Satisfaction with oncology care among patients with advanced cancer and their caregivers

Quality of Life Research

Volumn 22, Issue 9, 2013, Pages 2341-2349

  Hannon, Breffni ^a   Swami, Nadia ^a   Krzyzanowska, Monika K ^a,b   Leighl, Natasha ^a,b   Rodin, Gary ^a,c   Le, Lisa W ^a   Zimmermann, Camilla ^a,b  

^a PRINCESS MARGARET HOSPITAL   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

Author keywords

Caregiver satisfaction; Oncology; Palliative care; Patient clinician communication; Quality of life; Satisfaction with care

Indexed keywords

ADULT; AGED; ANALGESIA; ARTICLE; CAREGIVER; DECISION MAKING; FEMALE; HEALTH CARE QUALITY; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NEOPLASM; NURSING; ONCOLOGY; PATIENT SATISFACTION; PERSONAL AUTONOMY; PROGNOSIS; QUALITY OF LIFE; STANDARD; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; COMMUNICATION; DECISION MAKING; FEMALE; HUMANS; MALE; MEDICAL ONCOLOGY; MIDDLE AGED; NEOPLASMS; PAIN MANAGEMENT; PATIENT SATISFACTION; PERSONAL AUTONOMY; PROGNOSIS; QUALITY OF HEALTH CARE; QUALITY OF LIFE;

EID: 84892829082     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-013-0371-3     Document Type: Article

References (60)

