Muscle invasive bladder cancer: Examining survivor burden and unmet needs

Journal of Urology

Volumn 191, Issue 1, 2014, Pages 48-53

  Mohamed, Nihal E ^a   Chaoprang Herrera, Phapichaya ^a   Hudson, Shawna ^d   Revenson, Tracey A ^b   Lee, Cheryl T ^e   Quale, Diane Z ^f   Zarcadoolas, Christina ^c   Hall, Simon J ^a   Diefenbach, Michael A ^a  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b CITY UNIVERSITY OF NEW YORK   (United States)

^c CITY UNIVERSITY OF NEW YORK   (United States)

^d ROBERT WOOD JOHNSON MEDICAL SCHOOL   (United States)

^e UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^f Bladder Cancer Advocacy Network   (United States)

Author keywords

health services needs and demands; neoplasm invasiveness; quality of life; survivors; urinary bladder neoplasms

Indexed keywords

ANTINEOPLASTIC AGENT;

ADULT; ADVERSE OUTCOME; AGED; ARTICLE; BODY IMAGE; CANCER ADJUVANT THERAPY; CANCER SURGERY; CANCER SURVIVOR; CATHETER; CLINICAL ARTICLE; CYSTECTOMY; DEPRESSION; ENTEROPATHY; FEMALE; HEALTH CARE NEED; HEALTH INSURANCE; HUMAN; ILLNESS TRAJECTORY; INCONTINENCE; MALE; MEDICAL DEVICE; MEDICAL INFORMATION; MUSCLE INVASIVE BLADDER CANCER; PAIN; PATIENT PARTICIPATION; PATIENT WORRY; POSTOPERATIVE CARE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; SELF CARE; SEXUAL FUNCTION; STOMA; URINARY DIVERSION; CANCER RECURRENCE; DEEP VEIN THROMBOSIS; ILEAL CONDUIT; INCISIONAL HERNIA; KIDNEY DISEASE; PATIENT CARE; POSTOPERATIVE COMPLICATION; TUMOR VOLUME; URINARY TRACT INFECTION;

BC; BLADDER CANCER; HEALTH SERVICES NEEDS AND DEMANDS; ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI; ILLNESS TRAJECTORY MODEL; ISMMS; ITM; MIBC; MUSCLE INVASIVE BLADDER CANCER; NEOPLASM INVASIVENESS; QOL; QUALITY OF LIFE; SURVIVORS; URINARY BLADDER NEOPLASMS;

AGED; AGED, 80 AND OVER; COST OF ILLNESS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MIDDLE AGED; PATIENT CARE MANAGEMENT; QUALITY OF LIFE; SELF CARE; URINARY BLADDER NEOPLASMS;

EID: 84890129373     PISSN: 00225347     EISSN: 15273792     Source Type: Journal    
DOI: 10.1016/j.juro.2013.07.062     Document Type: Article

References (30)

