메뉴 건너뛰기




Volumn 8, Issue 12, 2013, Pages

The development of the Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS): A large-scale data sharing initiative

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; DATA PROCESSING; DATA SHARING INITIATIVE; DEMOGRAPHY; FEMALE; FUNCTIONAL ASSESSMENT; HEALTH CARE UTILIZATION; HUMAN; INFORMATION PROCESSING; LARGE SCALE PRODUCTION; MALE; MENTAL HEALTH; MIDDLE AGED; MORBIDITY; QUALITY OF LIFE; SAMPLE SIZE; SOCIAL INTERACTION; THE OLDER PERSONS AND INFORMAL CAREGIVERS SURVEY MINIMUM DATASET;

EID: 84891875000     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0081673     Document Type: Article
Times cited : (119)

References (39)
  • 1
    • 70349495203 scopus 로고    scopus 로고
    • Ageing populations: The challenges ahead
    • doi: 10.1016/S0140-6736(09)61460-4. PubMed: 19801098
    • Christensen K, Doblhammer G, Rau R, Vaupel JW (2009) Ageing populations: the challenges ahead. Lancet 374: 1196-1208. doi: 10.1016/S0140-6736(09)61460-4. PubMed: 19801098.
    • (2009) Lancet , vol.374 , pp. 1196-1208
    • Christensen, K.1    Doblhammer, G.2    Rau, R.3    Vaupel, J.W.4
  • 3
    • 0025072924 scopus 로고
    • Designing the national resident assessment instrument for nursing homes
    • doi:10.1093/geront/30.3.293. PubMed: 2354790
    • Morris JN, Hawes C, Fries BE, Phillips CD, Mor V et al. (1990) Designing the national resident assessment instrument for nursing homes. Gerontologist 30: 293-307. doi:10.1093/geront/30.3.293. PubMed: 2354790.
    • (1990) Gerontologist , vol.30 , pp. 293-307
    • Morris, J.N.1    Hawes, C.2    Fries, B.E.3    Phillips, C.D.4    Mor, V.5
  • 4
    • 0031444945 scopus 로고    scopus 로고
    • Efforts to establish the reliability of the Resident Assessment Instrument
    • doi:10.1093/ageing/26.suppl-3.P27-a. PubMed: 9464551
    • Sgadari A, Morris JN, Fries BE, Ljunggren G, Jónsson PV et al. (1997) Efforts to establish the reliability of the Resident Assessment Instrument. Age Ageing 26 Suppl 2: 27-30. doi:10.1093/ageing/26.suppl-3.P27-a. PubMed: 9464551.
    • (1997) Age Ageing , vol.26 , Issue.SUPPL. 2 , pp. 27-30
    • Sgadari, A.1    Morris, J.N.2    Fries, B.E.3    Ljunggren, G.4    Jónsson, P.V.5
  • 5
    • 0033058532 scopus 로고    scopus 로고
    • The Geriatric Minimum Data Set (Gemidas) of the Federal Association of Clinical Geriatric Facilities e. V. as an instrument for quality assurance in inpatient geriatrics
    • doi:10.1007/s003910050076. PubMed: 10408020
    • Borchelt M, Vogel W, Steinhagen-Thiessen E (1999) The Geriatric Minimum Data Set (Gemidas) of the Federal Association of Clinical Geriatric Facilities e. V. as an instrument for quality assurance in inpatient geriatrics. Z Gerontol Geriatr 32: 11-23. doi:10.1007/s003910050076. PubMed: 10408020.
    • (1999) Z Gerontol Geriatr , vol.32 , pp. 11-23
    • Borchelt, M.1    Vogel, W.2    Steinhagen-Thiessen, E.3
  • 6
    • 41349112935 scopus 로고    scopus 로고
    • The geriatric minimum data set for clinical trials (GMDS)
    • doi:10.1007/BF02982620. PubMed: 18309442
    • Abellan Van Kan G, Sinclair A, Andrieu S, Olde Rikkert M, Gambassi G et al. (2008) The geriatric minimum data set for clinical trials (GMDS). J Nutr Health Aging 12: 197-200. doi:10.1007/BF02982620. PubMed: 18309442.