1. World Health Organisation. (1989). Quality assurance in health care. Geneva: WHO
2. Aspinal, F., Addington-Hall, J., Hughes, R., & Higginson, I. J. (2003). Using satisfaction to measure quality of palliative care: a review of the literature. Journal of Advanced Nursing, 42(4), 324-339.
3. Heyland, D. K., Cook, D. J., Rocker, G. M., Dodek, P. M., Kutsogiannis, D. J., Skrobik, Y., et al. (2010). The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: The Canadian Health Care Evaluation Project (CANHELP) Questionnaire. Palliative Medicine, 24(7), 682-695.
4. Dy, S. M., Shugarman, L. R., Lorenz, K. A., Mularski, R. A., & Lynn, J. (2008). Systematic review of satisfaction with care at the end of life. Journal of American Geriatric Society, 56, 124-129.
5. Schilling, V., Jenkins, V., & Fallowfield, L. (2003). Factors affecting patient and clinician satisfaction with the clinical consultation: Can communication skills training for clinicians improve satisfaction? Psycho-Oncology, 12, 599-611.
6. Blanchard, C. G., Labrecque, M. S., Ruckdeschel, J. C., & Blanchard, E. B. (1990). Physician behaviors, patient perceptions, and patient characteristics as predictors of satisfaction of hospitalized adult cancer patients. Cancer, 65(1), 186-192.
7. Nguyen, T. V. F., Bosset, J.-F., Monnier, A., Fournier, J., Perrin, V., Baumann, C., et al. (2011). Determinants of patient satisfaction in ambulatory oncology: A cross sectional study based on the OUT-PATSAT35 questionnaire. BMC Cancer, 11, 526-537.
8. Brédart, A., Razavi, D., Delvaux, N., Goodman, V., Farvacques, C., & Van Heer, C. (1998). A comprehensive assessment of satisfaction with care for cancer patients. Supportive Care in Cancer, 6(6), 518-523.
9. Ptacek, J. T., & Ptacek, J. J. (2001). Patients' perceptions of receiving bad news about cancer. Journal of Clinical Oncology, 19(21), 4160-4164.
10. Grunfeld, E., Fitzpatrick, R., Mant, D., Yudkin, P., Adewuyi- Dalton, R., Stewart, J., et al. (1999). Comparison of breast cancer patient satisfaction with follow-up in primary care versus specialist care: Results from a randomized controlled trial. The British Journal of General Practice, 49(446), 705-710.
11. Kleeburg, U. R., Tews, J.-T., Ruprecht, T., Hoing, M., Kuhlmann, A., & Runge, C. (2005). Patient satisfaction and quality of care in cancer outpatients: Results of the PASQAC study. Supportive Care in Cancer, 13, 303-310.
12. Wiggers, J. H., Donovan, K. O., Redman, S., & Sanson-Fisher, R. W. (1990). Cancer patient satisfaction with care. Cancer, 66, 610-616.
13. Von Essen, L., Larsson, G., Oberg, K., & Sjödén, P. O. (2002). 'Satisfaction with care': Associations with health-related quality of life and psychosocial function among Swedish patients with endocrine gastrointestinal tumours. European Journal of Cancer Care, 11(2), 91-99.
14. Sitzia, J.,&Wood, N. (1997). Patient satisfaction:Areview of issues and concepts. Social Science and Medicine, 45(12), 1829-1843.
15. Girgis, A., Johnson, C., Aoun, S.,& Currow, D. (2006). Challenges experienced by informal caregivers in cancer. Cancer Forum, 30(1).
16. Institute of Medicine National Research Council. (2001). Improving palliative care for cancer: Summary and recommendations. Washington, DC: National Academy Press.
17. Northouse, L., Williams, A. L., Given, B., & McCorkle, R. (2012). Psychosocial care for family caregivers of patients with cancer. Journal of Clinical Oncology, 30(11), 1227-1234.
18. Fox, J. G., & Storms, D. M. (1981). A different approach to socio-demographic predictors of satisfaction with healthcare. Social Science & Medicine. Part A, Medical Sociology, 15(5), 557-564.
19. Linder-Pelz, S. (1982). Social psychological determinants of patient satisfaction: A test of 5 hypotheses. Social Science and Medicine, 16, 583-589.
20. Fakhoury, W., McCarthy, M., & Addington-Hall, J. (1996). Determinants of informal caregivers' satisfaction with services for dying cancer patients. Social Science and Medicine, 42(5), 721-731.
21. DuBenske, L. L., Chih, M.-Y., Gustafson, D. H., Dinauer, S., & Cleary, J. F. (2010). Caregivers' participation in the oncology clinic visit mediates the relationship between their information competence and their need fulfillment and clinic visit satisfaction. Patient Education and Counselling, 81S, S94-S99.
