Being in- or out-of-sync: Couples' adaptation to change in multiple sclerosis

Disability and Rehabilitation

Volumn 32, Issue 3, 2010, Pages 196-206

  Starks, Helene ^a   Morris, Megan A ^a   Yorkston, Kathryn M ^a   Gray, Robin F ^b   Johnson, Kurt L ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^b Private Practice   (United States)

Author keywords

Coping; Multiple sclerosis; Relationships; Stress

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; CHILD PARENT RELATION; CHRONIC DISEASE; CLINICAL ARTICLE; CONCEPTUAL FRAMEWORK; CONTROLLED STUDY; COPING BEHAVIOR; EMPLOYMENT STATUS; FAMILY COPING; FAMILY STRESS; FEMALE; HUMAN; HUMAN RELATION; MALE; MULTIPLE SCLEROSIS; PRIORITY JOURNAL; PROBLEM SOLVING; RETIREMENT; RISK FACTOR; ROLE CHANGE; SEMI STRUCTURED INTERVIEW; SOCIAL STATUS;

ADAPTATION, PSYCHOLOGICAL; ADULT; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; RISK FACTORS; SPOUSES; STRESS, PSYCHOLOGICAL;

EID: 72949098626     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638280903071826     Document Type: Article

References (38)

1. Keegan BM, Noseworthy JH. Multiple sclerosis. Annu Rev Med 2002;53:285-302.
2. Kalb R. The emotional and psychological impact of multiple sclerosis relapses. J Neurol Sci 2007;256 (Suppl 1):S29-S33.
3. Joy JE, Johnston RB, editors. Multiple sclerosis: current status and strategies for the future. Washington, D.C.: National Academy Press; 2001.
4. McKeown LP, Porter-Armstrong AP, Baxter GD. The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clin Rehabil 2003;17:234-248.
5. Figved N, Myhr KM, Larsen JP, Aarsland D. Caregiver burden in multiple sclerosis: the impact of neuropsychiatric symptoms. J Neurol Neurosurg Psychiatry 2007;78:1097-1102.
6. Cheung J, Hocking P. Caring as worrying: the experience of spousal carers. J Adv Nurs 2004;47:475-482.
7. Cheung J, Hocking P. The experience of spousal carers of people with multiple sclerosis. Qual Health Res 2004;14:153-166. (Pubitemid 44526384)
8. Chipchase SY, Lincoln NB. Factors associated with carer strain in carers of people with multiple sclerosis. Disabil Rehabil 2001;23:768-776.
9. McKeown LP, Porter-Armstrong AP, Baxter GD. Caregivers of people with multiple sclerosis: experiences of support. Mult Scler 2004;10:219-230.
10. Pakenham KI. The positive impact of multiple sclerosis (MS) on carers: associations between carer benefit finding and positive and negative adjustment domains. Disabil Rehabil 2005;27:985-997.
11. Johnson KL, Bamer AM, Yorkston KM, Amtmann D. Use of cognitive aids and other assistive technology by individuals with multiple sclerosis. Disabil Rehabil, in press.
12. Bowen J, Gibbons L, Gianas A, Kraft GH. Self-administered Expanded Disability Status Scale with Functional System Scores correlates well with a physician-administered test. Multiple Scler 2001;7:201-206.
13. Ware JE, Kosinski M, Dewey JE, Gandek B. How to score and interpret single-item health status measures: a manual for users of the SF-8TM Health Survey. Lincoln, RI: Quality- Metric; 2001.
14. Unutzer J, Patrick DL, Marmon T, Simon GE, Katon WJ. Depressive symptoms and mortality in a prospective study of 2,558 older adults. Am J Geriatric Psychiatry 2002;10:521-530.
15. Zimet GD, Dahlem NW, Zimet SG, Farley GK. The multidimensional scale of perceived social support. J Personal Assess 1988;52:30-41.
16. Hunsley J, Best M, Lefebvre M, Vito D. The seven-item short form of the Dyadic Adjustment Scale: further evidence for construct validity. Am J Family Ther 2001;29:325-335.