    • (2008) J Nutr Health Aging , vol.12 , pp. 197-200
    • Abellan Van Kan, G.1    Sinclair, A.2    Andrieu, S.3    Olde Rikkert, M.4    Gambassi, G.5
  • 7
    • 0031980553 scopus 로고    scopus 로고
    • Estimating total Barthel scores from just three items: The European Stroke Database 'minimum dataset' for assessing functional status at discharge from hospital
    • doi:10.1093/ageing/27.2.115. PubMed: 16296670
    • Ellul J, Watkins C, Barer D (1998) Estimating total Barthel scores from just three items: the European Stroke Database 'minimum dataset' for assessing functional status at discharge from hospital. Age Ageing 27: 115-122. doi:10.1093/ageing/27.2.115. PubMed: 16296670.
    • (1998) Age Ageing , vol.27 , pp. 115-122
    • Ellul, J.1    Watkins, C.2    Barer, D.3
  • 8
    • 83255188855 scopus 로고    scopus 로고
    • Sharing of research data
    • doi:10.1016/S0140-6736(11)61871-0. PubMed: 22153199
    • Melis RJ, Vehof H, Baars L, Rietveld MC, Olde Rikkert MG (2011) Sharing of research data. Lancet 378: 1995. doi:10.1016/S0140-6736(11)61871-0. PubMed: 22153199.
    • (2011) Lancet , vol.378 , pp. 1995
    • Melis, R.J.1    Vehof, H.2    Baars, L.3    Rietveld, M.C.4    Olde Rikkert, M.G.5
  • 9
    • 84891870945 scopus 로고    scopus 로고
    • (available in Dutch only). Available: Accessed May 13 2013
    • Sociaal en Cultureel Sociaal Planbureau Statusscores (available in Dutch only). Available: http://www.scp.nl/Onderzoek/Lopend-onderzoek/A-Z-alle-lopende- onderzoeken/Statusscores. Accessed May 13 2013
    • Sociaal en Cultureel Sociaal Planbureau Statusscores
  • 10
    • 84871739371 scopus 로고    scopus 로고
    • (in Dutch only). Available: Accessed March 13 2013
    • Lokale en nationale monitor gezondheid (in Dutch only). Available: https://www.monitorgezondheid.nl/gezondheidindicatoren.aspx. Accessed March 13 2013
    • Lokale en Nationale Monitor Gezondheid
  • 11
    • 0029952658 scopus 로고    scopus 로고
    • EuroQol: The current state of play
    • doi:10.1016/0168-8510(96)00822-6. PubMed: 10158943
    • Brooks R (1996) EuroQol: the current state of play. Health Policy 37: 53-72. doi:10.1016/0168-8510(96)00822-6. PubMed: 10158943.
    • (1996) Health Policy , vol.37 , pp. 53-72
    • Brooks, R.1
  • 12
    • 22144442495 scopus 로고    scopus 로고
    • Quality of life in older people: A structured review of generic self-assessed health instruments
    • doi:10.1007/s11136-005-1743-0. PubMed: 16119178
    • Haywood KL, Garratt AM, Fitzpatrick R (2005) Quality of life in older people: a structured review of generic self-assessed health instruments. Qual Life Res 14: 1651-1668. doi:10.1007/s11136-005-1743-0. PubMed: 16119178.
    • (2005) Qual Life Res , vol.14 , pp. 1651-1668
    • Haywood, K.L.1    Garratt, A.M.2    Fitzpatrick, R.3
  • 13
    • 0033120979 scopus 로고    scopus 로고
    • The effect of adding a cognitive dimension to the EuroQol multiattribute health-status classification system
    • doi:10.1016/S0895-4356(98)00163-2. PubMed: 10235169
    • Krabbe PF, Stouthard ME, Essink-Bot ML, Bonsel GJ (1999) The effect of adding a cognitive dimension to the EuroQol multiattribute health-status classification system. J Clin Epidemiol 52: 293-301. doi:10.1016/S0895-4356(98) 00163-2. PubMed: 10235169.
    • (1999) J Clin Epidemiol , vol.52 , pp. 293-301
    • Krabbe, P.F.1    Stouthard, M.E.2    Essink-Bot, M.L.3    Bonsel, G.J.4
  • 15
    • 0034922874 scopus 로고    scopus 로고
    • The RAND-36 measure of health-related quality of life
    • doi:10.3109/07853890109002089. PubMed: 11491194
    • Hays RD, Morales LS (2001) The RAND-36 measure of health-related quality of life. Ann Med 33: 350-357. doi:10.3109/07853890109002089. PubMed: 11491194.
