11 2493 2500 10.1377/hlthaff.2011.1304 23129680
34. Efficacy of psychosocial group intervention for children with chronic illness and their parents. Scholten L, Willemen AM, Last BF, Maurice-Stam H, van Dijk EM, Ensink E, Zandbelt N, van der Hoop-Mooij A, Schuengel C, Grootenhuis MA, Pediatrics 2013 131 1196 2003 10.1542/peds.2012-2222
35. Exciting but exhausting: experiences with participatory research with chronically ill adolescents. van Staa AL, Jedeloo S, Latour JM, Trappenburg MJ, Health Expectations 2010 13 1 95 107 10.1111/j.1369-7625.2009.00574.x 19682098