-
1
-
-
27144448387
-
Multidisciplinary ALS care improves quality of life in patients with ALS
-
DOI 10.1212/01.wnl.0000180717.29273.12
-
Van den Berg JP, Kalmijn S, Lindeman E, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology 2005;65:1264-1267. (Pubitemid 41508221)
-
(2005)
Neurology
, vol.65
, Issue.8
, pp. 1264-1267
-
-
Van Den Berg, J.P.1
Kalmijn, S.2
Lindeman, E.3
Veldink, J.H.4
De Visser, M.5
Van Der Graaff, M.M.6
Wokke, J.H.J.7
Van Den Berg, L.H.8
-
2
-
-
42549172025
-
Long-term neurological conditions: Management at the interface between neurology, rehabilitation and palliative care
-
Turner-Stokes L, Sykes N, Silber E. Long-term neurological conditions: management at the interface between neurology, rehabilitation and palliative care. Clin Med 2008; 8:186-191. (Pubitemid 351579207)
-
(2008)
Clinical Medicine, Journal of the Royal College of Physicians of London
, vol.8
, Issue.2
, pp. 186-191
-
-
Turner-Stokes, L.1
Sykes, N.2
Silber, E.3
-
3
-
-
84857044928
-
EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS): Revised report of an EFNS task force
-
Andersen PM, Abrahams S, Borasio GD, et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS): revised report of an EFNS task force. Eur J Neurol 2012;19:360-375.
-
(2012)
Eur J Neurol
, vol.19
, pp. 360-375
-
-
Andersen, P.M.1
Abrahams, S.2
Borasio, G.D.3
-
4
-
-
70350149848
-
Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional, and respiratory therapies (an evidencebased review): Report of the quality standards Subcommittee of the American academy of neurology
-
Miller RG, Jackson CE, Kasarskis EJ, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidencebased review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009;73: 1218-1226.
-
(2009)
Neurology
, vol.73
, pp. 1218-1226
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
-
5
-
-
70350138259
-
Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): Report of the quality standards subcommittee of the American academy of neurology
-
Miller RG, Jackson CE, Kasarskis EJ, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009;73: 1227-1233.
-
(2009)
Neurology
, vol.73
, pp. 1227-1233
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
-
6
-
-
79955862108
-
Motor neurone disease: Disability profile and service needs in an Australian cohort
-
Ng L, Talman P, Khan F. Motor neurone disease: disability profile and service needs in an Australian cohort. Int J Rehabil Res 2011;34:151-159.
-
(2011)
Int J Rehabil Res
, vol.34
, pp. 151-159
-
-
Ng, L.1
Talman, P.2
Khan, F.3
-
7
-
-
0141515309
-
Physician-assisted death: Dying with dignity?
-
DOI 10.1016/S1474-4422(03)00536-2
-
Reagan P, Hurst R, Cook L, et al. Physician-assisted death: dying with dignity? Lancet Neurol 2003;2:637-643. (Pubitemid 37162575)
-
(2003)
Lancet Neurology
, vol.2
, Issue.10
, pp. 637-643
-
-
Reagan, P.1
Hurst, R.2
Cook, L.3
Zylicz, Z.4
Otlowski, M.5
Veldink, J.H.6
Van Den Berg, L.H.7
Wokke, J.H.J.8
-
8
-
-
0036596796
-
Case management model or case manager type? That is the question
-
Long MJ. Case management model or case manager type? That is the question. Health Care Manag 2002;20:53-65.
-
(2002)
Health Care Manag
, vol.20
, pp. 53-65
-
-
Long, M.J.1
-
9
-
-
77952718939
-
Design of a randomised controlled trial (RCT) on the effectiveness of a Dutch patient advocacy case management intervention among severely disabled multiple sclerosis patients
-
Wynia K, Annema C, Nissen H, De Keyser J, Middel B. Design of a randomised controlled trial (RCT) on the effectiveness of a Dutch patient advocacy case management intervention among severely disabled multiple sclerosis patients. BMC Health Serv Res 2010;10:142.