    • (2001) Ann Med , vol.33 , pp. 350-357
    • Hays, R.D.1    Morales, L.S.2
  • 18
    • 0026659155 scopus 로고
    • Comparing proxy and patients' perceptions of patients' functional status: Results from an outpatient geriatric clinic
    • PubMed: 1587975
    • Weinberger M, Samsa GP, Schmader K, Greenberg SM, Carr DB et al. (1992) Comparing proxy and patients' perceptions of patients' functional status: results from an outpatient geriatric clinic. J Am Geriatr Soc 40: 585-588. PubMed: 1587975.
    • (1992) J Am Geriatr Soc , vol.40 , pp. 585-588
    • Weinberger, M.1    Samsa, G.P.2    Schmader, K.3    Greenberg, S.M.4    Carr, D.B.5
  • 19
    • 84864544941 scopus 로고    scopus 로고
    • Models and measurement in disability: An international review
    • doi:10.1093/heapol/czr047. PubMed: 21729911
    • Palmer M, Harley D (2012) Models and measurement in disability: an international review. Health Policy Plan 27: 357-364. doi:10.1093/heapol/czr047. PubMed: 21729911.
    • (2012) Health Policy Plan , vol.27 , pp. 357-364
    • Palmer, M.1    Harley, D.2
  • 20
    • 79954989307 scopus 로고    scopus 로고
    • Variability in measuring (instrumental) activities of daily living functioning and functional decline in hospitalized older medical patients: A systematic review
    • doi:10.1016/j.jclinepi.2010.07.005. PubMed: 21074969
    • Buurman BM, van Munster BC, Korevaar JC, de Haan RJ, de Rooij SE (2011) Variability in measuring (instrumental) activities of daily living functioning and functional decline in hospitalized older medical patients: a systematic review. J Clin Epidemiol 64: 619-627. doi:10.1016/j.jclinepi.2010.07.005. PubMed: 21074969.
    • (2011) J Clin Epidemiol , vol.64 , pp. 619-627
    • Buurman, B.M.1    Van Munster, B.C.2    Korevaar, J.C.3    De Haan, R.J.4    De Rooij, S.E.5
  • 21
    • 0035681146 scopus 로고    scopus 로고
    • Psychometric properties of the RAND-36 among three chronic diseases (multiple sclerosis, rheumatic diseases and COPD) in The Netherlands
    • doi:10.1023/A:1013131617125. PubMed: 11822796
    • Moorer P, Suurmeije ThP, Foets M, Molenaar IW (2001) Psychometric properties of the RAND-36 among three chronic diseases (multiple sclerosis, rheumatic diseases and COPD) in The Netherlands. Qual Life Res 10: 637-645. doi:10.1023/A:1013131617125. PubMed: 11822796.
    • (2001) Qual Life Res , vol.10 , pp. 637-645
    • Moorer, P.1    Suurmeije, T.2    Foets, M.3    Molenaar, I.W.4
  • 22
    • 33646547600 scopus 로고    scopus 로고
    • Measurement of informal care: An empirical study into the valid measurement of time spent on informal caregiving
    • doi:10.1002/hec.1075. PubMed: 16389664
    • van den Berg B, Spauwen P (2006) Measurement of informal care: an empirical study into the valid measurement of time spent on informal caregiving. Health Econ 15: 447-460. doi:10.1002/hec.1075. PubMed: 16389664.
    • (2006) Health Econ , vol.15 , pp. 447-460
    • Van Den Berg, B.1    Spauwen, P.2
  • 23
    • 0141483306 scopus 로고    scopus 로고
    • Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers
    • doi:10.1016/S0885-3924(03)00327-0. PubMed: 14527761
    • Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM (2003) Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manage 26: 922-953. doi:10.1016/S0885-3924(03)00327-0. PubMed: 14527761.
