The role of perceived benefits and costs in patients' medical decisions

Health Expectations

Volumn 17, Issue 1, 2014, Pages 4-14

  Singer, Eleanor ^a   Couper, Mick P ^a   Fagerlin, Angela ^a   Fowler, Floyd J ^b   Levin, Carrie A ^c   Ubel, Peter A ^d   Van Hoewyk, John ^a   Zikmund Fisher, Brian J ^e  

^a UNIVERSITY OF MICHIGAN   (United States)

^b UNIVERSITY OF MASSACHUSETTS BOSTON   (United States)

^c Foundation for Informed Medical Decision Making   (United States)

^d DUKE UNIVERSITY   (United States)

^e UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

Author keywords

Benefits; Costs; Medical decision making

Indexed keywords

PRESCRIPTION DRUG;

ADULT; ARTICLE; BENEFITS; COST BENEFIT ANALYSIS; COSTS; DECISION MAKING; EARLY DIAGNOSIS; EDUCATIONAL STATUS; FEMALE; HUMAN; MALE; MEDICAL DECISION MAKING; MIDDLE AGED; PATIENT COMPLIANCE; PATIENT PARTICIPATION; PATIENT PREFERENCE; PERCEPTION; PSYCHOLOGICAL ASPECT; SURGERY; UNITED STATES;

BENEFITS; COSTS; MEDICAL DECISION MAKING;

ADULT; COST-BENEFIT ANALYSIS; DECISION MAKING; EARLY DETECTION OF CANCER; EDUCATIONAL STATUS; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT COMPLIANCE; PATIENT PARTICIPATION; PATIENT PREFERENCE; PERCEPTION; PRESCRIPTION DRUGS; SURGICAL PROCEDURES, OPERATIVE; UNITED STATES;

EID: 84892459605     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2011.00739.x     Document Type: Article

References (27)

1. Fishbein M, Ajzen I. Belief, Attitude, Intention, and Behavior: an Introduction to Theory and Research. Reading, MA: Addison-Wesley, 1975.
2. Ajzen I, Fishbein M. Understanding Attitudes and Predicting Social Behavior. Englewood Cliffs, NJ: Prentice-Hall, 1980.
3. Groves RM, Singer E, Corning AD. A leverage-saliency theory of survey participation: description and illustration. Public Opinion Quarterly, 2000; 64: 299-308.
4. Dunn LB, Gordon NE. Improving informed consent and enhancing recruitment for research by understanding economic behavior. JAMA, 2005; 293: 609-612.
5. Verheggen F, Nieman F, Jonkers R. Determinants of patient participation in clinical studies requiring informed consent: why patients enter a clinical trial. Patient Education and Counseling, 1998; 35: 111-125.
6. Halpern SD, Karlawish JH, Casarett D, Berlin JA, Asch DA. Empirical assessment of whether moderate payments are undue or unjust inducements for participation in clinical trials. Archives of Internal Medicine, 2004; 164: 801-803.
7. Singer E. Exploring the meaning of consent: participation in research and beliefs about risks and benefits. Journal of Official Statistics, 2003; 19: 273-285.
8. Singer E. Notes toward a cost-benefit theory of survey participation. Lecture presented at University of Maryland March 12 2010.
9. Couper MP, Singer E, Conrad F, Groves RM. Risk of disclosure, perceptions of risk, and concerns about privacy and confidentiality as factors in survey participation. Journal of Official Statistics, 2008; 24: 255-275.
10. Couper MP, Singer E, Conrad F, Groves RM. Experimental studies of disclosure risk, disclosure harm, topic sensitivity and survey participation. Journal of Official Statistics, 2008; 26: 287-300.
11. Singer E, Couper MP. Do incentives exert undue influence on survey participation? Experimental evidenceJournal of Empirical Research on Human Research Ethics, 2008; 7: 49-56.
12. Charles CA, Whelan T, Gafni A, Willan A, Farrell S. Shared decision-making in the medical encounter, Social Science and Medicine, 1997; 44: 5.
13. Charles CA, Whelan T, Gafni A, Willan A, Farrell S. Shared treatment decision making: what does it mean to physicians, Journal of Clinical Oncology, 2003; 21: 5.
14. Sepucha KR, Fowler FJ, Mulley AG. Policy support for patient-centered care: the need for measurable improvements in decision quality. Health Affairs, 2004; Web Exclusive 7: Var. 54-62.
15. Couper MP, Zikmund-Fisher BJ, Singer E et al. Summary of methods for the national survey of medical decisions (the DECISIONS study). 2008. Available at: http:www.cbdsm.orgdownloadsdecisionsmethods.pdf, accessed 8 October 2011.
16. Zikmund-Fisher BJ, Couper MP, Singer E et al. The DECISIONS study: a nationwide survey of U.S. adults regarding nine common medical decisions. Medical Decision Making, 2010; 30 (Suppl. 5): S20-S34.
17. Centers for Disease Control and Prevention 2006 Behavioral Risk Factor Surveillance System Summary Data Quality Report. Available at: http:ftp.cdc.govpubDataBrfss2006SummaryDataQualityReport.pdf, accessed 8 October 2011.
18. Fagerlin A, Sepucha KR, Couper MP et al. Patients' knowledge about 9 common health conditions: the DECISIONS survey. Medical Decision Making, 2010; 30 (Suppl. 5): S35-S52.
19. Emanuel EJ. Ending concerns about undue inducement. The Journal of Law, Medicine and Ethics, 2004; 32 (Suppl. 5): 100-105.
20. Grady C. Money for research participation: does it jeopardize informed consent?The American Journal of Bioethics, 2002; 1: 40-44.
21. Ubel P. Free Market Madness. Cambridge, MA: Harvard Business School Press, 2009.
22. Nagelkerke NJD. A note on a general definition of the coefficient of determination. Biometrika, 1991; 78: 691-692.
23. Hosmer DW, Lemeshow S. Applied Logistic Regression, 2nd edn. New York, NY: Wiley, 2000.
24. Cox DR, Snell EJ. The Analysis of Binary Data, 2nd edn. London: Chapman and Hall, 1989.
25. Fagerlin A, Lakhani I, Lantz PM et al. An informed decision? Breast cancer patients and their knowledge about treatment. Patient Education and Counseling, 2006; 64: 303-312.
26. Sepucha KR, Fagerlin A, Couper MP et al. How does feeling informed relate to being informed? Results from the DECISIONS study. Medical Decision Making, 2010; 30 (Suppl. 5): S77-S84.
27. Festinger L. A Theory of Cognitive Dissonance. Evanston, IL: Row Peterson, 1957.