-
(2010)
BMC Health Serv Res
, vol.10
, pp. 142
-
-
Wynia, K.1
Annema, C.2
Nissen, H.3
De Keyser, J.4
Middel, B.5
-
10
-
-
1242319536
-
Integrating Case Management and Palliative Care
-
DOI 10.1089/109662104322737395
-
Meier DE, Thar W, Jordan A, Goldhirsch SL, Siu A, Morrison RS. Integrating case management and palliative care. J Palliat Med 2004;7:119-134. (Pubitemid 38228853)
-
(2004)
Journal of Palliative Medicine
, vol.7
, Issue.1
, pp. 119-134
-
-
Meier, D.E.1
Thar, W.2
Jordan, A.3
Goldhirsch, S.L.4
Siu, A.5
Morrison, R.S.6
-
11
-
-
0141726610
-
Rehabilitation care for patients with ALS in the Netherlands
-
Van den Berg JP, Kalmijn S, Lindeman E, Wokke JH, van den Berg LH. Rehabilitation care for patients with ALS in the Netherlands. Amyotroph Lateral Scler Other Motor Neuron Disord 2003;4:186-190. (Pubitemid 37184889)
-
(2003)
Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
, vol.4
, Issue.3
, pp. 186-190
-
-
Van Den Berg, J.-P.1
Kalmijn, S.2
Lindeman, E.3
Wokke, J.H.J.4
Van Den Berg, L.H.5
-
12
-
-
0016823810
-
Mini-mental state: A practical method for grading the cognitive state of patients for the clinician
-
Folstein MF, Folstein SE, McHugh PR. "Mini-Mental State": a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975;12: 189-198.
-
(1975)
J Psychiatr Res
, vol.12
, pp. 189-198
-
-
Folstein, M.F.1
Folstein, S.E.2
McHugh, P.R.3
-
13
-
-
12344338289
-
Development and implementation of the Dutch protocol for rehabilitative management in amyotrophic lateral sclerosis
-
DOI 10.1080/14660820410021258
-
Van den Berg JP, de Groot IJ, Joha BC, van Haelst JM, van Gorcom P, Kalmijn S. Development and implementation of the Dutch protocol for rehabilitative management in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2004;5:226-229. (Pubitemid 40125189)
-
(2004)
Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
, vol.5
, Issue.4
, pp. 226-229
-
-
Van Den Berg, J.P.1
De Groot, I.J.M.2
Joha, B.C.3
Van Haelst, J.M.4
Van Gorcom, P.5
Kalmijn, S.6
-
14
-
-
34547604192
-
Psychological health in patients with amyotrophic lateral sclerosis
-
DOI 10.1080/17482960701374643, PII 780847056
-
Averill AJ, Kasarskis EJ, Segerstrom SC. Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2007;8:243-254. (Pubitemid 47190229)
-
(2007)
Amyotrophic Lateral Sclerosis
, vol.8
, Issue.4
, pp. 243-254
-
-
Averill, A.J.1
Kasarskis, E.J.2
Segerstrom, S.C.3
-
15
-
-
66149138779
-
Effects of case management for frail older people or those with chronic illness: A systematic review
-
Oeseburg B, Wynia K, Middel B, Reijneveld SA. Effects of case management for frail older people or those with chronic illness: a systematic review. Nurs Res 2009;58:201-210.
-
(2009)
Nurs Res
, vol.58
, pp. 201-210
-
-
Oeseburg, B.1
Wynia, K.2
Middel, B.3
Reijneveld, S.A.4
-
16
-
-
0028222910
-
Case management and nursing practice
-
Rheaume A, Frisch S, Smith A, Kennedy C. Case management and nursing practice. J Nurs Adm 1994;24:30-36. (Pubitemid 24097890)
-
(1994)
Journal of Nursing Administration
, vol.24
, Issue.3
, pp. 30-36
-
-
Rheaume, A.1
Frisch, S.2
Smith, A.3
Kennedy, C.4
-
17
-
-
0029414928
-
Client-centered practice: What does it mean and does it make a difference?