    • (2003) J Pain Symptom Manage , vol.26 , pp. 922-953
    • Deeken, J.F.1    Taylor, K.L.2    Mangan, P.3    Yabroff, K.R.4    Ingham, J.M.5
  • 24
    • 33747092324 scopus 로고    scopus 로고
    • The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations
    • doi:10.1007/s11136-005-5994-6. PubMed: 16900281
    • Brouwer WB, van Exel NJ, van Gorp B, Redekop WK (2006) The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res 15: 1005-1021. doi:10.1007/s11136-005-5994-6. PubMed: 16900281.
    • (2006) Qual Life Res , vol.15 , pp. 1005-1021
    • Brouwer, W.B.1    Van Exel, N.J.2    Van Gorp, B.3    Redekop, W.K.4
  • 25
    • 77749306261 scopus 로고    scopus 로고
    • Meta-analysis of individual participant data: Rationale, conduct, and reporting
    • doi: 10.1136/bmj.c221. PubMed: 20139215
    • Riley RD, Lambert PC, Abo-Zaid G (2010) Meta-analysis of individual participant data: rationale, conduct, and reporting. BMJ 340: c221. doi: 10.1136/bmj.c221. PubMed: 20139215.
    • (2010) BMJ , vol.340
    • Riley, R.D.1    Lambert, P.C.2    Abo-Zaid, G.3
  • 26
    • 0034685429 scopus 로고    scopus 로고
    • Meta-analysis of observational studies in epidemiology: A proposal for reporting
    • Meta-Analysis of Observational Studies in Epidemiology (MOOSE). Group - doi:10.1001/jama.283.15.2008
    • Stroup DF, Berlin JA, Morton SC, Olkin I, Williamson GD et al. (2000) Meta-analysis of observational studies in epidemiology: a proposal for reporting. Meta-Analysis of Observational Studies in Epidemiology (MOOSE). Group - JAMA 283: 2008-2012. doi:10.1001/jama.283.15.2008.
    • (2000) JAMA , vol.283 , pp. 2008-2012
    • Stroup, D.F.1    Berlin, J.A.2    Morton, S.C.3    Olkin, I.4    Williamson, G.D.5
  • 27
    • 0035974331 scopus 로고    scopus 로고
    • Two-stage methods for the analysis of pooled data
    • doi: 10.1002/sim.852. PubMed: 11439425
    • Stukel TA, Demidenko E, Dykes J, Karagas MR (2001) Two-stage methods for the analysis of pooled data. Stat Med 20: 2115-2130. doi: 10.1002/sim.852. PubMed: 11439425.
    • (2001) Stat Med , vol.20 , pp. 2115-2130
    • Stukel, T.A.1    Demidenko, E.2    Dykes, J.3    Karagas, M.R.4
  • 28
    • 84874422422 scopus 로고    scopus 로고
    • Frailty in elderly people
    • doi:10.1016/S0140-6736(12)62167-9. PubMed: 23395245
    • Clegg A, Young J, Iliffe S, Olde Rikkert M, Rockwood K (2013) Frailty in elderly people. Lancet 381: 752-762. doi:10.1016/S0140-6736(12)62167-9. PubMed: 23395245.
    • (2013) Lancet , vol.381 , pp. 752-762
    • Clegg, A.1    Young, J.2    Iliffe, S.3    Olde Rikkert, M.4    Rockwood, K.5
  • 30
    • 0036756749 scopus 로고    scopus 로고
    • The mortality rate as a function of accumulated deficits in a frailty index
    • doi:10.1016/S0047-6374(02)00082-9. PubMed: 12425952
    • Mitnitski AB, Mogilner AJ, MacKnight C, Rockwood K (2002) The mortality rate as a function of accumulated deficits in a frailty index. Mech Ageing Dev 123: 1457-1460. doi:10.1016/S0047-6374(02)00082-9. PubMed: 12425952.
    • (2002) Mech Ageing Dev , vol.123 , pp. 1457-1460
    • Mitnitski, A.B.1    Mogilner, A.J.2    MacKnight, C.3    Rockwood, K.4
  • 31
    • 84865550317 scopus 로고    scopus 로고
    • The frailty index in Europeans: Association with age and mortality
    • doi: 10.1093/ageing/afs051. PubMed: 22522775
    • Romero-Ortuno R, Kenny RA (2012) The frailty index in Europeans: association with age and mortality. Age Ageing 41: 684-689. doi: 10.1093/ageing/afs051. PubMed: 22522775.
