Understanding Social Support Burden Among Family Caregivers

Health Communication

Volumn 29, Issue 9, 2014, Pages 901-910

  Wittenberg Lyles, Elaine ^a   Washington, Karla ^b   Demiris, George ^c   Oliver, Debra Parker ^b   Shaunfield, Sara ^d  

^a CITY OF HOPE NATIONAL MEDICAL CENTER   (United States)

^b UNIVERSITY OF MISSOURI   (United States)

^c UNIVERSITY OF WASHINGTON   (United States)

^d UNIVERSITY OF KENTUCKY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; AGED; CAREGIVER; COGNITION; COGNITIVE THERAPY; CONTROLLED STUDY; FAMILY RELATION; FEMALE; HOSPICE CARE; HUMAN; MALE; MIDDLE AGED; PSYCHOLOGY; RANDOMIZED CONTROLLED TRIAL; RECORDING; SOCIAL NETWORK; SOCIAL SUPPORT; UNITED STATES; VERY ELDERLY; VIDEORECORDING;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; CAREGIVERS; COGNITION; COGNITIVE THERAPY; FAMILY RELATIONS; FEMALE; HOSPICE CARE; HUMANS; MALE; MIDDLE AGED; NORTHWESTERN UNITED STATES; SOCIAL NETWORKING; SOCIAL SUPPORT; TAPE RECORDING; VIDEO RECORDING;

EID: 84892769593     PISSN: 10410236     EISSN: 15327027     Source Type: Journal    
DOI: 10.1080/10410236.2013.815111     Document Type: Article

References (40)