-
Law M, Baptiste S, Mills J. Client-centred practice: what does it mean and does it make a difference? Can J Occup Ther 1995;62:250-257. (Pubitemid 26041723)
-
(1995)
Canadian Journal of Occupational Therapy
, vol.62
, Issue.5
, pp. 250-257
-
-
Law, M.1
Baptiste, S.2
Mills, J.3
-
18
-
-
61549096586
-
Quality of life in amyotrophic lateral sclerosis/motor neuron disease: A structured review
-
Epton J, Harris R, Jenkinson C. Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review. Amyotroph Lateral Scler 2009;10:15-26.
-
(2009)
Amyotroph Lateral Scler
, vol.10
, pp. 15-26
-
-
Epton, J.1
Harris, R.2
Jenkinson, C.3
-
19
-
-
0032731938
-
Development and validation of a short measure of health status for individuals with amyotrophic lateral sclerosis/motor neurone disease: The ALSAQ-40
-
Jenkinson C, Fitzpatrick R, Brennan C, Bromberg M, Swash M. Development and validation of a short measure of health status for individuals with amyotrophic lateral sclerosis/motor neurone disease: the ALSAQ-40. J Neurol 1999;246(suppl 3):III16-III21.
-
(1999)
J Neurol
, vol.246
, Issue.SUPPL. 3
-
-
Jenkinson, C.1
Fitzpatrick, R.2
Brennan, C.3
Bromberg, M.4
Swash, M.5
-
20
-
-
33947417771
-
Comparison of the 40-item amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40) with a short-form five-item version (ALSAQ-5) in a longitudinal survey
-
DOI 10.1177/0269215506071123
-
Jenkinson C, Fitzpatrick R, Swash M, Jones G. Comparison of the 40-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) with a short-form five-item version (ALSAQ-5) in a longitudinal survey. Clin Rehabil 2007;21:266-272. (Pubitemid 46455827)
-
(2007)
Clinical Rehabilitation
, vol.21
, Issue.3
, pp. 266-272
-
-
Jenkinson, C.1
Fitzpatrick, R.2
Swash, M.3
Jones, G.4
-
21
-
-
34247212909
-
Validity of the Dutch version of the amyotrophic lateral sclerosis assessment questionnaire, ALSAQ-40, ALSAQ-5
-
DOI 10.1080/17482960601012541, PII 777133273
-
Maessen M, Post MW, Maille R, et al. Validity of the Dutch version of the Amyotrophic Lateral Sclerosis Assessment Questionnaire, ALSAQ-40, ALSAQ-5. Amyotroph Lateral Scler 2007;8:96-100. (Pubitemid 46605395)
-
(2007)
Amyotrophic Lateral Sclerosis
, vol.8
, Issue.2
, pp. 96-100
-
-
Maessen, M.1
Post, M.W.2
Maille, R.3
Lindeman, E.4
Mooij, R.5
Veldink, J.H.6
Van Den Berg, L.H.7
-
22
-
-
0020585425
-
Validation of a caregiver strain index
-
Robinson BC. Validation of a Caregiver Strain Index. J Gerontol 1983;38:344-348. (Pubitemid 13083970)
-
(1983)
Journals of Gerontology
, vol.38
, Issue.3
, pp. 344-348
-
-
Robinson, B.C.1
-
23
-
-
0032692481
-
The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function
-
DOI 10.1016/S0022-510X(99)00210-5, PII S0022510X99002105
-
Cedarbaum JM, Stambler N, Malta E, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci 1999;169:13-21. (Pubitemid 29502501)
-
(1999)
Journal of the Neurological Sciences
, vol.169
, Issue.1-2
, pp. 13-21
-
-
Cedarbaum, J.M.1
Stambler, N.2
Malta, E.3
Fuller, C.4
Hilt, D.5
Thurmond, B.6
Nakanishi, A.7
-
26
-
-
34249984964
-
Perceptions of quality of life in people with ALS: Effects of coping and health care
-
DOI 10.1080/17482960601164532, PII 779130242
-
Foley G, O'Mahony P, Hardiman O. Perceptions of quality of life in people with ALS: effects of coping and health care. Amyotroph Lateral Scler 2007;8:164-169. (Pubitemid 46887914)
-
(2007)
Amyotrophic Lateral Sclerosis
, vol.8
, Issue.3
, pp. 164-169
-
-
Foley, G.1
O'Mahony, P.2
Hardiman, O.3
-
27
-
-
80052628820
-
Population based epidemiology of amyotrophic lateral sclerosis using capture-recapture methodology
-
Huisman MH, de Jong SW, van Doormaal PT, et al. Population based epidemiology of amyotrophic lateral sclerosis using capture-recapture methodology. J Neurol Neurosurg Psychiatry 2011;82:1165-1170.
