Family caregiver perception of hospice support

Journal of Hospice and Palliative Nursing

Volumn 8, Issue 1, 2006, Pages 25-33

  Hunt Raleigh, Edith D ^a   Robinson, Janet Hoey ^b   Marold, Karen ^a   Jamison, M Therese ^a  

^a MADONNA UNIVERSITY   (United States)

^b Lourdes College   (United States)

Author keywords

Caregivers Psychology; Hospice care; Religion and medicine; Social support; Stress Psychological

Indexed keywords

EID: 33646111023     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/00129191-200601000-00010     Document Type: Article

References (26)

1. Roy C, Andrews H, eds. The Roy Adaptation Model. Stamford, Conn: Appleton & Lange; 1998.
2. Kahn R. Aging and social support. In: Riley M, ed. Aging From Birth to Death. Interdisciplinaries Perspectives. Boulder, CO: Westview Press; 1979:77-91.
3. Klein S. Caregiver burden and moral development. Image J Nurs Scholarsh. 1989;21(2):94-97.
4. Grbich C, Parker D, Maddocks I. The emotions and coping strategies of caregivers of family members with a terminal cancer. J Palliat Care. 2001;17(1):30-36.
5. Yang C, Kirschling J. Exploration of factors related to direct care and outcomes of caregiving. Cancer Nurs. 1992;15:173-181.
6. Newton M, Bell D, Lambert S, Fearing A. Concerns of hospice patient caregivers. ABNF J. 2002;13:140-144.
7. Andrews S. Caregiver burden and symptom distress in people with cancer receiving hospice care. Oncol Nurs Forum. 2001;28:1469-1474.
8. Blank J, Clark L, Longman A, Atwood J. Perceived home care needs of cancer patients and their caregivers. Cancer Nurs. 1989;12:78-84.
9. Carey P, Oberst M, McCubbin M, Hughes S. Appraisal and caregiving burden in family members caring for patients receiving chemotherapy. Oncol Nurs Forum. 1991;18:1341-1348.
10. Ferrell B, Ferrell B, Rhiner M, Grant M. Family factors influencing cancer pain management. J Postgrad Med. 1991;67 (suppl 2):S64-S69.
11. Hull M. Sources of stress for hospice caregiving families. Hosp J. 1990;6(2):29-54.
12. McMillan S, Mahon M. The impact of hospice services on the quality of life of primary caregivers. Oncol Nurs Forum. 1994;21:1189-1195.
13. Tilden V, Tolle S, Drach L, Perrin N. Out-of-hospital death: advance care planning, decedent symptoms, and caregiver burden. J Am Geriatr Soc. 2004;52:532-539.
14. Haley W, LaMonde L, Han B, Narramore S, Schonwetter R. Family caregiving in hospice: effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hosp J. 2001;15:1-18.
15. Lindgren C. Burnout and social support in family caregivers. West J Nurs Res. 1990;12:469-487.
16. Hull MM. Coping strategies of family caregivers in hospice home care. Caring. 1993;12(2):78-88.
17. Kaye J, Robinson K. Spirituality among caregivers. Image J Nurs Scholarsh. 1994;26(3 Fall):218-221.
18. Willert M, Beckwith B, Holm J, Beckwith S. A preliminary study of the impact of terminal illness on spouses. Social support and coping strategies. Hosp J. 1995;10(4):35-48.
19. Barusch A. Problems and coping strategies of elderly spouse caregivers. Gerontologist. 1988;28:677-685.
20. Kirschling J, Stewart B, Archbold P. Family caregivers of posthospitalized older persons and persons receiving hospice: similarities and differences. Home Health Care Serv Q. 1994;14(4):117-140.
21. Goldstein N, Concator J, Fried T, Kasl S, Johnson-Hurzeler R, Bradley E. Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. J Palliat Care. 2004;20(1):38-43.
22. Norbeck J, Lindsey A, Carrieri V. The development of an instrument to measure social support. Nurs Res. 1981;30:264-269.
23. Norbeck J, Lindsey A, Carrieri V. Further development of the Norbeck Social Support Questionnaire: normative data and validity testing. Nurs Res. 1983;32:4-9.
24. Jalowiec A, Murphy S, Powers M. Psychometric Assessment of the Jalowiec Coping Scale. Nurs Res. 1984;33:157-161.
25. Ellison C, Jonker-Bakk I. Spiritual well-being: conceptualization and measurement. J Psychol Theol. 1983;11:330-340.
26. Paloutzian R, Ellison C. Manual for the Spiritual Well-Being Scale. May 1991. (Unpublished Manuscript).