17. Morse JM. Principles of mixed methods and multimethod research design. In: Tashakkori A, Teddle C, editors. Handbook of mixed methods in social and behavioral research. Thousand Oaks: Sage Publications; 2003;189-209.
18. Creswell JW, Plano Clark VL, Gutmann ML, Hanson WE. Advanced mixed methods research designs. In: Tashakkori A, Teddle C, editors. Handbook of mixed methods in social and behavioral research. Thousand Oaks: Sage Publications; 2003;209-240.
19. Ayres L, Kavanaugh K, Knafl KA. Within-case and acrosscase approaches to qualitative data analysis. Qual Health Res 2003;13:871-883.
20. Patterson JM. Families experiencing stress: the family adjustment and adaptation response model. Fam Syst Med 1988;6:202-237.
21. Rolland JS. Parental illness and disability: a family systems framework. J Fam Ther 1999;21:242-266.
22. Rolland JS. In sickness and in health - the impact of illness on couples relationships. J Marital Fam Ther 1994;20:327-347.
23. Rolland JS. Chronic illness and the life cycle: a conceptual framework. Fam Process. 1987;26:203-221.
24. Sabourin S, Valois P, Lussier Y. Development and validation of a brief version of the Dyadic Adjustment Scale with a nonparametric item analysis model. Psychol Assess 2005;17:15-27.
25. Kraft GH, Johnson KL, Yorkston K, Amtmann D, Bamer A, Bombardier C, Ehde D, Fraser R, Starks H. Setting the agenda for multiple sclerosis rehabilitation research. Mult Scler 2008;14:1292-1297.
26. Ennis M, Thain J, Boggild M, Baker GA, Young CA. A randomized controlled trial of a health promotion education programme for people with multiple sclerosis. Clin Rehabil 2006;20:783-792.
27. Stuifbergen AK, Becker H, Blozis S, Timmerman G, Kullberg V. A randomized clinical trial of a wellness intervention for women with multiple sclerosis. Arch Physi Med Rehabil 2003;84:467-476.
28. Finlayson M, Garcia JD, Preissner K. Development of an educational programme for caregivers of people aging with multiple sclerosis. Occup Ther Int 2008;15:4-17.
29. Blank CW, Finlayson M. Exploring the impact of multiple sclerosis on couples: a pilot study. Can J Occup Ther 2007;74:134-142.
30. Boeije HR, Duijnstee MS, Grypdonck MH. Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health SocCareCommun 2003;11:242-252.
31. BoeijeHR, vanDoorne-HuiskesA.Fulfilling a senseofduty:how men and women giving care to spouses with multiple sclerosis interpret this role. CommunWork Fam 2004;6:223-244.
32. Courts NF, Buchanan EM, Werstlein PO. Focus groups: the lived experience of participants with multiple sclerosis. J Neurosci Nurs 2004;36:42-47.
33. O'Brien MT. Multiple sclerosis: stressors and coping strategies in spousal caregivers. J Community Health Nurs 1993;10:123-135.
34. Good DM, Bower DA, Einsporn RL. Social support: gender differences in multiple sclerosis spousal caregivers. J Neurosci Nurs 1995;27:305-311.
35. Courts NF, Newton AN, McNeal LJ. Husbands and wives living with multiple sclerosis. J Neurosci Nurs 2005;37:20-27.
36. Koopman WJ, Benbow CL, Vandervoort M. Top 10 needs of people with multiple sclerosis and their significant others. J Neurosci Nurs 2006;38:369-373.
37. The Heuga Center. Can Do Program. 2009; Available at: http://www.heuga.org/programs/can-do#programflyer. Last accessed 3 January 2009.
38. National Multiple Sclerosis Society. Relationship Matters. 2009; Available at:http://www.nationalmssociety.org/livingwith- multiple-sclerosis/ relationships/relationship-matters/index. aspx. Last accessed 3 January 2009.