-
1
-
-
81255158694
-
Genetics of sudden cardiac death
-
doi:10.1007/s11887-011-0119-y
-
Barsheshet, A., Brenyo, A., Moss, A. J., & Goldenberg, I. (2011). Genetics of sudden cardiac death. Current Cardiology Reports, 13(5), 364-376. doi:10.1007/s11887-011-0119-y
-
(2011)
Current Cardiology Reports
, vol.13
, Issue.5
, pp. 364-376
-
-
Barsheshet, A.1
Brenyo, A.2
Moss, A.J.3
Goldenberg, I.4
-
2
-
-
0001797476
-
The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices
-
P. Benner. Thousand Oaks, CA: Sage.
-
Benner, P. (1994). The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices. In P. Benner (Ed.), Interpretive phenomenology: Embodiment, caring, and ethics in health and illness (pp. 99-127). Thousand Oaks, CA: Sage.
-
(1994)
Interpretive phenomenology: Embodiment, caring, and ethics in health and illness
, pp. 99-127
-
-
Benner, P.1
-
3
-
-
79952900804
-
Parent's experiences of having an asymptomatic child diagnosed with hypertrophic cardiomyopathy through family screening
-
doi:10.1017/S1047951110001290
-
Bratt, E. L., Ostman-Smith, I., Sparud-Lundin, C., & Axelsson, B. A. (2011). Parent's experiences of having an asymptomatic child diagnosed with hypertrophic cardiomyopathy through family screening. Cardiology in the Young, 21, 8-14. doi:10.1017/S1047951110001290
-
(2011)
Cardiology in the Young
, vol.21
, pp. 8-14
-
-
Bratt, E.L.1
Ostman-Smith, I.2
Sparud-Lundin, C.3
Axelsson, B.A.4
-
4
-
-
63749118338
-
Quality of life and psychological distress in hypertrophic cardiomyopathy mutation carriers: A cross sectional cohort study
-
doi:10.1002/ajmg.a32710
-
Christiaans, I., van Langen, I. M., Birnie, E., Bonsel, G. J., Wilde, A. A. M., & Smets, E. M. A. (2009). Quality of life and psychological distress in hypertrophic cardiomyopathy mutation carriers: A cross sectional cohort study. American Journal of Medical Genetics, 149A, 602-612. doi:10.1002/ajmg.a32710
-
(2009)
American Journal of Medical Genetics
, vol.149 A
, pp. 602-612
-
-
Christiaans, I.1
van Langen, I.M.2
Birnie, E.3
Bonsel, G.J.4
Wilde, A.A.M.5
Smets, E.M.A.6
-
5
-
-
70349487096
-
Keeping the individual and family in focus
-
S. M. Miller, S. H. McDaniel, J. S. Rolland, & S. L. Feetham (Eds.), pp. -). New York: W. W. Norton & Company.
-
Feetham, S. L., & Thomson, E. J. (2006). Keeping the individual and family in focus. In S. M. Miller, S. H. McDaniel, J. S. Rolland, & S. L. Feetham (Eds.), Individuals, families, and the new era of genetics (pp. 3-35). New York: W. W. Norton & Company.
-
(2006)
Individuals, families, and the new era of genetics
, pp. 3-35
-
-
Feetham, S.L.1
Thomson, E.J.2
-
6
-
-
77952305563
-
Parental knowledge and attitudes toward hypertrophic cardiomyopathy genetic testing
-
doi:10.1007/s00246-009-9583-2
-
Fitzgerald-Butt, S. M., Byrne, L., Gerhardt, C. A., Vannatta, K., Hoffman, T. M., & McBride, K. L. (2010). Parental knowledge and attitudes toward hypertrophic cardiomyopathy genetic testing. Pediatric Cardiology, 31, 195-202. doi:10.1007/s00246-009-9583-2
-
(2010)
Pediatric Cardiology
, vol.31
, pp. 195-202
-
-
Fitzgerald-Butt, S.M.1
Byrne, L.2
Gerhardt, C.A.3
Vannatta, K.4
Hoffman, T.M.5
McBride, K.L.6
-
7
-
-
0141921347
-
To tell or not to tell: Barriers and facilitators in family communication about genetic risk
-
doi:10.1034/j.1399-0004.2003.00142x
-
Forrest, K., Simpson, S. A., Wilson, B. J., van Teijlingen, E. R., McKee, L., Haies, N., & Matthews, E. (2003). To tell or not to tell: Barriers and facilitators in family communication about genetic risk. Clinical Genetics, 64, 317-326. doi:10.1034/j.1399-0004.2003.00142x
-
(2003)
Clinical Genetics
, vol.64
, pp. 317-326
-
-
Forrest, K.1
Simpson, S.A.2
Wilson, B.J.3
van Teijlingen, E.R.4
McKee, L.5
Haies, N.6
Matthews, E.7
-
8
-
-
34848813214
-
Process and outcome in communication of genetic information within families: A systematic review
-
doi:10.1038/sj.ejhg.5201883
-
Gaff, C. L., Clarke, A. J., Atkinson, P., Sivell, S., Elwyn, G., Iredale, R., Edwards, A. (2007). Process and outcome in communication of genetic information within families: A systematic review. European Journal of Human Genetics, 15, 999-1011. doi:10.1038/sj.ejhg.5201883
-
(2007)
European Journal of Human Genetics
, vol.15
, pp. 999-1011
-
-
Gaff, C.L.1