22. Hwang, S. S., Chang, V. T., Alejandro, Y., Osenenko, P., Davis, C., Cogswell, J., et al. (2003). Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Palliative and Supportive Care, 1, 319-329.
23. Heyland, D. K., Frank, C., Tranmer, J., Paul, N., Pichora, D., Jiang, X., et al. (2009). Satisfaction with End-of-Life Care: A longitudinal study of patients and their family caregivers in the last months of life. Journal of Palliative Care, 25(4), 245- 256.
24. Addington-Hall, J. M., MacDonald, L. D., Anderson, H. R., Chamberlain, J., Freeling, P., Bland, J. M., et al. (1992). Randomised controlled trial of effects of coordinating care for terminally ill cancer patients. BMJ: British Medical Journal, 305, 1317-1322.
25. Ringdal, G. I., Jordhoy, M. S., & Kaasa, S. (2002). Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. Journal of Pain and Symptom Management, 24(1), 53-63.
26. Aoun, S., Bird, S., Kristjanson, L. J., & Currow, D. (2010). Reliability testing of the FAMCARE-2 scale: Measuring family carer satisfaction with palliative care. Palliative Medicine, 24(7), 674-681.
27. Zimmermann, C., Swami, N., Rodin, G., Tannock, I., Krzyzanowska, M. K., Leighl, N. B., Oza, A. M., Moore, M. J., Rydall, A., & Donner, A. (2012). Cluster-randomized trial of early palliative care for patients with metastatic cancer. Journal of Clinical Oncology, 30, suppl, abstr 9003.
28. Canadian Cancer Statistics. (2012). Produced by: Canadian Cancer Society, Statistics Canada, Provincial/Territorial Cancer Registries, Public Health Agency of Canada. Accessed January 20, 2013 from http://www.cancer.ca/Canada- wide/About%20 cancer/*/media/CCS/Canada%20wide/Files%20List/English% 20files%20heading/PDF%20-%20Policy%20-%20Canadian% 20Cancer%20Statistics%20- %20English/Canadian%20Cancer% 20Statistics%202012%20-%20English.ashx.
29. Oken, M. M., Creech, R. H., Tormey, D. C., Horton, J., Davis, T. E., McFadden, E. T., et al. (1982). Toxicity and response criteria of the Eastern Cooperative Oncology Group. American Journal of Clinical Oncology, 5(6), 649-655.
30. Katzman, R., Brown, T., Fuld, P., Peck, A., Schechter, R., & Schimmel, H. (1983). Validation of a short Orientation-Memory- Concentration Test of cognitive impairment. American Journal of Psychiatry, 140(6), 734-739.
31. Kristjanson, L. J. (1993). Validity and reliability testing of the FAMCARE scale: Measuring family satisfaction with advanced cancer care. Social Science and Medicine, 36, 693-701.
32. Ringdal, G. I., Jordhoy, M. S., & Kaasa, S. (2003). Measuring quality of palliative care: Psychometric properties of the FAMCARE Scale. Quality of Life Research, 12(2), 167- 176.
33. Medigovich, K., Porock, D., Kristjanson, L. J., & Smith, M. (1999). Predictors of family satisfaction with an australian palliative home care service: A test of discrepancy theory. Journal of Palliative Care, 15(4), 48-56.
34. Follwell, M., Burman, D., Le, L. W., Wakimoto, K., Seccareccia, D., Bryson, J., et al. (2009). Phase II study of an outpatient palliative care intervention in patients with metastatic cancer. Journal of Clinical Oncology, 27(2), 206-213.
35. Lo, C., Burman, D., Rodin, G., & Zimmermann, C. (2009). Measuring patient satisfaction in oncology palliative care: Psychometric properties of the FAMCARE-patient scale. Quality of Life Research, 18, 747-752.
36. Lo, C., Burman, D., Hales, S., Swami, N., Rodin, G., & Zimmermann, C. (2009). The FAMCARE-Patient scale: Measuring satisfaction with care of outpatients with advanced cancer. European Journal of Cancer, 45, 3182-3188.
37. Chang, V. T., Hwang, S. S., & Feuerman, M. (2000). Validation of the Edmonton system assessment scale. Cancer, 88, 2164- 2171.
38. Bedard, G., Zeng, L., Zhang, L., Lauzon, N., Holden, L., Tsao, M., Danjoux, C., Barnes, E., Sahgal, A., Poon, M., & Chow, E. (2012). Minimal clinically important differences in the edmonton symptom assessment system in patients with advanced cancer. Journal of Pain & Symptom Management, [Epub ahead of print].
39. Bruera, E., Kuehn, N., Miller, M. J., Selmser, P., & Macmillan, K. (1991). The Edmonton symptom assessment system (ESAS): A simple method for the assessment of palliative care patients. Journal of Palliative Care, 7, 6-9.
40. Weitzner, M. A., Jacobsen, P. B., Wagner, H., Jr, Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) scale: Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research, 8(1-2), 55-63.