-
(2011)
J Neurol Neurosurg Psychiatry
, vol.82
, pp. 1165-1170
-
-
Huisman, M.H.1
De Jong, S.W.2
Van Doormaal, P.T.3
-
28
-
-
32044435636
-
Outcome evaluation of a randomized trial of the PhoenixCare intervention: Program of case management and coordinated care for the seriously chronically ill
-
DOI 10.1089/jpm.2006.9.111
-
Aiken LS, Butner J, Lockhart CA, Volk-Craft BE, Hamilton G, Williams FG. Outcome evaluation of a randomized trial of the Phoenix Care intervention: program of case management and coordinated care for the seriously chronically ill. J Palliat Med 2006;9:111-126. (Pubitemid 43201775)
-
(2006)
Journal of Palliative Medicine
, vol.9
, Issue.1
, pp. 111-126
-
-
Aiken, L.S.1
Butner, J.2
Lockhart, C.A.3
Volk-Craft, B.E.4
Hamilton, G.5
Williams, F.G.6
-
29
-
-
0037121340
-
Nurse led follow up and conventional medical follow up in management of patients with lung cancer: Randomised trial
-
Moore S, Corner J, Haviland J, et al. Nurse led follow up and conventional medical follow up in management of patients with lung cancer: randomised trial. BMJ 2002;325:1145.
-
(2002)
BMJ
, vol.325
, pp. 1145
-
-
Moore, S.1
Corner, J.2
Haviland, J.3
-
31
-
-
77956638379
-
Meaning in life in patients with amyotrophic lateral sclerosis
-
Fegg MJ, Kögler M, Brandstätter M, et al. Meaning in life in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler 2010;11:469-474.
-
(2010)
Amyotroph Lateral Scler
, vol.11
, pp. 469-474
-
-
Fegg, M.J.1
Kögler, M.2
Brandstätter, M.3
-
32
-
-
0034824554
-
Assessing individual quality of life in amyotrophic lateral sclerosis
-
DOI 10.1023/A:1016704906100
-
Clarke S, Hickey A, O'Boyle C, Hardiman O. Assessing individual quality of life in amyotrophic lateral sclerosis. Qual Life Res 2001;10:149-158. (Pubitemid 32885692)
-
(2001)
Quality of Life Research
, vol.10
, Issue.2
, pp. 149-158
-
-
Clarke, S.1
Hickey, A.2
O'Boyle, C.3
Hardiman, O.4
-
33
-
-
33646671515
-
The effect of noninvasive ventilation on ALS patients and their caregivers
-
DOI 10.1212/01.wnl.0000208957.88534.11, PII 0000611420060425000018
-
Mustfa N, Walsh E, Bryant V, et al. The effect of noninvasive ventilation on ALS patients and their caregivers. Neurology 2006;66:1211-1217. (Pubitemid 43739706)
-
(2006)
Neurology
, vol.66
, Issue.8
, pp. 1211-1217
-
-
Mustfa, N.1
Walsh, E.2
Bryant, V.3
Lyall, R.A.4
Addington-Hall, J.5
Goldstein, L.H.6
Donaldson, N.7
Polkey, M.I.8
Moxham, J.9
Leigh, P.N.10
-
34
-
-
34147098428
-
A longitudinal study on quality of life and depression in ALS patient-caregiver couples
-
DOI 10.1212/01.wnl.0000257093.53430.a8, PII 0000611420070320000012
-
Gauthier A, Vignola A, Calvo A, et al. A longitudinal study on quality of life and depression in ALS patientcaregiver couples. Neurology 2007;68:923-926. (Pubitemid 46568504)
-
(2007)
Neurology
, vol.68
, Issue.12
, pp. 923-926
-
-
Gauthier, A.1
Vignola, A.2
Calvo, A.3
Cavallo, E.4
Moglia, C.5
Sellitti, L.6
Mutani, R.7
Chio, A.8
-
35
-
-
84855342231
-
Modeling drop-outs in amyotrophic lateral sclerosis
-
Messina P, Beghi E. Modeling drop-outs in amyotrophic lateral sclerosis. Contemp Clin Trials 2012;33:218-222.