1. M. Borch, D. Heffler, and C. Lee Bladder Cancer Basics for the Newly Diagnosed 2008 Bladder Cancer Advocacy Network Bethesda
2. J. Hardt, D. Filipas, and R. Hohenfellner Quality of life in patients with bladder carcinoma after cystectomy: first results of a prospective study Qual Life Res 9 2009 1
3. J.P. Stein, G. Lieskovsky, and R. Cote Radical cystectomy in the treatment of invasive bladder cancer: long-term results in 1,054 patients J Clin Oncol 19 2001 666
4. T. Krupski, and D. Theodorescu Orthotopic neobladder following cystectomy: indications, management, and outcomes J Wound Ostomy Continence 28 2001 37
5. U.E. Studer, H. Danuser, and W. Hochreiter Summary of 10 years' experience with an ileal low-pressure bladder substitute combined with an afferent tubular isoperistaltic segment World J Urol 14 1996 29
6. W.H. Turner, and U.E. Studer Cystectomy and urinary diversion J Surg Oncol 13 1997 350
7. N.E. Mohamed, M.A. Diefenbach, and H.H. Goltz Muscle Invasive bladder cancer: from diagnosis to survivorship Adv Urol 2012 2012 1
8. B.H. Osse, M.J. Vernooij-Dassen, and B.P. de Vree Assessment of the need for palliative care as perceived by individual cancer patients and their families: a review of instruments for improving patient participation in palliative care Cancer 88 2000 900
9. J.M. Corbin, and A. Strauss A Nursing Model for Chronic Illness Management Based upon the Trajectory Framework 1992 Springer Publications New York
10. A.L. Stanton, T. Revenson, and H. Tennen Health psychology: Psychological adjustment to chronic disease Annu Rev Psychol 58 2007 565
11. L.J. Rutten, N.K. Arora, and A.D. Bakos Information needs and sources of information among cancer patients: a systematic review of research (1980-2003) Patient Educ Couns 57 2005 250
12. W.W. Li, W.W. Lam, and A.H. Au Interpreting differences in patterns of supportive care needs between patients with breast cancer and patients with colorectal cancer Psychooncology 22 2013 792
13. B.F. Crabtree, and W.L. Miller Doing Qualitative Research 2nd ed. 1999 Sage Publications Thousand Oaks, California
14. A. Strauss, and J. Corbin Basics of Qualitative Research: Grounded Theory Procedures and Techniques 1990 Sage Publications Newbury Park, California
15. F. Rabiee Focus-group interview and data analysis Proc Nutr Soc 63 2004 655
16. J. Krueger Accentuation effects and illusory change in exemplar-based category learning Eur J Soc Psychol 21 1991 37
17. A.L. Stanton Psychosocial concerns and interventions for cancer survivors J Clin Oncol 31 2006 5132
18. K. Beaver, S. Latif, and S. Williamson An exploratory study of the follow-up care needs of patients treated for colorectal cancer J Clin Nurs 19 2010 3291
19. K.Y. Wen, and D.H. Gustafson Needs assessment for cancer patients and their families Health Qual Life Outcomes 2 2004 11
20. J.M. Travaline, R. Ruchinskas, and G.E. D'Alonzo Jr. Patient-physician communication: why and how J Am Osteopath Assoc 105 2005 13
21. National Comprehensive Cancer Network: NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®): Distress Management. Available at http://www.nccn.org/professionals/physician-gls/f-guidelines.asp. Accessed March 25, 2013.
22. P.B. Jacobsen, and S. Ransom Implementation of NCCN distress management guidelines by member institutions JNCCN 5 2007 99
23. B. Borwell Rehabilitation and stoma care: addressing the psychological needs Br J Nurs 18 suppl 2009 S20
24. Y.L. Li, and W.J. Chi Global nursing shortage: a literature review Show Chwan Med J 8 2008 65
25. K.T. Fan, and M.S. Chen A preliminary analysis of the increasing workforce of hospital nurses in Taiwan Chin J Publ Health 28 2009 26
26. M.C. Zheng, J.E. Zhangb, and H.Y. Qinc Telephone follow-up for patients returning home with colostomies: views and experiences of patients and enterostomal nurses Eur J Oncol Nurs 17 2013 184
27. G. O'Connor Teaching stoma-management skills: the importance of self-care Br J Nurs 14 2005 320
28. D. Crawford, T. Texter, and K. Hurt Traditional nurse instruction versus 2 session nurse instruction plus DVD for teaching ostomy care J Wound Ostomy Continence 39 2012 529
29. R.S. Krouse, L.J. Herrinton, and M. Grant Health-related quality of life among long-term rectal cancer survivors with an ostomy: manifestations by sex J Clin Oncol 27 2009 4664
30. L. Richbourg, J.M. Thorpe, and C.G. Rapp Difficulties experienced by the ostomate after hospital discharge J Wound Ostomy Continence 34 2007 70