41. Weitzner, M. A., & McMillan, S. C. (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) scale: Revalidation in a home hospice setting. Journal of Palliative Care, 15(2), 13-20.
42. Weitzner, M. A., McMillan, S. C., & Jacobsen, P. B. (1999). Family caregiver quality of life: Differences between curative and palliative cancer treatment settings. Journal of Pain and Symptom Management, 17(6), 418-428.
43. Cella, D. F., Tulsky, D. S., Gray, G., Sarafian, B., Linn, E., Bonomi, A., et al. (1993). The Functional Assessment of Cancer Therapy scale: Development and validation of the general measure. Journal of Clinical Oncology, 11(3), 570-579.
44. Peterman, A. H., Fitchett, G., Brady, M. J., Hernandez, L., & Cella, D. (2002). Measuring spiritual well-being in people with cancer: The functional assessment of chronic illness therapyspiritual well-being scale (FACIT-Sp). Annals of Behavioural Medicine, 24(1), 49-58.
45. Isaksen, A. S., Thuen, F., & Hanested, B. (2003). Patients with cancer and their close relatives. Cancer Nursing, 26(1), 68-74.
46. Malacrida, R., Bettelini, C. M., Degrate, A., Martinez, M., Badia, F., Piazza, J., et al. (1998). Reasons for dissatisfaction: A survey of relatives of intensive care patients who died. Critical Care Medicine, 26, 1187-1193.
47. Jefford, M., & Tattersall, M. H. N. (2002). Informing and involving cancer patients in their own care. The Lancet Oncology, 3, 629-637.
48. Aubin, M., Vézina, L., Parent, R., Fillion, L., Allard, P., Bergeron, R., et al. (2006). Impact of an educational program on pain management in patients with cancer living at home. Oncology Nursing Forum, 33(96), 1183-1188.
49. Kiely, B. E., McCaughan, G., Christodoulou, S., Beale, P. J., Grimison, P., Trotman, J., et al. (2013). Using scenarios to explain life expectancy in advanced cancer: Attitudes of people with a cancer experience. Supportive Care in Cancer, 21, 369- 376.
50. Zimmermann, C., Riechelmann, R., Krzyzanowska, M., Rodin, G., & Tannock, I. (2008). Effectiveness of specialized palliative care: A systematic review. JAMA: The Journal of the American Medical Association, 299(14), 1698-1709.
51. Zimmer, J. G., Groth-Juncker, A., & McCusker, J. (1985). A randomized controlled study of a home health care team. American Journal of Public Health, 75(2), 134-141.
52. von Gruenigen, V. E., Hutchins, J. R., Reidy, A. M., Gibbons, H. E., Daly, B. J., Eldermire, E. M., et al. (2006). Gynaecologic oncology patients' satisfaction and symptom severity during palliative chemotherapy. Health and Quality of Life Outcomes, 4, 84-90.
53. Brédart, A., Coens, C., Aaronson, N., Chie, W. C., Efficace, F., Conroy, T., et al. (2007). Determinants of patient satisfaction in oncology settings from European and Asian countries: Preliminary results based on the EORTC IN-PATSAT32 questionnaire. European Journal of Cancer (Oxford, England: 1990), 43(2), 323-330.
54. Brédart, A., Razavi, D., Robertson, C., Didier, F., Scaffidi, E., Fonzo, D., et al. (2001). Assessment of quality of care in an oncology institute using information on patients' satisfaction. Oncology, 61, 120-128.
55. Fröjd, C., Lampic, C., Larsson, G., & von Essen, L. (2009). Is satisfaction with doctors' care related to health-related quality of life, anxiety and depression among patients with carcinoid tumours? A longitudinal report. Scandinavian Journal of Caring Sciences, 1, 107-116.
56. Wong, W. S., & Fielding, R. (2008). The association between patient satisfaction and quality of life in Chinese lung and liver cancer patients. Medical Care, 46(3), 293-302.
57. Morris, S. M., & Thomas, C. (2001). The carer's place in the cancer situation: Where does the carer stand in the medical setting? European Journal of Cancer Care, 10, 87-95.
58. Fitzpatrick, R. (1991). Surveys of patient satisfaction: I-Important general considerations. BMJ: British Medical Journal, 302, 887-889.
59. Carter, G. L., Lewin, T. J., Gianacas, L., Clover, K., & Adams, C. (2011). Caregiver satisfaction with outpatient oncology services: Utility of the FAMCARE instrument and development of the FAMCARE-6. Supportive Care in Cancer, 19, 565-572.
60. Teno, J. (2011) Time: Toolkit of instruments to measure end-oflife care, Center for Gerontology and Health Care Research, Brown Medical School. Accessed August 16, 2011 from http://www.chcr.brown.edu/pcoc/toolkit.htm.