Victor and the dragon: A young child's experiences of discomfort and comfort, from diagnosis until death

Journal of Hospice and Palliative Nursing

Volumn 15, Issue 8, 2013, Pages 464-470

  Ångström Brännstrom, Charlotte ^a   Dahlqvist, Vera ^b   Norberg, Astrid ^a,b  

^a UMEÅ UNIVERSITY   (Sweden)

^b Ersta Skondal University College   (Sweden)

Author keywords

Childhood cancer; Comfort; Discomfort; Drawing; Dying child

Indexed keywords

EID: 84892741057     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/NJH.0b013e3182a412ea     Document Type: Article

References (26)

1. Hockenberry MJ, McCarthy K, Taylor O, et al. Managing painful procedures in children with cancer. J Pediatr Hematol Oncol. 2011;33(2):119-127.
2. Bonoti F, Leondari A, Mastora A. Exploring children's understanding of death: through drawings and the death concept questionnaire. Death Stud. 2013;37(1):47-60.
3. Carter B, Ford K. Researching children's health experiences: the place for participatory, child-centered, arts-based approaches. Res Nurs Health. 2013;36(1):95-107.
4. Morse JM. Toward a praxis theory of suffering. Adv Nurs Sci. 2001;24(1):47-59.
5. Morse JM. Responding to the cues of suffering. Health Care Women Int. 2000;21(1):1-9.
6. Morse JM, Bottorff JL, Hutchinson S. The phenomenology of comfort. J Adv Nurs. 1994;20(1):189-194.
7. Carnevale F, Gaudreault J. The experience of critically ill children: a phenomenological studyofdiscomfort and comfort. Dynamics. 2013;24(1):19-27.
8. Cantrell MA, Matula C. The meaning of comfort for pediatric patients with cancer. Oncol Nurs Forum. 2009;36(6):303-309.
9. Ångström-Brännström C, Norberg A, Jansson L. Narratives of children with chronic illness about being comforted. J Pediatr Nurs. 2008;23(4):310-316.
10. Kars MC, Duijnstee M, Pool A, van Delden J, Grypdonck M. Being there: parenting the child with acute lymphoblastic leukaemia. J Clin Nurs. 2008;17(12):1553-1562.
11. Ångström-Brännström C, Norberg A, Strandgren G, Söderberg A, Dahlqvist V. Parents' experiences of what comforts them when their child is suffering from cancer. J Pediatr Oncol Nurs. 2010;27(5):266-275.
12. Driessnack M. Draw-and-tell conversations with children about fear. Qual Health Res. 2006;16(10):1414-1435.
13. Trollvik A, Nordbach R, Silén C, Ringsberg K. Children's experiences of living with asthma: fear of exacerbations and being ostracized. J Pediatr Nurs. 2011;26(4):295-303.
14. Patton MQ. Qualitative Research & Evaluation Methods. London, England: Sage Publications, Thousand Oaks; 2002:247-248, 437-463.
15. Patterson T, Hayne H. Does drawing facilitate older children's reports of emotionally laden events? Appl Cogn Psychol. 2011;25(1):119-126.
16. Guillemin M. Understanding illness: using drawings as a research method. Qual Health Res. 2004;14(2):271-289.
17. Driessnack M. Children's drawings as facilitators of communication: a meta-analysis. J Pediatr Nurs. 2005;20(6):415-423.
18. Bertoia J. Drawings From a Dying Child. Insights Into Death From a Jungian Perspective. London, England: Routledge; 1993:27-29, 83-87.
19. Enskär K, von Essen L. Physical problems and psychosocial function in children with cancer. Paediatr Nurs. 2008;20(3):37-41.
20. Crawford E, Gross J, Patterson T, Hayne H. Does children's colour use reflect the emotional content of their drawings? Infant Child Dev. 2012;21(2):198-215.
21. Nolbris M, Enskär K, Hellström A-L. Experience of siblings of children treated for cancer. Eur J Oncol Nurs. 2007;11(2):106-112.
22. Zingmark K, Norberg A, Sandman PO. The experienceofbeing at home throughout the life span. Investigation of persons aged from 2 to 102. Int J Aging Hum Dev. 1995;41(1):47-62.
23. Earle EA, Clarke SA, Eiser C, Sheppard L. "Building a new normality": mothers' experiences of caring for a child with acute lymphoblastic leukaemia. Child Care Health Dev. 2006;33(2):155-160.
24. Windich-Biermeier A, Sjoberg I, Conkin Dale J, Eshelman D, Guzetta C. Effects of distraction on pain, fear, and distress during venous port access and venipuncture in children and adolescents with cancer. J Pediatr Oncol Nurs. 2007;24(1):8-19.
25. Potascz C, Valera MJ, Carvalho LC de, Prado LF do, Prado GF do. Effect ofplay activitieson hospitalized children's stress: a randomized clinical trial. Scand J Occup Ther. 2013;20(1):71-79.
26. Baxter P, Jack S. Qualitative case study methodology: study design and implementation for novice researchers. Qual Rep. 2008;13(4):544-549.