Meaning in life in patients with amyotrophic lateral sclerosis

Amyotrophic Lateral Sclerosis

Volumn 11, Issue 5, 2010, Pages 469-474

  Fegg, Martin Johannes ^a   Kögler, Monika ^a   Brandstätter, Monika ^a   Jox, Ralf ^a   Anneser, Johanna ^a   Haarmann Doetkotte, Sigrid ^a   Wasner, Maria ^a   Borasio, Gian Domenico ^a  

^a LUDWIG MAXIMILIANS UNIVERSITY   (Germany)

Author keywords

Amyotrophic lateral sclerosis; Coping; Meaning in life; Motor neuron disease; Palliative care; Schedule for Meaning in Life Evaluation

Indexed keywords

ADOLESCENT; ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; CLINICAL ARTICLE; CLINICAL EVALUATION; CONTROLLED STUDY; DISEASE DURATION; FEMALE; FUNCTIONAL DISEASE; HEALTH SURVEY; HUMAN; MALE; MEANING IN LIFE; PATIENT SATISFACTION; PRIORITY JOURNAL; SCHEDULE FOR MEANING IN LIFE EVALUATION; SYMPTOMATOLOGY;

ADOLESCENT; ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ATTITUDE TO HEALTH; CROSS-SECTIONAL STUDIES; FEMALE; GERMANY; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PERSONAL SATISFACTION; QUALITY OF LIFE; YOUNG ADULT;

EID: 77956638379     PISSN: 17482968     EISSN: 1471180X     Source Type: Journal    
DOI: 10.3109/17482961003692604     Document Type: Article

References (30)

1. Gauthier A, Vignola A, Calvo A, Cavallo E, Moglia C, Sellitti L, et al. A longitudinal study on quality of life and depression in ALS patient-caregiver couples. Neurology. 2007;68:923-6.
2. Wicks P, Abrahams S, Masi D, Hejda-Forde S, Leigh P, Goldstein L. Prevalence of depression in a 12-month consecutive sample of patients with ALS. European Journal of Neurology. 2007;14:993-1001.
3. Ganzini L, Johnston W, McFarland B, Tolle S, Lee M. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. New England Journal of Medicine. 1998;339:967-73.
4. Albert S, Rabkin J, Del Bene M, Tider T, OSullivan I, Rowland L, et al. Wish to die in end-stage ALS. Neurology. 2005;65:68-74.
5. Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S. Quality of life in ALS depends on factors other than strength and physical function. Neurology. 2000;55: 388-92.
6. Rabkin J, Wagner G, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosomatic Medicine. 2000;62:271-9.
7. Goldstein L, Atkins L, Leigh P. Correlates of quality of life in people with motor neuron disease (MND). Amyotroph Lateral Scler Other Motor Neuron Disord. 2002;3:123-9.
8. Neudert C, Wasner M, Borasio G. Individual quality of life is not correlated with health related quality of life or physical function in patients with amyotrophic lateral sclerosis. Journal of Palliative Medicine. 2004;7:551-7.
9. Chochinov H. Thinking outside the box: depression, hope, and meaning at the end of life. Journal of Palliative Medicine. 2003;6:973-7.
10. Breitbart W, Rosenfeld B, Gibson C, Pessin H, Poppito S, Nelson C, et al. Meaning-centred group psychotherapy for patients with advanced cancer: a pilot randomized controlled trial. Psycho-Oncology. 2010;19:21-8.
11. Breitbart W, Rosenfeld B, Pessin H, Kaum M, Funesti Esch J, Galietta M, et al. Depression, hopelessness, and desire for hastened death in terminally ill cancer patients. JAMA. 2000;284:2907-11.
12. Chochinov H, Hack T, Hassard T, Kristjanson L, McClement S, Harlos M. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol. 2005;23:5520-5.
13. Zika S, Chamberlain K. On the relation between meaning in life and psychological well-being. British Journal of Psychology. 1992;83:133-45.
14. Compton W, Smith M, Cornish K, Qualls D. Factor structure of mental health measures. Journal of Personality & Social Psychology. 1996;71:406-13.
15. Fegg M, Kramer M, Lhoste S, Borasio G. The Schedule for Meaning in Life Evaluation (SMiLE): validation of a new instrument for meaning-in-life research. Journal of Pain and Symptom Management. 2008;4:356-63.
16. Rapkin B, Smith M, Dumont K, Correa A, Palmer S, Cohen S. Development of the idiographic functional status assessment: a measure of the personal goals and goal attainment activities of people with AIDS. Psychology and Health. 1994;9:111-29.
17. OBoyle C. Making subjectivity scientific. The Lancet. 1995; 345:602.
18. Fegg M, Kramer M, Bausewein C, Borasio G. Meaning in life in the Federal Republic of Germany: results of a representative survey with the Schedule for Meaning in Life Evaluation (SMiLE). Health and Quality of Life Outcomes. 2007;5:59.
19. Brooks B, Miller R, Swash M, Munsat T. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2000;1:293-9.
20. Scientific Advisory Committee of the Medical Outcomes Trust. Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of Life Research. 2002;11:193-205.
21. Stiefel F, Krenz S, Zdrojewski K, Stagno D, Fernandez M, Bauer J, et al. Meaning in life assessed with the Schedule for Meaning in Life Evaluation (SMiLE): a comparison between a cancer patient and student sample. Support Care Cancer. 2008;16:1151-5.
22. Cedarbaum J, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). Journal of the Neurological Sciences. 1999;169:13-21.
23. Sprangers M, Schwartz C. Integrating response shift into health-related quality of life research: a theoretical model. Social Science & Medicine. 1999;48:1507-15.
24. Clarke S, Hickey A, O B oyle C, Hardiman O. Assessing individual quality of life in amyotrophic lateral sclerosis. Qual Life Res. 2001;10:149-58.
25. Neudert C, Wasner M, Borasio G. Patients assessment of quality of life instruments: a randomized study of SIP, SF-36 and SEIQoL-DW in patients with amyotrophic lateral sclerosis. Journal of the Neurological Sciences. 2001;191:103-9.
26. Roach A, Averill A, Segerstrom S, Kasarskis E. The dynamics of quality of life in ALS patients and caregivers. Annals of Behavioral Medicine. 2009;37:197-206.
27. Chiò A, Borasio G. Breaking the news in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004;5:195-201.
28. Waldron D, OBoyle CA, Kearney M, Moriarty M, Carney D. Quality-of-life measurement in advanced cancer: assessing the individual. J Clin Oncol. 1999;17:3603-11.
29. Emanuel E, Fairclough D, Emanuel L. Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers. JAMA. 2000; 284:2460-8.
30. Achille M, Ogloff J. Attitudes toward and desire for assisted suicide among persons with amyotrophic lateral sclerosis. Omega: Journal of Death & Dying. 2003-04;48:1-21.