1. Beedie, A., & Kennedy, P. (2002). Quality of social support predicts hopelessness and depression post spinal cord injury. Journal of Clinical Psychology in Medical Settings, 9, 227-234.
2. Benkel, I., Wijk, H., & Molander, U. (2009). Family and friends provide most social support for the bereaved. Palliative Medicine, 23, 141-149. doi:10.1177/0269216308098798
3. Bolger, N., Zuckerman, A., & Kessler, R. C. (2000). Invisible support and adjustment to stress. Journal of Personality and Social Psychology, 79, 953-961.
4. Brashers, D., Goldsmith, D. J., & Hsieh, E. (2002). Information seeking and avoiding in health contexts. Human Communication Research, 28, 258-271.
5. Brashers, D. E., Neidig, J. L., & Goldsmith, D. J. (2004). Social support and the management of uncertainty for people living with HIV or AIDS. Health Communication, 16, 305-331. doi:10.1207/S15327027HC1603_3
6. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101.
7. Burleson, B. R., & MacGeorge, E. L. (2002). Supportive communication. In M. L. Knapp & J. A. Daly (Eds.), Handbook of interpersonal communication (3rd ed., pp. 374-424). Thousand Oaks, CA: Sage.
8. Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310-357.
9. Demiris, G., Parker Oliver, D., Washington, K., Fruehling, L., Haggarty-Robbins, D., Doorenbos, A., Berry, D. (2010). A problem solving intervention for hospice caregivers: A pilot study. Journal of Palliative Medicine, 13, 1005-1011.
10. Demmer, C. (2003). A national survey of hospice bereavement services. Omega, 47, 327-341.
11. Egbert, N., Koch, L., Coeling, H., & Ayers, D. (2006). The role of social support in the family and community integration of right-hemisphere stroke survivors. Health Communication, 20, 45-55. doi:10.1207/s15327027hc2001_5
12. Feng, B., & Lee, K. J. (2010). The influence of thinking styles on responses to supportive messages. Communication Studies, 61, 224-238.
13. Ford, L. A., Babrow, A. S., & Stohl, C. (1996). Social support messages and the management of uncertainty in the experience of breast cancer: An application of problematic integration theory. Communication Monographs, 63, 189-207.
14. Goldsmith, D. J. (2001). A normative approach to the study of uncertainty and communication. Journal of Communication, 51, 514-533.
15. Goldsmith, D. J. (2004). Communicating social support. New York, NY: Cambridge University Press.
16. Goldsmith, D. J., & Albrecht, T. (2011). Social support, social networks, and health. In T. Thompson, R. Parrott & J. F. Nussbaum (Eds.), Routledge handbook of health communication (2nd ed., pp. 335-348). New York, NY: Routledge.
17. Goldsmith, D. J., & Fitch, K. (1997). The normative context of advice as social support. Human Communication Research, 23, 454-476.
18. Goode, K. T., Haley, W. E., Roth, D. L., & Ford, G. R. (1998). Predicting longitudinal changes in caregiver physical and mental health: A stress process model. Health Psychology, 17, 190-198.
19. Haley, W. E., LaMonde, L. A., Han, B., Burton, A. M., & Schonwetter, R. (2003). Predictors of depression and life-satisfaction among spousal caregivers in hospice: Application of a stress process model. Journal of Palliative Medicine, 6, 215-224.
20. Hudson, P. L., Trauer, T., Graham, S., Grande, G., Ewing, G., Payne, S., Thomas, K. (2010). A systematic review of instruments related to family caregivers of palliative care patients. Palliative Medicine, 24, 656-668. doi:10.1177/0269216310373167
21. Kutner, J., Kilbourn, K. M., Costenaro, A., Lee, C. A., Nowels, C., Vancura, J. L., Keech, T. E. (2009). Support needs of informal hospice caregivers: A qualitative study. Journal of Palliative Medicine, 12, 1101-1104.
22. Lincoln, K. D. (2000). Social support, negative social interactions, and psychological well-being. Social Service Review, 74, 231-252.
23. MacGeorge, E. L., Feng, B., & Burleson, B. (2011). Supportive communication. In M. L. Knapp & J. A. Daly (Eds.), Handbook of interpersonal communication (4th ed., pp. 317-354). Thousand Oaks, CA: Sage.
24. MacGeorge, E. L., Gillihan, S. J., Samter, W., & Clark, R. A. (2003). Skill deficit or differential motivation? Accounting for sex differences in the provision of emotional support. Communication Research, 30, 272-303.
25. MacLeod, A., Skinner, M. W., & Low, E. (2012). Supporting hospice volunteers and caregivers through community-based participatory research. Health & Social Care in the Community, 20, 190-198. doi:10.1111/j.1365-2524.2011.01030.x
26. Nezu, A. M., Nezu, C. M., & D'Zurilla, T. J. (2007). Solving life's problems. New York, NY: Springer.
27. Raleigh, E. D. H., Robinson, J. H., Marold, K., & Jamison, M. T. (2006). Family caregiver perception of hospice support. Journal of Hospice & Palliative Nursing, 8, 25-33.
28. Roberts, A., & McGilloway, S. (2008). The nature and use of bereavement support services in a hospice setting. Palliative Medicine, 22, 612-625. doi:10.1177/0269216308090071
29. Roth, D. L., Mittelman, M. S., Clay, O. J., Madan, A., & Haley, W. E. (2005). Changes in social support as mediators of the impact of a psychosocial intervention for spouse caregivers of persons with Alzheimer's disease. Psychology and Aging, 20, 634-644. doi:10.1037/0882-7974.20.4.634
30. Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality. Journal of American Medical Association, 282, 2215-2219.
31. Scott, A. M., Martin, S. C., Stone, A. M., & Brashers, D. E. (2011). Managing multiple goals in supportive interactions: Using a normative theoretical approach to explain social support as uncertainty management for organ transplant patients. Health Communication, 26, 393-403. doi:10.1080/10410236.2011.552479
32. Segrin, C., & Domschke, T. (2011). Social support, loneliness, recuperative processes, and their direct and indirect effects on health. Health Communication, 26, 221-232. doi:10.1080/10410236.2010.546771
33. Shirai, Y., Silverberg Koerner, S., & Baete Kenyon, D. (2009). Reaping caregiver feelings of gain: The roles of socio-emotional support and mastery. Aging & Mental Health, 13, 106-117. doi:10.1080/13607860802591054
34. Smerglia, V. L., Miller, N. B., Sotnak, D. L., & Geiss, C. A. (2007). Social support and adjustment to caring for elder family members: A multi-study analysis. Aging & Mental Health, 11, 205-217. doi:10.1080/13607860600844515
35. Thielemann, P. A., & Conner, N. E. (2009). Social support as a mediator of depression in caregivers of patients with end-stage disease. Journal of Hospice and Palliative Nursing, 11, 82-90.
36. Thoits, P. A. (1995). Stress, coping, and social support processes: Where are we? What next? Journal of Health and Social Behavior, 35(extra issue), 53-79.
37. Uchino, B. N., Bowen, K., Carlisle, M., & Birmingham, W. (2012). Psychological pathways linking social support to health outcomes: A visit with the "ghosts " of research past, present, and future. Social Science & Medicine, 74, 949-957.
38. Wilder, H., Parker Oliver, D., Demiris, G., & Washington, K. T. (2008). Informal hospice caregiving: The toll on quality of life. Journal of Social Work in End-of-Life and Palliative Care, 4, 312-332.
39. Wright, K., & Miller, C. (2010). A measure of weak-tie/strong-tie support network preference. Communication Monographs, 77, 500-517. doi:10.1080/03637751.2010.502538
40. Zimmermann, C. (2012). Acceptance of dying: A discourse analysis of palliative care literature. Social Science & Medicine, 75, 217-224. doi:10.1016/j.socscimed.2012.02.047