-
(2012)
Contemp Clin Trials
, vol.33
, pp. 218-222
-
-
Messina, P.1
Beghi, E.2
-
36
-
-
34247180241
-
The amyotrophic lateral sclerosis assesment questionnaire (ALSAQ-40): Evidence for a method of imputing missing data
-
DOI 10.1080/17482960600989343, PII 777134166
-
Jenkinson C, Harris R, Fitzpatrick R. The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40): evidence for a method of imputing missing data. Amyotroph Lateral Scler 2007;8:90-95. (Pubitemid 46605394)
-
(2007)
Amyotrophic Lateral Sclerosis
, vol.8
, Issue.2
, pp. 90-95
-
-
Jenkinson, C.1
Harris, R.2
Fitzpatrick, R.3
-
37
-
-
0642281762
-
Quality of care for patients with Type 2 diabetes mellitus - A long-term comparison of two quality improvement programmes in the Netherlands
-
DOI 10.1046/j.1464-5491.2003.01009.x
-
Renders CM, Valk GD, de Sonnaville JJ, et al. Quality of care for patients with type 2 diabetes mellitus: a long-term comparison of two quality improvement programmes in the Netherlands. Diabet Med 2003;20:846-852. (Pubitemid 41701507)
-
(2003)
Diabetic Medicine
, vol.20
, Issue.10
, pp. 846-852
-
-
Renders, C.M.1
Valk, G.D.2
De Sonnaville, J.J.J.3
Twisk, J.4
Kriegsman, D.M.W.5
Heine, R.J.6
Van Eijk, J.Th.M.7
Van Der Wal, G.8
-
38
-
-
0038324400
-
The therapeutic alliance: The key to effective patient outcome? A descriptive review of the evidence in community mental health case management
-
DOI 10.1046/j.1440-1614.2003.01131.x
-
Howgego IM, Yellowlees P, Owen C, Meldrum L, Dark F. The therapeutic alliance: the key to effective patient outcome? A descriptive review of the evidence in community mental health case management. Aust N Z J Psychiatry 2003;37:169-183. (Pubitemid 36592727)
-
(2003)
Australian and New Zealand Journal of Psychiatry
, vol.37
, Issue.2
, pp. 169-183
-
-
Howgego, I.M.1
Yellowlees, P.2
Owen, C.3
Meldrum, L.4
Dark, F.5
-
39
-
-
22144443163
-
Nurse case management: Negotiating care together within a developing relationship
-
DOI 10.1111/j.1744-6163.2005.00012.x
-
Yamashita M, Forchuk C, Mound B. Nurse case management: negotiating care together within a developing relationship. Perspect Psychiatr Care 2005;41:62-70. (Pubitemid 43961368)
-
(2005)
Perspectives in Psychiatric Care
, vol.41
, Issue.2
, pp. 62-70
-
-
Yamashita, M.1
Forchuk, C.2
Mound, B.3
|