Clarke, A.J.2
Atkinson, P.3
Sivell, S.4
Elwyn, G.5
Iredale, R.6
Edwards, A.7
-
9
-
-
79958738939
-
Making genetics not so important: Family work in dealing with familial hypertrophic cardiomyopathy
-
doi:10.1016/j.socscimed2010.06.012
-
Geelen, E., Van Hoyweghen, I., & Horstman, K. (2011). Making genetics not so important: Family work in dealing with familial hypertrophic cardiomyopathy. Social Science & Medicine, 72, 1752-1759. doi:10.1016/j.socscimed2010.06.012
-
(2011)
Social Science & Medicine
, vol.72
, pp. 1752-1759
-
-
Geelen, E.1
Van Hoyweghen, I.2
Horstman, K.3
-
10
-
-
79951771804
-
Recent progress in the genetics of cardiomyopathy and its role in the clinical evaluation of patients with cardiomyopathy
-
doi:10.1097/HCO.0b013e3283439797
-
Ghosh, N., & Haddad, H. (2011). Recent progress in the genetics of cardiomyopathy and its role in the clinical evaluation of patients with cardiomyopathy. Current Opinion in Cardiology, 26, 155-164. doi:10.1097/HCO.0b013e3283439797
-
(2011)
Current Opinion in Cardiology
, vol.26
, pp. 155-164
-
-
Ghosh, N.1
Haddad, H.2
-
11
-
-
84858669699
-
Hypertrophic cardiomyopathy in 2012
-
doi:10.1161/CIRCULATIONAHA.110.017277
-
Ho, C. Y. (2012). Hypertrophic cardiomyopathy in 2012. Circulation, 125, 1432-1438. doi:10.1161/CIRCULATIONAHA.110.017277
-
(2012)
Circulation
, vol.125
, pp. 1432-1438
-
-
Ho, C.Y.1
-
13
-
-
0004245266
-
-
Chicago: University of Chicago Press.
-
Leder, D. (1990). The absent body. Chicago: University of Chicago Press.
-
(1990)
The absent body
-
-
Leder, D.1
-
14
-
-
0002958420
-
A tale of two bodies: The Cartesian corpse and the lived body
-
D. Leder. Boston: Kluwer Academic Publishers.
-
Leder, D. (1992). A tale of two bodies: The Cartesian corpse and the lived body. In D. Leder (Ed.), The body in medical thought and practice (pp. 17-35). Boston: Kluwer Academic Publishers.
-
(1992)
The body in medical thought and practice
, pp. 17-35
-
-
Leder, D.1
-
15
-
-
84890115459
-
-
March of Dimes Foundation. (Publication No. 31-2206-07). White Plains, NY: Author.
-
March of Dimes Foundation. (2007). Newborn screening pocket facts (Publication No. 31-2206-07). White Plains, NY: Author.
-
(2007)
Newborn screening pocket facts
-
-
-
16
-
-
62649113485
-
Sudden deaths in young competitive athletes: Analysis of 1866 deaths in the United States, 1980-2006
-
doi:10.1161/CIRCULATIONAHA.108.804617
-
Maron, B. J., Doerer, J. J., Haas, T. S., Tierney, D. M., Frederick, M. D., & Mueller, O. (2009). Sudden deaths in young competitive athletes: Analysis of 1866 deaths in the United States, 1980-2006. Circulation, 119(8), 1085-1092. doi:10.1161/CIRCULATIONAHA.108.804617
-
(2009)
Circulation
, vol.119
, Issue.8
, pp. 1085-1092
-
-
Maron, B.J.1
Doerer, J.J.2
Haas, T.S.3
Tierney, D.M.4
Frederick, M.D.5
Mueller, O.6
-
18
-
-
0024192277
-
Uncertainty in illness
-
doi:10.1111/j.1547-5069.1988.tb00082.x
-
Mishel, M. H. (1988). Uncertainty in illness. Journal of Nursing Scholarship, 20, 225-232. doi:10.1111/j.1547-5069.1988.tb00082.x
-
(1988)
Journal of Nursing Scholarship
, vol.20
, pp. 225-232
-
-
Mishel, M.H.1
-
19
-
-
78650169725
-
Impediments to DNA testing and cascade screening for hypertrophic cardiomyopathy and long QT syndrome: A qualitative study of patient experiences
-
doi:10.1007/s10897-010-9314-0
-
Smart, A. (2010). Impediments to DNA testing and cascade screening for hypertrophic cardiomyopathy and long QT syndrome: A qualitative study of patient experiences. Journal of Genetic Counseling, 19, 630-639. doi:10.1007/s10897-010-9314-0
-
(2010)
Journal of Genetic Counseling
, vol.19
, pp. 630-639
-
-
Smart, A.1
-
20
-
-
0034660438
-
Magnitude of left ventricular hypertrophy and risk of sudden death in hypertrophic cardiomyopathy
-
doi: 10.1056/NEJM200006153422403
-
Spirito, P., Bellone, P., Harris, K. M., Bernabo, P., Bruzzi, P., & Maron, B. J. (2000). Magnitude of left ventricular hypertrophy and risk of sudden death in hypertrophic cardiomyopathy. New England Journal of Medicine, 342(4), 1778-1785. doi: 10.1056/NEJM200006153422403
-
(2000)
New England Journal of Medicine
, vol.342
, Issue.4
, pp. 1778-1785
-
-
Spirito, P.1
Bellone, P.2
Harris, K.M.3
Bernabo, P.4
Bruzzi, P.5
Maron, B.J.6
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