    • (2012) Age Ageing , vol.41 , pp. 684-689
    • Romero-Ortuno, R.1    Kenny, R.A.2
  • 32
    • 84878440242 scopus 로고    scopus 로고
    • Changing risk of perioperative myocardial infarction
    • PubMed: 23251110
    • Larsen KD, Rubinfeld IS (2012) Changing risk of perioperative myocardial infarction. Perm J 16: 4-9. PubMed: 23251110.
    • (2012) Perm J , vol.16 , pp. 4-9
    • Larsen, K.D.1    Rubinfeld, I.S.2
  • 33
    • 24044485648 scopus 로고    scopus 로고
    • A global clinical measure of fitness and frailty in elderly people
    • doi:10.1503/cmaj.050051. PubMed: 16129869
    • Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB et al. (2005) A global clinical measure of fitness and frailty in elderly people. CMAJ 173: 489-495. doi:10.1503/cmaj.050051. PubMed: 16129869.
    • (2005) CMAJ , vol.173 , pp. 489-495
    • Rockwood, K.1    Song, X.2    MacKnight, C.3    Bergman, H.4    Hogan, D.B.5
  • 34
    • 84891842663 scopus 로고    scopus 로고
    • Available: Accessed March 5 2013
    • Wellcome Trust (Public health research data forum. Available: http://www.wellcome.ac.uk/About-us/Policy/Spotlight-issues/Data-sharing/ Public-health-and-epidemiology/WTDV030689.htm. Accessed March 5 2013
    • Public Health Research Data Forum
  • 35
    • 79951549353 scopus 로고    scopus 로고
    • Sharing research data to improve public health
    • doi:10.1016/S0140-6736(10)62234-9. PubMed: 21216456
    • Walport M, Brest P (2011) Sharing research data to improve public health. Lancet 377: 537-539. doi:10.1016/S0140-6736(10)62234-9. PubMed: 21216456.
    • (2011) Lancet , vol.377 , pp. 537-539
    • Walport, M.1    Brest, P.2
  • 36
    • 79955908646 scopus 로고    scopus 로고
    • Science as a public enterprise: The case for open data
    • doi: 10.1016/S0140-6736(11)60647-8. PubMed: 21571134
    • Boulton G, Rawlins M, Vallance P, Walport M (2011) Science as a public enterprise: the case for open data. Lancet 377: 1633-1635. doi: 10.1016/S0140-6736(11)60647-8. PubMed: 21571134.
    • (2011) Lancet , vol.377 , pp. 1633-1635
    • Boulton, G.1    Rawlins, M.2    Vallance, P.3    Walport, M.4
  • 37
    • 36248970413 scopus 로고    scopus 로고
    • Sharing detailed research data is associated with increased citation rate
    • doi: 10.1371/journal.pone.0000308. PubMed: 17375194
    • Piwowar HA, Day RS, Fridsma DB (2007) Sharing detailed research data is associated with increased citation rate. PLOS ONE 2: e308. doi: 10.1371/journal.pone.0000308. PubMed: 17375194.
    • (2007) PLOS ONE , vol.2
    • Piwowar, H.A.1    Day, R.S.2    Fridsma, D.B.3
  • 38
    • 70349464471 scopus 로고    scopus 로고
    • Empirical study of data sharing by authors publishing in PLoS journals
    • doi:10.1371/journal.pone.0007078. PubMed: 19763261
    • Savage CJ, Vickers AJ (2009) Empirical study of data sharing by authors publishing in PLoS journals. PLOS ONE 4: e7078. doi:10.1371/journal.pone. 0007078. PubMed: 19763261.
    • (2009) PLOS ONE , vol.4
    • Savage, C.J.1    Vickers, A.J.2
  • 39
    • 0035928482 scopus 로고    scopus 로고
    • Code of conduct is needed for publishing raw data
    • doi:10.1136/bmj.323.7305.166/a. PubMed: 11463695
    • Eysenbach G, Sa ER (2001) Code of conduct is needed for publishing raw data. BMJ 323: 166. doi:10.1136/bmj.323.7305.166/a. PubMed: 11463695.
    • (2001) BMJ , vol.323 , pp. 166
    • Eysenbach, G.1    Sa, E.R.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.